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DarlaHS

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  1. Thanks
    DarlaHS reacted to Mary Beth in Cochlear implants and Airport security (arc, x-ray scanner)   
    @DarlaHS
    no.  Every time we turn on a processor, the processor (Sonnet or Rondo) always defaults to M.  So if you have not changed that after turning on your Sonnets, you will already be in M.
  2. Thanks
    DarlaHS reacted to Dave in Pittsburgh in Travel with CI’s   
    I take both Rondo and Sonnets.I am bilateral I have a pair of Sonnets and one Rondo so if I wear Rondo I wear the the other Sonnet.
    I carry both types of processor with me as I’ve found each perform different in different environments. I trave a lot mostly by car and I find Rondo works very well I can hear radio and my wife vey well. Sonnets for the plane for me
  3. Thanks
    DarlaHS reacted to Mary Beth in Travel with CI’s   
    @DarlaHS
    When I travel I always bring back up processors so if something goes wrong with a processor, I can use my back up and deal with it when I return home.
  4. Thanks
    DarlaHS reacted to Jewel in Travel with CI’s   
    Hey @DarlaHS
    I travel with all my processors if I'm going out of town or abroad. Better to be prepared than sorry. 
  5. Like
    DarlaHS got a reaction from Jewel in Travel with CI’s   
    rI called America Airlines to ensure that my seats are all on the aisle. The receptionist transferred me to an operator within “Special Seating “. 
    I explained that I have Cochlear Implants and will need to sit in a aisle seat. I was given upgraded seats to aisle seats and she ensured every seat was away from the engine. 
    They see being deaf as a disability, even though I don’t. But because of this, I was not charged extra for these upgrades. 
    All airlines do this. When you call reservations simply ask to speak to someone in special sitting. Explain you wear Cochlear Implants and cannot sit near window and the engine. 
    @Jewel I hope this helps you and others as you fly. 
  6. Thanks
    DarlaHS reacted to Jewel in Travel with CI’s   
    @DarlaHS
    I love window seats but after CI Surgery I found that when I got off the plane, I wasn't hearing well with the CI and things didn't improve for an hour or so. 
    So I now opt for the aisle seat. Have had no problem since. 
  7. Thanks
    DarlaHS reacted to Jewel in Travel with CI’s   
    Hi @DarlaHS
    I have both Sonnet and Rondo2 and have travelled by plane many times since CI surgery. 
    Pack your spare processor in the small travel bag Med-El gave you in your activation kit. Put that bag as well as all CI accessories in your hand luggage, as you don't want to check them in at the counter and the luggage gets lost. I personally put mine in a backpack. I don't put them in other hand luggage since if the overhead storage is packed I may he asked to check my hand luggage. But I'm able to just put the backpack under the seat before me. 
    I wear the processor through the metal detector and body scanner. But I put it on the least used program just in case it gets corrupted. It doesn't matter which one you wear through the scanner. 
    You can tell the TSA rep that you're wearing CIs but they most likely won't treat you differently. 
    You can request preboarding at the gate since you're deaf. That way you are able to stow all your luggage close to you. 
    Since getting my CI I no longer like window seats, but that's just me. 
    Enjoy your trip. The airport will be a breeze! 
  8. Like
    DarlaHS reacted to Kara of Canada in Fine Tuner   
    Here is the YouTube video that shows you how to change things on the fine tuner. If you can see in the picture the fine tuner  see the buttons with the dots those are the program buttons  1,2,3,4  so depending on how many programs you have those would be the buttons to use. 
     
