Jump to content

Renachelw

Members
  • Content Count

    38
  • Joined

  • Last visited

  • Days Won

    1

Everything posted by Renachelw

  1. Hi Everyone, I'm back here I'm not sure where I've left off here, but I got implanted 2 years ago on my right side and it is awesome. I got implanted with Cochlear and not Medel tho, so I can't really speak about my experience with Medel. Anyway it's really good. Much better than any hearing aid I ever used. I am hearing very well, almost normally. Would say above 90% for speech. Sometimes I can even hear lyrics to songs I listen for the first time, and also TV shows without closed captioning. Cinemas are still a little difficult tho. Maybe it's the surrounding. As for whether I could hear instantly after switch on, at first everyone sounded squeaky and there were alien sounds. But I rmb trying not to look at my audiologist and could make out few words back then on the same day. After a few hours, I could recognise more words. It's not the same for everyone tho. Have been told mine was rly fast. Maybe it's because I'm young too? 😅 Was hearing and understanding speech within the week or so. But of course, in early days, there were still problems like differentiating male and female voices over audio. Its much better now but certain high pitch singers can still get me confused at times. Another problem was kids. Kids are still a little difficult to hear, but have been told by hearing people that sometimes it's that way for them as well. They can't really hear kids and mostly just guess what they're saying? 🤷🏻‍♀️ Then there's also the difficulty in using landline phones. It's a lot harder than using handphones for calls. Although I can stream calls from my mobile to my CI with a streamer, I still use a flathead earpiece to stick onto my processor (mines single unit, smth like the Rondo.) I can also hear quite well if I hold the phone to my processor like normal. Just that accuracy is not 100% and if the background is noisy it's still very difficult. Anyway, before panicking, best to check with your doctor if you're a candidate for CIs first. Some people might not even be able to do the CI depending on the scans/condition. Best to check to avoid any potential disappointment. Overall, I have no regrets doing the CI and it has made my life a lot better. Dating is now possible too 😅 All the best, I hope this works out for you too
  2. Hi everyone, I just went for my first mapping last monday. Started off with speech therapy followed by a hearing test, after which my audiologist gave me new programs. She says hearing on some frequencies is a bit unclear for me, but cant exactly pinpoint which one is wrong because seems like my "lost" frequencies is here and there and thus hard to identify. So, one program was tuned according to the audiogram, and the others were just mic directionality I think. Oh there's also another program which is my very first program (factory settings i think?) but just increased in volume. I am really having a hard time knowing which program suits me best. In fact, I actually do not feel any improvement these days. Audiologist says my high frequency is near/within the normal hearing range. After activation, in about a week, my hearing sounded pretty normal already. I wonder if this is already the best? Somewhat disappointed because radio, PA systems, mics, churches, loud environments, movies etc are still quite hard. I'm currently using the "original settings but louder" program as the one tuned to my audiogram seems really loud and echoy even though it is the same volume. It also sounds "distorted" in a sense that compared to my original setting, a particular singer's voice sounds really deep and less melodious. I'm really confused because I cant tell if this "distortion" is how its supposed to be, and am I supposed to train to get used to this setting, or will it be fine just using the "original but louder" setting because it is less "distorted" and more comfortable? Anyone else had this problem? Thanks.
