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Nikki

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  1. Like
    Nikki got a reaction from Kylie in Activation to today... things change so much!   
    Hello dear CI recipient awaiting activation, 
    If you're anything like me,  you may have been in hearing world for a while and then lost hearing to the point any communication became a hurdle and music faded away and impossible to enjoy any longer.   CI is your only choice.   You don't know what to expect but you need this to work!  Maybe you've been in complete silence since your surgery and every day has been a struggle.  Cheer up!  Very soon you will transition from world of silence  to world of many different sounds.  Your world will be full of discoveries,  and things will keep dynamic for a while.  Many times you might find yourself amazed of the things coming through your processor, small things that are part of every day life such as electrical appliances beeps, alarms, timers etc will become amazing little gifts. You may find out that your washing machine is actually playing a tune for you every time you start it.  You'll ask yourself why?!
    On activation day I was glad to hear different frequencies,  some high frequencies I haven't heard for years, even decades,  are now possible to hear!  Voices sound strange at first.  Mechanical.  Any sound was accompanied with dings and rings and bells.  Music sounded good! I would listen non stop. Difficult at first but after listening over and over it sounds better and better.  Hearing people without looking at them start becoming possible and then easier over time.  
    You can expect to feel tired , very tired,  after a whole day of listening to new and old sounds.   Sometimes you may even need to rest but with time listening through CI will become second nature and you might even forget you're actually deaf. Sorry! Some ppl around you might forget as well.  Or will never notice.
    Some days will be good, some days may be challenging.  Second activation was different than the first.  If it can be different within the same person I get it varies widely between people.  My main advice is please stay connected and seek support as needed.  Track your progress,  stay in touch with your CI center, your doctor and the community here or on other platform.   It may feel isolating not to hear well but we're all in this together.  Best of luck!
     
  2. Like
    Nikki reacted to Megan L. in Activation to today... things change so much!   
    Hmmm activation day....the day that was full of surprises! Men sounded like smurfs talking through a long tunnel and women had no voices just a ringing sound. I didn't even have a voice only ringing. I had to put my hand on my chest when I talked to feel the vibrations because I was ringing with every word I said 😂 I heard music right away but there were no voices. I tried to only play music I knew the lyrics to so I could try and find the words but that didn't happen until the next day. I had no idea how noisy the world was and how many beeps there were. WOW! The TV sounded terrible too - all noise, ringing, and static. It cleared up pretty quickly though probably because I forced myself to listen through the discomfort. 
    Today 4 years later, everything sounds normal. Music sounds complete with high and low pitches as opposed to it being chopped off at the top with only low sounds. I hear beeps a good distance away and it still amazes me! Before I couldn't even hear them standing right next to it. I can hear and understand people in another room or without seeing their faces. Something I could never do before. I can also watch TV without captions if I need to....but I'm so used to captions so its a habit now plus mentally it is less effort!
    My advice? Be realistic and work hard to rehab your ear. It also helps tremendously to keep a positive, optimistic, and hopeful attitude. My left ear had 0% discrimination and it had not understood words since I was probably 7 or 8 years old. Long time. But I believed it could work and I was ready to work hard  Also, be patient. Your brain is working overtime to adjust and figure out what it is hearing. Being consistent and challenging the ear will help too. If you can't figure out what you are hearing, ask your designated hearing person to help!! it will drive you nuts if you don't. Lastly, celebrate all the little detailed sounds you now hear!!!!
  3. Thanks
    Nikki reacted to Mary Beth in Activation to today... things change so much!   
    @Nikki
    I love your letter to future CI recipients!
  4. Like
    Nikki got a reaction from Megan L. in Activation to today... things change so much!   
    Hello dear CI recipient awaiting activation, 
    If you're anything like me,  you may have been in hearing world for a while and then lost hearing to the point any communication became a hurdle and music faded away and impossible to enjoy any longer.   CI is your only choice.   You don't know what to expect but you need this to work!  Maybe you've been in complete silence since your surgery and every day has been a struggle.  Cheer up!  Very soon you will transition from world of silence  to world of many different sounds.  Your world will be full of discoveries,  and things will keep dynamic for a while.  Many times you might find yourself amazed of the things coming through your processor, small things that are part of every day life such as electrical appliances beeps, alarms, timers etc will become amazing little gifts. You may find out that your washing machine is actually playing a tune for you every time you start it.  You'll ask yourself why?!
    On activation day I was glad to hear different frequencies,  some high frequencies I haven't heard for years, even decades,  are now possible to hear!  Voices sound strange at first.  Mechanical.  Any sound was accompanied with dings and rings and bells.  Music sounded good! I would listen non stop. Difficult at first but after listening over and over it sounds better and better.  Hearing people without looking at them start becoming possible and then easier over time.  
    You can expect to feel tired , very tired,  after a whole day of listening to new and old sounds.   Sometimes you may even need to rest but with time listening through CI will become second nature and you might even forget you're actually deaf. Sorry! Some ppl around you might forget as well.  Or will never notice.
    Some days will be good, some days may be challenging.  Second activation was different than the first.  If it can be different within the same person I get it varies widely between people.  My main advice is please stay connected and seek support as needed.  Track your progress,  stay in touch with your CI center, your doctor and the community here or on other platform.   It may feel isolating not to hear well but we're all in this together.  Best of luck!
     