  9. Like
    DarlaHS reacted to Mary Beth in Fine Tuner   
    @DarlaHS
    I am glad everything arrived.
    Our audiologists decide which FineTuner features to have active.
    Program buttons allow us to move to the 4 different program slots.  Ask your audiologist what has been put in each slot.  Since you didn’t have a Fine Tuner, your audiologist may have only used slot 1 for now.
  10. Like
    DarlaHS got a reaction from Jewel in Cleaning CI's   
    My audiologist told me if I requested Mellie that they would not turn me down. 
    You should try. Just email the company in which ever country you are from and ask. 
  11. Like
    DarlaHS got a reaction from Mary Beth in Cleaning CI's   
    Backorder was due to the hurricane, at least that is what my audiologist told us. 
  12. Like
    DarlaHS got a reaction from Mary Beth in Cleaning CI's   
    Thank you for sharing the video. I will be receiving my dry box this week sometime. 
  13. Like
    DarlaHS got a reaction from Jewel in Newly Activated Users   
    I can hear in both ears! My activation was great and I feel on top of the world. I was given a hearing test at the conclusion of of my activation. My audiologist said it was a baseline test. When I finished I was given my results and I am already where she wants me to be  30/40.
    At this time I am on level 1. Iam hearing bells and a harp in the background, feels like I am in heaven - just kidding. I can hear my spouse, talk on the phone, even hear my cats purr for the first time. Everyone I speak to and even the tv, sounds like a computerized voice and very monotone. But, I am happy to be able to hear. 
    Rehab is my next step. I have tried doing med-el soundscapes but it wont load. What do others use for rehab?
  14. Haha
    DarlaHS reacted to Mary Beth in Heyo! From Louisville, Kentucky   
    Meeting other Med-El users is such fun!
  15. Like
    DarlaHS got a reaction from Mary Beth in Heyo! From Louisville, Kentucky   
    Hey Emily!
    I too am from Louisville KY. I had surgery August 23 for bilateral CI. I am doing great, flourishing in rehab. Who is your surgeon? Mine is Dr. Jerry Lin from UofL.
    Lets stay connected. I would enjoy meeting other CI users in Louisville
  16. Like
    DarlaHS got a reaction from Mary Featherston in Newly Activated Users   
    I can hear in both ears! My activation was great and I feel on top of the world. I was given a hearing test at the conclusion of of my activation. My audiologist said it was a baseline test. When I finished I was given my results and I am already where she wants me to be  30/40.
    At this time I am on level 1. Iam hearing bells and a harp in the background, feels like I am in heaven - just kidding. I can hear my spouse, talk on the phone, even hear my cats purr for the first time. Everyone I speak to and even the tv, sounds like a computerized voice and very monotone. But, I am happy to be able to hear. 
    Rehab is my next step. I have tried doing med-el soundscapes but it wont load. What do others use for rehab?
  17. Like
    DarlaHS reacted to Mary Beth in Newly Activated Users   
    Terrific! @DarlaHS
     
