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Mark

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    Mark got a reaction from Daniel the Stranger in Aussie with Single Sided Deafness   
    Hello Caroline and Mary Beth and others
    I am now a recipient of a CI (about 2 months ago) for my single-sided deafness. In response to Caroline's queries, I can only relate my own situation but here goes.
    My audiologists gave me a 'trial' BAHA for a couple of weeks. This was held against the skull with a tight headband. It only marginally improved hearing in the deaf ear, but not enough for me to notice any improvement in noisy restaurant/pub situations. You might like to ask about this.
    So I made the decision to go for a CI. The CI is working well and has already improved things for me, although I am expecting 6 months or more before it reaches its peak performance. Or should I say before my 65 year old brain reaches its peak performance, because that's what it is all about - the brain has to adjust to the new signals coming in.
    It has not been an easy process and I have had to put considerable time into exercises, but that pays off.
    The surgery was ok and I felt well soon after. However, in my case the recovery then became slow as after a couple of days I developed severe dizziness - which has improved but I am still working on, with help from neuro physiotherapists. I say 'in my case' because the severity of this is not at all normal but you should talk with your ENT specialist about that.
    Despite the setbacks, I am convinced that it was the right thing to do for me.
    Hope that helps a bit!
  2. Like
    Mark got a reaction from Mary Beth in Aussie with Single Sided Deafness   
    Hello Caroline and Mary Beth and others
    I am now a recipient of a CI (about 2 months ago) for my single-sided deafness. In response to Caroline's queries, I can only relate my own situation but here goes.
    My audiologists gave me a 'trial' BAHA for a couple of weeks. This was held against the skull with a tight headband. It only marginally improved hearing in the deaf ear, but not enough for me to notice any improvement in noisy restaurant/pub situations. You might like to ask about this.
    So I made the decision to go for a CI. The CI is working well and has already improved things for me, although I am expecting 6 months or more before it reaches its peak performance. Or should I say before my 65 year old brain reaches its peak performance, because that's what it is all about - the brain has to adjust to the new signals coming in.
    It has not been an easy process and I have had to put considerable time into exercises, but that pays off.
    The surgery was ok and I felt well soon after. However, in my case the recovery then became slow as after a couple of days I developed severe dizziness - which has improved but I am still working on, with help from neuro physiotherapists. I say 'in my case' because the severity of this is not at all normal but you should talk with your ENT specialist about that.
    Despite the setbacks, I am convinced that it was the right thing to do for me.
    Hope that helps a bit!
  3. Like
    Mark got a reaction from Mary Beth in Aussie with Single Sided Deafness   
    Hi Gemma
    Thank you so much for directing me to your blog. I can relate to a lot of the things you are saying. Although I can 'get by' in most group situations by positioning myself, there are others where this is impossible. I'm sure you would know the scenario, particularly when someone joins the group on the wrong side. But sitting at a dinner table with a group is another matter. I normally put my wife on my deaf side because whatever she has to say can wait till later!
    As this only affects me in social groups, I have been willing to accept the disadvantage until now. But stories like yours are definitely pointing me toward a CI.
    You have commented in your blog that coping in noise is better but not perfect. I don't spend a lot of time in pubs, but this is the worst situation for me, as I'm sure it is for most people with SSD and many other hearing conditions. The noisy restaurant situation is more often the case - I would be interested to hear if you have found that you can easily hear the person on your 'deaf' side under those circumstances. That in itself would be a huge incentive to try a CI.
    The rehab part of your blog is very informative, thanks for that too. It is important to know what may lie ahead.
    It may be relevant too that I have trialled a BAHA. It gave me good results in quiet situations but gave virtually no help in very noisy circumstances.
    Thanks again for making contact. Obviously SSD cases do not form a huge percentage of CI recipients so it is very useful to 'hear' what you have to say.
  4. Like
    Mark got a reaction from Mary Beth in Aussie with Single Sided Deafness   
    Thank you Mary Beth. Its the first time I have heard that story and it will help to have your information.
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