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Jewel

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  1. Like
    Jewel reacted to Mary Featherston in Med-El friendships   
    Great, @Jewel!  I'm looking forward to learning more about this.
  2. Like
    Jewel got a reaction from Mary Featherston in Med-El friendships   
    @Mary Featherston
    Just heard from the Med-El rep. She said I can definitely sign up for US Hear Peers! 
  3. Like
    Jewel reacted to Annie Hawman in Med-El friendships   
    I would love to be able to go to a MedEl gathering.  As it is, I am the only MedEl recipient in my town, and last I heard there were 19 in my state, but they are scattered.  I often check the MedEl Meet Up calendar on Facebook, but so far have not been able to manage one into my schedule in another state.  A couple of years ago I was informed that MedEl would be expanding in Alaska, and I am still eagerly hoping that they do.  Once they get the US Hear Peers going, it would be great if there were a large gathering put together for perhaps Alaska, Washington and Oregon.  I'd buy a ticket and go, for sure!  I love meeting others with CIs!
  4. Like
    Jewel got a reaction from Mary Featherston in Med-El friendships   
    @Mary Featherston
    The email said it is open to persons implanted in the US. I emailed the person who invited me to join. Awaiting a response. 
  5. Like
    Jewel reacted to KathyD in Problems with load roaring sound and raspiness to voices   
    Hi Mary Beth.  I just wanted to let you know that I was able to get in touch with the surgeon that did my implants and she wants to talk to me about my problems.  She mentioned something about possibly getting someone to do some testing of my implants to see if they can locate any problems.  I don't have an appointment as yet, but hope to get one soon.  I'll keep you posted as to what I find out.  Thank you so much for caring.  Take care.
    Kathleen
  6. Like
    Jewel got a reaction from Mary Beth in Hearoes NEW aural rehab app free   
    Thanks @Mary Beth. I was able to access the app via the website. Strange that it wouldn't show up in the App Store otherwise. 
  7. Like
    Jewel reacted to Dave in Pittsburgh in Rondo 2 Tethers   
    I found black or brown hair clips in WalMart and couple of drug stores my wife is a sewer she had  clear nylon thread so I cut it to the length off MEDEL fish line success 
  8. Like
    Jewel got a reaction from Mary Featherston in Rondo 2 Tethers   
    The hair clip is easy to use. Been using mine everytime I wear the Rondo2. The only thing I don't like is that it is shiny. Enjoy @Mary Featherston
  9. Like
    Jewel reacted to Mary Beth in Hearoes NEW aural rehab app free   
    I finished testing out this app today.  There are a few glitches....for example the activity that plays two musical tones and asks if the second tone is higher pitched or lower pitched only plays ONE tone ....... one of the activities is not storing the completion data so it is not unlocking the next level even though it was mastered.
     
    But there are some cool listening activities that are very different to other apps.  Like the date and time activity and the ordering food activity.
     
    Some of the environmental noises are a little odd.  I know our car does not sound like that.  Smile.
  10. Like
    Jewel reacted to Mary Beth in Hearoes NEW aural rehab app free   
    Be patient when setting up an account.  There is quite a delay between steps and the screen doesn’t change so you tend to think the command didn’t go through but it did.
  11. Like
    Jewel reacted to Mary Beth in Hearoes NEW aural rehab app free   
    Some cool activities in here,  from Australia.
     

