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VeroNika

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Everything posted by VeroNika

  1. Thank you @marybeth!! Sorry I've been quiet for a while...but how did one great Austrian once say - I'll be back ;)
  2. Birds outside my window - a really nice sound! :)
  3. Like @Mary Beth I want to wish you, @Lynn Agnes and @Lori Martin all the best!! : )
  4. Hi there @Lynn Agnes and welcome.to hear peers! 🤗 Like @Mary Beth mentioned, I am also deaf one one ear - my left, just like you - and hearing on my right ear. Just to give you a little background as to my experience with ssd and the ci: I was born with regular hearing, turned deaf due to an unknown virus at three and got my implant aged 21- rather late, it was believed that the hearing nerve is damaged so I had no hearing aids, at 20 doctors found out my auditory nerve actually is working so - yaaaay - I could get a ci and have been a very happy user since 2011! You mentioned sound localization: - without the ci: only possible through some compensating strategies which help in known indoor surroundings, outdoors not possible (no idea where a car is coming from if I don't see it) - with the ci: I can - mostly - tell were noises (cars, music,...) come from - hurrray! 😃 In regards to music: I started playing instruments and singing without the ci and can also enjoy and appreciate music without the ci.but - for me - it was like a whole new music-world opened when I got the CI - I will never ever forget the first time I sang in the choir with the ci, playing the piano to me sounds a lot better with the CI and also I appreciate live concerts more with the ci.at the beginning of my ci hearing journey we had to fiddle with different settings but the Medel technicians were and are awesome about it and we found great settings - and when at concerts I use the fine tuner (a remote for different settings of your ci) to adjust to the type of music that I am listening too. also oit of curiosity at concerts I even tried turning the ci off/on again and with the ci to me music is a lot more enjoyable! 😊 So personally: yes, I do experience music differently, that is: better. If there's anything else you'd like to know like strategies for noisy environments or anything else that comes to your mind: just let me know - also I wish you all the best for your decision! 😊
  5. And the thing I am 2ndly most forward looking too is also mentioned in the poll: direct streaming from.phone to processor, that would also be awesome! 😃
  6. Welcome to hear peers, @segoro72!like @maryBeth said I am single sided deaf and got implanted in 2011 - so if you've got any questions, please feel free to ask!
  7. Hm, there's no poll for me to open?or is that maybe because - sorry - I was late to reply and it's closed now?anyway, I think it's a nice new feature! 👍
  8. Hi @Julie72 - let me start by wishing you and especially your daughter all the best for her haring journey! 😊 Like @Mary Beth said I am ssd and use a concerto/opus 2 by Medel for my deaf ear!my opus 2 came with a connection cable that lets you directly connect the processor with things like an iPod/smartphone/laptop and found that helpful for training, as otherwise, when training, you always hear with your hearing ear as well (note: I was told not to use that cable when devices are being charged).so I would listen to music/audio books I like with that cable to train just the hearing through the processor!However I am sorry - I don't know of any specific child-friendly training apps and, as I don't use a Roger pen I can't say anything about the specifics of how that gets along with ssd!if there's anything you'd like to know about ssd and things like going to school, tips for noisy environments, etc. just let me know and I am happy to help! 😊
  9. @matt - would be great to meet up in Graz next year, looking forward to it! 😃But how come, you as an Aussie have your bike stored in sinabelkirchen?what kind of bike do you ride?
