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Nikki

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  1. Like
    Nikki got a reaction from Megan L. in January 2021 Virtual HearPeers Chat   
    I won't be able to attend this time.  Miss you all! Looking forward to next chat.
  2. Like
  3. Like
    Nikki got a reaction from Mary Beth in November HearPeers Virtual Coffee Chat   
    Me too
    And it's nicely equipped with the built in microphone
    Very good for calls as well.  @Mary Beth
  4. Like
    Nikki reacted to Mary Beth in November HearPeers Virtual Coffee Chat   
    @Nikki
    That is an incredibly price! I love my BOSE QC35 headphones
  5. Like
    Nikki got a reaction from Mary Beth in November HearPeers Virtual Coffee Chat   
    https://www.amazon.com/dp/B0756CYWWD/ref=cm_sw_r_cp_apa_fabc_dlC_InQWFbKQ9R37T
     
    The headphones for whoever asked
    If anyone had it on their wishlist. It's $199 for Cyber Monday
    Hope you have good holiday season everyone. 
  6. Haha
    Nikki reacted to Kylie in November HearPeers Virtual Coffee Chat   
    Yes I was fine, just had a big coffee on the way to work! Worth it to talk to everyone!!
  7. Like
    Nikki got a reaction from Kylie in November HearPeers Virtual Coffee Chat   
    Hi Everyone 
    It was so nice chatting with everyone 
    @Tracy_66Tracy_66  asked those who have CI for a while if things keep improving
    Just wanted to add a comment , one of the tells I have is while listening to music and with time I keep noticing more and more sounds
    It's 3 years for me on my old ear so i'm very pleased when I have a fun moment where I can identify impertinent. 
  8. Like
    Nikki got a reaction from Mary Beth in Paddle boarding with CI processors   
    Priceless advice ❤️ thank you!!
  9. Thanks
    Nikki reacted to Mary Beth in Paddle boarding with CI processors   
    Rondo in waterwear, then in EarGear covers with tether and clip, all under a Nammucap is my favorite way to be in the ocean and hear.  It is so comfortable and everything sounds terrific!
    While we wait for fully waterproof processor options.  Smile 
  10. Like
    Nikki got a reaction from Mary Beth in Paddle boarding with CI processors   
    Rondo w/waterwear and tethering system. Headband or Swim cap (Nammu is both comfy and stylish)
    This is to be as ready as you can be for any water condition.  
    From my experience- stay away from: Sonnet in water wear
    I've been having extremely difficult time trying to fix the sonnet in waterwear on my head in a way it doesn't fall off /slide off.  This can get both annoying and embarrassing  😅 The configuration of the bag just doesn't work when your magnet site is bit different distance/angle of what the bag's designed for. Altogether this is not practical at all for any sport what involve possible wipe out.
     
    P.s. I CANNOT WAIT to fully waterproof processor
    Wouldn't it be fantastic?!
     
  11. Like
    Nikki got a reaction from Mary Beth in BOSE QC35 side tone   
    Hi All
    With QC35 headphones I hear my voice just fine
    The headphones have 3 noise cancellations modes
    Even with noise cancellations on, I can still hear myself just fine. I do like to listen more than talk so I may have not noticed anything gone completely wrong.  With the 100%  DAI cable, for comparison,  I cannot really talk on the phone bc then I really can't hear myself at all. With the BOSE QC35ii I did not encounter the same problem. 
    i'm willing to re-test it if anyone wants to give me a call anytime
     
