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  1. Today
  2. @Tracey_66 Training in 2 languages has to be interesting! The audio from your implant should not cut out, even in protest...smile. Is it possible that when you are singing your implant is moving slightly and losing connection? Try singing while holding your Rondo 2 against your head. You may want to talk with your audiologist about the cutting out of sound.
  3. Glad that it all went well. Take it easy for now. Won't be long now before your activation date.
  4. I agree with everything said. For me I did the homework about the process and expectations while going through the assessments. It was clear from what I've read at the time that it was never going to be easy or a quick fix. Both the speech therapist and surgeon made it clear that it's not an over night thing. I am puzzled too. How some do think that to go for an implant that it will restore hearing over night. I suspect maybe because a cochlear implant/processor so different from a hearing aid, that it has all this technology, then it must be super fantastic and therefore provide superpower hearing quickly. An example, on the day of my activation, my parents when we got home, said " Can you hear anything?!!! Their expectations were based on their research regarding the technology of a CI implant. I have repeatedly said to them don't expect me to recognise sounds that quickly!!! My brain can only go at a certain speed! In 2016 my speech therapist then did not think in her view that I was capable to have one. Mainly, because of me being English my vocabulary range may not be of help in translating to Spanish, if you see what I mean. She didn't express this view till last month! It was after a lot of persistence and a new consultant/surgeon that I now have the Rondo 2. Definitely a mind set to it all. having been living in Spain for 14 years my Spanish was good but in the five years with no hearing I've lost it. I'm now in my second month with my Rondo2. I did surprisingly well in my 1 month test -----in spanish from scratch. ( she was surprised and pleased). ( my English rehab I do at home). I hear sounds, vocals that sound fluted and muted, when I whistle or sing (badly), it does cut out, perhaps in protest........😆
  5. Yesterday
  6. It’s tricky isn’t it? It could be unrealistic expectations, need for aural rehab training, need for a more skilled MAPping audiologist, need for reimplant due to poor electrode placement (although this could be solved by all surgeons taking images in the operating room like my CI center does and save everyone a lot of unnecessary trouble) or it could just be an ear that does not have enough neural survival to deliver adequate info to the brain. Tricky.
  7. I broke one (one of the collar clip long ones) by catching it in the zipper to my travel case, and one of the short ones for hair clips by catching the clip on a table edge and pulling kind of hard (what, me lack patience?). I don't really think either one counts against the tether because I abused them. I've thought about this and am not sure - I mean, @Jewel - what is it that you don't like, the material? The thing about that is that silicone is relatively strong and I like having a stretchy material. I don't know what else you could use. Urethane maybe, but I think it would stretch less. A lot of people seem to put fishing line on the clips, and that would be fine if you can get a good knot and you don't mind the lack of stretch. Just musing over what else could be used....
  8. You all pretty much nailed it. I've seen people complaining about how they don't work (or comparing them to hearing aids unfavorably) and always wonder if this is a person with a technical problem (like Joe had) or someone who just put on the processor and started complaining? I had weeks of poor sound. I have actually wondered whether some CI centers aren't doing all that well at outlining what happens after implantation.
  9. I started going deaf in my 20s and it took me 10 years to accept I was losing my hearing and get my first HA and then when I heard I needed CIs it took me 6 years to finally accept that fact. My mourning began the very first time my ENT told me I'm going deaf. I cried for the rest of the appointment straight to when I got home. Since I got the CI I often forget I'm deaf. But now that most people are wearing masks I'm reminded that I'm still deaf and now I'm not afraid to tell people up front that I'm deaf.
  10. I remember meeting with a local doctor about CIs late 2017.He had done a few implantations while studying abroad. From the one appointment he concluded that I was not ready to embark on this journey. I was most upset. If I wasn't serious I wouldn't have made the appointment to see him in thr first place. Thanks to this forum I knew the CI wouldn't be a quick fix but I am a goal getter. I will put in the required work needed to get the desired results. And so it was with that determination that I approached my journey. It isn't something that another person can do for you. You have to put in the work and keep positive. After activation I was quite disappointed that I couldn't make out speech but I just kept the processor on for most of my waking hours even when everything sounded like alien noises. Fortunately everything worked out.
  11. Last week
  12. Like you @Kylie I had ordered skinit designs prior to my surgery and was ready to deck out my FineTuner as soon as we returned home after activation. I still have that same skinit design cover on that FineTuner. It’s a sea turtle underwater scene. I am happy to show my CIs to anyone. They have changed my life.
  13. I agree with everything here. A good dose of a resilient and optimistic attitude is needed to make it worthwhile. Surely that is a significant factor! And as I was saying in a different thread - you need to find ways to 'own' it and for it to be a part of you. Not something you resent or feel you have no control over.
