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VeroNika

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VeroNika last won the day on November 21 2018

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About VeroNika

  • Rank
    Regular Contributor

Profile Info

  • Search Profile
    User of a hearing implant
  • Implanted
    Yes
  • Implant Period
    Over 5 years
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Other
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Sudden Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    Austria

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  1. Thank you @marybeth!! Sorry I've been quiet for a while...but how did one great Austrian once say - I'll be back ;)
  2. Birds outside my window - a really nice sound! :)
  3. Like @Mary Beth I want to wish you, @Lynn Agnes and @Lori Martin all the best!! : )
  4. Hi there @Lynn Agnes and welcome.to hear peers! 🤗 Like @Mary Beth mentioned, I am also deaf one one ear - my left, just like you - and hearing on my right ear. Just to give you a little background as to my experience with ssd and the ci: I was born with regular hearing, turned deaf due to an unknown virus at three and got my implant aged 21- rather late, it was believed that the hearing nerve is damaged so I had no hearing aids, at 20 doctors found out my auditory nerve actually is working so - yaaaay - I could get a ci and have been a very happy user since 2011! You mentioned sound localization: - without the ci: only possible through some compensating strategies which help in known indoor surroundings, outdoors not possible (no idea where a car is coming from if I don't see it) - with the ci: I can - mostly - tell were noises (cars, music,...) come from - hurrray! 😃 In regards to music: I started playing instruments and singing without the ci and can also enjoy and appreciate music without the ci.but - for me - it was like a whole new music-world opened when I got the CI - I will never ever forget the first time I sang in the choir with the ci, playing the piano to me sounds a lot better with the CI and also I appreciate live concerts more with the ci.at the beginning of my ci hearing journey we had to fiddle with different settings but the Medel technicians were and are awesome about it and we found great settings - and when at concerts I use the fine tuner (a remote for different settings of your ci) to adjust to the type of music that I am listening too. also oit of curiosity at concerts I even tried turning the ci off/on again and with the ci to me music is a lot more enjoyable! 😊 So personally: yes, I do experience music differently, that is: better. If there's anything else you'd like to know like strategies for noisy environments or anything else that comes to your mind: just let me know - also I wish you all the best for your decision! 😊
  5. And the thing I am 2ndly most forward looking too is also mentioned in the poll: direct streaming from.phone to processor, that would also be awesome! 😃
  6. Welcome to hear peers, @segoro72!like @maryBeth said I am single sided deaf and got implanted in 2011 - so if you've got any questions, please feel free to ask!
  7. Hm, there's no poll for me to open?or is that maybe because - sorry - I was late to reply and it's closed now?anyway, I think it's a nice new feature! 👍
  8. Hi @Julie72 - let me start by wishing you and especially your daughter all the best for her haring journey! 😊 Like @Mary Beth said I am ssd and use a concerto/opus 2 by Medel for my deaf ear!my opus 2 came with a connection cable that lets you directly connect the processor with things like an iPod/smartphone/laptop and found that helpful for training, as otherwise, when training, you always hear with your hearing ear as well (note: I was told not to use that cable when devices are being charged).so I would listen to music/audio books I like with that cable to train just the hearing through the processor!However I am sorry - I don't know of any specific child-friendly training apps and, as I don't use a Roger pen I can't say anything about the specifics of how that gets along with ssd!if there's anything you'd like to know about ssd and things like going to school, tips for noisy environments, etc. just let me know and I am happy to help! 😊
  9. @matt - would be great to meet up in Graz next year, looking forward to it! 😃But how come, you as an Aussie have your bike stored in sinabelkirchen?what kind of bike do you ride?
  10. So, @Mary Featherston and @Mary Beth about Neuroth: It's an Austrian company specialized in hearing aids as well as hearing protection as well as certain medical equipment. They have offices/distribute in Austria, Germany, Switzerland, Lichtenstein, France and I think also in Slovenia. Hm, I also just searched for an English website - couldn't find one either. About the hearing protection I use, here's a link to the product site of the one's I use (although mine are from 2010, so an older generation ;)) https://at.neuroth.com/gehoerschutz/gehoerschutz-fuer-erwachsene/gehoerschutz-fuer-musiker-fans/ So they are especially designed for musicians so that when protecting your ear you still have a nice quality of sound. There are several options in material and customized ones are available as well as "regular fit" ones. In regards to the ones I use: The protection piece consists of two parts: one part that is custom fitted (you can clean that with water) to my left and to my right ear. And within that piece you can fit in little "filters" (they are not to get wet) that vary in their degrees of sound protection level. There's 9F which is just a little protection, 15 and 25, which is the highest protection - the filters are a little fiddly to change, but the awesome thing is that even with the highest protection level sound is still clear and nice! :D I like using them in loud/noisy environments as - obviously - they protect my ear and also when using them tinnitus in my right hearing ear is not as bad later on. Is there something similar available in the US?
  11. Oh that's funny, @Mary Featherston, that there was an Austrian Neuroth-girl! It's not very common, but there's a few!
  12. Hi @Pianist! I love playing the piano (also play the transverse flute and sing) - I am single sided deaf and started playing music before I got my cochlea implant. However now with the implant I enjoy playing the piano even more as I hear the full sound better. For the transverse flute the settings of the CI were very important to me as I heared high piched sounds sort of "too loud", but with the right settings it works. Also singing in the choir to me is a lot more enjoyable with the CI, as now I can hear all voices a lot better and not just those that are on my hearing side! Hope that helps & also wish you all the best for your CI-journey!! :)