  5. Like
    Nikki got a reaction from Mary Beth in Activation to today... things change so much!   
    Hello dear CI recipient awaiting activation, 
    If you're anything like me,  you may have been in hearing world for a while and then lost hearing to the point any communication became a hurdle and music faded away and impossible to enjoy any longer.   CI is your only choice.   You don't know what to expect but you need this to work!  Maybe you've been in complete silence since your surgery and every day has been a struggle.  Cheer up!  Very soon you will transition from world of silence  to world of many different sounds.  Your world will be full of discoveries,  and things will keep dynamic for a while.  Many times you might find yourself amazed of the things coming through your processor, small things that are part of every day life such as electrical appliances beeps, alarms, timers etc will become amazing little gifts. You may find out that your washing machine is actually playing a tune for you every time you start it.  You'll ask yourself why?!
    On activation day I was glad to hear different frequencies,  some high frequencies I haven't heard for years, even decades,  are now possible to hear!  Voices sound strange at first.  Mechanical.  Any sound was accompanied with dings and rings and bells.  Music sounded good! I would listen non stop. Difficult at first but after listening over and over it sounds better and better.  Hearing people without looking at them start becoming possible and then easier over time.  
    You can expect to feel tired , very tired,  after a whole day of listening to new and old sounds.   Sometimes you may even need to rest but with time listening through CI will become second nature and you might even forget you're actually deaf. Sorry! Some ppl around you might forget as well.  Or will never notice.
    Some days will be good, some days may be challenging.  Second activation was different than the first.  If it can be different within the same person I get it varies widely between people.  My main advice is please stay connected and seek support as needed.  Track your progress,  stay in touch with your CI center, your doctor and the community here or on other platform.   It may feel isolating not to hear well but we're all in this together.  Best of luck!
     
  6. Thanks
    Nikki reacted to Mary Featherston in What is your favorite way to listen to recorded music?   
    Yes, that's when I use MT, for the neckloop.  Otherwise, not at all, really.
  7. Thanks
    Nikki reacted to Mary Beth in What is your favorite way to listen to recorded music?   
    @Nikki
    MT with Artone neckloop connected via BT to phone lets us hear music and still hear with our processor mics
    T lets us hear music only and totally shuts off the processor mics
  8. Like
    Nikki reacted to Mary Beth in What is your favorite way to listen to recorded music?   
    @Mary Featherston
    Yup @Kylie choir has songs spinning in my head too!
    I love all kinds of music.  Big Band, Swing, Jazz, Classical, Classic Rock, Folk, Cape Breton fiddling, Bluegrass, Comtemporary....... so much music to love!
  9. Like
    Nikki reacted to Mary Beth in What is your favorite way to listen to recorded music?   
    As many of you know, I love testing out tech options.  So it may be a surprise that my favorite way to listen to recorded music is to use a BT speaker (JBL Charge 3) and keep my processors on M.  Excellent sound quality.  Great bass.  Of course, the whole room gets to enjoy the music too.  Smile.
     
    With BTE processors like Sonnets and OPUS2, I love the around the ear BT headphones (BOSE QC35).  Excellent audio.  Terrific bass.  Separate left and right audio for instrumentals.  Super comfortable.  @Nikki is a new BOSE QC35 fan!  She showed us her headphones during our chat on Sunday.
     
    With Rondo style processors, I like CozyPhones wired flat stereo speakers (plug into headphone jacks) which attach to my Rondos without the headband.  (This depends on magnet strength.)  True separate left and right stereo audio for instrumentals.  Great sound quality.  Many times though I want to use wireless connections so I opt to use my favorite piece of tech....Artone 3 MAX BT neckloop.  Excellent signal distance, comfort, ease of use.  It is a blended mono audio signal.