  12. Like
    Jewel reacted to Mary Featherston in What cool things do your CI let you hear today?   
    Yesterday I went to the Arboretum and walked and looked at the trees and flowers.  And the bees.  And listened to birds!  My walk took me through the woods at some places and the birds were just chirping away.
    And I was so glad to have my Rondo2s because it was warm and I was sweating pretty profusely. 
  13. Like
    Jewel reacted to Kylie in May, June, July, August 2019 CI surgery and/or activation   
    3 month since activation! Wow how time flies! Time for an update.
    I wear my processor every waking minute and never like taking it off. I feel like half the world goes dead if I do.
    Every situation in my life is better with the processor than without. Including noisy rooms.
    My tinnitus is gone when my processor is on.
    I get to call myself a cyborg (and I encourage others in my life to do it too, because I am a science geek and I love it)
    My hearing tests yesterday were outstanding. I have great accuracy detecting words against background noise. And my localisation ability was 12 degrees, which apparently is that of a normal hearing person. Audiologist said my progress was way ahead of expectations. 
    There are plenty of things that are still hard. But I just keep going - I commit to wear it all the time, do my rehab everyday (I really like the angel sounds program). And treat it like an essential part of my body.
    Couldn't be happier with how this is all going.
    I really hope for great outcomes for everyone in this thread who was also recently activated. Even at 3 months there is so much you will have gained!
  14. Like
    Jewel reacted to Sandy123 in May, June, July, August 2019 CI surgery and/or activation   
    Big congrats. Sounds like you are doing wonderfully.  I was at my one week post activation, I too have hearing very very well. It's not perfect but voices are sounding much better. The key thing for me was to be able to have conversations without lip reading 90 percent of the conversation.    Good times ahead...   😋
  15. Like
    Jewel reacted to Mary Featherston in May, June, July, August 2019 CI surgery and/or activation   
    @Kylie, that's wonderful, I'm glad it's going so well for you.  I referred to myself as a CI-borg in a meeting last week.  I'm trying to get my new co-workers as used to this as my old ones were - though my friends at my old site were with me last year while I was being implanted, so it's a bit different.
    Our site IT manager has a toddler son who was born without external ears and uses AdHear from the sound of it - I haven't spoken to Keith about it yet, I've not got to know him that well yet.  But the way others have described the child's devices there's not much else it could be.
  16. Like
    Jewel got a reaction from Mary Featherston in What cool things do your CI let you hear today?   
    I went to a funeral and I was able to hear most of what the person who gave the closing prayer said. This really touched me as when I had my HA and that man gave a public talk I couldn't make out a single word he said even though I'm good at lipreading. Now today here I was with my eyes closed and actually understanding him! I absolutely love my CI! 
  17. Like
    Jewel got a reaction from Mary Featherston in Research opportunity at Med-El North America   
    @Ford has given me an idea. Maybe I should plan a trip to Austria and go visit Med-El. That would be awesome! 
  18. Like
    Jewel got a reaction from Kylie in Artone Neckloop   
    @Kylie
    Both my ears qualify for CIs.
    I think I was asked if I had tried out the Artone yet and most likely @Mary Bethwas the one who explained how to use it and to try it. So I did. I ended up using it to listen to webinars and music at work. 
  19. Like
    Jewel got a reaction from Mary Beth in What cool things do your CI let you hear today?   
    Thanks @Mary Beth. She was 100. So she lived long! 
  20. Like
    Jewel reacted to Mary Beth in Research opportunity at Med-El North America   
    @Jewel
    Many people have gone to Innsbruck and arranged a tour of Med-El prior to traveling.  It is an amazing place full of wonderful Med-El employees.
  21. Like
    Jewel reacted to Ford in Research opportunity at Med-El North America   
    Hi Marybeth -- I would be interested in participating if you could PM me the contact info.
    BTW: I will be in Austria in sept so am currently arranging for tour of Med-El in innsbruk. Hope to meet some engineers too. 🙂
    thanks
    Ford
  22. Like
    Jewel reacted to Mary Beth in Research opportunity at Med-El North America   
    I enjoy participating in research as a way of paying it forward in thanks for those who helped engineers create these amazing CIs that have changed my life.
    Med-El North America conducts research in Durham North Carolina.
    If you are an adult, use one or two cochlear implants, live in the USA/Canada,  are willing to participate in research for one week (M-F 9-4, with an hour lunch break)....you can contact Med-El for more info.
    Med-El covers the costs for you and a guest to travel, rent a car, stay at a hotel and also covers up to a certain amount of food expenses.  It is very easy to stay within the food limit in my opinion.
    If you are interested, private message me for the email contact or contact Med-El NA directly.  (Since this is a public forum, I’m not going to post the email address here but am happy to give it to you in a PM).  Med-El research team told me to share their contact info with interested people.
    I love it!  It is so fascinating.  Maybe some of you will enjoy it too.
  23. Like
    Jewel got a reaction from Kylie in Artone Neckloop   
    @Kylie
    I started to use the Artone 1.5 months after activation. I love it. I'm unilaterally implanted. 
  24. Like
    Jewel reacted to Mary Featherston in CI Ambassadors   
    That's us!  On Friday I had a dental appointment, and as my dentist is over an hour from my new job I didn't go to work at all - went to the dentist, had lunch with a friend, and then worked from home in the afternoon.  My friend and I had a nice lunch at a Thai place across the street from my dentist's office and then popped into this shop around the corner - it's all dog stuff, treats and toys and beds and whatnot.  We were buying dog treats when a woman there asked me about my CIs, and we ended up talking for almost half an hour.  She was a writer, doing some stuff on contract for Cochlear Americas and just kept asking questions!  And me, I talk, you know?
    We talked about the rehab process and what it's been like to be a CI recipient.  I always like to have a chance to talk about what an amazing (but not necessarily easy) thing it is to be a CI recipient.
  25. Like
    Jewel got a reaction from Mary Beth in Some concerns before the surgery   
    @Mary Beth
    Sounds good! We can aim for sometime next year. I'm flexible... Whenever most are available. 
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