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Nameeta Patil

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    11
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About Nameeta Patil

  • Rank
    Newbie

Profile Info

  • Search Profile
    Parent of a hearing implant user
  • Implanted
    Yes
  • Implant Period
    Over 5 years
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Other
  • Pre/post lingual Hearing Loss
    Not applicable
  • Sudden/Progressive Hearing Loss
    Not applicable
  • Uni/bilateral Implant
    Bilateral implant
  • Country
    United Kingdom

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  1. We tried Med-el waterwear and agree not very user friendly and moisture had leaked in a bit. Also very difficult to keep it secure. I have heard on other parent forums that the Cochlear ones are better but not tried it yet. My daughter is not a swimming enthusiast just wants to learn and be confident at it, she prefers being deaf at the swimming class. Just a thought Med-el has a sports headband for physical activities where the implants stay secure in the pockets of the headband, worth giving a try. Hope Med-el comes with a better product just for swimming!
  2. Hello, Our daughter who was bilaterally implanted at 14 months (now 8yrs. old) has had sleeping problems since birth. My daughter constantly needed my touch and warmth to fall asleep. Yes we also felt it was down to lack of sense of hearing at night. We also had to resort to giving melatonin, prescribed by paediatrician as I was falling ill due to sleep deprivation. We chose to co-sleep as that is the only thing that really helped her to sleep through the night. Does he have a night lamp in his room? Sometimes a comfort cloth, stuffed toy(sleep buddy) may also help. Every child is different and there is no one solution you just have to keep trying different things to comfort your child and hope it works or sometimes growing up a little is the only option. Also checkout if there are any books that may help to address the fear he has. Good luck!!
  3. Lovely read, thank you Adam for sharing. I totally agree with it, no child should be treated differently you just have to respect and cater to the special need, that could be anything! My daughter, Priyanka, who is bilateral, Opus2, 7yrs old, celebrated International Cochlear Implant by addressing the assembly and educating her hearing peers about what it feels to be deaf, what is a Cochlear Implant and how they can help her to hear better. She also spoke about why she has to wear a protective head band and how they can help. It was very liberating experience for Priyanka and has achieved a new level of confidence. This was so well received that the school has decided to make this a regular feature and invite any child who wants to share something!?
  4. Not yet, our paediatrician appointment is end of April! Have jotted down the suggestions to ask the consultant about vestibular rehab. and post implant CI vertigo. Thank you very much for that! Fingers crossed not had an episode for sometime now. Wearing the headband all day is helping. Also her wonderful school, Alwoodley Primary has even planned a specific daily routine to minimise knocks and bumps, that is just out of this world for us.
  5. Not yet, our paediatrician appointment is end of April! Have jotted down the suggestions to ask the consultant about vestibular rehab. and post implant CI vertigo. Thank you very much for that! Fingers crossed not had an episode for sometime now. Wearing the headband all day is helping. Also her wonderful school, Alwoodley Primary has even planned a specific daily routine to minimise knocks and bumps, that is just out of this world for us.
  6. http://www.dailymail.co.uk/health/article-4126352/Can-ear-implant-restore-hearing-thousands-people.html
  7. Hi Adam, Fingers crossed not had any head injuries. Thanks for asking. Consultant from YAIS (Yorkshire Auditory implant service) confirmed there is nothing invasive can be done about this as there is risk of damaging the implant. Hopefully things will get better as she grows up. We have also asked for consultation with paediatrician to rule out any balance issues, as advised by Mary. Meanwhile she continues to wear the Unequal protective headband all day in school. Have not found any better solution than this headband.
  8. Thank you for your responses Mary and Ivana. Most of the bumps have been caused by other children having head on impact during playtime. Probably one has been due to her falling down. There is no evidence of her having any balance issues in school or at home. But will discuss this with the consultant at our next appointment. Search for the right head protection continues. Also had suggestions from other parents about using scrum hat and mole skin (this is used under the head coil and also acts as an anti-static.
  9. My daughter will be 7yrs. old in December, is a bilateral cochlear implant user (Opus2). She is very well eshtablished in her hearing and speech journey and doing very well in a mainstream school. Unfortunately her journey has also been marred with niggling issues like LHS reimplant, and RHS implant site having swelling with the slightest of knocks or bumps. In the last one year she has had five such swellings, most of them have gone with usage of head bandage or stronger magnet and a course of anti-biotics. One she had to undergo a minor surgery to drain out the fluid. With all this we came to a conclusion that she needs to wear a protective headband to reduce effect of any impact all day in school. We tried the Unequal headband, it is a good headband but not a good fit. We also tried the Forcefield headband which also not a good fit and she had a swelling from an impact with this headband on her! YAIS, Yorshire Auditory Implant services, Bradford, have always been prompt and efficient in providing us with appointments with Consultants and Audiology for this purpose. Unfortunately Priyanka seems to be the only one at YAIS going through such an experience. The problem is there is no protective head gear meant for Cochlear Implant users that can guarantee to reduce impact from knocks, bumps and falls. As a parent I feel helpless seeing my daughter's spirit dampening after every such swelling episodes. The last time it happened she said, 'I am jealous of the hearing world who don't have to go through what I have too, why I am deaf?'? It would be very helpful to hear from parents who have had such similar experience and to know if there is any other protective head band better suited for this purpose.
  10. Hello, Yes my daughter had a left side reimplant because of electrodes switching off, cause is unknown.
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