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MallaRuth

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  1. Like
    MallaRuth got a reaction from Mary Beth in Music in true stereo options   
    This is great, Mary Beth! Thank you. I use the ear hooks and I am pretty satisfied with them. They are cheap, long lasting (I’ve had mine for around 4 years) and give very decent volume and sound quality. 
    It would be useful to consider cost and ease of sourcing something as part of this chart.
    I agree that using the telecoil can be highly inconvenient. This is made worse by needing the Finetuner, meaning that if I need to suddenly switch my program out so that I can hear properly, it’s a faff (e.g. getting on a bus and speaking to a driver). I also find I get a lot of electromagnetic interference. 
    I look forward to seeing what other stereo options people come up with!
  2. Like
    MallaRuth got a reaction from Mary Beth in Remote- volume and sensitivity adjustment   
    Apologies for the late reply - I didn't get the email notification. I have tried to turn them on. Yes, this is exactly what happened to my Sonnets. It's happened twice, once on each side. Both times, the entire unit had to be replaced. I was told this is a weakness with that model. 
  3. Like
    MallaRuth got a reaction from Mary Beth in Bilateral struggles and voice   
    Hi All - I am messaging because I have an ongoing problem with trying to 1) even up my hearing and 2) get comfortable with the sound of my own voice. It's at the stage where it's causing problems on a daily basis.
    I've had my right CI (RCI) for 20 years and my LCI for 10. I got upgraded to the Sonnet on both sides last year. 
    I've always found my LCI much quieter than my RCI. That's to be expected because the RCI has had a 10 year head start and so is going to be much more dominant. Although I've had the RCI turned down and the LCI turned up over the years, they've never evened out and they probably never will. However, I DO hear much, much better when I'm wearing two, even if I don't have true stereo sound (what does true stereo sound even sound like? I'm not sure if I know...)
    One thing I'm particularly struggling with is hearing my voice comfortably with both CIs. This got much, much worse last year so the point where I frequently switch off my LCI when I'm giving talks or presentations. I get really distracted and self-conscious. My voice sounds muffled and uneven, as though it's stuck in my head when I talk. With just my RCI, it sounds much clearer and as though I'm getting proper resonant feedback when I project it.
    This could either be related to getting my Sonnets, or to having voice coaching, both of which I got at the same time last year. I have been deaf all my life and developed a habit of talking quite far back in the throat (pharyngeal speech). With my better hearing and awareness, I am working on projecting properly and speaking clearly, and listening to myself as I talk rather than feeling the speech. Perhaps this heightened awareness and better hearing has made me more aware of what I'm doing wrong, although I have to add that I have always been self-conscious about my voice. I have never had to take a processor off when speaking, however.
    That's all a bit long and rambly - sorry! I would so appreciate any insights that this wonderful group is able to share - thank you.
  4. Like
    MallaRuth reacted to Hicksy in The Public Library   
    I would like to point out the Public Library as a great resource for many that I feel hasn’t been mentioned enough on this site.
    As a kid, I grew up in a small town far removed from the city and quickly found the local library as a great way to learn and pass the time. I became a bookworm. When I grew older, I moved to the city and due to job demands, family commitments and the fast paced life of city living, I abandoned the library mainly due to time constraints. I never lost my love of reading however and spent a fortune on books.
    I no longer live in the big city but in a fairly large town. Once implanted, I decided to visit my local library in hopes they provide audiobooks as I quickly grew tired of the repetitiveness of Angel Sounds etc... I imagined a shelf of audiobooks in C.D. form and that is what I found. But I was also introduced to the world of e-books and audiobooks offered online through simply having a library card. What a revelation this was. I visited the library twice, once to sign up and take out an audiobook and once to return the audiobook. Since then, I have done everything online. 
    Most times I’m lucky enough to take out both the audiobook and the e-book to read along. I am allowed to have the books for 21 days with the option to renew but I find this is sufficient for my needs. I understand that a busy working person may find this too short as it does take time to get through an audiobook.
    The selection at my library is absolutely huge. Three of my favourite authors (Lee Child, David Baldacci and Michael Connelly) are releasing new books next month and I already have the three pre-reserved as e-books and two as audiobooks. Nevertheless, if they don’t sync up, my library gives the option to see “what’s available” so I search the available audiobook selections and usually find the corresponding e-book available as well. Simply amazing and a real money saver for sure. And a great training aid as well!
    Sadly, I realize this may not be available to everyone, but if you don’t make the effort to see what is offered at your local library,  you may be missing out on a great resource!
  5. Like
    MallaRuth reacted to Vera in Recommendations for hearing therapy in (south) London   
    Hello Joseph.
    I live in Skipton, in northern England.  I’d go to my GP or indeed to the nearest Cochlear Implant Centre and explain the problem.  The National Health Service is the provider for almost all CI users here.  They run regular follow up services for us, after the initial year of rehab is over, usually to see an audiologist once a year for a check/remap if necessary etc.  I don’t think there is a limit to this in terms of numbers of years since the implant.  I have a friend who moved from a different part of the U.K. after getting her CI and she just transferred to the nearest centre after she moved.  I don’t see why that wouldn’t be the case for someone who got their implant in another country.
    I know you said you didn’t want to burden the NHS but, given that almost all of us have implants paid for by the NHS, I don’t think there is an infrastructure of private audiologists specialising in CIs that you might find in other countries.
    You could also contact the National Cochlear Implant Users Association and ask them or indeed contact the MEDEL U.K. people in Sheffield, who I’ve always found enormously helpful and supportive.
    Good luck.
    Vera
     
