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Showing content with the highest reputation since 09/25/2021 in Posts

  1. Darlene Mac

    The WOW that never ends

    My first WOW moment was minutes after activation. I could hear these little beeps. I asked my audiologist what was beeping. She laughed and pointed to my husband sitting across the room...texting the kids. I could hear his phone beeping when he was dialing! After the surgery, all I wanted was to go to our cottage and see the ocean...my happy and healing place. As my audiologist recommended, I wasn't wearing my hearing aid...relying on the CI only! That was very scary. I was lying on the deck enjoying the sun, almost asleep, when I felt a tickle in my previously deaf left ear...I heard my husband say, "Dar, can you come here a minute?" It had been so long since I heard speech in that ear that I wasn't even sure I had heard it. I went into the house and asked if he'd called to me. I was in tears when I realized that I could hear with my left ear, and that my husband's voice was the first voice I heard. ❤️ Over the next few weeks, I must have driven my family and friends crazy asking, "What's that sound?" It was birdsong, crickets, peepers, the ocean waves, the cat purring, the dryer chime...so many things. With my CI, my life changed so much! Walking in the mall in November I could hear Christmas music. I could hear "Bad Moon Rising" playing on the radio in a restaurant. At a house party we were playing a trivia game, and I answered a question from another room, without even a pause. In the car I could converse with people in the back seat. At work, I could hear my littlest students reading aloud. I could use any phone. I could hear what was being said at the drive through at Tim Horton's. I can hear and understand the Blue Jay's baseball games on TV, while I'm reading a book...no closed captions! I don't have to be looking at people to hear them. This is huge! I'm so much more relaxed in social situations. I can follow multiple conversations, which is important when our big noisy family gets together. Now I am hearing our grandbabies giggle and laugh and make their soft little baby babbles. I am amazed by this technology and so very thankful for the joy it has brought me.
    3 points
  2. Joan

    October 2021 GoogleMeet chat

    Great to see everyone! Looking forward to several progress reports next month.😊
    2 points
  3. Darlene Mac

    The WOW that never ends

    @diana We also live in the country. There are so many wonderful and unique sounds. That reminds me of one WoW moment I almost forgot...honking geese! I nearly jumped out of my skin the first time I heard the geese flying overhead! 🙂
    2 points
  4. Kylie

    What does music sound like to you

    Yes I have used angel sounds as part of my music practise too. I began with the widest intervals (which were hard enough early on!) Then gradually moved to smaller intervals. I still find music the hardest part of rehab and the slowest to notice change but it is still improving 2 years on.
    2 points
  5. My daughter has SSD and had CI almost a year ago. She was 11 at the time. She had a tough 24 hours, mainly from the discomfort of having the surgical dressing/cup over her ear and surgical site. After that her pain was very manageable with Tylenol. She went from 0 word recognition on her deaf ear to now 85% at our last test in July. She won't admit to me that the CI has made a positive impact for her, but she certainly can identify words and sounds from her processor, which makes me think that she must be able to localize where sound is coming from. From the perspective of safety, I'd like to consider that a win.
    2 points
  6. Mary Beth

    New HearPeers Show & Tell one time GoogleMeet chats

    Recently I have been asked by several HP members about a GoogleMeet at a different time/day, a GoogleMeet that includes HP members with different brand CIs, a GoogleMeet about a specific topic. So let’s try to add something new to HearPeers. HearPeers Show & Tell one time GoogleMeet Chats If you have an interest in presenting at a HP Show & Tell one time GoogleMeet, post your interest and topic below. I will be glad to host your HP Show & Tell on my GoogleMeet account but you will be presenting the whole time. I will just attend as a participant. Possible ideas….. @Dennisjbr the innovative way you are using AudioLink with a BT adapter @pdk your website @John R your website and the organization you are involved with in Australia Many other HP members may be interested in presenting too. Open to all. Let’s keep helping each other in yet a new way.
    2 points
  7. pdk

    New HearPeers Show & Tell one time GoogleMeet chats

    I'll try and put something together during the week. It will be a useful exercise for me. Once done I'll send out an invite.
    2 points
  8. Kylie

    SSD at 21 now 50. scheduled for CI in a few months.

