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Renachelw

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Renachelw last won the day on May 15 2018

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About Renachelw

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    Super Contributor

Profile Info

  • Search Profile
    User of a hearing implant
  • Implanted
    Yes
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Unknown / Prefer not to say
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Not applicable
  • Country
    Singapore

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  1. Hi everyone, I just went for my first mapping last monday. Started off with speech therapy followed by a hearing test, after which my audiologist gave me new programs. She says hearing on some frequencies is a bit unclear for me, but cant exactly pinpoint which one is wrong because seems like my "lost" frequencies is here and there and thus hard to identify. So, one program was tuned according to the audiogram, and the others were just mic directionality I think. Oh there's also another program which is my very first program (factory settings i think?) but just increased in volume. I am really having a hard time knowing which program suits me best. In fact, I actually do not feel any improvement these days. Audiologist says my high frequency is near/within the normal hearing range. After activation, in about a week, my hearing sounded pretty normal already. I wonder if this is already the best? Somewhat disappointed because radio, PA systems, mics, churches, loud environments, movies etc are still quite hard. I'm currently using the "original settings but louder" program as the one tuned to my audiogram seems really loud and echoy even though it is the same volume. It also sounds "distorted" in a sense that compared to my original setting, a particular singer's voice sounds really deep and less melodious. I'm really confused because I cant tell if this "distortion" is how its supposed to be, and am I supposed to train to get used to this setting, or will it be fine just using the "original but louder" setting because it is less "distorted" and more comfortable? Anyone else had this problem? Thanks.
  2. Hi everyone, So its been about 2 months since switch on, and my hearing is still about the same as in the first few weeks. I'm not sure, maybe I've reached the peak already, but will have to go for my first mapping end of this month. I am paranoid and have anxiety and honestly the CI is really scaring me because: 1) Sometimes it feels like my hearing has decreased. I'm not sure if it's my imagination or if it is really getting weaker. 2) Occassionaly, I hear some popping/cackling sounds. It's not long but maybe tic tic, twice and its gone. (Is my implant failing?) 3) When I stream music directly to my single-unit processor, again, im not sure if its my imagination, but sometimes my ear/head (idk the exact spot) feels kindy achy. Like an aching pain, but it isn't pain. I don't really know how to describe it. 4) I find myself asking people to repeat more (but not as often as pre-implant) coz i miss out/what I hear sounds muffled occassionaly. So yeah, any idea if its me or my implant that's not working? haha. Also, where do yall guys get your powerone batteries from? It's expensive here in Sg, and I have to order from Amazon. I'm not sure if its reliable, but it costs around 40USD for 10 packs. Does anyone have reliable sources with international shipping? Thanks
  3. Hi everyone, So its been about 2 months since switch on, and my hearing is still about the same as in the first few weeks. I'm not sure, maybe I've reached the peak already, but will have to go for my first mapping end of this month. I am paranoid and have anxiety and honestly the CI is really scaring me because: 1) Sometimes it feels like my hearing has decreased. I'm not sure if it's my imagination or if it is really getting weaker. 2) Occassionaly, I hear some popping/cackling sounds. It's not long but maybe tic tic, twice and its gone. (Is my implant failing?) 3) When I stream music directly to my single-unit processor, again, im not sure if its my imagination, but sometimes my ear/head (idk the exact spot) feels kindy achy. Like an aching pain, but it isn't pain. I don't really know how to describe it. 4) I find myself asking people to repeat more (but not as often as pre-implant) coz i miss out/what I hear sounds muffled occassionaly. So yeah, any idea if its me or my implant that's not working? haha. Also, where do yall guys get your powerone batteries from? It's expensive here in Sg, and I have to order from Amazon. I'm not sure if its reliable, but it costs around 40USD for 10 packs. Does anyone have reliable sources with international shipping? Thanks
  4. Thanks @Mary Beth That's wonderful! Voice and Music sound quite natural to me now, even though I have yet to map. I gradually increased the available volume, and now the loudest seem soft to me. My audiologist says this means I'm getting used to the CI now, but I wonder if this means I will have to keep increasing the volume because all sounds will seem soft in future? (I mean, will I eventually be immune to loudness?) What happens when I reach the max volume available? Also I still find it very difficult to differentiate male and female voices in songs.. I'm afraid I'll never be able to differentiate. All singers sound too similar, I cant identify their uniqueness anymore. How did you manage to train pitch? My violin sounds weird for the high notes. Now, I'm not sure if what I'm hearing is normal, or what i used to hear is weird. I have no idea which is the correct version. I'm so confused haha. My audiologist did mention of the possibility of one electrode being a misfit or smth like that, hence sounds around 2000Hz, I cant differentiate. Might have to turn off that electrode. What happens when an electrode is switched off? And also, how do I identify symptoms of implant migration? Sorry for having so many questions
  5. Hi Guys, If you are unilateral or have had normal hearing in the past before being hit with hearing loss, how would you compare the sounds that you hear with the CI now? https://auditoryneuroscience.com/prosthetics/music Came across this link as well as a few others, the CI versions are usually either robotic or lacks melody. Is this common? Or is this just how older implants were like? Thanks
  6. Hi everyone, As mentioned in another post, I was actually given a remote with volumes from 6-10. I felt fine with staying at 6 so I didn’t increase, but after some tests, my audiologists told me I needed to increase the volume as I was not hearing all the sounds. Mapping has been shifted to end July. I am currently at volume 10 which is the loudest my audiologist has set for me so far, and i'm panicking because I cannot really hear speech in an open area/large room. I can hear that someone is talking, but I have no idea what they're saying. In a small office, I can hear the person 3 meters away from me, its quite loud but cant make out the words. Is this normal? I can hear without lip-reading in cars/small room, but in other situations, its muffled/blur and I don't know what to do now. Feels like the time when I was losing my hearing all over again... Anyone else experienced this?
  7. Renachelw