     
  6. Like
    MallaRuth reacted to Mary Featherston in Recommendations for hearing therapy in (south) London   
    @Daniel the Stranger and @Joseph it wouldn't have occurred to me to think about the impact of getting your CIs in a country and a language that's not your native ones in either case. 
    I will say, though, that I have an enormous amount of respect for you guys - not just the CI rehab, but even moving to a new country and living with communicating in a new language.  I've spent quite a lot of time in Spain, and quite a lot of time in Israel too, and though I was reasonably proficient, if not fluent, in Spanish at the time (it was  a long time ago and most of my vocabulary has, like Elvis, left the building, as I'm reminded every time my friend Jose Miguel posts on my Facebook page) but I could understand.  But that's a far cry from being able to communicate on a level that would make me employable, and adding CI rehab to the mix - well, you guys, as I said, you have my respect.
  7. Like
    MallaRuth reacted to Mary Beth in MED-EL 2.4 GHz digital wireless technology alternatives   
    @Helgeo
    I am anxious too for direct 2.4 connectivity with the Sonnet’s built in receiver.
    There has been almost no news on the AudioLink intermediary device that Med-El gave vouchers for in Europe years ago.  However Med-El is still extending their trademark in the US on that device so maybe it is still being developed.
    Now that Cochlear has direct from iOS devices for all audio to their N7 processor and AB announced the plan to expand SWORD for direct from all BT phones for phone audio only to their Naida processor, I am hoping Med-El will skip the need for an intermediary device (AudioLink) and develop WORLD’S FIRST direct to ALL cellphones for ALL audio.  This is on my Med-El wishlist.  ( @MED-EL Moderator ).
     
  8. Like
    MallaRuth reacted to Jewel in Sonnet mic covers - again!   
    You know I just changed my mic covers for the first time on NYD and I think the sound quality isn't as good as it was with the original mic cover I was using since activation in September. I found it strange. My hair doesn't bother the mic cover though. 
  9. Like
    MallaRuth reacted to Mary Beth in Sonnet mic covers - again!   
    @MallaRuth  Yup.  I experienced the same thing.  Sometimes this works.  
    I take apart the Sonnet....
    separate DL-coil from cable
    separate cable from Sonnet
    remove battery cover
    remove battery pack or rechargeable battery adapter
    remove battery
     
    Wait a bit.  Put it all back together again.
     
    You described one of several sound quality issues that frustrate me with the Sonnets.  My OPUS2 and Rondo processors consistently sound the same all the time.  My Sonnets are not as consistent.
  10. Like
    MallaRuth reacted to Mary Featherston in Sonnet mic covers - again!   
    I got a haircut last night and had the stylist cut the hair even shorter than usual.  Nothing's causing friction on my processor!  But I know a lot of women don't like short hair.  Have you tried the Ear Gear covers?  I used them once or twice to reduce wind, and I think they'd stop the hair rubbing too.
  11. Like
    MallaRuth reacted to Ford in Seeking Implanted Musicians...   
    Hi All -- I am a professional jazz guitarist/bassist and am getting first Med-El CI implant surgery on Tuesday in my left ear. My right ear has profound SN loss too but I have been practicing guitar of late plugging my left ear completely and using HA in my right ear only (to see what that's like in case it is a long path to hearing with the CI). I can still hear enough to play reasonably well with only the right ear....though pitch discrimination has been getting more difficult as time passes.
    I will be working hard to rehabilitate my left ear with the CI to hopefully improve my musical hearing overall but am setting expectations low. Hoping that my 40 years of music experience may help the process.  I would be interested in continuing this thread and will post my impressions as they evolve.
    Thanks for the thread 🙂
     