  3. Hi everyone, So its been about 2 months since switch on, and my hearing is still about the same as in the first few weeks. I'm not sure, maybe I've reached the peak already, but will have to go for my first mapping end of this month. I am paranoid and have anxiety and honestly the CI is really scaring me because: 1) Sometimes it feels like my hearing has decreased. I'm not sure if it's my imagination or if it is really getting weaker. 2) Occassionaly, I hear some popping/cackling sounds. It's not long but maybe tic tic, twice and its gone. (Is my implant failing?) 3) When I stream music directly to my single-unit processor, again, im not sure if its my imagination, but sometimes my ear/head (idk the exact spot) feels kindy achy. Like an aching pain, but it isn't pain. I don't really know how to describe it. 4) I find myself asking people to repeat more (but not as often as pre-implant) coz i miss out/what I hear sounds muffled occassionaly. So yeah, any idea if its me or my implant that's not working? haha. Also, where do yall guys get your powerone batteries from? It's expensive here in Sg, and I have to order from Amazon. I'm not sure if its reliable, but it costs around 40USD for 10 packs. Does anyone have reliable sources with international shipping? Thanks
  4. Hi everyone, So its been about 2 months since switch on, and my hearing is still about the same as in the first few weeks. I'm not sure, maybe I've reached the peak already, but will have to go for my first mapping end of this month. I am paranoid and have anxiety and honestly the CI is really scaring me because: 1) Sometimes it feels like my hearing has decreased. I'm not sure if it's my imagination or if it is really getting weaker. 2) Occassionaly, I hear some popping/cackling sounds. It's not long but maybe tic tic, twice and its gone. (Is my implant failing?) 3) When I stream music directly to my single-unit processor, again, im not sure if its my imagination, but sometimes my ear/head (idk the exact spot) feels kindy achy. Like an aching pain, but it isn't pain. I don't really know how to describe it. 4) I find myself asking people to repeat more (but not as often as pre-implant) coz i miss out/what I hear sounds muffled occassionaly. So yeah, any idea if its me or my implant that's not working? haha. Also, where do yall guys get your powerone batteries from? It's expensive here in Sg, and I have to order from Amazon. I'm not sure if its reliable, but it costs around 40USD for 10 packs. Does anyone have reliable sources with international shipping? Thanks
  5. Thanks @Mary Beth That's wonderful! Voice and Music sound quite natural to me now, even though I have yet to map. I gradually increased the available volume, and now the loudest seem soft to me. My audiologist says this means I'm getting used to the CI now, but I wonder if this means I will have to keep increasing the volume because all sounds will seem soft in future? (I mean, will I eventually be immune to loudness?) What happens when I reach the max volume available? Also I still find it very difficult to differentiate male and female voices in songs.. I'm afraid I'll never be able to differentiate. All singers sound too similar, I cant identify their uniqueness anymore. How did you manage to train pitch? My violin sounds weird for the high notes. Now, I'm not sure if what I'm hearing is normal, or what i used to hear is weird. I have no idea which is the correct version. I'm so confused haha. My audiologist did mention of the possibility of one electrode being a misfit or smth like that, hence sounds around 2000Hz, I cant differentiate. Might have to turn off that electrode. What happens when an electrode is switched off? And also, how do I identify symptoms of implant migration? Sorry for having so many questions
  6. Hi Guys, If you are unilateral or have had normal hearing in the past before being hit with hearing loss, how would you compare the sounds that you hear with the CI now? https://auditoryneuroscience.com/prosthetics/music Came across this link as well as a few others, the CI versions are usually either robotic or lacks melody. Is this common? Or is this just how older implants were like? Thanks
  7. Hi everyone, As mentioned in another post, I was actually given a remote with volumes from 6-10. I felt fine with staying at 6 so I didn’t increase, but after some tests, my audiologists told me I needed to increase the volume as I was not hearing all the sounds. Mapping has been shifted to end July. I am currently at volume 10 which is the loudest my audiologist has set for me so far, and i'm panicking because I cannot really hear speech in an open area/large room. I can hear that someone is talking, but I have no idea what they're saying. In a small office, I can hear the person 3 meters away from me, its quite loud but cant make out the words. Is this normal? I can hear without lip-reading in cars/small room, but in other situations, its muffled/blur and I don't know what to do now. Feels like the time when I was losing my hearing all over again... Anyone else experienced this?
  8. Renachelw

