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Alexei

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  • Content Count

    8
  • Joined

  • Last visited

About Alexei

  • Rank
    Newbie

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Unknown / Prefer not to say
  • Pre/post lingual Hearing Loss
    Pre lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Unknown / Prefer not to say
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

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  1. Good to know. We're in the US at Mass Eye and Ear. Should I contact my Med-el rep to learn more? Thanks!
  2. Hi there! Just wanted to update everyone on this thread that we decided to move forward and my son was implanted in early January and activated in February. He's doing well with the processors in terms of wearing them most of the day and he can do well with closed set words streaming directly to his CI (which is amazing considering where he came from). But his audiogram levels seem low comparing to what others have demonstrated. He's around 45 dB average whereas most seem to be 20-30 dB with the CI only. Note this test was done in the booth with masking of the good ear at 65 dB. He continues to improve with word recognition and we're putting in lots of work with direct streaming training, but I am concerned about the low audiogram thresholds and he's almost maxed out in volume in his mappings. Does anyone have a sense of whether or not these thresholds may improve over time still? Or did anyone have their pure tone audiogram tested over time and did it evolve. He's had three mappings and is about 4 months out now from initial activation. Thanks!
  3. Hi Gemma! I think I may have seen your name on some of the FB threads (if I'm recalling correctly). You may have the record for duration of deafness followed by successful implantation! At least the longest that I have come across. Thanks so much for your feedback and I read the blog that @Mary Beth referenced as well which was very helpful.
  4. @VeroNika That is a unique perspective and very helpful! How do you perform on a hearing test now in that ear since so much time went by where the nerve wasn't being stimulated?
  5. Hi everyone! I'm new to this forum and here's our backstory. We discovered that my son is profoundly deaf in his left ear at his kindergarten screen. He passed his newborn screen with no issues. We were shocked as he has apparently adapted very well and you would never know. Hears perfectly out of his right ear, does well in school so far (he's now in first grade) and is very athletic. The cause of his hearing loss is unknown but we're guessing it was early in life as he has adapted so well and doesn't seem to know any different (to the point where he doesn't even fully accept that he has hearing loss). He has been seen at several clinics and is considered a good candidate for CI at least anatomically (nerve is present and fully formed). Since he has adjusted so well it does make the decision on doing a CI challenging, but we're leaning towards doing it to give him the benefit or full binaural hearing and also to keep the nerve on that side stimulated as who knows what future therapies might be available and accessible to him. I'm interested in anyone who has gone through a similar decision process and how you decided on the Medel cochlear implant for your child. Thank you!
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