  10. So, @Mary Featherston and @Mary Beth about Neuroth: It's an Austrian company specialized in hearing aids as well as hearing protection as well as certain medical equipment. They have offices/distribute in Austria, Germany, Switzerland, Lichtenstein, France and I think also in Slovenia. Hm, I also just searched for an English website - couldn't find one either. About the hearing protection I use, here's a link to the product site of the one's I use (although mine are from 2010, so an older generation ;)) https://at.neuroth.com/gehoerschutz/gehoerschutz-fuer-erwachsene/gehoerschutz-fuer-musiker-fans/ So they are especially designed for musicians so that when protecting your ear you still have a nice quality of sound. There are several options in material and customized ones are available as well as "regular fit" ones. In regards to the ones I use: The protection piece consists of two parts: one part that is custom fitted (you can clean that with water) to my left and to my right ear. And within that piece you can fit in little "filters" (they are not to get wet) that vary in their degrees of sound protection level. There's 9F which is just a little protection, 15 and 25, which is the highest protection - the filters are a little fiddly to change, but the awesome thing is that even with the highest protection level sound is still clear and nice! :D I like using them in loud/noisy environments as - obviously - they protect my ear and also when using them tinnitus in my right hearing ear is not as bad later on. Is there something similar available in the US?
  11. Oh that's funny, @Mary Featherston, that there was an Austrian Neuroth-girl! It's not very common, but there's a few!
  12. Hi @Pianist! I love playing the piano (also play the transverse flute and sing) - I am single sided deaf and started playing music before I got my cochlea implant. However now with the implant I enjoy playing the piano even more as I hear the full sound better. For the transverse flute the settings of the CI were very important to me as I heared high piched sounds sort of "too loud", but with the right settings it works. Also singing in the choir to me is a lot more enjoyable with the CI, as now I can hear all voices a lot better and not just those that are on my hearing side! Hope that helps & also wish you all the best for your CI-journey!! :)
  13. Hi @Little_chooky Caroline, Happy to reply! :) Oh well, browser-stuff like that happens every now and then... (btw: a little later it turned up again but I had already rewritten it ;) ) Yaaay, so you now some German, that's awesome! :D Well our official language is also "German" but "Austrian German" - and our German is quite different than the German's German - at least spoken. Written it's quite the same and we understand them easily when they talk but our many different dialects kind of give them a hard time! ;) I sort of hear regular on my right ear - I say sort of as I also have tinnitus on my right ear (due to acute hearing loss in my right ear in 2016 which happened due to Lyme's disease, no detectable tinnitus on my left ear) and, simliar like yours, it reacts to noisy environment, so I'll include tips for that in my top 5 for SSD (for that I am not considering the CI, but rather how it is without it): 1. when talking to people I like them to be opposite or on my right side (so that my "good" ear is closer to them speaking), I am also aware of lightning (wanting there face to be nicely in light, so that I can do lip reading more easily as well as better reading their body language, which also helps), the room itself, carefully choosing where I sit or stand when talking to people (also, like when going to a restaurant I like to be proactive and choose the seat that's best in regards to hearing) 2. letting people know - I feel that trying to understand in noisy environments often is quite difficult at itself and I feel that when I let people know they are more understanding but - somewhat even more important - it eases my personal stresslevel in these situations (however: for important talks I would carefully chose the sound setting, I would not have important talks in noisy environments, or with a lot background noise or in rooms with bad acoustics) 3. In Austria we have a hearing aids and hearing protection company called Neuroth - they make these amazing hearing protection pieces, that are custom made to fit your ear and then you can put little filters in these pieces that will for one protect your ear and eardrums from too much noise and two (which is the amazing thing) will also help with understanding, as they sort of turn down nasty noises while still letting you understand speech clearly as well as letting you enjoy music or so. I use these a lot (I also have one set for my deaf ear, as I feel that I still want to protect my eardrum - this may sound weird to some people, but it's just my way of taking care of my deaf ear too, which is important to me :) ) in like restaurants, in loud