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MallaRuth

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MallaRuth last won the day on January 5

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About MallaRuth

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Profile Info

  • Search Profile
    User of a hearing implant
  • Implanted
    Yes
  • Implant Period
    Over 5 years
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Heredity
  • Pre/post lingual Hearing Loss
    Pre lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Not applicable
  • Uni/bilateral Implant
    Bilateral implant
  • Country
    United Kingdom

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  1. I don't really know what to say to this post. I find it - especially the analogy of the scratched glasses - quite off-putting. Cochlear implants are so much more than the sum of their parts.
  2. Hi Mary Beth and all I have recently had my bilateral hearing restored after implant failure on the right side. To celebrate my return to stereo sound, I decided to treat myself to some over the ear headphones. I’ve never owned a pair before. I use the bluetooth earhook headphones. They provide decent stereo sound, cost around £20 and have lasted for four years. However, I fancied trying something a little snazzier that might provide a better overall acoustic experience. After lots of research, I settled for a pair of Skullcandy headphones. I’d initially dismissed them as a trendy gimmick, but I tried out my sister’s Venue pair and the sound quality and fit were outstanding: https://www.skullcandy.co.uk/shop/headphones/bluetooth-headphones/venue I decided to try a different pair, and opted for the Crusher: https://www.skullcandy.co.uk/shop/headphones/bluetooth-headphones/crusher-wireless Verdict: I really like them, but they may not be for everybody. Pros: They sit nicely on my head (for me) to be picked up by the Sonnet mics. The sound is loud enough; I normally have the volume at around 2/3 the full volume. They provide balanced and clear stereo sound across a range of genres including classical, jazz, as well as more poppy and rocky songs. My favourite classical tracks still sound full and sweet on these. I LOVE the tactile bass! Even when switched off, the headphones provide a lot of vibration and movement. I find them very immersive. For a song or a movie with bassy sound, I only have to switch the bass lever up a little and the headphones thrum and vibrate. It’s really fun. Cons: Some people may find them too bass heavy. All my family tried them, all liked them, with my dad commenting they were too bassy for him. This is a matter of personal preference, I think. They size up a little small, and some people may find them tight. I can wear them comfortably for a couple of hours. They’re not noise cancelling and do leak a little sound, however, not too much. I’m really pleased that I dipped my toe in the water with OTE headphones, and I would definitely buy another pair.
  3. Hi Anita, welcome! I was recently implanted, too (2nd October, and activated on the 24th). It takes time to recover, for sure. I had around two weeks off work and went back to work last week. I did try to make some time to take short walks every day, even when I didn’t feel like it. I felt very tired and noticed myself moving much more slowly than usual even after I got back to work. I haven’t gone back to my regular hobbies yet, like exercise classes. I think it would be worth asking your audiologist or clinic about the taste issues. I hope that you feel better very soon - and the very best of luck with your activation!
  4. @Mary Beth I am looking at Skullcandy. I initially thought they were just a 'trendy' brand. My sister (also with bilateral CIs) has a pair, and they are very good! Her pair is Venue: https://www.skullcandy.co.uk/shop/headphones/bluetooth-headphones/venue - sound quality and bluetooth is fantastic, and they have Tile integration so you can find them via the app! I am tempted to try Crusher: https://www.skullcandy.co.uk/shop/headphones/bluetooth-headphones/crusher-wireless - they use haptic bass, which could be a lot of fun (I'd have to turn it right down for quieter songs and voice/radio). I may also wait for Black Friday and see if any pairs go down in price, such as the Bose QuietComfort. Choices, choices! 🙂
  5. Thank you @Mary Beth! I am going to treat myself to a swanky new pair of wireless headphones... They'll help with rehab, right?! 😉