  14. @phobos512 I think people assume it is like cataract eye surgery!
  15. You are not kidding about the perception of a quick fix. On our Miata forum I posted yesterday about having had the surgery and one person asked if I was hearing better yet...
  16. @Mary Beth So true! It is a journey not a quick fix. Unfortunately, I think that is the urban legend out there that CIs are a quick fix. I’ve talked to people who were ready to hear better but when they found out that they had to rehab the ear and that sometimes the CI doesn’t work as wanted for up to 2 years, they backed away. Maybe one day those people I talked to will take the leap! I’m thrilled I took the leap and put in the hard work - it’s been so rewarding 😊 and you are right - when the timing is good, I’ll know and have the other ear done 🦻
  17. @Megan L. I agree with everything you wrote. And also that it is so important that someone is ready for the CI journey and not just looking for a quick fix. You will know if and when a second CI is right for you. Trust your instincts. On the morning of my second CI surgery I jumped out of bed and started singing happy birthday to my second ear. I was sooo ready.
  18. @Mary Beth I completely agree!! You definitely have to be in the right mindset to get the CI. It’s definitely hard work and I don’t think most people realize that when they firsts start considering a CI. Having a positive, optimistic, patient as well as dedicated personality helps a lot with everything after the surgery, in my opinion. When my parents meet someone who is considering a CI and they want to chat - I always tell them you have to be in the right mindset and commit to it for the desired results. The mindset portion is probably why I haven’t gotten the other ear done 🤷‍♀️ One day inspiration will strike for the other ear 😂
  19. When I read research on factors that predict success with a CI, they list medical info like length of deafness, etc. I appreciate that there are medical factors that may help predict success with a CI. But after living this CI journey, I think that there are mindsets, personalities, outlooks and behaviors that are equally important for success with a CI. Do you agree? What do you think helped you be successful with your CI?
  20. @Leila Riley I completely lost my right side hearing suddenly as an adult of 38 years so it was a big shock and yes I was angry and upset too. I quickly went into my usual pragmatic mode and researched all options and asked the specialists lots of questions. They recommended CI and I told them to put me on the waiting list immediately! While I was waiting I spent more time reading, including this forum which was ever so helpful as a 'real' resource of lived experiences. Nearly exactly a year after my hearing loss I had my surgery and I've been actively working on my recovery ever since. I found that being a part of the solution makes me feel more accepting, when I feel some control. During the waiting time I also did things like educate my friends and colleagues in advance, send them videos of what to expect and how to explain a CI, (I even watched a video of the actual surgery!) And I bought colourful decals ready to stick on. Again this all helped me come to terms with my situation - feeling prepared, informed, in control, and preparing my support networks. I still feel sad sometimes about it, it's been an incredibly emotional journey and I freely admit I have shed lots of tears (especially with my choir friends when I didn't know if I would continue to sing). I'm only a year since activation and it's not a 'perfect' sound but really I feel good that I'm doing all I can and I can still live my life. And I'm still singing!!!
  21. Unfortunately we don't have a recliner, yet. Or a couch. We never really set our apartment up, knowing it was going to only be for a year or less. We close on our house on or before 13 Aug so looking forward to that.
  22. @phobos512 I spent the first several days sleeping in a recliner and then sleeping propped up with lots of pillows in bed. You may find that more comfortable
  23. Wearing my contacts today for the first time since March. Glasses without one arm are annoying. Still a little bit of dizziness when I move rapidly. Very little pain. Haven't even taken an aspirin. Having dry mouth a little but it's manageable. Coughed up a little bit of blood early this morning but just once and only a little tiny bit. Got up a whole bunch over night; I hate sleeping on my back.
  24. @Jewel So many Rondo 2 users are talking about this same problem with the tether breaking so easily, maybe someone else here in HPs will post a picture.
  25. @Mary Beth I can't find the broken tether...
  26. Dr Christopher Tsang. We were at Inova Fairfax Hospital Surgery Center in Falls Church VA.
  27. Terrific Matt! Rest easy. Who was your surgeon? @phobos512
  28. Hey everyone! Back at home just now. Little bit of dizziness but nothing too bad. Raging tinnitus in right ear but I know that's to be expected. I am sure I am still feeling after effects of anesthesia some but very limited pain so far, mild discomfort I would say. Hospital staff were amazing, so great and nice to us and accommodating. Since end of January I have been drinking only water so wow was the apple juice they had for me a sugar bomb. Woo... Dry mouth but throat is not too sore. Anyway, that's about it for now. Going to rest a bit.
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