    What is your favorite way to listen to recorded music?
     
  10. Thanks
    Nikki reacted to Mary Beth in October HearPeers Virtual Coffee Chat   
    @Nikki @Joan
    Artone Mic distance is great!
     
     


  11. Like
    Nikki reacted to Joan in October HearPeers Virtual Coffee Chat   
    @Mary Beth Thanks for the Artone Mic review! 
  12. Thanks
    Nikki reacted to Mary Beth in October HearPeers Virtual Coffee Chat   
    A fabulous chat today!  We had 10 HP members join in.
    I love how helpful everyone is sharing their own experiences with CIs and tech and helping each other troubleshoot.
    Our monthly chats are the best benefit of social media.  Friendships and connections worldwide.
    Stay safe everyone.
    As discussed, we will schedule a meeting for November and then skip December due to holidays and start back up in January.
  13. Like
    Nikki got a reaction from Mary Beth in October HearPeers Virtual Coffee Chat   
    Oh no @Kirk S.
    Thinking of you and hoping doctors find out sooner than later how to help and get you better
    Wishing all the best for you Kirk!
  14. Thanks
    Nikki reacted to Mary Beth in October HearPeers Virtual Coffee Chat   
    UPDATED
    Lots of first timers this month.  That is awesome.  Such a lovely group of Med-El CI users!
     

    Sunday October 18
    9:30 am New York time start time
    chat opens at 9:15 for socializing 
    Google Meet with free live captioning
    All are welcome. Smile 

    So far invites are going to:  
    @Kirk S.
    @Megan L.
    @Jewel
    @Tracey_66
    @Kylie
    @Joan
    @Mary Featherston
    @Valentin
    @Mary Beth
    @Dave in Pittsburgh
    @phobos512
    @Nikki
    @Marion nancy
     
    @artkup will be joining for the first time 
    @KittKatz will be joining for the first time 
    @MallaRuth will be joining for the first time 
    Shahaff will be joining for the first time 
    Laura will be joining for the first time.
     
     
    Do the following people want to receive an invite this month?
    @Watersail
    @Neil
     
     
    Are any other members interested in joining in for the first time?
  15. Sad
    Nikki reacted to Kirk S. in October HearPeers Virtual Coffee Chat   
    Hi Mary Beth. Just a quick heads up that unfortunately won’t be able to attend the HearPeers Virtual Coffee Chat next weekend. I had a hearing test and appointment with my otolaryngologist today and the results were so bad that he ordered me straight into the hospital. It appears that my left-side hearing (the “good side”) suddenly crashed badly over the weekend (after beginning to weaken a couple weeks ago) and my doctor wants me in the hospital straightaway for daily tests, observation, treatment, etc. Maybe surgery, too. He said I should plan on being in the hospital at least a couple weeks. He said he and his team still haven’t been able to figure out what’s wrong (probably several things at once) but he said it’s clear that my hearing is steadily weakening and that we need to do something different. As you may recall, I’ve been taking Prednisone (cortico-steroids, as I’m sure you know) for quite a while and that seems to have helped, but my doctor said today that that approach appears to be at the end of it’s usefulness. Ironically, my cool new Rondo 2 still hasn’t proved effective yet and the COVID-19 crisis has delayed my plans to visit the States to work with experienced, English-speaking audiologists to get that sorted out. So I’m kind of between a rock and hard place. But my doctor and his team are considered the best in Japan and I have full faith in them (especially since the folks at MEEI have endorsed everything they’ve done so far) and they work with Med-El all the time, so I’m sure they’ll sort things out eventually. In the meantime, Japanese hospitals are not bad: well run, well staffed, good food. Can’t complain. I’ll let you know how things work out. In the meantime, please give my best to all at the HPVCC next week! Best, Kirk
  16. Like
    Nikki reacted to Mary Beth in Rogerpen vs Audiolink   
    @Valentin
     
    I have used both.
    AudioLink works only with Sonnet 1 and Sonnet 2
    Roger works with almost all CI processors and hearing aid brands 
     
    AudioLink only requires 1 piece (AudioLink) and sends the signal to an internal receiver in the Sonnet 1 and Sonnet 2.
    Roger requires more than 1 piece.  The Pen or Select (I prefer the Select) sends the audio to Roger receivers.  These receivers can be attached to processors or hearing aids (like the Roger 21 integrated battery cover receiver for Sonnet 1 and Sonnet 2) or can be a neckloop receiver (Roger MyLink) and CI/HA then need to be on MT or T.
     
