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nomiroo

Members
  • Content Count

    12
  • Joined

  • Last visited

About nomiroo

  • Rank
    Newbie
  • Birthday 04/22/1975

Profile Information

  • Gender
    Female

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Mixed
  • Cause of Hearing Loss
    Otosclerosis
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

Recent Profile Visitors

733 profile views
  1. nomiroo

    Phoenix Arizona CI recipients

    There's actually a couple of questions here. I'm wanting to learn more about Rondo. Also, is there anyone in here who is from the Maricopa County in Arizona? I have Dr. John Macias as my CI surgeon (I'm still in the very beginning stages...with first appointment Speech Therapy Analysis scheduled for Aug 3). I'm just wanting to find out if anyone in here has had him as their surgeon/
  2. nomiroo

    Allow me to introduce myself

    Yay, more people who understand the battle that Otosclerosis is! I do have a question, I noticed that you both put "ossification" I'm just curious what you mean by that. I don't believe I've heard that term (but then again my hearing is not the best lol). I'm actually considering Med-El highly for the CI but Cochlear is my other choice. I'm leaning towards the Cochlear Kanso or the Med-El one that I can't seem to think of the name of (the one similar to the Kanso). It's important to me to have that option available for not having to worry about the BTE device. I'm truly hoping my CI center offers 1 surgery=2 processors. Thanks for the replies. I haven't had my MRI yet, first stop is Speech Therapy Analysis then onward from there.
  3. Hello, I am new to this whole Cochlear Implant idea. Though I've struggled with my hearing nearly all my life (and I'm 42), it never crossed my mind that eventually I'd be a candidate for a CI. I was diagnosed with Otosclerosis in 1998 and had a Stapedectomy surgery in my left ear. It worked tremendously but over the years it decreased. I finally got a Miracle Ear hearing aid in 2011 because it was starting to get hard to understand people. It worked fabulously and I felt like I had gotten back into life again for awhile. But all that changed in 2014 when I had a wax build-up and the hearing aid specialist didn't make sure I heard her on a check-up, she was always talking to me when I didn't have my hearing aid in which on something as important as wax-build up you would think she'd make sure I clearly understood her. Anyway, the next visit nearly a month later I was noticing I couldn't hear as well and she was astonished. Told me she had informed me I needed to get the wax cleaned out on the last visit, but I didn't hear her correctly I guess. She told me it was urgent I get to an ENT. When I went, I had an ear infection and fluid built up in my ear. Long story short, I lost the hearing in that ear for the most part. I got 2 words right out of 25 during the hearing test. (This is also the ear that the CI will be in). I did get a hearing aid for my right ear but I can no longer hear music well and just basic conversations with people are becoming a tad stressful. I have my Speech thing on Aug 3rd and honestly I really don't know what to expect. So any help anyone can give in this would be extremely helpful. You know, what to expect etc. Right now I'm considering the Rondo or Kanso as I work an active job and I really don't want the BTE piece if it can be avoided. I just need to know who those are recommended for and if they are just as good as the BTE ones. I do know that I sweat a lot at my job and workout regularly so I need a device that I don't need to worry about sweating all over. Any help is appreciated and it's so wonderful knowing that I'm not the only one going through this journey.'
  4. nomiroo

    Kanso or Rondo users please advise

    It sounds like you had pretty ok hearing before the implant though compared to mine. I only had 19% speech understanding w/o hearing aid at 100 db. This was at the Audiologists who sent me over to the surgeon I'm getting the CI done through. With the hearing aid was only a slight improvement. This was my HA ear. The left one that I'm getting the surgery done is I only got 2 words right out of 25. It encouraged her knowing that I Can hear in that ear and the fact I got 2 words right says there is hearing in it. So, basically I was extremely disappointed and discouraged the day I came home from that appointment. But, I have a friend who just graduated and got a job as an ASL Intrepreter and she was ecstatic when I told her that I was a potential candidate for a CI. I say potential as I still have to have the hearing exam with my HA in. But according to the one she gave me, I am a candidate. And now after talking with all of you, I'm actually excited for it. Yes, a tad nervous but excited overall. Yes, I'll be sure to watch my head around metal. Fortunately I have super long hair so I'm hoping my hair helps shield it from jumping
  5. nomiroo

    Kanso or Rondo users please advise

    Thank you! With my work, wearing glasses just gets in the way. I sweat during the summer so much that sometimes my glasses just slide right down my face all the time. I try to wear my contacts as much as possible but during those days that wearing glasses would be better it'd be nice not having to worry about the processor sliding off as well.
  6. nomiroo

    Kanso or Rondo users please advise

    I'm just taking it one day at a time. My appointment for the Speech Therapy Analysis is set for Aug 3 so from there will just see how fast things happen. I'll check on the processors at that visit. I do have a couple questions that perhaps you can answer for me. One, are the Med-El implants MRI safe? I'm just curious. I have no need to have to worry about an MRI or a CT scan in the near future but I think purchasing an implant that is MRI safe would be a good choice just to know that it wouldn't be an issue if ever one was needed. Secondly, how long is the average surgery time? jIt doesn't really matter to me, as I'll be out anyway lol but it doesn't hurt to just be curious. My surgeon has been doing this for 30 years and he says it should take about 45 min. but I just read on a Facebook support group that one woman's surgery took 3 hrs!!! Thirdly, do they use a breathing tube? I know you can't say for all surgery patients but on average is a breathing tube used during the surgery? I had my Stapedectomy 19 years ago and I do believe they used a breathing tube. I woke up and my throat was very dry. They gave me ice cubes for the first little while to soothe it. And lastly, would you say that the surgery is relatively painless or minor? I expect to have problems with verdigo (I had verdigo so bad with the Stapedectomy that for the first two days it took me almost 10 min just to walk across the hall to use the restroom!) but am just curious of all the little stuff.
  7. nomiroo