  12. Like
    Nikki got a reaction from Mary Beth in November HearPeers Virtual Coffee Chat   
    Hi Everyone 
    It was so nice chatting with everyone 
    @Tracy_66Tracy_66  asked those who have CI for a while if things keep improving
    Just wanted to add a comment , one of the tells I have is while listening to music and with time I keep noticing more and more sounds
    It's 3 years for me on my old ear so i'm very pleased when I have a fun moment where I can identify impertinent. 
  13. Like
    Nikki reacted to Melissa in Paddle boarding with CI processors   
    I don't have specific input, but I have noticed that the IP rating for Rondo 3 is the same as the AB Neptune, which is billed as a swimmable processor. To me, this means one could swim with the Rondo 3 without any need for waterproofing. Do you agree, or am I missing something?
  14. Like
    Nikki reacted to Kylie in Activation to today... things change so much!   
    I heard noises right away at activation. At first it was all beeps and crackles, like someone got the wrong cable connected. But over the first few hours and days it became familiar noises with an electronic crackle overlaid. Then more and more clear but still for a while like a MIDI file when I wanted mp3!  Nowadays it sounds pretty 'normal' in combination with my natural ear, but the CI by itself still like I am listening to the world through a microphone and speaker system, with an electronic quality but a really good one. 18 months in.
    I think everyone here has covered the advice part very well!  Patience and practise.
  15. Like
    Nikki reacted to Mary Featherston in Activation to today... things change so much!   
    Sorry to be late; a former employee of mine died last Tuesday and I've been unfocused.
    I'd second what Nikki said.  Activation was the first indication that things were going to turn around.  I'd lost the ability to hear in phone meetings.  I didn't hear most of what was said in in-person meetings.  I was withdrawing and avoiding talking to people.
    But on activation day I heard my audiologist speak.  It wasn't clear and I could barely hear, but I hear her.  My husband and I were both crying.  I have since learned that Kirsten doesn't in fact sound like Minnie Mouse; she has a very nice voice.  But that day it was beepy noises that could barely be understood as words.  I spent all my extra time doing rehab, and it slowly got better.  Three weeks after activation I had a meeting with two coworkers with only my CI, not my hearing aid.
    It wasn't great, but it was functional.  These days?  These days it's great.
  16. Like
    Nikki reacted to Joan in Activation to today... things change so much!   
    What a journey it has been going from a profound hearing loss to bilateral hearing with my CIs!  From not being able to distinguish male from female voices after my first CI activation to becoming bilateral and hearing and understanding nearly everything that is said to me (in surround sound!), it has been a process for which I could not be more grateful.
    I agree with others that you should go into activation with low expectations and be thrilled when your expectations are exceeded, as they almost surely will be.  Successful hearing with your new CIs will require diligence in your hearing rehab and patience, patience, patience! But the rewards you will gain from your hard work will pay dividends beyond your imagination. Revel in all the sounds you will hear...some you’ve not heard in years, some you may not have heard ever. Enjoy them all! 
     
    I have been implanted for 6-1/2 years and bilateral for 6, yet I am still amazed at the sounds I now can hear. I wear my processors virtually every waking hour and now truly forget I am deaf until I remove them at bedtime. I love being an active part of the hearing world!
     
    Work hard, be kind to yourself, be patient with your progress...you’ll be so glad you did!
     
  17. Like
    Nikki reacted to Megan L. in November HearPeers Virtual Coffee Chat   
    It was great seeing everyone yesterday and meeting the newcomers!!! 
     
    @tmscarlett10 So, my surgery is planned for 12/21 but COVID is on the rise. That makes me more nervous than going by myself for the surgery. I don't want to get my family sick since I would be recuperating with them and not at my apartment.  My dad has heart issues and he absolutely cannot get this virus. So, I'm keeping an eye on Maryland and what happening there. The place I'd be going to is outpatient only and not attached to a hospital so that's good. We'll see!! 
    And as far as getting a second implant - that is a personal decision. I did well with one implant and one hearing aid! But I've reached the point where my implant is completely dominant and my HA just hangs out. My brain doesn't even acknowledge the low battery beeps anymore 🤣 I also want a safety net that if one fails, I have another one I can rely on. Do what you feel is best for you  
  18. Like
    Nikki reacted to Mary Beth in November HearPeers Virtual Coffee Chat   
    @tmscarlett10
    We did cover a lot of topics!
    @Megan L. is going bilateral.  Depending on COVID, she mentioned that her surgery date may change. Maybe Megan will post about her decision making process for her second CI.
     
    Being bilateral has so many advantages.  Our brains are designed to handle auditory input from two ears and hearing in two ears, especially two balanced ears, is amazing!  Some advantages include....
    -locating sounds
    -hearing better in noise
    -easier listening in general
    -for me there is a fuller, richer sound quality
    -for me musical pitch is much better
    -having an emotional safety net in case one CI side needs to be reimplanted ( @MallaRuth talked about how she kept on hearing with one side while her older first side was going through reimplantation )
     
    Questions are always welcome.  
  19. Like
    Nikki reacted to Mary Beth in November HearPeers Virtual Coffee Chat   
    Excellent November HP chat today!
     
    10 members participated, including 3 first time chat participants!
    Great seeing you all
    @Dave in Pittsburgh
    @Tracey_66
    @Kylie
    @Nischal Koirala so nice to meet you!
    @Joan
    @Nikki
    @tmscarlett10 so nice to meet you and we look forward to your activation in a couple of weeks!
    @Megan L. Keep us posted on your second surgery plan!
    @MallaRuth thank you for joining in!
     
    We had participants from Spain, Nepal, Australia, UK and US.
    Topics focused on connectivity options (music link silhouettes and Artone).  Experience as single sided CI with an acoustic ear.  Long term CI experience.  Experience with reimplantation and the brain’s ability to improve what was a non-dominant ear.  Improved speech in noise.  Apps and activities post activation.
     
    Wow we covered a lot!  Great chat everyone.  Stay safe.
    Next chat will be in January.
     
  20. Like
    Nikki reacted to Joan in November HearPeers Virtual Coffee Chat   
    Looking forward to it @Mary Beth! 😊
  21. Thanks
    Nikki reacted to Mary Beth in November HearPeers Virtual Coffee Chat   
    REMINDER
     

    Last virtual monthly chat for 2020

    Sunday November  15
    9:30 am New York time start time
    chat opens at 9:15 for socializing 
    Google Meet with free live captioning
    All are welcome. Smile 
     
    Reminder:  There will not be a chat in December.  We will start back up again in January.
     
