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  1. Day 1- Hotel Innsbruck ...terrific gathering of most of the participants...a few were still traveling to Innsbruck .....and many Med-El Innsbruck employees. So many stories shared. Tears of appreciation shed. Lots of laughter. We quickly became a group of friends. Veronika treated us to special compositions on the piano. We are an excited group! Day 2- Med-El! Such a warm welcome at Med-El Innsbruck. We went on a behind the scenes tour of the Med-El implant production line. So many safety precautions and quality control checks. We saw implants in various sta
    8 points
  2. Sandy

    WOW Moments

    Well, it's been 2 years since my implant and I thought I would share some WOW moments of my journey with newbies, those contemplating a CI and my fantastic Hearpeers support group. Don't get me wrong, there are frustrating, irritating moments too but the journey is well worth taking. It's taken two years but now I can hear TV and it's a way to improve your listening skills, even with the annoying background music. I can carry on a conversation with someone while driving and not have to turn to read lips or say "Pardon me, what did you say?" I no longer look for excuses to avoid family and
    8 points
  3. I enjoy meeting other Med-El users in person, especially new friends I have made through social media forums. Some ways I have been able to meet others so far..... -I traveled to NC for a Hands On Hearing workshop. We organized meeting up for dinner the night before. Great times! -I travel to NYC for my CI appts. We organized meeting up for dinner and a group of us from NY and NJ had a great meal together. -I live in a rural area but there have been a few Med-El Mingle events within a 3 hour radius. I have attended 2 so far. It’s great to meet other Med-El users.
    7 points
  4. I just purchased headband headphones designed for people to wear when they sleep or are very active. They have thin flat speakers inside the headband that can be positioned anywhere within the band that you want. I thought they may work great with my Rondos. WOW! I am speechless. I removed the speakers from the headband (they come out so you can wash the headband) and discovered that they magnetically stick to my Rondos! No need for the headband part at all. They stay in place and others next to me can not hear what I am listening to. Crazy! And they o
    7 points
  5. MED-EL Moderator

    RONDO 2 Review

    Want to know if you should get the RONDO 2? Three cochlear implant users try out RONDO 2 and give us their personal review. Check it here in the latest post on the MED-EL Blog!
    7 points
  6. Sherri

    favorite WOW moments

    I have 3 WOW moments. The first was about a month after activation. Because I was never completely deaf I had no idea what I was missing! I remember my husband and I going for a walk on the beach which we had done frequently, but this day the sounds of birds overwhelmed me! I had no idea what I had been missing and that they were so loud. Amazing!! My next 2 moments were being in the delivery room when my Grands were born! Babies cry loud when they enter this world! What a sound!! And today they both call their Gammy’s name over and over! My heart continues to be overwhelmed in a very goo
    7 points
  7. Mary Beth

    Rondo 3 thoughts

    EDITED on 11/18/2020 after learning that Rondo 3 battery life is now being stated as “over 18 hours” instead of “up to 24 hours”. This was disappointing. We also heard that a lot of streaming can reduce Rondo 3 battery life by 20%. I have spent a lot of time lately pondering which processor to choose as my next processor. I have decided on Rondo 3. Thank you to all of the happy Rondo 2 users for your posts. It really made me consider choosing the Rondo family. Many people who are fortunate to have both Sonnet 1 or 2 and Rondo 2 processors have commented about choosing to
    6 points
  8. Hello, Many people have recently asked about navigating HearPeers. Here are a few things that I find useful. They may help you as well. Welcome! The bell symbol at the top is notifications. Touch it and a window opens. It will list any notifications you have received and allow you to tap on any of them to be brought right to the message without having to navigate through the forum. There is also a notifications setting icon in that window and by touching it, you will be brought to a window where you can choose when and how to be notified. Scroll down as there are a lot
    6 points
  9. My implant date was Jan25th..my activation date was Feb6th!! I was hearing immediately on activation! I was SO thrilled! At first voices sounded a little like Donald duck,but during the visit voices became more normal.Im only 2 days out,and there are things to smooth out and to learn about my Sonnet.But I have to say,I'm on cloud 9 !!
    6 points
  10. I wish the fine tuner was actually an app on my phone so I don't have to travel with a fine tuner and a mobile phone! Also the vain part of me would like to see a smaller BTE processor lol!
    6 points
  11. Hi guys, we have a new pearl of wisdom from Mary Beth! Enjoy! @Mary Beth, thank you! It was a pleasure to read your new blog. https://blog.medel.com/3-steps-to-rediscovering-music-with-a-cochlear-implant/
    6 points
  12. Jewel

