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Carolyn

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    38
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About Carolyn

  • Rank
    Super Contributor

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Not applicable
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Heredity
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Not applicable
  • Country
    United States

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  1. Hi Vinod, It sounds like your hearing experience is very similar to mine. So let me provide you some encouragement. I, too, had severe/profound hearing loss in both ears, and hearing aids were becoming less and less effective, to the point where I dreaded social situations, and had tremendous difficulty in my work as a college instructor. I also had grave concerns about losing my residual hearing, which my surgeon told me would most likely happen. I was implanted in July and turned on in early August. I was implanted on the left side only. I did not lose ALL my hearing in that ear, but I did lose more (which didn't leave me with much, believe me). The good news is, I don't care. Hearing with the implant is different, but I still wear my hearing aid in the other ear, which balances out much of the mechanical, robotic sound of the implanted ear. More importantly, I hear and understand speech better, and it is improving all the time.(I'm about two months post turn on and my speech recognition at one month was 72% as opposed to 20% before implantation.) I know everyone's experience is different, but I can tell you there is good reason to be hopeful. It's not perfect, but it's better. I'll take that. It has greatly improved the quality of my life. Good luck to you. Please let us know what happens.
  2. Hi Kara, I am using Angel sound, and it is very helpful. Thanks for responding!
  3. Hi All, thank you for your responses. I saw my audi who made some minor adjustments and a new map. I didn't notice much difference, but truthfully, the whole experience is getting better with time. As my audiologist tells, me "words, like music, are all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now. That hearing aid doesn't really assist with speech discrimination, but it normalizes everything. Overall, my quality of life is soooo much better. Thanks again for responding!
  4. I have the nucleus 7 as well as the Kanso (I got one of each, since that was an option).
  5. Mary Beth, Thanks for the info about the Clix app. I will look into that. I saw the audi yesterday. She tried to tone down the honking sound without much success. But the good news is that I scored 66% on speech discrimination. Considering it was only 20% with hearing aides alone, I was very happy with that result! And I 'm only one week into this process, so I am double happy. (I just hope it wasn't beginners luck or something). Honestly, I really do notice an improvement when I am out and about, ESPECIALLY when I have the other hearing aid in. I have to walk my dog daily, and I used to avoid encounters with other people and their dogs, as I was also so fearful of not understanding. I actually starting to look forward to those encounters. I still need to speech read, but it's much better with the CI.
  6. Great news about your audi appointment, Mary. You must be very happy with your test results too! I am working in Angel Sound daily, mostly on vowel and consonant recognition. So far I'm only testing at about 62 -65% (I do the training and test daily), so that is not great, but intend to keep at it. Like you, I will probably wear a hearing aid in the opposite ear, as I do have some low frequency hearing. I don't wear it much now as I am focusing solely on the CI, but I definitely do better when it is in. Is it your intention to eventually do the bimodal thing? What are your feelings about the experience of wearing both together? I will see the audi again tomorrow. I'm interested to compare the other processor with the one I am wearing. I will let you know how it goes. Thanks again for all of your help.
  7. Great news about your audi appointment, Mary. You must be very happy with your test results too! I am working in Angel Sound daily, mostly on vowel and consonant recognition. So far I'm only testing at about 62 -65% (I do the training and test daily), so that is not great, but intend to keep at it. Like you, I will probably wear a hearing aid in the opposite ear, as I do have some low frequency hearing. I don't wear it much now as I am focusing solely on the CI, but I definitely do better when it is in. Is it your intention to eventually do the bimodal thing? What are your feelings about the experience of wearing both together? I will see the audi again tomorrow. I'm interested to compare the other processor with the one I am wearing. I will let you know how it goes. Thanks again for all of your help.
  8. Thank you, Mary. You have no idea how encouraged I am by your comments. I was really depressed yesterday. It is good to know that this is common, and it is not necessarily a linear path. I'm trying to focus on successes, not setbacks. It's true that I have had one mapping. I see the audiologist again on Friday, so I will be prepared with daily notes and observations. And Mary Beth, I, too, am interested in trying the alternate processor. I have one behind the ear and one stand alone. We haven't activated the stand alone CI, so that will be interesting to see on Friday. Thanks again. My last post seems to have posted 40 times. I didn't intend that--not sure what happened there.
  9. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  10. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  11. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  12. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  13. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  14. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
  15. Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this. Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point. I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word. Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether). Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer. Sorry for the long post…
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