    Newhearing

    @Kara of Canada Thanks I just got back from the audiologist and speech therapy. I was actually given a remote with volumes from 6-10. I felt fine with staying at 6 so I didn’t increase, but today after some tests, my audiologists told me I needed to increase the volume as I was not hearing all the sounds. Mapping has been shifted to end July. Also I can’t rly differentiate male and female voices in songs, as well as when I whistled I only hear the air sound but not the whistle sound. Did more beeping test, and we found that 2000Hz to be a low sound for me. Audiologists says it might be because one of the electrodes are not suitable or smth along those lines, but since it’s still early days, we’ll give it a month before returning back for mapping. So for now, no changes. My speech therapist and audiologist says that so far I’m progressing well, so we do not need to meet until end July. Meanwhile, I have to try to train my brain, especially for those words I can’t hear during rehab. I also have to switch of my hearing aid and use only the implant from now on, to train my brain faster, they said. Thats all for today
  8. Renachelw

    Newhearing

    Hi @Kara of Canada that's good to hear! It's been almost, (1 day more) to a week since switch on. I'm hearing relatively well, speech is sounding more normal now, and sometimes I can even hear through rooms without lipreading! It's magical. The quality of sound right now i'm hearing is about the same as the time when my hearing was Profound range and HAs did not help, and had to use the FM system. It sounds "echo-y" like the FM system. Not sure if that's supposed to be like that or what lol. I also tried singing last night. I listened to Sam Smith's too good at goodbyes for the 1st time (and many times after that), followed by attempting. My sis says I improved a lot, but maybe I need better speakers coz i'm still quite terrible lol. I can finally hear what song is like. All long I've been hearing and singing as if i'm reading, I can finally hear the -Idk the word- vibrato?? I'm still having some problems with Pitch and differentiating Male and Female voice in songs though. Honestly I do not know why I can understand speech so fast (as I've read that most people don't get it till more mappings), so i'm actually really scared that this is the best quality i'll ever get and i'm potentially stuck with it? I do not know. Will be going for my 1st mapping later in the afternoon, followed by speech therapy. I'm wondering what it will be like during and after? Edit: I also listened on YouTube to tunes of some songs I used to play on the violin, they're recognizable but not fantastic. Definitely better than during my terrible hearing with HAs. I might go back to playing the violin again someday. Now i'm actually scared to try coz I don't want to be disappointed.
  9. @Mary Beth Thanks for the info I'm currently using my HA batteries. The hospital gave me a box of implant batteries too, not sure if there's any difference? Day 4: I heard birds this morning! I think I might have had hearing loss all my life, i'm not sure actually. Mild hearing loss on the left side was detected when I was 7, and the right side started dropping when I was 14. Strangely for the 14 years of "normal hearing", I never heard birds in a group, all at once. They sound a bit like alien birds tho. Haha.
  10. I wonder if anyone experiences beeping when walking through those electro-magnetic lock doors? The type where you have to press a switch to unlock, and it locks back on contact. I wonder if it affects? The lock is quite high up and i'm quite short.. I heard a beep just now walking under, but not sure if it beeped because of the magnet, or because of my automatic program change which is based on the surrounding. I also just ran out of batteries... so two 675 batteries lasts me around 29 hours of use. Oh man..