    Newhearing

    @Kara of Canada Thanks I just got back from the audiologist and speech therapy. I was actually given a remote with volumes from 6-10. I felt fine with staying at 6 so I didn’t increase, but today after some tests, my audiologists told me I needed to increase the volume as I was not hearing all the sounds. Mapping has been shifted to end July. Also I can’t rly differentiate male and female voices in songs, as well as when I whistled I only hear the air sound but not the whistle sound. Did more beeping test, and we found that 2000Hz to be a low sound for me. Audiologists says it might be because one of the electrodes are not suitable or smth along those lines, but since it’s still early days, we’ll give it a month before returning back for mapping. So for now, no changes. My speech therapist and audiologist says that so far I’m progressing well, so we do not need to meet until end July. Meanwhile, I have to try to train my brain, especially for those words I can’t hear during rehab. I also have to switch of my hearing aid and use only the implant from now on, to train my brain faster, they said. Thats all for today
  9. Renachelw

    Newhearing

    Hi @Kara of Canada that's good to hear! It's been almost, (1 day more) to a week since switch on. I'm hearing relatively well, speech is sounding more normal now, and sometimes I can even hear through rooms without lipreading! It's magical. The quality of sound right now i'm hearing is about the same as the time when my hearing was Profound range and HAs did not help, and had to use the FM system. It sounds "echo-y" like the FM system. Not sure if that's supposed to be like that or what lol. I also tried singing last night. I listened to Sam Smith's too good at goodbyes for the 1st time (and many times after that), followed by attempting. My sis says I improved a lot, but maybe I need better speakers coz i'm still quite terrible lol. I can finally hear what song is like. All long I've been hearing and singing as if i'm reading, I can finally hear the -Idk the word- vibrato?? I'm still having some problems with Pitch and differentiating Male and Female voice in songs though. Honestly I do not know why I can understand speech so fast (as I've read that most people don't get it till more mappings), so i'm actually really scared that this is the best quality i'll ever get and i'm potentially stuck with it? I do not know. Will be going for my 1st mapping later in the afternoon, followed by speech therapy. I'm wondering what it will be like during and after? Edit: I also listened on YouTube to tunes of some songs I used to play on the violin, they're recognizable but not fantastic. Definitely better than during my terrible hearing with HAs. I might go back to playing the violin again someday. Now i'm actually scared to try coz I don't want to be disappointed.
  10. @Mary Beth Thanks for the info I'm currently using my HA batteries. The hospital gave me a box of implant batteries too, not sure if there's any difference? Day 4: I heard birds this morning! I think I might have had hearing loss all my life, i'm not sure actually. Mild hearing loss on the left side was detected when I was 7, and the right side started dropping when I was 14. Strangely for the 14 years of "normal hearing", I never heard birds in a group, all at once. They sound a bit like alien birds tho. Haha.
  11. I wonder if anyone experiences beeping when walking through those electro-magnetic lock doors? The type where you have to press a switch to unlock, and it locks back on contact. I wonder if it affects? The lock is quite high up and i'm quite short.. I heard a beep just now walking under, but not sure if it beeped because of the magnet, or because of my automatic program change which is based on the surrounding. I also just ran out of batteries... so two 675 batteries lasts me around 29 hours of use. Oh man..
  12. @stranger Maybe its because of the environment? I believe gyms are much noisier compared to a small office with less than 10 staff. Yesterday I couldn't hear background music at home, but I heard the ceiling fan cranking for the first time. Mum said it was cranking since long ago but I just didn't hear it lol. With the cranking, I coudn't hear the background music.
  13. Thanks everyone @stranger I don’t know either, but now when I hear that metallic sound, I associate it with keys, and surprisingly got it right. It’s quite similar to how it used to sound, but also quite different. I dont know how to explain lol. My next and first mapping will be this coming Monday. I’m at work now, and can hear the mouse clickings and typings in office, just found out there’s even background music playing. I’m enjoying every bit haha.
