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Juliette

Members
  • Content Count

    15
  • Joined

  • Last visited

About Juliette

  • Rank
    Newbie

Profile Information

  • Gender
    Female

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
    Yes
  • Implant Period
    Under 1 year
  • Implant Type
    Middle Ear Implant
  • Hearing Loss Type
    Mixed
  • Cause of Hearing Loss
    Other
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    Australia
  1. Hi Ivana, the surgeons think the damage to the sigmoid sinus done may be irreversible. There was discussion about lifting the implant but there was no mention of that in the report sent to my doctor or the quote for surgery. I am in the process of writing to the surgeon for clarification. I never had history of any type of tinnitus prior to the surgery however it was present immediately following the surgery.
  2. It has been more than 12 months since my last post. I am enjoying the level of improvement in my hearing but still struggling with the pulsatile tinnitus. Two ENTs agree that the tinnitus is caused by pressure on the sigmoid sinus from the implant and one has suggested removing the implant. Both ENTs have said there is no guarantee that the tinnitus will go if the implant is removed so I will be worse off than before the implant. Less hearing and still having to endure the tinnitus. I would still recommend the procedure to anyone who asks but advise to choose their surgeon very carefully. I would never recommend the one who performed my surgery and I have no interest in seeing him again.
  3. Hi Ivana, Erik is no longer a moderator so I sent a message to the new one. Still waiting to hear from him. My doctor referred me for some tinnitus counselling however the focus of the counselling was on meditation and sound therapy that I did not find helpful for my pulsatile tinnitus. Still not getting much sleep but trying to focus on the hearing experience and coping as best I can with the thumping in my ear.
  4. Hi Adam, I have now had my implant for six months and it is great experiencing new sounds. I am still struggling with some post implant issues though so I went and got a second opinion. Unfortunately it appears that I may be stuck with these problems. The ENT I saw advised he was not prepared to do anything and that I needed to return to the ENT who performed the procedure for an attempt at correcting the problems. An ultrasound scan shows that the right mastoid antrum is opaque (and the left one is not). The ENT also said that where the implant has been placed it is pressing on the sigmoid sinus that is causing narrowing of the artery which would explain the pulsatile tinnitus. The implant has been placed under my ear instead of behind which may account for the constant blocked feeling I have in my ear (as well as the other symptoms). The second ENT has recommended removal of the implant if the problems do not resolve by the end of the year however he has cautioned that this may not alleviate any of the problems including the pulsatile tinnitus. I could actually be worse off as I lost more hearing from my right ear when the implant was placed, I am going to see a Tinnitus Counsellor in a couple of weeks and hoping for some good advice and strategies. I would really love to have more than three hours sleep each night. Juliette
  5. Hi Ivana, I tried the nose drops and no change to the pulsatile tinnitus. I have been told it is a result of the way the implant was sited and I will have to live with it. I don't give up that easily so I will go and see another ENT.
  6. Hi Ivana, I suffer chronic ear infection in my left ear and only occasional ear infection in my right ear. I have the pulsatile tinnitus only on the right side. The surgery for the implant took just over four hours and there was no other surgery performed at that time. It was meant to be a simple mastoidectomy and bone conduction implant. I am finding it difficult to get a consistent response from my surgeon and when I last saw him he did not know what was causing the pulsing in my right ear and had no explanation for any of my problems. It was the aufiologist I see for regular check-ups for the audio processor who advised I have pulsatile tinnitus and she will notify the surgeon. I will try the nose drops and if they don't work, the corticosteroid spray. Thank you so much for your advice. J.
  7. Hi Ivana, yes, that is close to what the pulsatile tinnitus sounds like. It started immediately after the surgery. Sometimes it is extremely loud and worst at night when I am laying down and trying to sleep. If I press on the jugular, the sound stops but obviously this is not a long term solution. Most of my ear inflammation is in my left ear and I have not had a cold for many years (pretty fit and healthy despite my obsession with chocolate). I don't get hay fever either. My right ear does feel blocked though. The audiologist said she would present my case at the next committee meeting of the Ear Science Institute and see if anyone had some answers for me but this may take 4 to 6 weeks. What I have learned is that I was a bit naïve when the surgeon (ENT) first suggested doing the implant surgery. While he gave me information on how it all works and gave me links to websites I should have asked a lot more questions especially about how much experience he has with implants which turns out to be not very much. This could explain why he over-charged me and billed for procedures he did not do. He also could not explain any of my post-surgery problems. What I will take away from this is not to be afraid to ask the surgeon lots of questions and challenge things I am not comfortable with. But, again, the big plus is being able to hear especially at work and no one even knows I have a bone conduction implant. I certainly feel more included and don't have to wander around either looking at the ground or my mobile phone because I am worried people will talk to me and I won't know what they are saying. J.