  6. Hi everybody. Just thought I'd share my situation with you in case it's of interest. I'm a bilateral CI user, had right ear implanted in 2000 and LE in 2010. My RE failed this summer whilst I was on holiday in Rhodes. My implant (well, I thought it was my processor) started switching off at random. I changed batteries a few times, then (using my left processor for spares) I switched the wire, coil, battery pack one at a time. After randomly switching off, the implant would come back on maybe 10 minutes later with a staticky sounding popping nose. After half a day of this, it pretty much stopped coming on altogether. When I got home later that week, my clinic sent out a new processor and I went through the process again of testing all the spare parts, finally switching the processor itself over: no joy. I went for tests the following week. I had my reimplant surgery less than a month later, on Wednesday 2nd October. My activation is next Thursday. I am excited to get back to stereo... and I wonder how different this new implant will sound. I've gone from a COMBI 40+ with standard electrode to a Synchrony II, so quite an upgrade! I've always found my left ear to be the 'weak ear' due to the 10 year gap. Using only my left ear since August has really strengthened it, I reckon. I'd love to hear the experiences of others who have had long gaps in sequential implantation, or have had to rehab following a reimplant. I'll update this following my switch-on. Ruth 🙂
  7. This is great, Mary Beth! Thank you. I use the ear hooks and I am pretty satisfied with them. They are cheap, long lasting (I’ve had mine for around 4 years) and give very decent volume and sound quality. It would be useful to consider cost and ease of sourcing something as part of this chart. I agree that using the telecoil can be highly inconvenient. This is made worse by needing the Finetuner, meaning that if I need to suddenly switch my program out so that I can hear properly, it’s a faff (e.g. getting on a bus and speaking to a driver). I also find I get a lot of electromagnetic interference. I look forward to seeing what other stereo options people come up with!
  8. Apologies for the late reply - I didn't get the email notification. I have tried to turn them on. Yes, this is exactly what happened to my Sonnets. It's happened twice, once on each side. Both times, the entire unit had to be replaced. I was told this is a weakness with that model.
  9. Hi All - I am messaging because I have an ongoing problem with trying to 1) even up my hearing and 2) get comfortable with the sound of my own voice. It's at the stage where it's causing problems on a daily basis. I've had my right CI (RCI) for 20 years and my LCI for 10. I got upgraded to the Sonnet on both sides last year. I've always found my LCI much quieter than my RCI. That's to be expected because the RCI has had a 10 year head start and so is going to be much more dominant. Although I've had the RCI turned down and the LCI turned up over the years, they've never evened out and they probably never will. However, I DO hear much, much better when I'm wearing two, even if I don't have true stereo sound (what does true stereo sound even sound like? I'm not sure if I know...) One thing I'm particularly struggling with is hearing my voice comfortably with both CIs. This got much, much worse last year so the point where I frequently switch off my LCI when I'm giving talks or presentations. I get really distracted and self-conscious. My voice sounds muffled and uneven, as though it's stuck in my head when I talk. With just my RCI, it sounds much clearer and as though I'm getting proper resonant feedback when I project it. This could either be related to getting my Sonnets, or to having voice coaching, both of which I got at the same time last year. I have been deaf all my life and developed a habit of talking quite far back in the throat (pharyngeal speech). With my better hearing and awareness, I am working on projecting properly and speaking clearly, and listening to myself as I talk rather than feeling the speech. Perhaps this heightened awareness and better hearing has made me more aware of what I'm doing wrong, although I have to add that I have always been self-conscious about my voice. I have never had to take a processor off when speaking, however. That's all a bit long and rambly - sorry! I would so appreciate any insights that this wonderful group is able to share - thank you.
  10. Thanks everybody for the thoughts. Kinda relieved I'm not imagining it but it's a shame the mic covers present these sound quality issues. I'm noticing it far more since I changed my mic covers for the first time about six weeks ago. A bit of a dumb question. How come we can't clean the mic covers then put them back on i.e. why do they have to be totally replaced? Is it because of the filters you mentioned @Mary Beth? @Mary Featherston do you mean something like this? https://www.connevans.co.uk/catalogue/1233614/Ear-Gear I have a lot of problems with hair rubbing. I have a side fringe and if I tuck my hair behind my ears, I have to stop walking and untuck it because it makes such a loud noise - literally a thudding sound!