  14. @Mary Beth @Mary Featherston Thanks, that’s great to know Day 3, my head still rings when I put on the processor. Think I need few hours to get used to it before the ringing stops. I can’t really differentiate singers, they all sound the same to me.. some parts of the songs seem to go really soft, and then back loud again. Not sure if this is because they sang too high or too low, out of my audible range, or is it literally just diminuendo. Oh, I heard keys jingling, they sound really metallic and high. Plastic and paper sounds annoying, but I ain’t complaining I sound different since switch on. I sound like I’m having a sore throat, and I sound very low. I don’t sound soft to myself, but everyone’s saying I’m speaking too softly. I don’t know what’s going on, hope mapping can solve this issue. And.. I can’t sing :/ I’m terribly off. Lol.
  15. @Mary Beth Thanks for the information Previously I only used a drying beaker for my HAs, so this electric dryer thing is very new to me haha. @stranger That's interesting! I guess different makers have different storage instructions haha. My processor uses non-rechargeable batteries, I think i'm going to go broke as batteries seem to run out much faster than HAs :/ @Jewel Yes, I am happy and surprised too! A lot of people prayed for me, it must've worked Honestly i'm happy and scared at the same time because it feels too good to be true, and now, I'm afraid to lose this newfound hearing. The sounds don't sound too unnatural now as when first switch on, but I hope it can be better. I tried streaming music to my processor and it doesn't sound that bad! I'm able to hear few sentences on the radio (In Chinese though. I've not tried listening to English channel yet, but Chinese used to be easier as there's more tone.) Only wish they would speak slower because its so hard to catch and i'm not used to listening haha. For high-pitched songs, it's still hard to differentiate between male and female voices. I'm trying to listen to songs (while i'm working now, multitasking lol) as much as possible and hopefully I can rehab on my own.. the hospital wants me to go for rehab but it is so costly here. It's also very time consuming. Trying my best. Songs sound quite different yet similar to what I heard before I lost my hearing, it's quite hard to describe. Guitars sound like Zithers now, and when I whistle, I only hear the air sound. Not sure if it will get better with mapping, but I certainly hope it will
  16. Yup. Thanks everyone Day 2, as soon as I put on the implant, for some strange reason my ears started ringing. I hope this is normal..? I can also hear parts of conversations from the backseat in a car without lipreading. This is life changing. I’m quite hopeful, and look forward to my first mapping soon! Btw, just curious, how do store your processors? I was given some electronic dryer. After taking the processors out, it feels quite warm. A little bit of heat should be no harm I’m guessing..?
  17. Thanks everyone I’ve activated it. At first my audiologists sounded like demons, I think I’m gonna have nightmares tonight haha. Surprisingly, after a while they sounded more like humans. Everything still sounds squeaky tho, but I’m able to hear much more than I could with hearing aids. I actually tried not lipreading my audiologists and managed to make out a few sentences. But now that I’ve left the room, with background noise, everyone sounds squeaky again. Hope it will get better and I’m so glad I did this surgery. Fingers crossed
  18. Hi everyone, Later today I will be going to switch on my implant. It's been about 22 days since surgery. So far all seems good except for the fact that I thought I had a scab on my ear, pulled on it, and instead, a string of stitch came out. I mistakenly pulled out a stitch. That aside, I do not feel any pain, except for the occasional stinging of the surgical site, which I assume is normal since the skin feels thin? I'm also kinda worried now coz ytd night I had a long chain of hard sneezes, and sneezed really hard like some crazy woman haha. This morning, my ear/head felt some pressure, and I'm wondering if it's because of sneezing so hard and so many times? Also, does sneezing have the potential to dislodge anything inside? And if the implant migrates, how will we know? Thank you
  19. Nope I didn’t have any side effects. No nausea, no pain, no headaches or vomitting. I feel normal except for the throat pain. But now I have terrible ringing in my ears and I’m so scared it will be there forever. It’s very very loud, it woke me up last night. I used to have tinnitus but it wasn’t this bad. I don’t know what to do now :/
  20. Thanks switch on is on 5th June, and 1st mapping on 11th June. My abs feels sore currently.. anyone has any idea if this is normal?