  11. @stranger Maybe its because of the environment? I believe gyms are much noisier compared to a small office with less than 10 staff. Yesterday I couldn't hear background music at home, but I heard the ceiling fan cranking for the first time. Mum said it was cranking since long ago but I just didn't hear it lol. With the cranking, I coudn't hear the background music.
  12. Thanks everyone @stranger I don’t know either, but now when I hear that metallic sound, I associate it with keys, and surprisingly got it right. It’s quite similar to how it used to sound, but also quite different. I dont know how to explain lol. My next and first mapping will be this coming Monday. I’m at work now, and can hear the mouse clickings and typings in office, just found out there’s even background music playing. I’m enjoying every bit haha.
  13. @Mary Beth @Mary Featherston Thanks, that’s great to know Day 3, my head still rings when I put on the processor. Think I need few hours to get used to it before the ringing stops. I can’t really differentiate singers, they all sound the same to me.. some parts of the songs seem to go really soft, and then back loud again. Not sure if this is because they sang too high or too low, out of my audible range, or is it literally just diminuendo. Oh, I heard keys jingling, they sound really metallic and high. Plastic and paper sounds annoying, but I ain’t complaining I sound different since switch on. I sound like I’m having a sore throat, and I sound very low. I don’t sound soft to myself, but everyone’s saying I’m speaking too softly. I don’t know what’s going on, hope mapping can solve this issue. And.. I can’t sing :/ I’m terribly off. Lol.
  14. @Mary Beth Thanks for the information Previously I only used a drying beaker for my HAs, so this electric dryer thing is very new to me haha. @stranger That's interesting! I guess different makers have different storage instructions haha. My processor uses non-rechargeable batteries, I think i'm going to go broke as batteries seem to run out much faster than HAs :/ @Jewel Yes, I am happy and surprised too! A lot of people prayed for me, it must've worked Honestly i'm happy and scared at the same time because it feels too good to be true, and now, I'm afraid to lose this newfound hearing. The sounds don't sound too unnatural now as when first switch on, but I hope it can be better. I tried streaming music to my processor and it doesn't sound that bad! I'm able to hear few sentences on the radio (In Chinese though. I've not tried listening to English channel yet, but Chinese used to be easier as there's more tone.) Only wish they would speak slower because its so hard to catch and i'm not used to listening haha. For high-pitched songs, it's still hard to differentiate between male and female voices. I'm trying to listen to songs (while i'm working now, multitasking lol) as much as possible and hopefully I can rehab on my own.. the hospital wants me to go for rehab but it is so costly here. It's also very time consuming. Trying my best. Songs sound quite different yet similar to what I heard before I lost my hearing, it's quite hard to describe. Guitars sound like Zithers now, and when I whistle, I only hear the air sound. Not sure if it will get better with mapping, but I certainly hope it will
  15. Yup. Thanks everyone Day 2, as soon as I put on the implant, for some strange reason my ears started ringing. I hope this is normal..? I can also hear parts of conversations from the backseat in a car without lipreading. This is life changing. I’m quite hopeful, and look forward to my first mapping soon! Btw, just curious, how do store your processors? I was given some electronic dryer. After taking the processors out, it feels quite warm. A little bit of heat should be no harm I’m guessing..?
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