    Ford
  12. Like
    MallaRuth got a reaction from Mary Beth in Seeking Implanted Musicians...   
    Hi @Geoff Read! I love live music also. I attend a lot of concerts, mainly classical. I enjoyed Messiah at York Minster (UK) very much. The resonance of the enormous choir and orchestra in that amazing space (all the stone) was incredible. I play a woodwind instrument (clarinet) and enjoy woodwind concerts as well. These instruments in particular are very resonant. I think the spaces in which such concerts take place is really important. The last woodwind concert I went to was at my old university, and the concert hall is set up in a way that maximises acoustics, with a round angular shape and lots of wood. You can see the interior here: https://www.google.co.uk/search?q=jack+lyons+concert+hall+york&source=lnms&tbm=isch&sa=X&ved=0ahUKEwiIz8mRt9bfAhW8SBUIHSduA54Q_AUIDygC&biw=1536&bih=723
    I will let you know when the proceedings from the Music and Cochlear Implants symposium are published. There were many interesting talks, and one covered what makes music so satisfying to listen to (factors like harmony, melody, suspense, emotion, timbre) which you may be able to correlate with live music experiences. The next symposium will be in 2020 - perhaps you should suggest a session topic! I found that many of the researchers were surprised by how much we CI participants enjoyed (and were competent in reading/playing) music... http://www.implantsandmusic.net/
    Another note (I work in academic publishing). You can retrieve a lot of peer-reviewed academic literature for free these days. Try sites like http://gettheresearch.org/ or https://unpaywall.org/
  13. Like
    MallaRuth got a reaction from Mary Beth in Stories of when your batteries ran out   
    I don't think there is anything wrong with the set. I get up at 6am and go to bed at 11pm. That's 17 hours. I get less than the advertised time of 8-10 hours because I use the bluetooth neckloop a lot. If they do run out twice in a day, then it tends to be at night when I'm watching the TV. Sods law dictates that my batteries are always in another room! I rarely wear clothes with pockets, so it's difficult to always keep the batteries on me.
  14. Like
    MallaRuth got a reaction from Mary Beth in Stories of when your batteries ran out   
    I'm the same as Mary Beth with needing to change the batteries twice a day most days. It's inconvenient, and not pleasant going through your day knowing they'll run out at random points. The rechargeables are very easy to swap, though (much easier than the fiddly disposables). I too get nervous swapping them too soon because of not being left with spares - I get through all six batteries most days. It's a great idea to store/carry the disposables plus adaptors as backup. I want to go back to disposables FT but unfortunately my clinic will not support this.
  15. Like
    MallaRuth reacted to Mary Featherston in Stories of when your batteries ran out   
    My batteries tend to run out just as I leave work, or in the car on the way home, depending on how early I get up and how late I work.  But I keep the spares in my pocket so it's not an issue.
  16. Like
    MallaRuth got a reaction from Mary Beth in Stories of when your batteries ran out   
    I have two implants and usually the batteries run out at the same time or one after the other. I have Sonnets with rechargeables, and get around 7-8 hours of use.
    Recently, my right (stronger) ear ran out whilst I was taking questions from a large group of researchers after giving a lecture. I couldn't hear very well at all but managed to fudge some answers, albeit with some slightly bemused looks! In the end, I had to confess, and my colleague took over so that I could go get my batteries! They were all very lovely about it.
    A much more common scenario is being in the armchair on an evening, watching TV. This is the time my batteries usually run out for the second time in a day. I'm usually feeling too lazy to go get my batteries so I might carry on as I am, using one ear or relying on the subtitles, until my husband starts asking me if I want a cup of tea then realises I can't hear him... 😄 
  17. Like
    MallaRuth got a reaction from Mary Featherston in Stories of when your batteries ran out   
    I have two implants and usually the batteries run out at the same time or one after the other. I have Sonnets with rechargeables, and get around 7-8 hours of use.
    Recently, my right (stronger) ear ran out whilst I was taking questions from a large group of researchers after giving a lecture. I couldn't hear very well at all but managed to fudge some answers, albeit with some slightly bemused looks! In the end, I had to confess, and my colleague took over so that I could go get my batteries! They were all very lovely about it.
    A much more common scenario is being in the armchair on an evening, watching TV. This is the time my batteries usually run out for the second time in a day. I'm usually feeling too lazy to go get my batteries so I might carry on as I am, using one ear or relying on the subtitles, until my husband starts asking me if I want a cup of tea then realises I can't hear him... 😄 
  18. Like
    MallaRuth reacted to Mary Beth in Stories of when your batteries ran out   
    @MallaRuth
     
