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Debbie from US

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  1. Like
    Debbie from US got a reaction from Mary Beth in New Samba   
    I got the Samba at the end of January.  I haven't ever heard any static noise from it.  I also have tinnitus and find that I don't notice it as much when I wear the Samba.  Hoping you have been able to resolve the issue with help from Med-El or your audio.
     
  2. Like
    Debbie from US got a reaction from Mary Featherston in Bonebridge surgery done!   
    I just got home from Duke where Dr. Tucci implanted the Bonebridge behind my bad right ear. Surgery took about an hour. I have a Velcro headband with a plastic ear covering which I can take off tomorrow. Steri-strips come off in 10 days. I go back in 2 weeks and if healing & swelling are satisfactory at that point I will get the processor. Very happy to have this over! Feeling rather wiped out but no real pain.  Grateful!
  3. Like
    Debbie from US got a reaction from Mary Beth in Newbie from the US   
    Actually counting the days! 28 from today! 19 days until I go for a CT scan to aid in the placement. Feeling excited when I think about it. But it’s good that this is a busy time of year so there are lots of distractions to keep me from thinking about it too much. 
  4. Like
    Debbie from US got a reaction from Mary Beth in Newbie from the US   
    Ivana,
    Thank you for your response. It is nice to know that Dr. Tucci is considered a giant in the world of implants! I knew she had a good reputation, but didn’t realize she was known internationally. I am happy to know that I have placed myself in very good hands!
    I know that the CI is being done in the US for unilateral loss, but it is  considered experimental and is not approved by the FDA for SSD.  The BB just recently received FDA approval in the US, even tho you’ve had it in Europe for a number of years. So it may be some time before the CI is more commonly used for those suffering with SSD here.  The FDA can be very slow to give approvals, which in many instances is a good thing, but not always. 
    I think the CI may be used more often in children here as an aid in speech development. That’s just a guess based on some things I’ve read so others may have more accurate information.  But I actually mentioned to Dr. Tucci that I had read about CI being used for SSD and she shook her head and told me I would not want to have that.  I took her to mean that she felt the BB could be as helpful for me without such an involved surgery and rehabilitation. 
    It is good to know that you have had a good result with the BB, even tho your loss was of a different type than my own. The audiologist told me that the BAHA gave better results to those with conductive loss rather than SNL. But I am choosing to be optimistic about what my result will be with the BB. I am sure it will at least be better than the CROS aid that I tried and hopefully a lot better!
    Thanks again for your input and good wishes. I will update you all as I continue on this journey.
    Debbie
  5. Like
    Debbie from US reacted to Mary Beth in Newbie from the US   
    I hope the timing works out before your vacation.
    Wishing you the best!
    @Debbie from US
  6. Like
    Debbie from US got a reaction from Mary Beth in Newbie from the US   
    My Duke Doc- Dr. Debara Tucci is in the top photo (8th from the left) and my NYC Doc- Dr. Sujana Chandrasekhar is in the next one (right in the middle behind the banner.) Its wonderful to see so many bright young women joining this field which has been dominated by men for many years. 
  7. Like
    Debbie from US got a reaction from Mary Beth in Newbie from the US   
    Mary Beth,
     Wow- you have sure been through a lot!!  I am glad that you now have good hearing in that ear again- that's amazing after all those years.  
    I did say something about a CI to my surgeon and she said it wasn't indicated for SSD and is not approved by FDA for that, so no insurance coverage.  She said she felt the BB would be the best option.  
    I see that you had your surgery in NYC.   I used to live in NJ and saw a Dr. in NYC - Sujana Chandrasekhar. She really helped me a lot when I was suffering with the vertigo.   When I first went to Dr. Tucci at Duke she noted on my records that I had seen Dr. C and told me they are good friends.  I guess the world of female neurotologists is not that large!
    Great tip re. the ear buds.  I don't listen to music with them as often as audio books, but I will make that adjustment in my settings.  That never even occurred to me!
    Thanks for your good wishes.   It is nice to be able to connect with people who have had similar problems.  People with good ears don't appreciate how much being deaf in one ear can impact your life. 
     
     
  8. Like
    Debbie from US got a reaction from Mary Beth in Newbie from the US   
    Hi, I just discovered this forum and hope there are some Bonebridge recepients on here who can share their experience with me.  I have SSD in my right ear from Meniere's.  I knew my hearing had been getting worse, but I hadn't had an audio exam for several years until this past spring when I had a very bad recurrence of vertigo and sought out a new ENT, since I had moved.  Testing showed that I had profound loss now with very low speech recognition in that ear and was told I was officially SSD.  I was given the option to trial a CROS aid for 6 weeks, which I did, but was not satisfied with it.  It was then that I revisited the surgeon who suggested a BAHA.  I was scheduled to have the surgery for that next month,  but the surgeon called me back last week to discuss receiving a Bonebridge instead as they had recently been approved for use in the US (don't know why the FDA is so slow!) and she &  the audiologist feel I am a good candidate.   I am now scheduled to receive the Bonebridge on Dec. 13th- an early Christmas present!!.  I am excited about it, but somewhat apprehensive as well, as I will be the first person my surgeon has implanted and the first Bonebridge recipient at this hospital (Duke in NC).  I am not concerned about the surgeon's skill- she does CI surgeries all the time &  I figure this will be much easier than that.  It  just would be nice  to hear some first hand accounts of the recovery from the surgery and how well it is working once the processor is activated.  Thanks.
  9. Like
    Debbie from US reacted to Mary Beth in Newbie from the US   
    @Ivana Marinac is our BoneBridge expert!
  10. Like
    Debbie from US got a reaction from Mary Featherston in Newbie from the US   
    Hi, I just discovered this forum and hope there are some Bonebridge recepients on here who can share their experience with me.  I have SSD in my right ear from Meniere's.  I knew my hearing had been getting worse, but I hadn't had an audio exam for several years until this past spring when I had a very bad recurrence of vertigo and sought out a new ENT, since I had moved.  Testing showed that I had profound loss now with very low speech recognition in that ear and was told I was officially SSD.  I was given the option to trial a CROS aid for 6 weeks, which I did, but was not satisfied with it.  It was then that I revisited the surgeon who suggested a BAHA.  I was scheduled to have the surgery for that next month,  but the surgeon called me back last week to discuss receiving a Bonebridge instead as they had recently been approved for use in the US (don't know why the FDA is so slow!) and she &  the audiologist feel I am a good candidate.   I am now scheduled to receive the Bonebridge on Dec. 13th- an early Christmas present!!.  I am excited about it, but somewhat apprehensive as well, as I will be the first person my surgeon has implanted and the first Bonebridge recipient at this hospital (Duke in NC).  I am not concerned about the surgeon's skill- she does CI surgeries all the time &  I figure this will be much easier than that.  It  just would be nice  to hear some first hand accounts of the recovery from the surgery and how well it is working once the processor is activated.  Thanks.
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