  8. Greetings, the past month has been a busy one full of lots of exciting hearing experiences. I am back at work and hearing so many more sounds. My manager stood up to talk to me the other day and I had a small panic attack because I couldn't see her mouth (to read her lips) but I needn't have worried because I could actually hear her. Such a relief. I have had the magnet strength adjusted in the processor and I can now wear it for the whole day. On the negative side. I have been advised that my implant will never sit flat owing to the way it was inserted. All of it noticeably protrudes from my head and makes wearing glasses/sunglasses quite difficult. The hearing in my right ear has not returned to pre-surgery levels (yet but still hopeful for an improvement) and even the audiologist is surprised at the drop in levels. I have also been told that the throbbing I have been experiencing in my right ear since the surgery is Pulsatile Tinnitus for which there is no cure. I haven't been given any firm answers and possible causes such as obesity and high blood pressure have been ruled out because I am quite slim and have low blood pressure. I have been advised that what may have caused it was something has been done to the mastoid that wouldn't normally have been part of the implant procedure. I will finish on a positive though. Now that I can hear better, I can hear the timer on my oven and no longer burn the cakes and cookies. J.
  9. Shopping is a much easier experience now. I don't have to constantly ask people to repeat themselves. I go back to work tomorrow so that will be interesting - it is an open plan work place. I have turned down the volume in my car radio, the television and stereo. I love being able to hear all these sounds I didn't know existed and the realisation that I am quite a noisy person. I had an appointment with the surgeon this afternoon. He didn't really have many answers for me and couldn't really explain why I now have more hearing loss in my right ear. He said the swelling may go down a bit but didn't appear all that optimistic. He is also hopeful that the hearing in my right ear will return to pre-surgery levels. I think my magnet strength needs some adjustment as I find I can only wear the processor for about eight hours before it becomes beyond comfortable but perhaps that also gets easier with time.
  10. Yay - switch on went well. It is amazing how much more I can hear now. I had no idea I was so noisy. The audio and Med-el rep are both concerned about the swelling behind my ear so we are all keeping a watch on it. My ear still feels blocked and numb but not as much as last week so I am sure the swelling will also dissipate over time. The processor is small and discreet and completely unnoticeable under my hair. Looking forward to going to the shops and actually hearing what the sales assistants are saying. Usually I don't make eye contact so that I don't have to talk to them. Today will be different.
  11. Switch on is scheduled for tomorrow morning. Excited. Feeling better than last week however I still have pain and swelling behind my ear. What hearing I had in that ear has not returned yet either. I hope this won't delay switch-on as I am sure it will resolve eventually.
  12. There were complications and I was in surgery for over four hours however everything in my ear was intact prior to this. The surgeon was suggesting he remove the implant if it did not settle down soon. My switch-on date is 25 November so I have just over a week for everything to heal and the swelling to resolve. Fingers crossed.
  13. Hi Ivana, Feeling better today although still cannot hear from my right ear. Yes, I saw the implant and I was expecting some swelling but not quite so large as what is there. When I discussed the issues with the specialist he simply said he would remove it if it continued to be problematic. Don't really want to go down that path and still optimistic for a good outcome. Perhaps I just need to be more patient.
  14. Hi Ivana, I am experiencing pain (stabbing) and throbbing from the site of the implant but not from the surgical incision. The implant site is still swollen. I had expected it to sit flat and be barely noticeable.
  15. Hi, I have conductive hearing loss through chronic infections. One week ago I had the surgery for a Med-el Bonebridge. I am surprised at how painful the surgery was (still is). I had expected the pain and swelling to subside after a few days. I now have even less hearing from my better ear where the implant has been placed. Is this usual?
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