    This is an exciting time. I am also SSD and have found great benefit to having a CI. I hear so much more now in stereo!! Also definitely reduced my tinnitus.
    2 points
  9. John R

    New HearPeers Show & Tell one time GoogleMeet chats

    @Dianna Rehab tools and awareness is something my wife and I have become so passionate about, its a huge topic and certainly one that validates a dedicated session.
    2 points
  10. Dianna

    New HearPeers Show & Tell one time GoogleMeet chats

    I would attend for sure.
    2 points
  11. Kylie

    The WOW that never ends

    This is wonderful!!!! My favourite of yours is talking to people behind you in the car. That has made my life so much easier too with the kids always chatting away or wanting to sing along.
    2 points
  12. Darlene Mac

    Incredible Journey

    @Mary Beth Going from the Opus to the Sonnet 2 was a pretty easy transition. I usually don't like change, so at first I missed my Opus, just because that's what I was used to. I still do think the Opus had a better battery life, and was easier with regard to changing batteries. I liked that the Opus rechargeable battery was just basically a rectangular battery that went into a rectangular space. You couldn't do it wrong because the battery would only fit in one way. There were fewer little hooks to break. I know that the Sonnet2 is doing a whole lot more processing, thus uses more battery, so the battery lasts 10 hours instead of 12, which I loved in the Opus. I did have to take my Sonnet 2 back to my clinic to have the case cover replaced, and I was told that others had to do the same thing. But, the main thing for me is that I can hear as well with the Sonnet 2 as I did with the Opus...so I'm a happy camper!
    2 points
  13. Hicksy

    Any trouble with Sonnet rechargeable batteries

    I would like to say I use rechargeable batteries about 95% of the time. A little over 4 1/2 years with constantly rotating 7 batteries and I have had no problems at all except for losing one😀
    2 points
  14. Mary Beth

    November 2021 GoogleMeet for Med-El CI users and family

    This GoogleMeet chat is for Med-El CI users and families, as well as those considering a Med-El CI. Sunday November 14th 9:15 am New York time start time chat opens at 9:00 for socializing Google Meet with free live captioning Looking forward to our GoogleMeet chat. New HearPeers members are always welcome. If you are interested in an invite to this chat, please respond below. Thank you!
    1 point
  15. Shiyi Wang

    November 2021 GoogleMeet for Med-El CI users and family

    I am in
    1 point
  16. Dianna

    Meludia web based program & app

    One of the levels i reached was kind of game like, nice change.
    1 point
  17. Lauren

    November 2021 GoogleMeet for Med-El CI users and family

    I’m in
    1 point
  18. Kylie

    Speech banana - audiogram

    Here is a link to the 'speech banana' audiogram, showing the phonemes. https://en.wikipedia.org/wiki/Speech_banana - general page https://en.wikipedia.org/wiki/Speech_banana#/media/File:Speech_Banana_no_icons.png - picture itself @Mary Beth @Kirk S. @Joan @Dianna @Lauren @Dave in Pittsburgh
    1 point
  19. John R

    Bimodal Music streaming

    I would totally agree, for Music we have to get back to as natural a listening position and delivery system as possible. We can discuss Headphone brands another day 😊
    1 point
  20. Darlene Mac

    The WOW that never ends

    @HuroniaGirl Wow! We have a lot in common. Before my CI, my right ear was my 'good' ear. I still wear my HA in that ear, mostly for balance. Like you, when I take off my processor, I can't believe how hushed the world is with just my hearing aid! The things I was missing! I am also forever grateful for our healthcare plan and for the wonderful care I received from the entire staff during my surgery. My surgeon is my hero; not only did he do an excellent job with my implant, he actually held my hand until I fell asleep. I'm so happy you had your surgery and are having wonderful wow moments. My wish for you is that every day has a WoW moment! Enjoy the ride, eh! 🍁 😀
    1 point
  21. Mary Beth

    The WOW that never ends

    @Darlene Mac Honking geese is one of my WOW moments too! I recall the first time I heard a flock of honking geese and realized I could hear their individual honks! So cool!
    1 point
  22. Kylie

    Favorite music apps

    I found the meludia app and have just started working with that. Thanks!
    1 point
  23. Dianna

    Will it sound strange with one normal ear and one CI hearing ?

