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Nikki

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  1. Like
    Nikki got a reaction from Mary Featherston in Our magnetic lives   
    At the lab, where I work.  .  If I ever get too comfortable around equipment..  and if I happen to lean on hood stash, door, by instrument bench or an occasional fridge. Someone might tell a joke or say something funny,  and I'd lean my head back laughing.   Then I must laugh it off while trying to gracefully reclaim my stolen coil.  All the metal items listed above fight hard for the coil. It's ok if it happens amongst friends!!!
  2. Like
    Nikki got a reaction from Mary Beth in Who already has Rondo 2 or is waiting to receive Rondo 2?   
    Good luck to your son Erica @ERICA
    Very exciting!
    I love the Rondo 2 design but it needs to be re mapped this upcoming Monday.  Hope I can try it out again after that 
  3. Haha
    Nikki reacted to Mary Beth in Our magnetic lives   
    The student I was working with when my processor flew off my head and magnetically dangled from the metal cabinet is a CI user too.  Her eyes were huge and then we both cracked up.  However we both respected our distance from that cabinet after that!
  4. Like
    Nikki got a reaction from Jewel in Favorite sounds of your week!   
    Juicy peach at lunch today. Sounded like rain really.  Sound effect complimented flavor and texture really well
  5. Thanks
    Nikki reacted to Mary Beth in All trombone Bohemian Rhapsody   
    Incredible
     
    https://www.wqxr.org/story/all-trombone-cover-bohemian-rhapsody-balm-your-weary-soul/
  6. Thanks
    Nikki reacted to Jdashiell in Stresses of all this technology   
    Last Friday my wife and I went out to eat dinner with her parents
    Nothing out of the normal, I brought spare rechargeable batteries, a Roger Select, and my FineTuner, just like I always do.
    I use the FineTuner to adjust DOWN the Sensitivity settings 5 clicks, and the Volume Down 2 clicks. This always helps me hear better at the restaurant table.
    I bring the Roger Select to use in case I need additional listing help.
    As I leave the restaurant I use the Reset 🔄 on my FineTuner to UNDO the setting I made at the table.
    Now we made it home with all my goodies after stopping to get my new suit tailored in the Dressing room
    All was peachy keen at this point - however as I went to bed, I had a horrible night interrupted sleep several time throughout the wee hours, stomach upset, feverish, many toilet trips.
    Next morning continued and was quite lethargic 😟. Netflix therapy.
    Somewhere along the past several hours, I lost my FineTuner.
    Now it has a label on the back to call me if found. 
    Next morning Im on the mend, I must've ate something bad at the restaurant.
    As Im getting dressed my FineTuner is AWOL - I searched every where.
    My wife helped out too searching other everywheres. So I am extremely stressed out at this point wondering if this loss is covered by Warranty? Luckily I have a spare backup FineTuner.
    Today I went back to the store where I was Friday evening to check the dressing room and uptown Lost and found - Alas no record of it.
    So Im thinking if someone did find it, SURELY they would have called me, Surely.
    So I go back home to look any where I might have missed, After all I did look everywhere. 
    So I decided I needed to look under the recliner and sure enough The FineTuner was there!!!
    I did check every nook and cranny, moved seat cushions etc..... but not underneath the damn chair!
    A lot of stress for nothing 
    The moral of my story is that we use a lot of technology in our hearing journey  with CIs, and rely on it working and being there ALL THE TIME.
    And as such need to make certain we follow routines. Do not set your wallet and keys down to go get your sunglasses before walking out the door, You'll end up searching everywhere for you wallet and keys!
     