    You asked for it, you got it.  Smile
     
    Go first!
  19. Like
    MallaRuth got a reaction from Mary Beth in Comparison of Rondo 2 versus Sonnet   
    Driving - yikes!
    Maybe we should have a dicussion topic on 'Stories about times when your batteries ran out'. There would be some hilarious ones, and some hair-raising ones! And it'd raise awareness of how important good battery life and options are...
  20. Like
    MallaRuth got a reaction from Mary Beth in Comparison of Rondo 2 versus Sonnet   
    That is very true! 🙂 yes - running out at unpredictable times is not a nice feeling at all. Especially if you're in the middle of a meeting or lecture, or a supermarket/somewhere you cannot change batteries easily. You should be able to get through a day and swap out batteries in the morning, then get on with your day. 
    Fingers tightly crossed for better options from MED-EL in future...
  21. Like
    MallaRuth reacted to Mary Beth in Comparison of Rondo 2 versus Sonnet   
    @MallaRuth
    I believe I read in the Sonnet rechargeable battery manual that the standard size batteries should be replaced when they only  deliver 7 hours.  
  22. Like
    MallaRuth reacted to Mary Beth in Comparison of Rondo 2 versus Sonnet   
    @MallaRuth
     
    Looks like it’s time to replace those batteries according to the Med-El manual.
     
     

  23. Like
    MallaRuth reacted to Mary Beth in Comparison of Rondo 2 versus Sonnet   
    @MallaRuth
    We do run on batteries now!  Smile.  We need the longest possible battery life.
    I realize all companies strive for world’s smallest and world’s lightest.  I am more interested in world’s BEST.
    It’s difficult to explain the feeling of running out of battery power at inconvenient times or before our listening days are over to people who do not depend on batteries to hear.  We have all experienced dud disposable batteries and some of us have experienced failure to charge rechargeable batteries.  We need convenient battery back up options.
    I hope Med-El offers much longer lasting rechargeable batteries in future one piece and BTE processors.
    I’m sorry you are having such short battery life with your standard Sonnet rechargeable batteries.  
  24. Like
    MallaRuth got a reaction from Mary Beth in Bilateral Bliss   
    I'm really interested in musical pitch training! I'd like to do this in a systematic way, but I wouldn't know where to start. As I've been deaf all my life, I don't know true pitch, but I do hear the difference in notes (even semitones) very clearly.
    I had a ten year gap between having CIs. I got my R in 2000 and my L in 2010 (I was 23 by then). I still find my R side very dominant, but not necessarily clearer than the L. It sounds louder but I'm not sure if this is a perception thing because I've had it for so much longer and the neural pathways will be massively strengthened around it. It is hard to match them up, especially where pitch is concerned. Together, they sound good and provide good sound. I'm glad I have two because I can definitely hear better - I can hear voices all around me in a meeting, for example. Individually, they sound totally different. I have made an appointment in December to look at musical pitch and trying to do some evening up of the two sides, and will let you know how I get on!
  25. Like
    MallaRuth reacted to Mary Beth in Playing musical instruments with our CIs ?   
    @VeroNika
    It is amazing how you play the piano and how you compose original piano compositions!  You have quite a gift.
    I am so glad that you are active on HearPeers now.  You bring a voice to single sided deaf with CI users.  I enjoy learning from you.
    the Beats of Cochlear has videos on YouTube for anyone who is interested in viewing them.  
     
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