    Activation September 20

    Here's a pic of @Jdashielland me immediately following my activation appointment.
    6 points
  13. I thought it would be nice to have a topic for this instead of having it attached to other threads. It will be an exciting month in HPs. @Dave on March 22 @Jdashiell on March 13 @Kara of Canada on March ? Wishing you all the very best! I just realized that all three of you are getting your second side done. (Or re-done)
    6 points
  14. Nikki

    favorite WOW moments

    Wow moment: Life is real good! This is a huge wow moment when you realize you feel whole again. For those who followed my journey know it started far from ideal. No speech discrimination, a true daily struggle. Now, 3.5 months post activation (Of re- implantation! THANK YOU Dr. Pillsbury at UNC), I'm amazed at how great this implant work. Better than in my wildest dreams! Turned my life around completely. I'm able to travel again around the world, not worrying about not managing situations. Traveling has been great because it kept my senses alert, truly intensified my hearing ex
    6 points
  15. Just to let you know that I had my implant operation last week under local anaesthetic. Yes it was a bit scary, but was handled brilliantly by the surgeon and his team. It took an hour and a half and I was kept informed all the way through with cards held up telling me what was happening at each stage. I was warned I would go dizzy at one stage but that this would be momentary, and it was. I just had to keep still and was concentrating all the time on how it would all be worth it in the end. I am so grateful for this opportunity, given that I was refused the operation initially. Am now 6 days
    6 points
  16. Yes I was fine, just had a big coffee on the way to work! Worth it to talk to everyone!!
    5 points
  17. Excellent November HP chat today! 10 members participated, including 3 first time chat participants! Great seeing you all @Dave in Pittsburgh @Tracey_66 @Kylie @Nischal Koirala so nice to meet you! @Joan @Nikki @tmscarlett10 so nice to meet you and we look forward to your activation in a couple of weeks! @Megan L. Keep us posted on your second surgery plan! @MallaRuth thank you for joining in! We had participants from Spain, Nepal, Australia, UK and US. Topics focused on connectivity options (music link silhouettes
    5 points
  18. Hi Everybody. Can’t quite see Mt. Fuji in this photo from Saturday, but it’s there in the distance. Nice sunset nonetheless, I think. Will send another once the peak is covered in snow. A classic. Cheers!
    5 points
  19. Mary Beth