  7. Like
    Nikki reacted to Dave in Pittsburgh in Favorite sounds of your week!   
    Hearing the various birds at the ocean while on vacation 
    Hearing the roar of the waves of the ocean 
  8. Like
    Nikki got a reaction from Megan L. in Favorite sounds of your week!   
    Juicy peach at lunch today. Sounded like rain really.  Sound effect complimented flavor and texture really well
  9. Like
    Nikki got a reaction from Mary Beth in Favorite sounds of your week!   
    Juicy peach at lunch today. Sounded like rain really.  Sound effect complimented flavor and texture really well
  10. Like
    Nikki got a reaction from Mary Beth in Rondo 2 questions!! 😁   
    Music sounds better than I expected with time
    I thought it'll never sound quite right but my new normal is extremely enjoyable.   I'm listening to music for hours every day,  and feel grateful it comes in as good as I remember. 
    Best of luck to you @MrVe9as
  11. Like
    Nikki got a reaction from Jenni in need advice on failed implant   
    @georgewes. Hi I've been through something very similar I know what you're talking about when I read roaring engine.  This almost brings me to tears and there is a lot of anger associated with all this.   My failed surgery was March 26 2016 but no one told me it failed.   I had to go through almost a year of crappy hearing,  magnetic fields noise in my head,  headaches and trust me I know how depressing it can be.  
    A friend here encouraged me to seek second opinion. 
    My advice to you I don't know if it's ok to put a name of a surgeon but I ended up in the hands of the first surgeon who did medEl in the east coast of the United states.   He has done many CI revision surgeries.  Although the team didn't promise it can be better,  he told me he can make it work the way it should and he certainly did.   
    On January 14 2018 I was activated with my new CI. They turned it on and I could hear.  Period. I could hear and recognize speech, music, everything is as good as can be.   This surgeon said all the electrodes went in and he didn't have any problem inserting all of them and gave me imaging to take home with me frome surgery so I DO THINK the positioning of the electrodes is crucial for success and yes some surgeons do what other can't.   Sorry but this is a backed up fact in my case. 
    Despite my horror experience,  mt second was a success and then it got to the point it was time ri decided about my other ear and I knew I'd only go with that surgeon I can trust and my left ear was activated short 4 or 5 months ago and I could understand speech right away on that one too.  So now in have 2 CIs and my life is way better than it was before CIs and I actually am proud of my CIs and even like them which i couldn't say for my first one. 
    Definitely don't give up.   There's hope.  It CAN get better.
  12. Like
    Nikki reacted to Jdashiell in need advice on failed implant   
    Absolutely true electrode positioning matters. Every cochlea is unique in size and shape. And there are also anatomical issues that can occur beyond the dimensions of the cochlea. 
    MedEl has created an amazing array of implants  to address size and shape and work with surgeons to create tools to aid implant surgery. 
    @Nikki and I went through our initial CI surgeries together- me in Miami, Nikki in VA / NC. We communicated via email. 
    My initial CI implant surgery (R) went fine and activation perfect. What I heard at first was robotic. Cartoon like for a week or two. But as I worked on it I began to hear clearly.
    nikki unfortunately did not have the same experience. 
    One year after my first surgery I started my second CI surgery in March 2017. Surgeon said surgery went fine. Activation revealed 5 of 12 electrodes went in. Everyone was surprised sadly though. We decided to redo the surgery June 1. Again surgeon indicated ok. Activation revealed 6 of 12 electrodes went in cochlea. 
    I was told I may have to live with this situation. I was shocked that this was it. Actually I was pissed off. I felt unhappy and decided to get another opinion. 
    I went to the university of Miami which is a research and teaching center. I met with another surgeon whom I heard speak at conference on CIs 
    i asked him to research my problem and he did so amazingly well my first meeting with him. 
    End result in March 2018 my third surgery went well- quite well. My Dr. Told me during implant surgery he confirmed that all 12 electrodes were in! Happy 😃 happy happy!!
    Activation went fantastic having the bad implant in and wearing a processor on that side helped by preparing my brain to hear via CI, albeit poorly. I knew that what Nikki was experiencing. 
    I think I can speak for her when I say stick with it, never give up on hearing again!
    get a second opinion. 
  13. Like
    Nikki got a reaction from Mary Featherston in need advice on failed implant   
    @georgewes. Hi I've been through something very similar I know what you're talking about when I read roaring engine.  This almost brings me to tears and there is a lot of anger associated with all this.   My failed surgery was March 26 2016 but no one told me it failed.   I had to go through almost a year of crappy hearing,  magnetic fields noise in my head,  headaches and trust me I know how depressing it can be.  
    A friend here encouraged me to seek second opinion. 
    My advice to you I don't know if it's ok to put a name of a surgeon but I ended up in the hands of the first surgeon who did medEl in the east coast of the United states.   He has done many CI revision surgeries.  Although the team didn't promise it can be better,  he told me he can make it work the way it should and he certainly did.   
    On January 14 2018 I was activated with my new CI. They turned it on and I could hear.  Period. I could hear and recognize speech, music, everything is as good as can be.   This surgeon said all the electrodes went in and he didn't have any problem inserting all of them and gave me imaging to take home with me frome surgery so I DO THINK the positioning of the electrodes is crucial for success and yes some surgeons do what other can't.   Sorry but this is a backed up fact in my case. 
    Despite my horror experience,  mt second was a success and then it got to the point it was time ri decided about my other ear and I knew I'd only go with that surgeon I can trust and my left ear was activated short 4 or 5 months ago and I could understand speech right away on that one too.  So now in have 2 CIs and my life is way better than it was before CIs and I actually am proud of my CIs and even like them which i couldn't say for my first one. 
    Definitely don't give up.   There's hope.  It CAN get better.
  14. Thanks
    Nikki reacted to Mary Beth in need advice on failed implant   
    @Nikki
    Your CI journey had a most unfortunate start.  I am sorry that happened to you.
    It makes me smile every time you mention how much you love your CIs now.  And you are playing guitar!  So cool!
    We need highly skilled CI surgeons who can deal with complicated cochleas.  We also need a highly effective CI team when things are not going as expected.  We need our CI team to investigate the issue, explain the situation to us, discuss options, reach out to Med-El surgical support & engineers when needed.  
    This level of competency and support is not available in all CI centers.  Unfortunately it is difficult to know this info prior to surgery.  
     