  21. Hi everyone, thank you so much for your replies! I survived the surgery. They gave me some IV and I knocked out even before they gave me the anesthesia gas Before I knew it, I was in the waiting room already. Throat has a little bit of bleeding from the intubation, but otherwise all’s good and will be able to go home today
  22. Hi everyone, thanks for your constant support these past few months I am so glad to have virtually met you all on this website, even though I eventually did not choose Medel. (The hospital doesn't allow me to change brands now that I already ordered it ) I am still so scared because honestly idk if I am thinking too much, but I have always been feeling tired/ weaker than others. So I'm hoping that I don't have any undiscovered health issues that might make me reject the implant/ allergic to the GA and such...I really hope I wake up. I also have no idea why the hospital did not check if I'm allergic to the GA? Is this normal procedures? I don't have any other known allergies to medicines or food. Anyway, my parents and basically everyone around me still haven't come to terms with me getting an implant, they want me to wait longer in hopes of a miracle. (If a miracle happens, I rly hope it will happen before the surgery because I really need to hear again for school and work, and cannot delay surgery anymore.) I am just wondering, if let's say eventually (knock on wood) I find the implant of no use, and remove it, will the structural integrity of my skull be affected? Will I be able to do contact sports/ get hit in the head to the same limits as non-implanted ppl? Finally, how did you guys manage with the pain after surgery? Idk if I can manage because I actually once fainted from a sprained ankle haha. Will I be able to return to work immediately? I'm also worried about other things like sneezing because I have sensitive nose and can sneeze more than 5x and consecutively in a day.. and also running/swimming.. how long do I have to wait to resume such activities? Thank you everyone
  23. Thanks everyone Yes, i think Social Anxiety is the word for it. I feel like my brain is slowing down a lot too lol. Let's just hope i'll regain my confidence after I can hear again. Right now I just feel so scared of everything, even though I know my fears are irrational. Will be doing the surgery soon. I hope all goes well
  24. Hi, I'm 22 and have been losing my hearing over a span of 7+ years, and the last 3 years was so bad that I need a CI to hear, but have not gone for the surgery. I'm currently surviving on lipreading. I feel like i'm becoming increasingly socially retarded, and being described often by people to be 'inept', 'lost', 'in a daze' etc. I am always awkwardly turning around in jerks etc. because i dont realise someone is behind me, and my face expressions becomes funny/weird. I really do not know if its because of my hearing or something else. Am I being lazy, or do i really feel tired all the time? How come I cant cope with work even if it's emails and hearing not needed etc.. i'm fine with writing articles and website stuff, but always nervous/make mistakes when emailing people. I do feel rather lost most of the time because I cannot hear, but sometimes even when it's not needed, like emails etc, I seem to be lacking/unable to do well? My grandma has hearing loss but idk, I think she is less 'inept' compared to me? I know that people around me think that 'not all deaf people are like that, its just you', and I keep getting scolded for not being alert/lost/lazy, but idk what else can be done?? i feel so lost? Like, i'm just sick of having people to understand me, because they dont? p.s: would just like to add that when I was 15 , I had really horrible bullying experience (not because of my hearing). So now idk if im like this, afraid to speak up, talk to ppl, withdrawn etc, because of my hearing or my confidence. I feel so lost and idk if this can be solved by CI or will i still be the same :/
  25. @Mary Beth That's great to hear, seems like I was worried for nothing haha. Thanks Anyway, I have registered myself with my local silent club as a volunteer, hope I'd be able to tutor some kids soon or help in any way I can I can't Sign but I will still try my best haha. Hearing loss has made me a very withdrawn person, i'm trying to integrate myself back into society, and also get to know more local deaf people and how they cope. Also since I can speak like a normal person, I feel like I might be able to help with deaf awareness. Interestingly, I have learned from one of my club members that they refused to implant their young child due to risks, such as not being able to use AED in an emergency. Is this true or just a misconception? I am now worried that there are other important info that I should've known but am not told.. anyone has any idea?
×
×
  • Create New...