Jump to content

Jdashiell

HearPeers Heros
  • Content Count

    413
  • Joined

  • Last visited

  • Days Won

    36

Reputation Activity

  1. Like
    Jdashiell reacted to Mary Beth in Cool! If you are in the US or Canada please join this!   
    @Dave in Pittsburgh
    @Kara of Canada
    @Megan L.
    @Mary Featherston
    @Carolmarie
    @Cara Mia
    @Sandy
    @Logan
    @Jdashiell
    @mgfiest
    @Hicksy
    @Neil
    @Artsy
    @Julesrdh
    @Les new Jersey
    @Hearing Again
    @knappster
    @sassychele02
    Just tagging some members to get things started.
  2. Like
    Jdashiell reacted to Joan in Favorite sounds of your week!   
    My favorite sounds this week.....
    Rain on the roof
    Trees rustling in the wind
    Birds and more birds 
    Laughter
    Hearing my six-year old granddaughter tell me I’m the best Grammy in the whole world!
  3. Like
    Jdashiell got a reaction from Julie72 in Newly implanted 5-year old   
    I saw this in twitter and wanted to share
    https://twitter.com/i/redirect?url=https%3A%2F%2Ftwitter.com%2Fi%2Ftopics%2Ftweet%2F1103966108585996288%3Fcn%3DZmxleGlibGVfcmVjc18y%26refsrc%3Demail&t=1+1552051579104&cn=ZmxleGlibGVfcmVjc18y&sig=227e0eff262608b3ca6fb0ba556465edef2175be&iid=2b439b0e337f454cbaa8f901196aa8a2&uid=36647297&nid=244+272699392
    I have never shared a twitter link before and wonder if those without a twitter account and read it.
  4. Thanks
    Jdashiell got a reaction from Nikki in Stresses of all this technology   
    Last Friday my wife and I went out to eat dinner with her parents
    Nothing out of the normal, I brought spare rechargeable batteries, a Roger Select, and my FineTuner, just like I always do.
    I use the FineTuner to adjust DOWN the Sensitivity settings 5 clicks, and the Volume Down 2 clicks. This always helps me hear better at the restaurant table.
    I bring the Roger Select to use in case I need additional listing help.
    As I leave the restaurant I use the Reset 🔄 on my FineTuner to UNDO the setting I made at the table.
    Now we made it home with all my goodies after stopping to get my new suit tailored in the Dressing room
    All was peachy keen at this point - however as I went to bed, I had a horrible night interrupted sleep several time throughout the wee hours, stomach upset, feverish, many toilet trips.
    Next morning continued and was quite lethargic 😟. Netflix therapy.
    Somewhere along the past several hours, I lost my FineTuner.
    Now it has a label on the back to call me if found. 
    Next morning Im on the mend, I must've ate something bad at the restaurant.
    As Im getting dressed my FineTuner is AWOL - I searched every where.
    My wife helped out too searching other everywheres. So I am extremely stressed out at this point wondering if this loss is covered by Warranty? Luckily I have a spare backup FineTuner.
    Today I went back to the store where I was Friday evening to check the dressing room and uptown Lost and found - Alas no record of it.
    So Im thinking if someone did find it, SURELY they would have called me, Surely.
    So I go back home to look any where I might have missed, After all I did look everywhere. 
    So I decided I needed to look under the recliner and sure enough The FineTuner was there!!!
    I did check every nook and cranny, moved seat cushions etc..... but not underneath the damn chair!
    A lot of stress for nothing 
    The moral of my story is that we use a lot of technology in our hearing journey  with CIs, and rely on it working and being there ALL THE TIME.
    And as such need to make certain we follow routines. Do not set your wallet and keys down to go get your sunglasses before walking out the door, You'll end up searching everywhere for you wallet and keys!
     