  13. Hi @Little_chooky Caroline, Happy to reply! :) Oh well, browser-stuff like that happens every now and then... (btw: a little later it turned up again but I had already rewritten it ;) ) Yaaay, so you now some German, that's awesome! :D Well our official language is also "German" but "Austrian German" - and our German is quite different than the German's German - at least spoken. Written it's quite the same and we understand them easily when they talk but our many different dialects kind of give them a hard time! ;) I sort of hear regular on my right ear - I say sort of as I also have tinnitus on my right ear (due to acute hearing loss in my right ear in 2016 which happened due to Lyme's disease, no detectable tinnitus on my left ear) and, simliar like yours, it reacts to noisy environment, so I'll include tips for that in my top 5 for SSD (for that I am not considering the CI, but rather how it is without it): 1. when talking to people I like them to be opposite or on my right side (so that my "good" ear is closer to them speaking), I am also aware of lightning (wanting there face to be nicely in light, so that I can do lip reading more easily as well as better reading their body language, which also helps), the room itself, carefully choosing where I sit or stand when talking to people (also, like when going to a restaurant I like to be proactive and choose the seat that's best in regards to hearing) 2. letting people know - I feel that trying to understand in noisy environments often is quite difficult at itself and I feel that when I let people know they are more understanding but - somewhat even more important - it eases my personal stresslevel in these situations (however: for important talks I would carefully chose the sound setting, I would not have important talks in noisy environments, or with a lot background noise or in rooms with bad acoustics) 3. In Austria we have a hearing aids and hearing protection company called Neuroth - they make these amazing hearing protection pieces, that are custom made to fit your ear and then you can put little filters in these pieces that will for one protect your ear and eardrums from too much noise and two (which is the amazing thing) will also help with understanding, as they sort of turn down nasty noises while still letting you understand speech clearly as well as letting you enjoy music or so. I use these a lot (I also have one set for my deaf ear, as I feel that I still want to protect my eardrum - this may sound weird to some people, but it's just my way of taking care of my deaf ear too, which is important to me :) ) in like restaurants, in loud cars, when on a plane (not while starting / landing due to the changing pressure, but when at flight hight I like them), train/bus stations, etc. -> AND: for me they come in super handy with my tinnitus, as usually when I'm in loud hearing situations my tinnitus turns up afterwards. When using these for me the tinnitus doesn't get as loud later. -> These handy little Neuroth-Protection-Pieces were somewhat pricey but I love them. Maybe that is something that could help you cope with your tinnitus as well? I'm certain that Australia would probably have something simliar! If you want, I can photograph them for you so that you can get an idea of these things. :) 4. Taking care of my hearing ear. Protecting my hearing ear from loud noises is very important to me. But also taking care of it in the way of getting some "hearing rest" during the day. Like for example when I am on a full day training course, where I have to listen a lot, I like to take the breaks not to talk or listen to others but rather to relax my ear, go to a quiet room, go out in nature (I find the calm of nature and nature sounds very relaxing to my ears), or whatever feels comfortable. 5. Being patient with myself and my hearingloss and aknowleding that with it a regular day takes me more energy than it may take a person with regular hearing. So I like to make sure I get enough "hearing-breaks" and relax my hearing so that I have enough "listening-strength" throughout the day. I hope you find these top 5 useful - let me know, if you'd like more info (for example on strategies I use to sort of be able to detect the origin of sounds, cell phone, etc.)! :) In regards to CI stimulus/regular stimulus and how my brain copes: it does just fine! ;) Yes, left cI-ear is a little different but me and my brain don't mind - I feel it even helps me in telling where sounds come from. Also it's not like super-duper-different, it's just that - to me - on my left ear I don't just "hear" sounds I also sort of "feel" them - but it's hard to describe. I know that there still are many concerns out there about SSD and CI and how does it all work - I can only speak for myself, but all I can say is that it work's just awesome and I personally love my CI and would every day choose it again! :) cheers from Graz, Veronika
  14. Oh no. I just wrote a nice reply and now it's a gone! Hm. Will start again.... So: Welcome @Little_chooky to Hear Pears!! I'm sorry to hear about your sudden hearing loss!! As @Mary Beth mentioned I am single sided deaf (SSD) on my left ear as well. I was born with regular hearing, turned deaf around age 3,5 (unknown virus) and was not fitted with hearing aids for the next 18 years as it was believed that my hearing nerve is damaged.long story short: my nerve is fine and thus I got my cochlea implant aged 21 and am a very happy CI user since 2011! ? So I know both sides pretty well - living with SSD with no assistance as well as using a CI. So what are you most interested in at the moment - getting to know more about coping strategies I use(d) or how and to what extent the CI is helping me in my daily life? Just let me know and I'll do my best to assist! ?However I am Austrian - as Ausreians we often get confused with Australia so there is a habit of t-shirts saying "no cangaros in Austria" ? - so please bear with my english... ? Cheers & all the best, Veronika
  15. Oh, and now I just saw, that after rewriting the post I added it to another topic than intended, sorry...? This post of mine was meant for the Australian new post...but maybe it'll help here as well?however I will ty to get it to the other post as well...?
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