    Hi there...i have ci in left ear, need a new ha for right. I stream alot with music, its basically direct to ci. The only time i feel like i have two different sounds is when i am watching/listening to a regular tv using the eas system (sonnet 2) which utilizes the speakers on the sonnet, so its half electronic and half accoustic. Its been 6 weeks since activation and the "double" sound is nearly gone. I probably need to do more speaker listening but i go to a room and stream directly to ci. When i stream directly, i can watch tv and now can hear nearly all voices with no closed captions! My word understanding is now 80 to 90 percent vs 50 percent prior to ci. So i did have residual prior to ci and may have lost some but totally happy that i implanted, and i know that i will continue to improve with practice!!!! My inclination is to implant the right ear since im so happy with the left, but i will do the ha first as i am told it helps more with music. I just returned from a short trip to michigan, eating in crowded restaurants for the first time, and with lots of masks being worn. I could still hear my companions amongst all the many loud sounds around. I was pleased as punch! My audi has not given me asm or controls other than volume i consider it a huge win! Hope you are proceeding with ci, its a life changer!
    1 point
  24. Shiyi Wang

    Novel auditory nerve implant

    This is sooo cool!
    1 point
  25. Sharon Penney

    Sonnet 2 versus Rondo 3

    Thank you so much for your input. This helps a lot with coming to a decision. I had been leaning towards the Sonnet 2 and the disposable batteries.
    1 point
  26. right ear dream

    SSD at 21 now 50. scheduled for CI in a few months.

    Hello everyone. I had normal hearing and woke up one morning at 21 years old with single sided deafness and immediate tinnitus in my right ear. I have had no issues with my hearing until that point and specialists at the time said it was probably a virus but they really didn't know. was not a candidate for a hearing aid as words were all muffled. my left ear is normal and I simply carried on with life as best I could. fast forward 29 years later - 4 months ago all of a sudden my tinnitus got much louder in my right ear and I started to get tinnitus in my left (normal ear). got scared and went to see the specialist and was informed that I am a candidate for a CI for my right ear. Will be getting it done in March 2022 at Sunnybrook hospital in Toronto. I believe it will be a Med-El system with rondo 3 hands free. I'm a healthy individual and have no other health problems yet I am very nervous. I am really excited about the possibility of getting hearing back in my right ear and hopefully a reduction in my tinnitus as well. I am trying my best to be as fit as possible (health wise and mentally) for the surgery in a few months. My surgeon said that the rehab should go well as he sees that I will put in the work and that 'I'm a smart guy' (I'm a professor) - not sure how that is going to help me. Any advice would be much appreciated.
    1 point
  27. Mary Beth

    New HearPeers Show & Tell one time GoogleMeet chats

    @John R or even more than one dedicated HP show and tell
    1 point
  28. Dianna

    Music Appreciation and CI's

    Hi huroniagirl, wow you sound like me (sorry for pun) i try to expose my left ci to as much as possible. I sampled everything as soon as i could, stream music that doesnt sound real sweet until maybe the third time loi. But seriously in one month i can hear most of the melodies, some of the instruments, and today noticed i can understand some of the lyrics! And words and voices are getting clearer too. Like i think john said, the music training helps with words also. Keep on keepin on and thanks for posting! ( you too mb)
    1 point
  29. Dianna

    Introduction -hello

    Hi les, Im a newbie here, activated about one month. I have a sonnet2 EAS and i stream using audio stream and audiolink. I have 50 percent in right ear and will use ha soon. I have trsined using angel sounds and word success. The streaming of music and tv has really improved so much im at 80 percent. It took me a bit to learn rhe various connections, im sure with your knowledge will be able to use all available connections. I love my sonnet.. Good luck with your research, there is tons of information on the net, this group is great! Di
    1 point
  30. Kara of Canada

    Music Appreciation and CI's

    You can also do a phone training program called Telephone with confidence. It’s a program run by Cochlear. You just google it and it will give you lists of words to hear and you can see them are you hear them. I really liked the program.
    1 point
  31. John R

    New HearPeers Show & Tell one time GoogleMeet chats

    Hi @Mary Beth Yeah I am down to give it a go. The Advocates online at this end went really well I thought, and I also enjoyed watching your and others videos post event. 😃 So I hope that is an encouragement to others that the online platform really can work for us and help us all to learn from each other a little more. JR
    1 point
  32. pdk

    New HearPeers Show & Tell one time GoogleMeet chats

    I'll think about this. I'm still trying to raise the interest in and discussion in rehab. Will come up with a list of possible points to present.
    1 point
  33. HuroniaGirl