    favorite WOW moments

    This will most definitely be my favorite topic to follow! I just LOVE WOW moments. I can’t wait to read everyone’s WOW moments. Here are some of my favorite WOW moments with my CIs. -I heard my grand nephew hiccup on FaceTime when he was only one month old. -I identified songs playing on the radio while driving to work. My private Name That Tune game. Smile. -I conversed with family members from different rooms in the house and even from upstairs to the living room. -I heard the waves in the ocean while boogie boarding. -A flock of geese flew ove
    5 points
  20. Hi Everyone, I'm back here I'm not sure where I've left off here, but I got implanted 2 years ago on my right side and it is awesome. I got implanted with Cochlear and not Medel tho, so I can't really speak about my experience with Medel. Anyway it's really good. Much better than any hearing aid I ever used. I am hearing very well, almost normally. Would say above 90% for speech. Sometimes I can even hear lyrics to songs I listen for the first time, and also TV shows without closed captioning. Cinemas are still a little difficult tho. Maybe it's the surrounding. As for whethe
    5 points
  21. This is my first updated post since being activated on October 29th, I’ve been so busy working I haven’t had a chance until now. A little info about myself my name is Rick Horton, I’m 57 years old & I live in Everett, Washington. I have profound noise induced hearing loss in both ears. My left side was implanted with a Synchrony & the right side I use a hi power HA. I was activated about a week & a half ago using a Rondo2 processor ( waiting for a Sonnet2 as well) . All I can say so far is WOW!! This is the most amazing experience! I was surprised that I was able to unders
    5 points
  22. Hi, I'm Jess and live in Perth Western Australia. I have a daughter who was implanted at the age of 11months with bilateral implants. We have used the OPUS 2, Rondo and now the sonnets which are our processor of choice. My daughter is now 7 and has very fluent clear speech. We still have all the usual issues in day to day life, missing processors, broken parts but in general extremely grateful and blessed to have such a wonderful product. Thanks Jess
    5 points
  23. C T lex

    Activated 03/06/2019

    Hi everyone, I am happy to say I was activated yesterday as I sit here streaming The Flamingos and actually hear the lyrics and melody well. Admittedly I have trouble making out the lyrics, but I'm good with the melody. Yesterday, Mariah Carey's beautiful rendition of Oh Holy Night was rather poor but today it was much better. The rate of change over just hours is amazing. After activation my audi and the Med-El rep introduced me to what came with the Rondo 2 processor while I"m listening only with the implant. I was just happy to hear sounds and these guys are talking to me al
    5 points
  24. Mine is simply the fact I can talk to people again. I was always an outgoing guy and didn’t let my hearing loss stop me while with close friends despite messing up big time occasionally but I was really withdrawing otherwise. Now I can go into a coffee shop and chat with anyone. Getting my life back! (And some new friends)😀
    5 points
  25. Today it was warm (for January in Minnesota, 40F) and I went to the Minnesota Landscape Arboretum for a walk. It was a bit windy, and when I was walking near oaks with dry, brown leaves still on the tree, I could hear them rustling in the wind. I'm not sure I've ever heard that before. Lots of birds singing today too! It was a great walk.
    5 points
  26. My father-in-law played clarinet prior to WWII. He is 93 now and started playing again at 50. He is an attorney ( Tax) and plays so very well. He got me started in the Jazz camp we go to every July. Amazing! my point is start again. Choose an instrument- it something you can due throughout your life and a great way to listen, improvising your audio skills and memory and brain training.
    5 points
  27. Hi @Mary Beth hello everyone! I'm catching up on posting and reading the forums. I enjoy them so much and live this community. I have 2 wow moments since activation I would love to share. 1. My mom cane to visit a week ago. She was not only in another room completely out of sight but also behind d a closed door. I heard her clearly ask my aunt to tell me she wanted to go to the store. My aunt sat wide mouth as I said dis she just say to tell me she wants to go to the store. Lol. WOW number 2. I was interviewed for a local podcasting on inspiring women. My session was about my cochlear journe
    5 points
  28. Hi @Mary Beth just came back from the Audi, I'm back at work now. this activation was much shorter than the first one and so far everything looks good. It sounds weird at the moment having too much noise. Voices and sounds are high pitch like helium voices but in between I could recognise different voices from the start. I'm planing to use both processors everyday and leave the new one only after my job finishes at 4 pm. I'll keep you posted. Edit: tomorrow is already today here!!!
    5 points
  29. @Mary Beth definitely some exciting times ahead for all! @Margo @Esteban @Daniel the Stranger @Nikki @Mary Featherston @Marion nancy I wish all of you the very best and a terrific week!
    5 points
  30. Thanks @Mary Beth - you did a great job of promoting the HearPeers Forum in Innsbruck and it's great to be here! I am a HearPeers mentor on the UK version of the site - here is a link to my profile which has some info about my hearing journey also: https://www.hearpeers.uk/mentors/ruth/ The meetup was really wonderful. It was fantastic to meet all the other users and MED-EL staff, and I learned so much about the implants, processors, and how they're made and developed. I definitely came away with a renewed sense of wonder and gratitude. I have had my implant for nearly twenty years!
    5 points
  31. Day 3 - We began today with group photos outside Med-El headquarters near the Med-El sign. Then we focused on digital media all morning. Breakout groups focused on topics such as: -What digital media helped us at the beginning of our journeys? -What digital media may help others? -Med-El’s multiple digital media platforms, including a new Instagram presence! -Some of us participated in filmed interviews of each other in pairs. And then it happened. You could’ve heard a pin drop as everyone realized Inge Hochmair stopped by to visit with us. We were so in awe
    5 points
  32. Mary Beth

