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Showing content with the highest reputation on 07/12/2020 in Posts

  1. 2 points
    @Mary Beth I completely agree!! You definitely have to be in the right mindset to get the CI. It’s definitely hard work and I don’t think most people realize that when they firsts start considering a CI. Having a positive, optimistic, patient as well as dedicated personality helps a lot with everything after the surgery, in my opinion. When my parents meet someone who is considering a CI and they want to chat - I always tell them you have to be in the right mindset and commit to it for the desired results. The mindset portion is probably why I haven’t gotten the other ear done 🤷‍♀️ One day inspiration will strike for the other ear 😂
  2. 2 points
    @Leila Riley I completely lost my right side hearing suddenly as an adult of 38 years so it was a big shock and yes I was angry and upset too. I quickly went into my usual pragmatic mode and researched all options and asked the specialists lots of questions. They recommended CI and I told them to put me on the waiting list immediately! While I was waiting I spent more time reading, including this forum which was ever so helpful as a 'real' resource of lived experiences. Nearly exactly a year after my hearing loss I had my surgery and I've been actively working on my recovery ever since. I found that being a part of the solution makes me feel more accepting, when I feel some control. During the waiting time I also did things like educate my friends and colleagues in advance, send them videos of what to expect and how to explain a CI, (I even watched a video of the actual surgery!) And I bought colourful decals ready to stick on. Again this all helped me come to terms with my situation - feeling prepared, informed, in control, and preparing my support networks. I still feel sad sometimes about it, it's been an incredibly emotional journey and I freely admit I have shed lots of tears (especially with my choir friends when I didn't know if I would continue to sing). I'm only a year since activation and it's not a 'perfect' sound but really I feel good that I'm doing all I can and I can still live my life. And I'm still singing!!!
  3. 1 point
    When I read research on factors that predict success with a CI, they list medical info like length of deafness, etc. I appreciate that there are medical factors that may help predict success with a CI. But after living this CI journey, I think that there are mindsets, personalities, outlooks and behaviors that are equally important for success with a CI. Do you agree? What do you think helped you be successful with your CI?
  4. 1 point
    @Mary Beth So true! It is a journey not a quick fix. Unfortunately, I think that is the urban legend out there that CIs are a quick fix. I’ve talked to people who were ready to hear better but when they found out that they had to rehab the ear and that sometimes the CI doesn’t work as wanted for up to 2 years, they backed away. Maybe one day those people I talked to will take the leap! I’m thrilled I took the leap and put in the hard work - it’s been so rewarding 😊 and you are right - when the timing is good, I’ll know and have the other ear done 🦻
  5. 1 point
    @Megan L. I agree with everything you wrote. And also that it is so important that someone is ready for the CI journey and not just looking for a quick fix. You will know if and when a second CI is right for you. Trust your instincts. On the morning of my second CI surgery I jumped out of bed and started singing happy birthday to my second ear. I was sooo ready.
  6. 1 point
    For awhile I was extremely angry,there are no words.Needless to say I had to personify my hearing loss as an individual who deserted me when I needed them the most.By so doing,FORGIVENESS had to come into play....followed by ACCEPTANCE.I am very anxious to hear about the coping mechanisms of you guys,my new extended family!!!!!☺
  7. 1 point
    I lost most of my acoustic hearing when I was a baby. Since I grew up with it, I didn't really have a mourning since I didn't really experience hearing beyond hearing aids. Even still, with hearing aids, it was ok but not great. I'm pretty much a deaf person in a hearing world, which means I've been extremely reliant on hearing aids and have relied heavily on sign language interpreters (they're amazing rock stars) in my education. Life will raise challenges that hearing people do not usually have to contend with. It's the attitude that I take on that will allow me to rise above the challenge. One of the life skills that I've acquired is that when a situation arises, I don't panic, I just go along with the situation until I learn enough to figure out a way to use accommodations, utilize people, or skills to get past it. There will be nay-sayers that will say "oh, no, you can't do that because of your hearing loss." But, that's when I roll up my sleeves and show them that I can do just about anything I set my mind to. A couple years ago, I started noticing I wasn't hearing as well in my left ear with my hearing aids. I went to audiologists, had new hearing aids, tuned them, etc. It didn't help much. Losing performance in my left ear gave me pause because I started thinking about how much different my life would be with only one ear to do all the listening in meetings, talking with family at reunions, and being out with friends, etc. That's when I realized it was soon coming to an end for the left ear and started to heavily consider cochlear implants. I reached out to different support groups, talked with people (audiologists, CI users, etc). After learning more about CIs, I "told" my left ear that I'm proud of how far it has taken me in life, doing the best it could, but now it's time for it to have help beyond hearing aids. It's been a year since I've been activated. Hearing people have been easier than before with hearing aids, but I still have a long way to go. I'm still utilizing the life skills I've learned along way and it has helped me so much.
  8. 1 point
    @Leila Riley I was a little girl (2-8 years old) when I lost a good chunk of hearing first from chicken pox and then from 2 fistula operations. In a way I think it was easier to accept because I didn’t know better. I didn’t really spend time questioning it or being angry probably because I was so young. I made my peace with it by telling myself that another kid who couldn’t hear anything needed to borrow some of mine so that together - we’d both hear something. Telling myself that at such a young age allowed me to accept myself and my hearing loss. Because of that I never wished for all my hearing because this was MY normal 😁 The CI has given me the best hearing I’ve ever known and I’m thankful for that. It’s been a wild, exciting, fun journey and I’ve met some awesome people!!
  9. 1 point
    @Leila Riley I would think that our hearing loss history would play a huge role in how we feel about our hearing loss. Some of us were born with hearing loss. Some of us were born with typical acoustic hearing and progressively lost our hearing. Some of us were born with typical acoustic hearing and suddenly lost our hearing. I was born with typical acoustic hearing and started losing my hearing at age 13. There were many different times in my life when I mourned the loss of hearing and its implications in my day to day life. I did come to accept my hearing loss and adapted to life as a hard of hearing person. Then another drop in hearing and the process started all over again. It was difficult to say the least. By the time I seeked out cochlear implants my life was beyond frustrating and exhausting. These CIs have been life changing for me. There have been good things that were brought into my life due to my hearing loss as well. Becoming fluent in American Sign Language, choosing to become a Teacher of the Deaf, special people who entered my life because of my hearing loss. Everyone’s journey to choosing cochlear implants is so unique and so interesting. I have met many great people through my CI journey and I am thankful for each of them.
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