    Hi from Ontario, Canada

    Hi, Kara, from Ontario. I am doing great!!! I ended up receiving an AB implant, so I dropped off the radar of HearPeers. I am still in awe at how my hearing has re-established in my implanted ear. I now consider it my "good" ear, and for good reason. Just today as my hubby and I were enjoying the last rays of summer on our cottage deck, I said to him "I hardly ever say pardon to you, anymore, eh?" To which he replied "Pardon?" I thought he was just kidding around, but he wasn't. Since my hearing has improved so much, I am talking more softly, whereas I used to bellow at everyone! Now he's having trouble hearing me, and his hearing is normal 😅
    1 point
  34. Kara of Canada

    Trouble with balancing sound in bilateral recipients

    Thanks @Mary Beth ill definitely mention it to her.
    1 point
  35. Darlene Mac

    October 2021 GoogleMeet chat

    Yes, I would be interested.
    1 point
  36. Kylie

    Incredible Journey

    That is so exciting! Glad to have you here.
    1 point
  37. Flywithme

    New study on ASM 3 features in a one piece processor (Rondo 3)

    Hello @Mary Beth I hope you are all doing well. Today I went for my 3rd mapping appointment. I asked my audiologist about ASM 3.0 and it turned out that it has been available in Canada with all the Rondo 3 and Sonnet 2. Thank you for sharing the article with us. I've learned so much from it. After some speech assessment, I asked my audiologist to create 3 programs for me and he added a 4th program with louder volume (just in case): 1. Adaptive Intelligence, mild 2. Adaptive Intelligence, strong 3. Omni mode 4. Adaptive Intelligence, mild with louder volume. The reason that I asked for an AI Strong program is due to the nature of my job. I manage a big flagship retail store with lots of noise and people talking in the background. At first my audiologist didn't think that I would benefit from the AI Strong program because it might cut out some spoken words due to its strong noise reduction feature. But he's very curious to see how it would work out for me. I'll let him know on my next appointment in 2 months. So far, my audiologist said I'm doing quite well in the new hearing journey. I can finally hear & partially understand people with masks on (well, not 100%) and not too reliant on my transcriber app. I'm excited to try out the new programs from today. I'll keep you posted. Take care. Charlie
    1 point
  38. Misty

    ADHEAR experiences

    yes, I am fortunate enough to be very close to the Standford childrens center in Los Gatos and we meet with the ENT on Friday. fingers crossed!
    1 point
  39. Dianna

    October 2021 GoogleMeet chat

    Yes please
    1 point
  40. nice video John.
    1 point
  41. Kim

    Audiostream quietness on android phones

    Thanks 😁
    1 point
  42. Kylie

    Favorite music apps

    I would love recommendations for Android too...!
    1 point
  43. Kylie

    Audiostream quietness on android phones

    This is the app I have been using. There are many like this if you don't like this one in particular.
    1 point
  44. Mary Beth

    Mary Beth: My hearing loss and CI story

    From One CI User to Another: My Hearing Loss & CI Journey Mary Beth My hearing story I was born with typical hearing but by age 13 my progressive hearing loss began. I have otosclerosis which is genetic but my version started earlier than normal and progressed faster than normal. My hearing continued to decline. The doctors tried to surgically fix the hearing in my right ear but after 4 surgeries on that ear, I had lost total hearing in that ear. So for the next 24 years I only heard from the hearing aid in my left ear. I needed more and more powerful hearing aids as time went on. Eventually hearing aids just were not enough. My world was shrinking as I needed to rely on speech reading with the left hearing aid to follow conversations. I am a teacher and hearing all day in class was exhausting. I came home tired and frustrated from the challenges of listening every day. So in late 2014 I went for an evaluation to see if a cochlear implant would help. My dead ear was implanted first in February 2015 and turned on (activated) in March. At first it only heard static and beeps but within hours it was starting to hear words. Absolutely amazing! I practiced with listening exercises and apps every day and every day I could hear and understand more and more. Absolutely life changing! I could not wait to get my left ear implanted and hear this good in both ears. My left ear was implanted 8 months after my right. Within months of its activation I was listening with balanced ears for the first time in decades. It is so awesome! I remember very well how frustrated and anxious I felt before getting a cochlear implant. These CIs have been the best decision ever for me. Life changing. Wishing you the very best! My hearing loss and journey to cochlear implants Podcast interview with transcription https://cochlearimplantbasics.com/2021/06/mary-beth-napoli/ First cochlear implant Guest blog https://blog.medel.com/why-a-teacher-of-the-deaf-chose-a-med-el-cochlear-implant/ Second cochlear implant Guest blog https://blog.medel.com/bilateral-cochlear-implants-mary-beths-story/ Cochlear Implants: Selection and Activation YouTube captioned video https://youtu.be/uAG0fCgafqk Cochlear implants and music journey Guest blog https://blog.medel.com/3-steps-to-rediscovering-music-with-a-cochlear-implant/ YouTube captioned video https://youtu.be/1WNwVDH9G2k
    1 point
  45. Hi! I am Ray. I have been implanted for less than a month. Hearing very well! I have a hearing aid along with my implant. It is the best of both worlds! Every sound and voice is very identifiable by normal sound and identity. My hearing with just the implant is awesome, but I switch with and without the hearing aid during the day. I am sure it helps my brain to identify the different sounds. I think the hearing aid may soften or mellow the implant sound. Good luck! Ray
    1 point
  46. Kylie