    Bilateral Bliss

    Here is my bilateral WOW moment of the day. I would love to hear yours too! After decades of never knowing where sounds were coming from, it amazes me that my brain now hears in 3-D. This afternoon in high school English class I was seated next to a student in the second row. The teacher wanders around the room sometimes as she teaches. Today she was reading aloud as she wandered around the room. I kept looking straight ahead. I didn’t need to look at the text because I understood her fine. While I was listening, I realized that I was picturing her in the room as she moved.
    5 points
  33. Well guys, I had the appointment with my surgeon today and confirmed the date of my second surgery for the 10 of October, about 5 months later from the first one.
    5 points
  34. One of my favorites! Feels absolutely liberating. And it is!
    5 points
  35. Another couple of milestones: I was just doing some rehab and did a lot of repetitions of vowel discrimination pairs and I swear, there was a point at which the voices in the middle frequencies seemed to be noticeably more coherent. That was more a feeling of relief than anything else, because it confirms that the sounds are going to come together. So then I went into the kitchen and put a loaf of banana bread in the oven (I can't do rehab 100% of the time) and then made myself a drink. And I heard, for the first time in at least thirty years, the sound that a carbonated drink makes wh
    5 points
  36. I’m doing al right. Rough night. I could t get comfortable now the bandage is off I feel much more comfortable and have been able to sleep. So that’s what I’ve been doing all day off and on.
    5 points
  37. Hi I was hoping the same thing @Mary Beth So I'm glad it was with no complications, the surgeon was pleased and @Kara of Canadais happy I've got a picture to prove it With her permission I'm posting it here so we can all share the joy Congratulation Kara, on becoming bilateral!
    5 points
  38. Kara is out of surgery and on her way home Speedy recovery our dear friend!
    5 points
  39. iHM24

    Unbelievable!

    Unbelievable!! Before 2 weeks back I received direct message from new member, he was asking for help because by mistake his nephew Rondo washed more than 20 minutes at least in washing machine before they discovered it missed! However, I give him some instructions because he read my story “Rondo falled down in W.C.”. I told him to remove batteries and using hair dryer carefully because if using directly maybe will heat Rondo and damage it or burn internal hardware, also I asked him to be patient and keep Rondo in dryer kit after that reuse hair dryer and kee
    5 points
  40. Hi stream2525, Everyone is offering very good information. We can’t directly give medical advice here, but it’s good that you’re doing all the research you can. Every person’s needs are different, so you should discuss your goals with your clinical team. Cara Mia has pointed out that many studies show longer flexible arrays can also allow a degree of preserved hearing. What’s generally most important is surgeon’s techniques and using a flexible array, like all MED-EL FLEX arrays. Hicksy also makes a good point. There’s always a risk of losing residual hearing, but long arrays
    5 points
  41. Just to throw this out there, I was approved for a Sonnet EAS and was implanted with the synchrony flex soft which is longer than the 28. Unfortunately I didn’t retain my residual hearing ( pretty much my greatest fear, if any, going into surgery) and I can truthfully say it upset me for 15 seconds when I found out I had lost the residual hearing. What I gained is almost indescribable to what I lost that I actually feel I wasted those 15 seconds lamenting...? (truthfully my fears going into surgery was it would be another failed hearing aid experiment that would do nothing to regain any w
    5 points
  42. Adam