cars, when on a plane (not while starting / landing due to the changing pressure, but when at flight hight I like them), train/bus stations, etc. -> AND: for me they come in super handy with my tinnitus, as usually when I'm in loud hearing situations my tinnitus turns up afterwards. When using these for me the tinnitus doesn't get as loud later. -> These handy little Neuroth-Protection-Pieces were somewhat pricey but I love them. Maybe that is something that could help you cope with your tinnitus as well? I'm certain that Australia would probably have something simliar! If you want, I can photograph them for you so that you can get an idea of these things. :) 4. Taking care of my hearing ear. Protecting my hearing ear from loud noises is very important to me. But also taking care of it in the way of getting some "hearing rest" during the day. Like for example when I am on a full day training course, where I have to listen a lot, I like to take the breaks not to talk or listen to others but rather to relax my ear, go to a quiet room, go out in nature (I find the calm of nature and nature sounds very relaxing to my ears), or whatever feels comfortable. 5. Being patient with myself and my hearingloss and aknowleding that with it a regular day takes me more energy than it may take a person with regular hearing. So I like to make sure I get enough "hearing-breaks" and relax my hearing so that I have enough "listening-strength" throughout the day. I hope you find these top 5 useful - let me know, if you'd like more info (for example on strategies I use to sort of be able to detect the origin of sounds, cell phone, etc.)! :) In regards to CI stimulus/regular stimulus and how my brain copes: it does just fine! ;) Yes, left cI-ear is a little different but me and my brain don't mind - I feel it even helps me in telling where sounds come from. Also it's not like super-duper-different, it's just that - to me - on my left ear I don't just "hear" sounds I also sort of "feel" them - but it's hard to describe. I know that there still are many concerns out there about SSD and CI and how does it all work - I can only speak for myself, but all I can say is that it work's just awesome and I personally love my CI and would every day choose it again! :) cheers from Graz, Veronika
  14. Oh no. I just wrote a nice reply and now it's a gone! Hm. Will start again.... So: Welcome @Little_chooky to Hear Pears!! I'm sorry to hear about your sudden hearing loss!! As @Mary Beth mentioned I am single sided deaf (SSD) on my left ear as well. I was born with regular hearing, turned deaf around age 3,5 (unknown virus) and was not fitted with hearing aids for the next 18 years as it was believed that my hearing nerve is damaged.long story short: my nerve is fine and thus I got my cochlea implant aged 21 and am a very happy CI user since 2011! ? So I know both sides pretty well - living with SSD with no assistance as well as using a CI. So what are you most interested in at the moment - getting to know more about coping strategies I use(d) or how and to what extent the CI is helping me in my daily life? Just let me know and I'll do my best to assist! ?However I am Austrian - as Ausreians we often get confused with Australia so there is a habit of t-shirts saying "no cangaros in Austria" ? - so please bear with my english... ? Cheers & all the best, Veronika
  15. Oh, and now I just saw, that after rewriting the post I added it to another topic than intended, sorry...? This post of mine was meant for the Australian new post...but maybe it'll help here as well?however I will ty to get it to the other post as well...?
  16. Oh no. I just wrote a nice reply and now it's a gone! Hm. Will start again.... So: Welcome @Little_chooky to Hear Pears!! I'm sorry to hear about your sudden hearing loss!! As @Mary Beth mentioned I am single sided deaf (SSD) on my left ear as well. I was born with regular hearing, turned deaf around age 3,5 (unknown virus) and was not fitted with hearing aids for the next 18 years as it was believed that my hearing nerve is damaged.long story short: my nerve is fine and thus I got my cochlea implant aged 21 and am a very happy CI user since 2011! ? So I know both sides pretty well - living with SSD with no assistance as well as using a CI. So what are you most interested in at the moment - getting to know more about coping strategies I use(d) or how and to what extent the CI is helping me in my daily life? Just let me know and I'll do my best to assist! ? However I am Austrian - as Ausreians we often get confused with Australia so there is a habit of t-shirts saying "no cangaros in Austria" ? - so please bear with my english... ? Cheers & all the best, Veronika
  17. As @Mary Beth asked for photos - here's one of me playing the piano at an awesome concert highligting ci users' love for music (I was accompanied by a wonderful ballet dancer) and one playing the piano at the hotel lobby at this year's first ever med el meet up - with @mary Beth next to me ?