    Will it sound strange with one normal ear and one CI hearing ?

    Great questions @Beau! Nothing is too elementary. Firstly I would reassure you that you have permission to grieve for your hearing loss. A sudden permanent disability is a huge change in your life. My loss was also sudden, at the age of 38, and I also cried many many tears for this. I don't know if it is better or worse than the gradual hearing loss others experience, but it ultimately doesn't matter as they are both legitimately awful. I have had my CI for 2 years now and I can attest that I only have 1 'channel' of sound now. It didn't start like that - it sounded electronic and layered for a while but it resolved nicely into 1 much better sound. No weird echoes or reverb like you might imagine. This is more due to time and practice than the maps themselves. When I listen with the CI by itself for targeted practice it does still sound different to but with my 2 types of hearing together it is perfectly lovely.
    1 point
  47. Mary Beth

    ASM 3 excellent article

    https://computationalaudiology.com/wp-content/uploads/2021/06/Automatic-Sound-Management-3.0-white-paper.pdf ASM 3 was FDA approved June 2021. At this time we are waiting to hear when Med-El US will release ASM 3. ASM 3 works with Sonnet2 and Rondo 3 processors.
    1 point
  48. John F

    Cochlear Implant Evaluation for SSD

    Some decent questions: -How many cochlear implant surgeries have you performed using __________ (AB, Cochlear, Med El)? -Do you have a preference between different manufacturers? Why? (they should NOT disclose any bias) -How many revisions have you performed, and were they as successful as the original? -What does a scar typically look like after surgery? -How do you decide on the location of magnet placement under the skin? -Are you able to preserve any natural hearing when you do CI surgery? -What does the timeline on surgery day look like? -How do you know if I am a good candidate for a CI? -Should I implant just one or both ears? Why? -Will having CI surgery affect my tinnitus or balance? -What are good ways for me to learn to hear/rehab after being activated? -Are there any medical procedures I shouldn’t have with a CI? -When can I exercise and lift things again after surgery? -How many times will I see you after the surgery? -How many times will I see the audiologist after activation? -Can you connect me with another patient who has had each brand of implant I am considering? -Are there any vaccines I should get before being implanted? (Meningitis is common vaccine) -Do you close the surgical area with glue, staples, or stitches? Will I need to return to have those removed? -Do you verify internal placement of implant electrodes with an xray prior to closing up when surgery is completed? -Ask for detailed post op instructions: when can you wash hair, care of incision, pain meds, cup removal, Will you see surgeon for post op checkup?
    1 point
  49. Mary Beth

    SSD with CI Med-El REHAB tips

    https://blog.medel.com/cochlear-implant-rehab-for-ssd-how-to-improve-your-understanding-of-speech-in-noise/?fbclid=IwAR0aGDlRuCz3jQK_jAxCpIYnW_6sWEyk4RaEwfsKW0tSe7tBZ7C5RussTBk&utm_content=18-03-2021&utm_medium=post&utm_source=facebook
    1 point
  50. Mary Beth

    IOWA phoneme test

    @Kirk S. I just use the IOWA with the ah- phoneme-ah option. ah-bah ah-tha
    1 point
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