  11. Hi all I have a question about sound quality and the Sonnet mic covers. I am convinced that every now and again, I get a just-perceptible dropping off in quality if something has been rubbing the covers. Today, I tried a new hairstyle. I swept all my hair to the side and plaited it. I had to take this out a few hours later because my hair was rubbing so much on the top of the Sonnet that the noise was driving me crazy. Later, when I sat to watch TV, I noticed I had to turn it up a little louder than usual. I couldn't hear voices quite as well, and all sound had a slightly 'tinny' quality to it. I notice this quality appearing every now and again with the Sonnets. Not sure if I'm imagining it... But I'm definitely sensing something. Changing the covers has not made a difference.
  12. Hi @Geoff Read! I love live music also. I attend a lot of concerts, mainly classical. I enjoyed Messiah at York Minster (UK) very much. The resonance of the enormous choir and orchestra in that amazing space (all the stone) was incredible. I play a woodwind instrument (clarinet) and enjoy woodwind concerts as well. These instruments in particular are very resonant. I think the spaces in which such concerts take place is really important. The last woodwind concert I went to was at my old university, and the concert hall is set up in a way that maximises acoustics, with a round angular shape and lots of wood. You can see the interior here: https://www.google.co.uk/search?q=jack+lyons+concert+hall+york&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiIz8mRt9bfAhW8SBUIHSduA54Q_AUIDygC&biw=1536&bih=723 I will let you know when the proceedings from the Music and Cochlear Implants symposium are published. There were many interesting talks, and one covered what makes music so satisfying to listen to (factors like harmony, melody, suspense, emotion, timbre) which you may be able to correlate with live music experiences. The next symposium will be in 2020 - perhaps you should suggest a session topic! I found that many of the researchers were surprised by how much we CI participants enjoyed (and were competent in reading/playing) music... http://www.implantsandmusic.net/ Another note (I work in academic publishing). You can retrieve a lot of peer-reviewed academic literature for free these days. Try sites like http://gettheresearch.org/ or https://unpaywall.org/
  13. I don't think there is anything wrong with the set. I get up at 6am and go to bed at 11pm. That's 17 hours. I get less than the advertised time of 8-10 hours because I use the bluetooth neckloop a lot. If they do run out twice in a day, then it tends to be at night when I'm watching the TV. Sods law dictates that my batteries are always in another room! I rarely wear clothes with pockets, so it's difficult to always keep the batteries on me.
  14. I'm the same as Mary Beth with needing to change the batteries twice a day most days. It's inconvenient, and not pleasant going through your day knowing they'll run out at random points. The rechargeables are very easy to swap, though (much easier than the fiddly disposables). I too get nervous swapping them too soon because of not being left with spares - I get through all six batteries most days. It's a great idea to store/carry the disposables plus adaptors as backup. I want to go back to disposables FT but unfortunately my clinic will not support this.
  15. I have two implants and usually the batteries run out at the same time or one after the other. I have Sonnets with rechargeables, and get around 7-8 hours of use. Recently, my right (stronger) ear ran out whilst I was taking questions from a large group of researchers after giving a lecture. I couldn't hear very well at all but managed to fudge some answers, albeit with some slightly bemused looks! In the end, I had to confess, and my colleague took over so that I could go get my batteries! They were all very lovely about it. A much more common scenario is being in the armchair on an evening, watching TV. This is the time my batteries usually run out for the second time in a day. I'm usually feeling too lazy to go get my batteries so I might carry on as I am, using one ear or relying on the subtitles, until my husband starts asking me if I want a cup of tea then realises I can't hear him... 😄
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