    Both AudioLink and Roger Pen/Select are BT ONLY for phone calls.
    Both AudioLink and Roger Pen/Select can use an A2DP converter app to stream other audio from phone.  The sound quality is degraded.
    Both AudioLink and Roger Pen/Select can be plugged into TV, etc 
    Both AudioLink and Roger Pen/Select can be used as remote mics worn by a speaker.
    Both AudioLink and Roger Pen/Select can be used on a table for a small group.  The Select outperforms the others in this setting by far in my opinion.
     
    AudioLink is a fixed gain mic.  Roger Pen/Select adapt to the noise level.
     
    Roger Select has 3 mics which create 6 directions.  It uses adaptive beamforming. The others do not.
     
    AudioLink allows the user to alter the mix ratio.
    AudioLink is true stereo for left/right music.
    Roger Pen/Select have a greater range than AudioLink..
     
    The sound quality between these options is different.  I recommend people test out these devices before choosing the best device for their needs.  I also suggest people test out the Artone 3 MAX BT neckloop.  
  17. Like
    Nikki got a reaction from Mary Beth in Implanting an ear that has not processed sound for many years   
    Very good news indeed
    I also agree as my hearing loss during my 20s was more severe in my right ear.  I favored my left ear and started using hearing aid only on my left.  I never really "listened" though my right ear at all.   It was profoundly deaf probably close to 2 decades.  It was chosen for CI and quickly became excellent for speech processing, music enjoyment and perfect CI ear all around. 
  18. Like
    Nikki got a reaction from Mary Beth in favorite WOW moments   
    How awesome is that!!!
    Happy for you and sharing your excitement! @Tracey_66
  19. Like
    Nikki got a reaction from Megan L. in favorite WOW moments   
    How awesome is that!!!
    Happy for you and sharing your excitement! @Tracey_66
  20. Like
    Nikki reacted to Jewel in Sonnet battery cover lifespan   
    @Nikki
    I have been pleased with the performance of the PowerOne implant plus batteries that came in my kit. So I purchased a box of that brand on Amazon just in case. The disposables work a bit over 2 days for me. I usually use them when I'm travelling overseas or going to all day functions where I don't want to have to change batteries mid-way 
    Since rechargeables are so expensive I may just use disposables whenever my rechargeables give out. I get about 9 hours from the rechargeables. 
    Do you normally place your battery cover in the dryer every night? 
  21. Thanks
    Nikki reacted to Mary Beth in Sonnet battery cover lifespan   
    @Nikki
    The two issues I have read about Sonnet battery covers are...
    1) becomes too loose and does not work correctly with disposable batteries
    2) small rubber seal at the connection of the Sonnet control unit and the battery door gets damaged and does not close/seal correctly
    My Sonnets work fine with PowerOne Implant disposable batteries.
  22. Like
    Nikki reacted to Jewel in Sonnet battery cover lifespan   
    @Nikki
    I have exercised in my Sonnet and I just wipe off the battery cover with a damp cloth and then place in the UV dryer. Anytime I wear the Sonnet, I put it in the dryer along with the battery cover. 
    I usually use rechargeable batteries. I still haven't finished the box of disposables that came in my kit. 
    How many covers came in your kit? I got 3.
  23. Like
    Nikki reacted to Mary Beth in Sonnet battery cover lifespan   
    @Nikki
    There have been reports of the false dead battery beeps in Sonnets being related to a specific brand of CI batteries.  For me Zeni Power CI batteries produced false dead battery beeps often.  Power One Implant plus batteries have been fine.
    I had a Sonnet battery cover last only 1 year.  It became too loose and then had to be replaced.  I put my battery covers in the dry kit every night.  I had used rechargeable batteries but the numbers of hours kept diminishing so I stopped using them and switched to Power One Implant disposable batteries.
  24. Like
    Nikki reacted to Jewel in Sonnet battery cover lifespan   
    @Nikki I've been using mine for almost 2 years and no issues. 
  25. Like
    Nikki got a reaction from Mary Beth in September HP Virtual Coffee Chat   
    Put me on standby i'd really love to join again if i'm not camping/ driving
    I love coffee and chatting with y'all 
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