    Invites will be sent on November 15 by 9:15.
    November’s chat includes:
    @Dave in Pittsburgh
    @Kirk S.
    @Tracey_66
    @Mary Featherston
    @Kylie
    @Jewel
    @Mary Beth
    @Valentin
    @Nikki
    @Joan
    @Megan L.
    @phobos512
    @KittKatz
    Laura from the UK (first time)
    @MallaRuth from the UK (first time)
    @tmscarlett10 first time (awaiting activation)
    @Nischal Koirala from Nepal (first time)
    Evelyn first time (deciding on CI)
     
    If you are not on this list but wish to join in, let us know.
     
    See you all on Sunday.
  22. Like
    Nikki got a reaction from tmscarlett10 in Wearing details   
    I tried clothes attachment clip the other day, with longer fishing line that can be tied to a little loop on the sonnet waterwear on one end and clip on the other end.  You can find on Etsy or others.   MedEl got something similar for kids see pic for general idea.

  23. Like
    Nikki reacted to Mary Beth in Wearing details   
    @tmscarlett10
    Hearing in the water with my Rondos on waterwear covers is the best!
    9 uses per waterwear kit (3 in a kit and each used 3 times......9 seals in a kit).
    More waterwear covers can be purchased from Med-El US through their web shop.
     

  24. Like
    Nikki got a reaction from Kylie in Activation to today... things change so much!   
    Hello dear CI recipient awaiting activation, 
    If you're anything like me,  you may have been in hearing world for a while and then lost hearing to the point any communication became a hurdle and music faded away and impossible to enjoy any longer.   CI is your only choice.   You don't know what to expect but you need this to work!  Maybe you've been in complete silence since your surgery and every day has been a struggle.  Cheer up!  Very soon you will transition from world of silence  to world of many different sounds.  Your world will be full of discoveries,  and things will keep dynamic for a while.  Many times you might find yourself amazed of the things coming through your processor, small things that are part of every day life such as electrical appliances beeps, alarms, timers etc will become amazing little gifts. You may find out that your washing machine is actually playing a tune for you every time you start it.  You'll ask yourself why?!
    On activation day I was glad to hear different frequencies,  some high frequencies I haven't heard for years, even decades,  are now possible to hear!  Voices sound strange at first.  Mechanical.  Any sound was accompanied with dings and rings and bells.  Music sounded good! I would listen non stop. Difficult at first but after listening over and over it sounds better and better.  Hearing people without looking at them start becoming possible and then easier over time.  
    You can expect to feel tired , very tired,  after a whole day of listening to new and old sounds.   Sometimes you may even need to rest but with time listening through CI will become second nature and you might even forget you're actually deaf. Sorry! Some ppl around you might forget as well.  Or will never notice.
    Some days will be good, some days may be challenging.  Second activation was different than the first.  If it can be different within the same person I get it varies widely between people.  My main advice is please stay connected and seek support as needed.  Track your progress,  stay in touch with your CI center, your doctor and the community here or on other platform.   It may feel isolating not to hear well but we're all in this together.  Best of luck!
     
  25. Like
    Nikki reacted to Megan L. in Activation to today... things change so much!   
    Hmmm activation day....the day that was full of surprises! Men sounded like smurfs talking through a long tunnel and women had no voices just a ringing sound. I didn't even have a voice only ringing. I had to put my hand on my chest when I talked to feel the vibrations because I was ringing with every word I said 😂 I heard music right away but there were no voices. I tried to only play music I knew the lyrics to so I could try and find the words but that didn't happen until the next day. I had no idea how noisy the world was and how many beeps there were. WOW! The TV sounded terrible too - all noise, ringing, and static. It cleared up pretty quickly though probably because I forced myself to listen through the discomfort. 
    Today 4 years later, everything sounds normal. Music sounds complete with high and low pitches as opposed to it being chopped off at the top with only low sounds. I hear beeps a good distance away and it still amazes me! Before I couldn't even hear them standing right next to it. I can hear and understand people in another room or without seeing their faces. Something I could never do before. I can also watch TV without captions if I need to....but I'm so used to captions so its a habit now plus mentally it is less effort!
    My advice? Be realistic and work hard to rehab your ear. It also helps tremendously to keep a positive, optimistic, and hopeful attitude. My left ear had 0% discrimination and it had not understood words since I was probably 7 or 8 years old. Long time. But I believed it could work and I was ready to work hard  Also, be patient. Your brain is working overtime to adjust and figure out what it is hearing. Being consistent and challenging the ear will help too. If you can't figure out what you are hearing, ask your designated hearing person to help!! it will drive you nuts if you don't. Lastly, celebrate all the little detailed sounds you now hear!!!!
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