  5. Like
    Jdashiell got a reaction from Jewel in Favorite sounds of your week!   
    Hearing and replying to context with store clerks- kind of took me by surprise as a noisy environment. 
    Also hearing better on phone calls
  6. Like
    Jdashiell got a reaction from Megan L. in Favorite sounds of your week!   
    Hearing and replying to context with store clerks- kind of took me by surprise as a noisy environment. 
    Also hearing better on phone calls
  7. Like
    Jdashiell got a reaction from Mary Beth in Favorite sounds of your week!   
    Hearing and replying to context with store clerks- kind of took me by surprise as a noisy environment. 
    Also hearing better on phone calls
  8. Like
    Jdashiell got a reaction from Mary Beth in Travel with CI’s   
    That is a good message to all CI users. It gets better over time. 
    Patience, practice and perseverance 
    the more you work at it helps too. 
    Joe
  9. Like
    Jdashiell got a reaction from Kylie in Travel with CI’s   
    @Mary Beth
    I like disposable batteries too. I just don’t like them ending up in mass in land fills. Even though I put them in Recycling. Which is why I use rechargeable batteries mostly. 
  10. Like
    Jdashiell got a reaction from Kylie in Travel with CI’s   
    I travel domestically most in USA and never had issues with security. Walked through without issue except wearing a neck loop like a streamer or Artone Max 3. TSA  will ask you to remove that first. 
    All my equipment and I do mean all, travels with me in overhead or underseat. Spare processors, batteries, chargers, and an 8 port power strip to power all the chargers. They can lose my clothes but not my hearing stuff. That is paramount to me. 
  11. Like
    Jdashiell reacted to Mary Featherston in Travel with CI’s   
    You and me both, @Daniel the Stranger!  I love not having to throw batteries out all the time. 
  12. Like
    Jdashiell reacted to Mary Beth in Travel with CI’s   
    I agree @Jdashiell
  13. Like
    Jdashiell got a reaction from Jewel in Travel with CI’s   
    I travel domestically most in USA and never had issues with security. Walked through without issue except wearing a neck loop like a streamer or Artone Max 3. TSA  will ask you to remove that first. 
    All my equipment and I do mean all, travels with me in overhead or underseat. Spare processors, batteries, chargers, and an 8 port power strip to power all the chargers. They can lose my clothes but not my hearing stuff. That is paramount to me. 
  14. Like
    Jdashiell got a reaction from Jewel in You've Got A Friend   
    I received an email earlier this week and thought I'd pass it along to HearPeers friends. I have always found support dealing with hearing loss with HLAA and then with HearPeers as I advanced into the world of CIs.
    I started the HLAA-Miami chapter because I wanted to meet other people locally who also live with hearing loss, and now with CIs as many of us progressed. 
    I knew that I enjoyed the camaraderie and fellowship with others living in this world of HAs and CIs 
    This article explains it well, from family and friends and now colleagues in the world of hearing loss, we all desire relationship needs to provide us with one of the following:
    Emotional Support – You need to be assured that you have people in your corner.  Tangible Support – Are people you can call on for help on things like financial assistance, babysitting the kids so you can watch a movie, or going with you to the dentist or doctor. Appraisal Support – The people who love you enough to give you constructive and honest feedback about yourself.  Informational Support – Your AuD, ENT or other professional, but also from HearPears, HLAA chapters, and CI support groups. Companionship Support – Activity friends who makes us feel socially accepted. Also from HearPears, HLAA chapters, and CI support groups.

    Here is the full article
    https://www.explore-life.com/en/articles/youve-got-a-friend

