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Little_chooky

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About Little_chooky

  • Rank
    Newbie

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    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Not applicable
  • Implant Type
    Not applicable
  • Hearing Loss Type
    Mixed
  • Cause of Hearing Loss
    Middle Ear Infections
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Sudden Hearing Loss
  • Uni/bilateral Implant
    Not applicable
  • Country
    Australia

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  1. Hi @JessDunn, Thanks for your reply! I really appreciate your input
  2. @Mark Thanks for your reply! I am definitely going to look at trialling a BAHA or the ADHEAR at some point. I appreciate the comments about noisy environments though, as those are the most problematic for me. I guess all you can do is try these things eh. I am glad to hear you are recovering OK from the CI op, and that the rehab is progressing (even if slowly) The dizziness does sound bad if you are needing physio, I'm sorry to hear that. I had some severe vertigo when I first lost my hearing and it was appalling, so debilitating. I do hope you recover soon and regain your old ability to move around in a non-wobbly way! It's amazing how many aspects of your life dizziness impacts. All the best with your rehab and recovery. Caroline
  3. @Mary Beth @Daniel the Stranger Thanks for your comments Mary Beth I have heard of the ADHEAR but not tried it, thanks for the suggestion. As you said, in my case it is sensorineural total hearing loss on the left + tinnitus and excellent hearing on the right.. I am told my left hearing nerve is in good condition (from the MRI). I am yet to find an audi who has any real interest in rehab - so far I've been told I'll just get used to SSD, or I should get a CI, or CROS, BAHA or install lots of carpets in my home!! None of them seem to want to spend much time with me talking about those options, beyond testing my hearing. I am trying another audi in a couple of weeks for a rehab only appointment so I will ask about the bone conduction options then. I am not so keen on the CROS as the idea of putting MORE sound into my already overwhelmed right ear sounds horrible! While CI sounds good in the sense of potentially reducing tinnitus and hopefully restoring hearing to the left, I am cautious of going straight to a surgical option. I feel I have already been so unlucky as to develop SSD I am not sure I want to test my luck with surgery just yet! I really appreciate all of your input, it has been such a sudden thing for me and I feel so fortunate that you guys are willing to share your knowledge and experiences
  4. Hi @Mark I hope you are well and making progress to where you want to get to with your hearing Was interested to read this thread as I have also recently become SSD in my left ear and am an Aussie too. Can I ask you what you thought of the BAHA and why it didn't work for you? My ENT has said that CROS and BAHA would be my options and that CI is the last resort. For me the idea of such invasive surgery for the CI does sound rather alarming and if the BAHA could help then I would consider it. Would be keen to have your perspective. Cheers Caroline
  5. Hi @JessDunn Welcome from another newbie! I am in Australia too. Glad to hear your daughter is doing so well with CIs. If you don't mind me asking, I am curious to know how you decided on MedEL implants for your daughter? I am just staring to learn about CIs and the Australian experience of them and am keen to know what options we have here. I have recently acquired SSD in my left ear by the way - hence the curiosity! Hope you have a good weekend
  6. Hey @Matt - thanks for your message! I am glad you found SCIC to be excellent for your implant We have an implant centre here in Melbourne but to be honest I don't know what it's reputation is. My ENT says he will not refer me to speak to anyone about a CI this early (its only just over 2 months since I lost my hearing), even though he says the loss is permanent. He also says CI is usually a last resort for SSD which I am not sure is the opinion of all surgeons. But anyway.. I have a long road to go down... I may pick your brain at some point for more advice on the aussie experience of CI implantation! Sounds like you get away on lots of adventures each year! I'm sad to say I've never made it over to WOMAD - but it must be good if you get there every year. Thanks for saying hi
  7. @Mary Featherston I totally agree that more people should use them, they will definitely help prevent hearing loss. Sometimes it takes losing your hearing though to realise how precious it is. I did wear ear plugs to music events before I lost hearing in my left ear, but only in recent years. As a teenager and young adult I listened to plenty of very loud music (the louder the better) without any hearing protection. I wonder what I was thinking now, and hope it doesn't cause me to lose hearing in my right ear later in life. With my kids I am starting them early with earmuffs whenever we are listening to loud music or doing anything loud in the garden - start good habits early!
  8. @Mary Beth, @Mary FeatherstonThis is the website I looked at when I searched Neuroth hearing protection, it does allow you to select English as a language. I hope that's the right one @VeroNika? https://www.earwear.me/en/
  9. Hi @VeroNika, Thanks for your reply. Don't you hate it when the browser eats all your typing and you have to try and remember what you said! Thanks also for your English - I studied German for my whole time at high school but I am ashamed to say I would not know where to start trying to speak it now Is German your native language? I have a feeling there are a few different ones spoken in Austria? As to hearing loss, I would love to hear your top 5 tips for coping with SSD ! For me the worst thing at the moment is the way the tinnitus seems to react to noisy environments and become even more noisy. Hence I not only have to cope with half (or even less) of the hearing I'm used to but also try and hear over the top of the tinnitus. Do you have tinnitus from your deafness, and is it helped by the CI? For now I am not sure if I am eligible for a CI - I don't even know what the assessment process involves as I am very new to all of this. I will save most of my questions about living with CIs until I know more about my situation. However I am very interested to hear what it is like having normal hearing in one ear and digital hearing in the other? Does your brain learn to blend the two types of hearing quite well or is it quite obvious each ear is 'hearing' differently? I am sure I will have heaps more questions but will leave it at that for now! Hope you are having a lovely weekend Caroline
  10. @Daniel the Stranger thanks so much for those tips. I will definitely be asking lots of questions as I assume there are ongoing costs associated with CIs as well - processors and batteries etc... An audiologist I recently saw did say the wait period for public care was (in theory) 4-5 months, but I assume you get a lot more choice in the type of implant etc if you go private? How are you going post all your surgery - it has been a very busy year for you! How are you finding things now you have both your CIs switched on?
  11. Thanks for the welcome everyone :) @Mary Featherston @Daniel the Stranger yes my nickname is because I do love chickens. We used to have a lot of them when we lived on a farm but haven't got our new place set up for them yet. It's so peaceful to watch them scratch around in the garden and I do miss them! @Mary Beth thanks for the tip, I will see if I can chat to Veronika. I gather that using CIs for single sided deafness is relatively new and I am interested to hear from other users. @Daniel the Stranger great to meet another person in Australia. I may definitely have some questions for you re the aussie system as I do more research. Sadly we cancelled our private health insurance (after having it for >10 years) and decided to self insure just before this happened. So I am back to square one on waiting periods ?. I'm starting to do some research on the best health fund now, so I have something in place in case I do go down the CI route. Did you have yours done public or private?
  12. Hi all, I am from melbourne in Australia. I’m new here - I lost my hearing on my left side 2 months ago (profound loss) after an ear infection. I now have tinnitus as well. Ive been told it’s most likely permanent but have to wait a couple more months before I could look at implants. Would be keen to hear any tips on coping with single sided deafness / if you are considering CI or if you already have one and found it has helped. Cheers Caroline
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