  15. Like
    Nikki got a reaction from Mary Beth in need advice on failed implant   
    @georgewes. Hi I've been through something very similar I know what you're talking about when I read roaring engine.  This almost brings me to tears and there is a lot of anger associated with all this.   My failed surgery was March 26 2016 but no one told me it failed.   I had to go through almost a year of crappy hearing,  magnetic fields noise in my head,  headaches and trust me I know how depressing it can be.  
    A friend here encouraged me to seek second opinion. 
    My advice to you I don't know if it's ok to put a name of a surgeon but I ended up in the hands of the first surgeon who did medEl in the east coast of the United states.   He has done many CI revision surgeries.  Although the team didn't promise it can be better,  he told me he can make it work the way it should and he certainly did.   
    On January 14 2018 I was activated with my new CI. They turned it on and I could hear.  Period. I could hear and recognize speech, music, everything is as good as can be.   This surgeon said all the electrodes went in and he didn't have any problem inserting all of them and gave me imaging to take home with me frome surgery so I DO THINK the positioning of the electrodes is crucial for success and yes some surgeons do what other can't.   Sorry but this is a backed up fact in my case. 
    Despite my horror experience,  mt second was a success and then it got to the point it was time ri decided about my other ear and I knew I'd only go with that surgeon I can trust and my left ear was activated short 4 or 5 months ago and I could understand speech right away on that one too.  So now in have 2 CIs and my life is way better than it was before CIs and I actually am proud of my CIs and even like them which i couldn't say for my first one. 
    Definitely don't give up.   There's hope.  It CAN get better.
  16. Like
    Nikki reacted to Jdashiell in February is a great month to post what we LOVE about our CIs   
    Well I still have difficulty hearing on the the phone, 😞 working on that.
    However, I have music back in my life I am able to play guitar and Bass and listen to all kinds of music!!
     
  17. Haha
    Nikki reacted to Daniel the Stranger in February is a great month to post what we LOVE about our CIs   
    I can understand what my boss talks over the phone in Spanish... he doesn't know it 😂
    I can understand what my wife says to our cat in the lounge next to our bedroom. (Yes, our cat likes to chat)
    I enjoy music more and more everyday during my daily commute. 
     