  18. @Mary Beth thank you for your kind words!also I really enjoy participating in hear peers! ? And if somebody wants to know more about Beats of Cochlear just let me know and I'm happy to share!
  19. @Mary Beth great, that you started this new topic! ? My family is into music so I started around preschool/primary with a music group for kids (turned single sided deaf around age of 3 years), went on to learn playing the flute, moved on to transverse flute (classes for 4 years), started singing in a choir aged about 15 and learning to play the piano at 16 (took lessons for 1,5 years) - I just love music, both playing it and listening to it! ? The truly amazing thing though is that, for me, once I got my CI music got even more amazing: I'll never forget the first time I sang in the choir and could finally hear the full, grand sound of all voices singing (brought tears to my eyes, it was so amazing and wonderful) - I didn't know, what I was missing with SSD in that aspect of music! For playing the transverse flute I still need to adjust within the fine tuner programs/settings as high pitched sounds are an issue for me. I love playing the piano with my CI, wouldn't want to play it without the CI as I can hear the left hand betternand more distinct now! Also going to live concerts is pretty amazing with the CI (live in concert: Hans Zimmer, Ludovico einaudi, mark Forster, Ed Sheeran,... just to name a few of the concerts I had the pleasure of enjoying with my CI)! ? And for all of you ci-uswrs loving making music: ever heard of beats of cochlear?it's an internstional annual one week long music festival for ci users, taking place in Poland. In 2017 I had the awesome opportunity to participate and it was great to be a part of it!it"s all about learning from professionals as well as making music together, performing on stage at various concerts throughout the week and simply sharing the love for music with people from.all over the world! ?
  20. Oh, this is exciting, @Mary Featherston!!I wish you all the best for your activation nest Thursday!! ?
  21. Thanks, I'm glad my perspective is of some help to you, @Alexei! Performance in hearing tests: - sound detection is pretty awesome (1,5 years ago I participated in a study for testing sound detection with and without using my cochlea implantat, and - if I remember correctly - got somewhat aroind 80/90%with CI) - hearing test for speech recognition: these are a bit tricky, as they so far did it not with the connecting cable but through putting distracing-noise on my hearing ear and then testing the left ear. They have to crank the disteacting noise up pretty loud which makes it very difficult for me to focus on words in the left ear. With this test I have pretty low levels. However when using the cable to connect directly to a speech source I do better. And - but that's just said from my experience, I don't have any test confirming it - I do a lot better with speech understanding with both my left and right ear. I know it sounds funny as on it's own the left ear doesn't do too well in speech recognition, but together it is by far better. - like when I am in noisy surroundings, like a restaurant with many people, I have a very hard time understanding speech without my CI. - hearing test as in hearing sounds: also pretty good, but I struggle with deep sounds (for me high sounds are a lot easier, but from what I"be heard from others that's different for every ci user) I guess all in a you can say that neuroplasticity is pretty awesome, and that my hearing nerve (which luckily had the ability to develop regular before turning deaf) still manages to pass on signals pretty well, considering it was "on pause" for 18 years! ?
  22. Hello @Alexei - and thanks @Mary Beth for tagging me! So I have SSD - born with regular hearing, turned deaf on my left ear around the age of 3,5 years. Back then it was believed that my hearing nerve is damaged, so I was not fitted with hearing aids/implant.However much later (aged 21) I found out that the hearing nerve is ok and I would be a candidate for a cochlear implant, which I then got. So I know both sides - SSD with/without a cochlear implant. I can only share my personal experience - before the implant I used many coping strategies (also some that helped me in school, let me know if you want to know more about that) that helped me in dealing with difficult hearing situations in my daily life, some I still use. Comparing before the CI to now with the CI: I feel that I personally benefit a lot from the ci (for me amongst others: binaural hearing, hearing in difficult hearing situations, enjoying and playing music even more with the ci,...).I feel that I learnt a lot from my SSD but now am very happy with my cochlea implant! @Alexei - please let me know if you want to know more! ? Cheers from Austria, veronika
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