    download AB CLIX if you have an iPad and ignore the test.  Begin at level 1 and work through all the levels.
  18. Like
    DarlaHS reacted to Valentin in Changes in Taste   
    I had change in my Taste -DarlaHS, and it correct itself with time. Don't worry and be patient. 
  19. Like
    DarlaHS got a reaction from Mary Beth in Changes in Taste   
    Thank you. I now understand I am not going crazy. ?
  20. Like
    DarlaHS got a reaction from Mary Beth in August, September & October 2018 activation dates   
    I am very excited and very nervous. I do hope for the best outcome but I am aware that not hearing does not mean failure. 
    I will be excited to give you all a update come Tuesday morning 
  21. Like
    DarlaHS reacted to Emily C. in Newly Activated Users   
    Well... err... I shared my initial update in the other thread, since it seemed like the thread for all of us 'recently started'.  I'm also the type that likes to consolidate threads instead of have so many for every little thing, but was wondering if wanted to keep that one for 'activation' info (since the title more indicates that) and make one thread for all of us getting turned on to use as the one spot to share our stories as we go and bounce stuff off each other as things go on, instead of making our own individual threads?  
    That said...
    So... look... I knew, going in, it would be weird at first.  Everyone says it's all 'high' at first and slow & tricky to balance out, but you'll get there, and happy it will be so much better than before.  I knew it would take practice, after years of comprehension slowly going down (although, sure, I also thought that not coming from complete deafness would give me a bit of a head start).  And it was exciting at first, sure, to get to say you can hear all those higher pitched things now!  That's not the problem.
    Yesterday just was kinda 'down'.  It's been almost a week now, I've been out and about and working, still, and not going too bad.  Although yeah, I could really stand to be better at keeping up dedicated listening practice, ha.  ?  The 'Storyline' website is nice, where actors read kid's books, and Med-El's SoundScape page.  And, yes, I'm a bit of a geek and was trying to multi-task catching up on stuff and doing the practice I'm supposed to, and thought to myself, 'oh, hey, you can do both at once by watching the latest Elementary but with your aid off and focus on the voices!'   Which I did, and it was good.  And to give myself some positive credit, I still do pretty well in-person when I can read lips.  Mostly.  But oh my gosh, I just felt physically irritated by all the squeaky-ness and emotionally worn and frustrated playing one of the SoundScape games where you listen to a narrator and answer questions and I could barely understand them.  How are you supposed to hear a word right if you don't have all the... what's the right term... nuances of tone, and it all just sounds like a high-pitched monotone?  Plus my ears just hurt.  I somehow scratched my aided side, inside one of those top little inward 'curves' of the ear, which made the top hurt from my aid rubbing on it.  And for some reason the top of the other ear was sore too, and the back, where the unit rubs against.
    So I really need to clarify with my audi again, I will, but I think what she was saying in regards to adapting to volume and frequencies is that she wanted me (my brain) to get used to the 'highs' before we started mixing in all the familiar 'lows'.  Yeah, yeah, I know from listening to you guys that the mapping comes into play with that, so just keep track, work on getting used to, and don't worry.  Which makes sense (is that how they generally handle it?) but also just makes it hard to understand without the varied tones.  Combine that with my freaking h.a. side having this weird... "pressure" (?) problem going on, maybe from years of allergies, and it keeps sounding equally stuffed up and tinny until it randomly 'clears', making it harder to sound balanced.  So anyway.... thanks for listening... feel better.  Just partially venting, partially musing, partially just commentary, looking forward to when you other new users join me in this and share back in here!  (and of course our good old more experienced users!)
    Talk to you soon!
     
  22. Like
    DarlaHS reacted to Mary Beth in Newly Activated Users   
    @Emily C.
    Well everyone’s journey is unique.   Yours seems to be starting off quite high pitched.
    Also, CI audiologists use different approaches to activating us and bringing our levels up.
    My CI audiologist is very gentle.  She brought up my levels in a way that never caused me discomfort.  I was able to wear my CIs all day long from activation onward.  I did not need listening breaks from my CI and in fact, was told to always have my CI on.
    We set MCLs and if we set them too loudly, then loud sounds can be overwhelming.  That being said, in most people’s journeys at some point some sounds were difficult to get used to at first.  For me, it happened several weeks into my first CI journey and it was plates being unloaded from the dishwasher.  I moved in slow motion and gently set each plate down for several weeks until my brain got used to it.  Then I could bang around in the kitchen with no problems at all.
    My right side started off sounding like R2D2.  My left side started off sounding like marimba and whale song.  It’s a crazy, wild, amazing ride.  
    Communicate with your CI audiologist.  She will be able to make changes if needed so you are more comfortable and balanced.
     
    Keep us posted.  
  23. Like
    DarlaHS reacted to Jewel in Newly Activated Users   
    Can't believe that my activation is in less than 48 hours. Starting to feel anxious. Just hope all the electrodes are properly placed in my cochlea and that I hear something on Thursday. 
    @Emily C.Hang in there. Remember the three Ps.... Practise, Patience and Perseverance. 
  24. Like
    DarlaHS reacted to Mary Beth in Newly Activated Users   
    @Emily C.  Hearing about everyone’s unique journeys is fascinating!  I can’t wait to follow the posts.
     
    @Jewel  Safe travels.  I hoped to hear 12 beeps during activation and was hopeful they would all sound different from each other.  Smile.  Just remember that whatever happens at activation, it is merely your starting point.  It in no way indicates how well you will do with your CI over time and training.  Be prepared to see lots of small red boxes!
  25. Like
    DarlaHS reacted to Nikki in The period before activation   
    How did everyone deal with life during the time after surgery and before activation? I have a feeling it's going to be long four weeks. I'll be without hearing aid on the implanted side and I feel it's going to be very difficult. Can anyone share thoughts or experiences? Thanks
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