     
  18. Like
    Nikki reacted to Jdashiell in February is a great month to post what we LOVE about our CIs   
    I have InnoCaption too Technical issues tho. Rings once, disconnects. I need to troubleshoot.
    I use the cordless phone with speakerphone mostly. I have a daughter who seeks so rapidly and without punctuation or breathing I find id to difficult to stay on, and its usually stuff my wife must deal with.
    I listen to audio books in the car, currently John Adams bio by David McCullough.
    Other times I am listening to jazz or blues, or practicing. Just not in the car!
    Thank goodness I have music.
  19. Thanks
    Nikki reacted to Megan L. in February is a great month to post what we LOVE about our CIs   
    @Jewel You made an awesome list!!! Now I’ll add a few specific ones of my own 😁 
    *I recently went with a friend to see Anastasia on Broadway (for the first time since getting my CI) and could follow the entire story and dialogue. I loved that.
    *I work in apparel (Technical Design to be specific) and during fittings it’s my responsibility to take fit notes/comments to send to the vendor on pattern and garment fit corrections and I would never be able to do it without my CI. There is a lot of talk during these fittings between different departments (PD, Design, Merch) that if I didn’t have my CI, I’d never be able to follow!!
    *At work, I’d never hear people calling my name from across the room, now I do! 
    *I love that I can understand accents from around the world with very little effort
    *Music sounds the best it ever has - like a complete song not half or part of a song
    *Its been very freeing being able to talk and listen on the phone with ease 
    *I can eavesdrop on conversations at work...hehe so fun! Never could do that before 
    Thats all I have for now off the top of my tired head 😴😁
  20. Like
    Nikki reacted to Hicksy in February is a great month to post what we LOVE about our CIs   
    Mine is simply the fact I can talk to people again. I was always an outgoing guy and didn’t let my hearing loss stop me while with close friends despite messing up big time occasionally but I was really withdrawing otherwise. Now I can go into a coffee shop and chat with anyone. Getting my life back! (And some new friends)😀
  21. Thanks
    Nikki reacted to Mary Beth in February is a great month to post what we LOVE about our CIs   
    @Nikki
    The first post in this thread is about our NYC trip and also the thread called most inconvenient dead battery experience!  That happened to me during the musical Beautiful!
  22. Haha
    Nikki reacted to Jewel in February is a great month to post what we LOVE about our CIs   
    Well I only have one CI but I certainly do love it. It has literally changed my life in the past 5 months since I've been activated. 
    1. I got my life back! I can be the independent person I was previously. I no longer have to depend on someone to do things for me because of  my deafness. 
    2. I now remember my love for music! For so many years I couldn't enjoy music. Now I play it as soon as I hop into my car. 
    3. I can follow the storyline and genuinely laugh with the rest of the audience when I go to the cinema or to the theater for live plays. 
    4. I can make and receive phone calls with no problem. I can call coworkers instead of having someone else make the call for me or me having to literally walk to the person's office! 
    5. I can hear the ambulance and police sirens which I have not been able to do in over a decade! 
    6. I can look at a person's entire face and enjoy the conversation and not have to focus on the person's lips and rely on lipreading and hope that the person doesn't realise that all I am doing is looking at his/her lips! 
    7. I can tune into webinars at work which aren't captioned and which I couldn't benefit from before for work. 
    8. I can follow along generally with ease when I'm in a meeting. 
    9. I can hear people talking behind me and actually hear what they say! 
    10. I can actually carry on a conversation while driving, irrespective of whether the person is sitting beside or behind me. 
    11. I can hear the raindrops on my car! 
    12. I can hear the car indicator. 
    13. I no longer have to say "What?" every few minutes. 
    14. I can block out what everyone is saying by going to telecoil or removing the processor or I can welcome the sound by using M or MT. 
    15. I can hear people with soft voices. 
    16. I sometimes forget that I'm deaf thanks to this amazing device! 
    17. I can hold a conversation on an intercom at a gate. 
    18. When I wear the processor, my voice sounds better (so I'm told). 
    19. I have been able to keep my job (so far). 
    20. I can enjoy the various sounds all around me, like the birds chirping. I used to think that there are hardly any birds in town cos I couldn't hear them. Now I am hearing them even if I don't see them. And I hear the lizards and crickets too. 
    21. I can enjoy YouTube vids and audio recordings. 
    I could go on and on and on! 😂 
    Please chime in @Kara of Canada
    @Marion nancy
    @Emily C.
    @Hicksy
    @DaveD
     
     
     
  23. Like
    Nikki got a reaction from Jewel in February is a great month to post what we LOVE about our CIs   
    Aww thank you MB.  
    Still looking for NYC trip report
    Btw,  I've attended Broadway show in norfolk. Wizard of oz.  It's was much easier to understand lyrics in songs than dialogues on stage.  Overall it was fantastic.  If it was 2 years ago, there would have been absolutely no point in going. 
  24. Like
    Nikki got a reaction from Mary Beth in February is a great month to post what we LOVE about our CIs   
    Love that I forget the sad part that in fact, once upon a time, I completely lost my hearing, and with it a big chunk of things I cared about in life.  It was not really long ago but now feels like a different lifetime.   From the moment I have my CIs on till the time they go to the dry box at night, I have my life,  my music,  regular communication,  lots of sounds as well as birds song - back.  At the end of the day I feel I can accomplish anything. Improved mental health definitely a huge plus.  I love my CIs for giving me a reason to love life again. 
    I also love that my CIs made it possible for me play music .  Something I haven't done for over 2 decades.   
  25. Like
    Nikki got a reaction from Jewel in February is a great month to post what we LOVE about our CIs   
    Love that I forget the sad part that in fact, once upon a time, I completely lost my hearing, and with it a big chunk of things I cared about in life.  It was not really long ago but now feels like a different lifetime.   From the moment I have my CIs on till the time they go to the dry box at night, I have my life,  my music,  regular communication,  lots of sounds as well as birds song - back.  At the end of the day I feel I can accomplish anything. Improved mental health definitely a huge plus.  I love my CIs for giving me a reason to love life again. 
    I also love that my CIs made it possible for me play music .  Something I haven't done for over 2 decades.   
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