    Kanso or Rondo users please advise

    Thank you Kara! I'm really hoping I'll be able to get the 2 processors with 1 surgery. I think that would be a huge blessing to have both for whichever occasion I need either for. I can see where if you're able to have 2 how helpful that would be. Truly though, with 15 years experience would you say that having the BTE one is in the way or anything? I do wear glasses occasionally and I really don't want this big huge bulky thing weighing down my ear if I can help it. I'm sure you know what I mean. I'm already appreciating this group so thank you for contributing!!
  8. nomiroo

    Kanso or Rondo users please advise

    Thank you Megan L! Yes, the surgery isn't my favorite part of it but I've been through ear surgery before so that will help me to know what to expect somewhat. Only last time it was a Stapedectomy and I came out of the surgery hearing SOOO much! I'm sure this one I'll come out of hearing exactly the same as I do now. I think the biggest thing is just going through the process. I'm eager to just get from point A to point B and forget all the in between but I know it's all those in between things that will help make the end outcome so much better. It's been super hard for me losing this hearing actually. Self confidence took a really big beating. My husband has excellent hearing so that's one area that makes it really hard. I think if he had a portion of hearing loss it would make it easier for him to better relate with me. He's an awesome husband and super supportive...just can't understand the heartbreak that comes with losing hearing you once had. So I'm really praying this implant is the exact answer to prayers that I've been asking for. If I'm able to get two processors I'm really leaning to get the Sonnet and Rondo so I really appreciate your help on that! Thanks again for all the support and helpful advice!
  9. nomiroo

    Kanso or Rondo users please advise

    Thank you, Anni for the replies. I'll be asking my Surgeon when I go in there next which will be Aug 3rd. There's definitely a ton of questions. I appreciate all the help I can get!
  10. nomiroo

    Kanso or Rondo users please advise

    Thank you for replying, Megan L. I'm sure you know how hard some of these decisions are to make. Would you say so far that the Rondo is worth it? i work in a warehouse and it often gets hot in there. I'm concerned about sweating for the most part as I live in Phoenix and the summers are very hot. I sometimes wear prescription glasses so am really trying to avoid the BTE processor if I can, though I'm sure having both of these would be highly beneficial in many ways. All of this is a bit nerve-wracking but it will be worth it in the end.
  11. nomiroo

    Kanso or Rondo users please advise

    Thank you for posting in response, Mary Beth. I really appreciate it! Out of curiousity how much was it for the bilateral CI? I'm recommended to get at least my left ear implanted but could qualify for my right ear. I do believe my health insurance is exceptional and covers 90% of the cost up to $4000 maximum or something like that and then it's 100%. So I'm just curious if I'm looking at this surgery costing if I get it done in both ears. Of course, I know it depends on what I get etc etc but other than the brochures he gave me to look over everything I'm really not certain which route to take. Is it more expensive having two types of receivers? There's so many questions.
  12. nomiroo

    Kanso or Rondo users please advise

    Hello, I am new to this whole Cochlear Implant idea. Though I've struggled with my hearing nearly all my life (and I'm 42), it never crossed my mind that eventually I'd be a candidate for a CI. I was diagnosed with Otosclerosis in 1998 and had a Stapedectomy surgery in my left ear. It worked tremendously but over the years it decreased. I finally got a Miracle Ear hearing aid in 2011 because it was starting to get hard to understand people. It worked fabulously and I felt like I had gotten back into life again for awhile. But all that changed in 2014 when I had a wax build-up and the hearing aid specialist didn't make sure I heard her on a check-up, she was always talking to me when I didn't have my hearing aid in which on something as important as wax-build up you would think she'd make sure I clearly understood her. Anyway, the next visit nearly a month later I was noticing I couldn't hear as well and she was astonished. Told me she had informed me I needed to get the wax cleaned out on the last visit, but I didn't hear her correctly I guess. She told me it was urgent I get to an ENT. When I went, I had an ear infection and fluid built up in my ear. Long story short, I lost the hearing in that ear for the most part. I got 2 words right out of 25 during the hearing test. (This is also the ear that the CI will be in). I did get a hearing aid for my right ear but I can no longer hear music well and just basic conversations with people are becoming a tad stressful. I have my Speech thing on Aug 3rd and honestly I really don't know what to expect. So any help anyone can give in this would be extremely helpful. You know, what to expect etc. Right now I'm considering the Rondo or Kanso as I work an active job and I really don't want the BTE piece if it can be avoided. I just need to know who those are recommended for and if they are just as good as the BTE ones. I do know that I sweat a lot at my job and workout regularly so I need a device that I don't need to worry about sweating all over. Any help is appreciated and it's so wonderful knowing that I'm not the only one going through this journey.' Nomiroo
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