Jump to content

Carolyn

Members
  • Content Count

    38
  • Joined

  • Last visited


Reputation Activity

  1. Like
    Carolyn got a reaction from Mary Beth in New User with questions and concerns   
    Hi Vinod,  It sounds like your hearing experience is very similar to  mine. So  let me provide you some encouragement. I, too, had severe/profound hearing loss in both ears, and hearing aids were becoming less and  less effective, to the point where I dreaded social situations, and had tremendous  difficulty in my work as a college instructor. I also  had grave concerns about losing my residual hearing, which my surgeon  told me  would  most likely happen.  I was implanted in July and turned on in early August. I was implanted on the left side  only. I did not lose ALL my hearing  in that  ear, but I did lose more  (which didn't leave me with much, believe me). The good news is, I don't care. Hearing with the implant is different, but I  still wear my hearing  aid in the other ear, which balances out much of the mechanical, robotic sound of the implanted ear. More importantly, I hear and understand speech better, and  it is improving all the time.(I'm about two months post turn on and my speech recognition at one month was 72% as opposed to 20% before implantation.) I know everyone's experience is different,  but I can tell you there is  good reason to  be hopeful.  It's not perfect, but it's better. I'll take  that. It has greatly improved the quality of my life. Good luck to you. Please  let us  know what happens.
  2. Like
    Carolyn got a reaction from Jewel in New User with questions and concerns   
    Hi Vinod,  It sounds like your hearing experience is very similar to  mine. So  let me provide you some encouragement. I, too, had severe/profound hearing loss in both ears, and hearing aids were becoming less and  less effective, to the point where I dreaded social situations, and had tremendous  difficulty in my work as a college instructor. I also  had grave concerns about losing my residual hearing, which my surgeon  told me  would  most likely happen.  I was implanted in July and turned on in early August. I was implanted on the left side  only. I did not lose ALL my hearing  in that  ear, but I did lose more  (which didn't leave me with much, believe me). The good news is, I don't care. Hearing with the implant is different, but I  still wear my hearing  aid in the other ear, which balances out much of the mechanical, robotic sound of the implanted ear. More importantly, I hear and understand speech better, and  it is improving all the time.(I'm about two months post turn on and my speech recognition at one month was 72% as opposed to 20% before implantation.) I know everyone's experience is different,  but I can tell you there is  good reason to  be hopeful.  It's not perfect, but it's better. I'll take  that. It has greatly improved the quality of my life. Good luck to you. Please  let us  know what happens.
  3. Like
    Carolyn got a reaction from Jewel in New User with questions and concerns   
    Hi All, thank you for your responses.  I saw my audi  who made some minor adjustments and a new map. I didn't notice much  difference, but truthfully, the whole experience is getting better with time.   As my  audiologist tells, me "words, like music, are  all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now.  That hearing aid doesn't really assist with speech  discrimination,  but it normalizes everything.  Overall, my quality of life is soooo much better. Thanks again for responding!
  4. Like
    Carolyn got a reaction from Kara of Canada in New User with questions and concerns   
    Hi All, thank you for your responses.  I saw my audi  who made some minor adjustments and a new map. I didn't notice much  difference, but truthfully, the whole experience is getting better with time.   As my  audiologist tells, me "words, like music, are  all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now.  That hearing aid doesn't really assist with speech  discrimination,  but it normalizes everything.  Overall, my quality of life is soooo much better. Thanks again for responding!
  5. Like
    Carolyn got a reaction from Mary Featherston in New User with questions and concerns   
    Hi All, thank you for your responses.  I saw my audi  who made some minor adjustments and a new map. I didn't notice much  difference, but truthfully, the whole experience is getting better with time.   As my  audiologist tells, me "words, like music, are  all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now.  That hearing aid doesn't really assist with speech  discrimination,  but it normalizes everything.  Overall, my quality of life is soooo much better. Thanks again for responding!
  6. Like
    Carolyn got a reaction from Mary Beth in New User with questions and concerns   
    Hi All, thank you for your responses.  I saw my audi  who made some minor adjustments and a new map. I didn't notice much  difference, but truthfully, the whole experience is getting better with time.   As my  audiologist tells, me "words, like music, are  all on pitches. You brain just has to figure it out." I am also wearing my hearing aid in the non-implanted ear now.  That hearing aid doesn't really assist with speech  discrimination,  but it normalizes everything.  Overall, my quality of life is soooo much better. Thanks again for responding!
  7. Like
    Carolyn got a reaction from Mary Featherston in New User with questions and concerns   
    I have the nucleus 7 as well as the Kanso (I got one of each, since that  was  an  option). 