    Almost missed my anniversary

    Hello all, dealing with all of this brain surgery stuff, I almost let an important anniversary slip by. 6 years ago yesterday, I recieved my first implant. It has been a wild ride and I would not change a thing. Thank you Medel for completely changing my life.
    5 points
  43. I will do my best to explain how things sound to me with my bilateral CIs. I do not have any residual hearing so EVERYTHING I hear is coming from my CIs only. Please remember that this is NOT how things sounded to me at the beginning of my CI journey. The first few months are full of adjusting to the CI input and our brains figuring it all out as we settle into our favorite map. Everyone has their own voice. I can recognize people I know just by hearing their voices. I can recognize singers voices as well in songs. I notice people's accents. I can tell when someone is playing w
    5 points
  44. Hi @PamR Sorry for the delayed response, haven't checked my notifications for a whole week while I was moving house! Anyway... I also became SSD suddenly, at age 38, following an ear infection. I also found it affected my orientation, not hearing people behind me (very off putting when surprised and hard for my kids who weren't heard unless they were face to face). And it affected my enjoyment of all noisy environments, which I started avoiding. I rescheduled all my catch ups to quiet coffees at home or at an outdoor cafe. Weddings and funerals were a hearing nightmare - too man
    4 points
  45. @Jewel You made an awesome list!!! Now I’ll add a few specific ones of my own 😁 *I recently went with a friend to see Anastasia on Broadway (for the first time since getting my CI) and could follow the entire story and dialogue. I loved that. *I work in apparel (Technical Design to be specific) and during fittings it’s my responsibility to take fit notes/comments to send to the vendor on pattern and garment fit corrections and I would never be able to do it without my CI. There is a lot of talk during these fittings between different departments (PD, Design, Merch) that if I didn’t
    4 points
  46. @Mary Beth thank you. I will visit 5he forum more often. I just started back college full time. Getting used to being g surrounded by so many young people on campus. It's definitely different this time around in my late 40's AND being able to hear and understand and participate in class discussions. I would love to start a blog or article on the differences between now and 30 years ago as a young undergraduate just coming to grips with severe hearing loss. Anyone have any ideas where to submit such an article or blog?
    4 points
  47. Megan L.

    Alarm Clock

    I’ve used the Sonic Alert - Sonic Boom for years. It vibrates (I put in between the mattress and box spring), flashes your table lamp, and makes a loud noise if you choose that option. I use the flashing light in the fall/winter and the vibrating option in the spring/summer. I also use the fit bit Alta when traveling You have a lot of options now @pakom!!
    4 points
  48. Spending time, through social media and in person, with other CI users is so important. I’m looking forward to meeting more CI users in person. We should schedule informal HearPeers members meetups!
    4 points
  49. Ha! I thought i showed you, Joe! Anyway was going to email you my bilateral activation went great. Guitar already sounds more fabulous I've got a Gretsch parlor guitar very pretty and sounding amazing. Rich lows and bright highs. I absolutely love that I can play and enjoy music again. Here is my beauty Btw, Joe, you've mentioned to me that you use headphones and play along music. Do you have headphones that do both at the same time?? @Jdashiell
    4 points
  50. Hi All, thank you for your responses. I saw my audi who made some minor adjustments and a new map. I didn't notice much difference, but truthfully, the whole experience is getting better with time. As my audiologist tells, me "words, like music, are all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now. That hearing aid doesn't really assist with speech discrimination, but it normalizes everything. Overall, my quality of life is soooo much better. Thanks again for responding!
    4 points
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