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Hopefulme

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  1. Thanks
    Hopefulme reacted to Kara of Canada in Mild to profound ski slope hearing loss   
    It’s very individual I would think. It just one of those things that adds up on the pile of risk factors. There’s so many that are a factor so don’t think because your deaf you expected to have dementia. Think of it like driving a car. Just because you can doesn’t mean you will die from a fatal accident. It’s also new data which maybe bound to change. 
  2. Like
    Hopefulme reacted to Jewel in Mild to profound ski slope hearing loss   
    @Hopefulme
    I have relatives in their 70s and 80s who have hearing loss and have never worn HAs and they do not have dementia. 
  3. Like
    Hopefulme got a reaction from Mary Beth in Job hunting experiences   
    Thank you @Mary Beth. I am planning to create innocaption account now. Read about speak see. I think it’s a little bit costly right now. Lets see in future. Thank you for the information.
  4. Like
    Hopefulme reacted to Mary Beth in Job hunting experiences   
    @Hopefulme
    Good luck on your post grad work and then job search!  
    I am not sure what the short answer is to your questions....smile.  I guess I learned how to function the best I could with my hearing loss as it progressed.  I knew where to sit in relation to others at meetings, how best to hear on the phone, etc and used every tool possible so that my hearing loss was not an obstacle.  Today there are so many tech options and services to help people.
    Have you opened a free InnoCaption+ account?  That will make phone interviews on your cell phone accessible as real time captioning is used for the incoming speech.  It is free as it is funded with our US taxes/fees.  Just go to their website and join.  It is fast and simple to set up.  As it is funded with US taxes/fees, it is only available in the US.
    In my experience, employers took my lead on my hearing loss.  If I showed that my hearing loss would not prevent me from being successful at the job, they were fine with that.
    There are services in the US that can help both at the university and also in a job search.  Reach out to those in your community and see what is available.
    Have you been following the start up SPEAK SEE?  They are creating computer speech to text systems for use in small groups or 1:1.  Check out their website.
    Also check out AVA.  It is also a computer speech to text system but it requires apps to be loaded on everyone’s cell phones.
    Good luck!
  5. Thanks
    Hopefulme reacted to Mary Featherston in Hearing aids insurance coverage   
    I never had hearing aid coverage from insurance from most jobs.  In 2010 the company I was working for was acquired by a large global company and our policy now covers $750/ear every three years.  I got to take advantage of that once before getting CIs.
    It's not the full cost of the hearing aids by any means but it helps.
  6. Thanks
    Hopefulme reacted to Dave in Pittsburgh in Hearing aids insurance coverage   
    My insurance carrier did cover hearing aids ar all .However the place where I bought mt HA did carry insurance on each ear for one year.it was included in the cost of the HA and only one claim per year in one ear
  7. Thanks
    Hopefulme reacted to Mary Beth in Hearing aids insurance coverage   
    @Hopefulme
    The majority of private health insurance plans do not cover hearing aids at all.  Some cover hearing aids at a limited amount per ear every so many years.  My health insurance has never covered hearing aids at all.
  8. Like
    Hopefulme reacted to Mary Beth in Glad I came here   
    @Hopefulme
    I am glad you found us too.  A group like this would’ve been quite helpful to me while dealing with my progressive hearing loss.
  9. Like
    Hopefulme reacted to Mary Featherston in Glad I came here   
    Wow, would it ever.  I was struggling for decades.
  10. Like
    Hopefulme reacted to Jewel in Glad I came here   
    @Hopefulme
    Glad you're enjoying the forum. I can relate. If it weren't for this forum I may not have proceeded with surgery yet but I learned so much from the experienced HPs. 
    When you finally qualify for your CIs you will be excited for sure and we want to be around to hear all about it ?. 
  11. Like
    Hopefulme got a reaction from Jewel in Glad I came here   
    I know this might probably sound cheesy but for some reason I feel good that I signed up for this forum. I am not yet qualifying  for cochlear implants but learning from beautiful souls here who have experienced same journey as yours really feels good. In a world where hearing is taken for granted, we unite here to hear. I feel confident enough that I am ready to face the hearing loss journey. I know it’s scary, it always will be but reading the posts here from people who got implanted or are in that process, helps in not feeling alone and left out.
  12. Like
    Hopefulme got a reaction from Mary Beth in Glad I came here   
    I know this might probably sound cheesy but for some reason I feel good that I signed up for this forum. I am not yet qualifying  for cochlear implants but learning from beautiful souls here who have experienced same journey as yours really feels good. In a world where hearing is taken for granted, we unite here to hear. I feel confident enough that I am ready to face the hearing loss journey. I know it’s scary, it always will be but reading the posts here from people who got implanted or are in that process, helps in not feeling alone and left out.
  13. Thanks
    Hopefulme reacted to Kara of Canada in Any software engineers here?   