  8. Like
    Carolyn got a reaction from Mary Beth in New User with questions and concerns   
    I have the nucleus 7 as well as the Kanso (I got one of each, since that  was  an  option). 
  9. Like
    Carolyn got a reaction from Mary Featherston in New User with questions and concerns   
    Mary Beth, Thanks for the info about the Clix app. I will look into that.  I saw the audi yesterday. She tried to tone down the  honking sound without much success. But the  good news is that  I scored 66% on speech discrimination. Considering it was only 20% with hearing aides alone, I was very happy with that result!  And I 'm only one week into this process, so I am double happy. (I just hope it wasn't beginners luck or something). Honestly, I really do notice an improvement when I am out and about, ESPECIALLY when I have  the  other  hearing aid in. I have to walk my dog daily, and I used to avoid encounters with other people and their dogs, as I was also so fearful of not understanding. I actually starting to  look forward to those  encounters. I still need to speech read, but it's much better with the  CI. 
  10. Like
    Carolyn got a reaction from Mary Beth in New User with questions and concerns   
    Mary Beth, Thanks for the info about the Clix app. I will look into that.  I saw the audi yesterday. She tried to tone down the  honking sound without much success. But the  good news is that  I scored 66% on speech discrimination. Considering it was only 20% with hearing aides alone, I was very happy with that result!  And I 'm only one week into this process, so I am double happy. (I just hope it wasn't beginners luck or something). Honestly, I really do notice an improvement when I am out and about, ESPECIALLY when I have  the  other  hearing aid in. I have to walk my dog daily, and I used to avoid encounters with other people and their dogs, as I was also so fearful of not understanding. I actually starting to  look forward to those  encounters. I still need to speech read, but it's much better with the  CI. 
  11. Like
    Carolyn got a reaction from Mary Featherston in New User with questions and concerns   
    Thank you, Mary. You have no idea how encouraged I am by your comments. I was really depressed yesterday.   It is good to know that this is common, and it is not necessarily a linear path. I'm trying to focus on successes, not setbacks. It's true that I have  had one mapping. I see the audiologist again on Friday, so I will be prepared with daily notes and observations. And Mary Beth, I, too, am interested in trying the alternate processor. I have one behind the ear and one stand alone. We haven't activated the stand alone CI, so that will be interesting to see on Friday. Thanks again. My last post seems to have posted 40 times. I didn't intend that--not sure what happened there.
  12. Like
    Carolyn got a reaction from Jdashiell in New User with questions and concerns   
    Hello everyone, I introduced myself in another forum a couple of months ago, and appreciated all the feedback. I did go ahead with the surgery and had my (unilateral) processor turned on August 3rd, so I am only a few days into this.  Turn-on went better than expected. I was told I might only hear beeps and static in the beginning, but right away I could hear and understand the audiologist with the help of lip reading. I do notice a honking/beeping sound with every syllable of every word spoken. This has been annoying, but I have still been able to make out the words with the help of speech reading up until this point.  I have been able to follow a commentator on a news program without the help of captions (something I was unable to keep up with using hearing aids alone). My problem is that this afternoon, for whatever reason, the honking sound seemed to get louder (no changes in the program I’m on) to the point where it is really difficult to find and understand the spoken word.  Just wondering if anyone has experienced a setback like this (It could be that I am just tired of listening altogether).  Also, is the honking sound something that can be adjusted or tuned out through the mapping process? Thanks for any input you can offer.  Sorry for the long post…

  13. Like
    Carolyn got a reaction from Jewel in Returning to work and hearing ability   
    Thank you so much, Mary Beth and JDashiell, Your responses are very helpful. I will be wearing a hearing aid in the non-implanted ear.   Your comments about informing my students made me realize just how bad my hearing is.  I ALREADY have to tell my students the first day of the semester about my hearing problem (the fact that I need to be right in front of them to communicate, and I still may need numerous repetitions to understand them.).  Given that reality, I don't think it can be much worse, and my students are very understanding.  Thank you again for your responses.
  14. Like
    Carolyn got a reaction from Mary Beth in Returning to work and hearing ability   
    Thank you so much, Mary Beth and JDashiell, Your responses are very helpful. I will be wearing a hearing aid in the non-implanted ear.   Your comments about informing my students made me realize just how bad my hearing is.  I ALREADY have to tell my students the first day of the semester about my hearing problem (the fact that I need to be right in front of them to communicate, and I still may need numerous repetitions to understand them.).  Given that reality, I don't think it can be much worse, and my students are very understanding.  Thank you again for your responses.
×
×
  • Create New...