     
  15. Like
    Jdashiell got a reaction from Mary Featherston in Questions to ask when exploring CIs   
    I came across this site and found a terrific set of questions to ask / consider when exploring a CI.
    I wish I had this information early on in my research.
    Colleen breaks it down into three categories:
    1. the implant/electrodes
    2, the CI manufacturer
    3, the external processor
  16. Like
    Jdashiell got a reaction from Jenni in need advice on failed implant   
    Absolutely true electrode positioning matters. Every cochlea is unique in size and shape. And there are also anatomical issues that can occur beyond the dimensions of the cochlea. 
    MedEl has created an amazing array of implants  to address size and shape and work with surgeons to create tools to aid implant surgery. 
    @Nikki and I went through our initial CI surgeries together- me in Miami, Nikki in VA / NC. We communicated via email. 
    My initial CI implant surgery (R) went fine and activation perfect. What I heard at first was robotic. Cartoon like for a week or two. But as I worked on it I began to hear clearly.
    nikki unfortunately did not have the same experience. 
    One year after my first surgery I started my second CI surgery in March 2017. Surgeon said surgery went fine. Activation revealed 5 of 12 electrodes went in. Everyone was surprised sadly though. We decided to redo the surgery June 1. Again surgeon indicated ok. Activation revealed 6 of 12 electrodes went in cochlea. 
    I was told I may have to live with this situation. I was shocked that this was it. Actually I was pissed off. I felt unhappy and decided to get another opinion. 
    I went to the university of Miami which is a research and teaching center. I met with another surgeon whom I heard speak at conference on CIs 
    i asked him to research my problem and he did so amazingly well my first meeting with him. 
    End result in March 2018 my third surgery went well- quite well. My Dr. Told me during implant surgery he confirmed that all 12 electrodes were in! Happy 😃 happy happy!!
    Activation went fantastic having the bad implant in and wearing a processor on that side helped by preparing my brain to hear via CI, albeit poorly. I knew that what Nikki was experiencing. 
    I think I can speak for her when I say stick with it, never give up on hearing again!
    get a second opinion. 
  17. Like
    Jdashiell got a reaction from Mary Beth in Rondo 2 USA kits   
    @Mary Beth
    the Roger MyLink works perfectly, as expected, with my Roger Pen or Roger Select when I am wearing my Rondo2/ Roger1 processors. I use the FineTuner set to MT or T telecoil setting as the MyLink is a neckloop which requires setting the the telecoil option on the processors. 
  18. Like
    Jdashiell got a reaction from Mary Beth in Rondo 2 USA kits   
    @Mary Beth 
    I checked all my devices before ordered the MyLiknk type 02
    Connevans $378
    Amazon $500
  19. Like
    Jdashiell got a reaction from Mary Featherston in Residual hearing   
    I’m just like @Dave in Pittsburgh, bilateral with surgeries in 2016 and finally in 2018. Also no packing - sorry.
    At first I was surprised at having no residual hearing but I remind myself that my hearing prior to CIs was worthless - so I am ok with being deaf without my processors. That’s only when I’m asleep or in the shower  so no problem! 
  20. Like
    Jdashiell got a reaction from Mary Beth in CI users who have BOTH Roger transmitter/receiver & Artone BT neckloop   
    I use both
    It depends on my daily needs
  21. Like
    Jdashiell got a reaction from Mary Beth in Roger Pen Helpful Tips and videos   
    The site you refer to on this post has been extremely helpful. Thank you!
  22. Like
    Jdashiell got a reaction from Mary Beth in Cell phone captioning calls plus audio   
    Yes I like these options too
    Artone 3 Max plus Innocaption on my iPhone
    Hear well and See captions in realtime!!!
  23. Like
    Jdashiell got a reaction from Mary Beth in Roger Pen.. Rechargeable vs Standard   
    The Artone Max 3 or Quattro 4 or similar Bluetooth devices use the telecoil in our processors, HA or CI.
    Telecoil uses ZERO battery life in a processor. That's a really cool feature of telecoils
     
  24. Like
    Jdashiell got a reaction from Mary Beth in Roger mics and Receivers   
    Roger Mics and Receivers
     
    I received a Roger Pen and Roger X receiver with my Sonnet
    I received a Roger Pen and Roger 21 receiver for my second side Sonnet.
    I later purchased on my own a Roger Select Microphone.
    Because I also Received Rondos in my CI Kits with my Sonnets - I decided that I wanted a Roger Mylink to use with the Rondos to connect to my Roger Pen and Select microphones.
    This is because I am so very happy with the quality of sound I receive in my processors when using the Roger microphones (Pen or Select) 
    I use them for iPhone calls with or without Innocaption app;
    I use it at a restaurant table to hear conversation more clearly;
    Usually pairing to my receivers is quite simple, but if these devices give you any problem, I HIGHLY RECOMMEND this article to resolve any issues:
    https://www.fmhearingsystems.co.uk/phonak-roger-troubleshooting-guide/
     
    Joe
  25. Like
    Jdashiell reacted to Kara of Canada in Synchrony Pin Implant   
    Wow I just found a neat video of how the Synchrony Pin Implant is installed.  
     
×
×
  • Create New...