    Our Techie person is @hadron  he is extremely knowledgeable. I’m sore he’ll chime in soon. 
  14. Like
    Hopefulme reacted to Kara of Canada in Mild to profound ski slope hearing loss   
    They say hearing can increase the chances but I would say if they didn’t do anything to stimulate hearing such as HA or CI. (I’m not a dr or anything) 
  15. Like
    Hopefulme reacted to Mary Beth in Mild to profound ski slope hearing loss   
    Hi @Hopefulme
    I know many many older people with hearing loss who do not have dementia.  Staying engaged and connected to others is helpful in all stages of our lives.
    My hearing loss was isolating me...my world was shrinking......it was exhausting and often times it was frustrating.
    I am thankful every morning for this gift of hearing.  It has opened my world back up and I am so grateful.
  16. Like
    Hopefulme reacted to Jewel in Mild to profound ski slope hearing loss   
    @Hopefulme
    You're welcome. Remember you're not alone. 
    Please keep us posted on your journey. 
  17. Like
    Hopefulme reacted to Kara of Canada in Mild to profound ski slope hearing loss   
    Yes @Hopefulme keep us posted! 
  18. Like
    Hopefulme reacted to Jewel in Mild to profound ski slope hearing loss   
    @Hopefulme
    It is understandable that you're a bit anxious about your future. So was I when my ENT confirmed in 2001/2  that I was losing my hearing. I remember crying in his office at the news. I felt my life was over. Also it took me 10 years to accept my hearing loss. 
    Fast forward to 2018 and I'm still working. Personally I made sure to save a good portion of my salary early on, knowing that if my hearing worsened I may be out of a job. 
    Today we have a lot of technology that can benefit us. You can use a speech to text app to understand what someone is saying to you. 
    Also if you have a good support system that is great. 
    We just have to accept our limitations and move on. Many people are worse off than us so try to focus on the positives in your life. 
  19. Like
    Hopefulme reacted to Mary Featherston in Mild to profound ski slope hearing loss   
    @Hopefulme, @Jewel - my situation is a little different, I've been losing my hearing pretty much since birth.  But the frustration doesn't go away, and I have, like Jewel, tried to ensure that my loss of hearing wouldn't destroy our financial situation - when my husband's father died and left him a small (smallish) amount of money, we chose to pay off our house against the advice of our financial advisor, because of my fear that I would be unable to continue working.  I've never regretted that, though the CIs are changing my future outlook now!
  20. Like
    Hopefulme reacted to Kara of Canada in Mild to profound ski slope hearing loss   
    So as you say @Hopefulme I was in your position before I got my implants. I was depressed I withdrew from social settings and only really tried with my close freinds and family. I was very sad and alone. Now though I can hear better than ever and I got a dog! She had also helped me to not feel alone and I go for walks with her everyday! So please if you ever need to talk we’re here for you!  P.s. o was a lipreader as well. But it’s difficult in a Hearing world to always be able to do that. I wish you all the best! Kara 
  21. Like
    Hopefulme reacted to Hicksy in Mild to profound ski slope hearing loss   
    Lip reading and very understanding friends and family. I used to have to call my wife at her work to listen to my messages to tell me what they were... I steered everyone I could towards using email ... still consider the original Blackberry one of the greatest inventions ever when my company adopted them ?
    I just coped best I could but I wasn’t fooling anybody. But it did make me a very very observant person which was about the only positive.
  22. Thanks
    Hopefulme got a reaction from Jewel in Mild to profound ski slope hearing loss   
    Okay thank you @Jewel
    heope you have great day:)
  23. Thanks
    Hopefulme got a reaction from Jewel in Mild to profound ski slope hearing loss   
    @Mary Beth Thank you mam i will go through the links. That is some interesting stuff.
    @Jewel thank you for sharing your experience with me. I am really happy for your CI and that everything is working great. Enjoy hearing the world
  24. Like
    Hopefulme reacted to Jewel in Mild to profound ski slope hearing loss   
    Hi @Mary Beth
    Only one person has come up to me asking if I got my "earphone" and if I can hear well and if she can call me on the phone now. 
    No one else has enquired. Yesterday my CI ear piece fell from my ear while I was having lunch and I couldn't get it to stay on my ear. I ended up with the whole CI off shortly afterwards. The person sitting before me didn't say anything.
    I'm hearing pretty well at work. But the canteen is far too noisy for me. I held the work phone near my ear to clear voicemail and could hear! Yesterday I answered my friend's iPhone as she left it in my office. I took a message for her and she was shocked that I was able to hear her phone! 
  25. Thanks
    Hopefulme reacted to Mary Beth in Mild to profound ski slope hearing loss   
    @Hopefulme
     
    great info here
    https://blog.medel.pro/eas-implant-system/
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