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Kylie

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  1. Like
    Kylie reacted to Mary Featherston in May, June, July, August 2019 CI surgery and/or activation   
    @Kylie, that's wonderful, I'm glad it's going so well for you.  I referred to myself as a CI-borg in a meeting last week.  I'm trying to get my new co-workers as used to this as my old ones were - though my friends at my old site were with me last year while I was being implanted, so it's a bit different.
    Our site IT manager has a toddler son who was born without external ears and uses AdHear from the sound of it - I haven't spoken to Keith about it yet, I've not got to know him that well yet.  But the way others have described the child's devices there's not much else it could be.
  2. Like
    Kylie got a reaction from Jewel in May, June, July, August 2019 CI surgery and/or activation   
    3 month since activation! Wow how time flies! Time for an update.
    I wear my processor every waking minute and never like taking it off. I feel like half the world goes dead if I do.
    Every situation in my life is better with the processor than without. Including noisy rooms.
    My tinnitus is gone when my processor is on.
    I get to call myself a cyborg (and I encourage others in my life to do it too, because I am a science geek and I love it)
    My hearing tests yesterday were outstanding. I have great accuracy detecting words against background noise. And my localisation ability was 12 degrees, which apparently is that of a normal hearing person. Audiologist said my progress was way ahead of expectations. 
    There are plenty of things that are still hard. But I just keep going - I commit to wear it all the time, do my rehab everyday (I really like the angel sounds program). And treat it like an essential part of my body.
    Couldn't be happier with how this is all going.
    I really hope for great outcomes for everyone in this thread who was also recently activated. Even at 3 months there is so much you will have gained!
  3. Like
    Kylie got a reaction from Mary Featherston in May, June, July, August 2019 CI surgery and/or activation   
    3 month since activation! Wow how time flies! Time for an update.
    I wear my processor every waking minute and never like taking it off. I feel like half the world goes dead if I do.
    Every situation in my life is better with the processor than without. Including noisy rooms.
    My tinnitus is gone when my processor is on.
    I get to call myself a cyborg (and I encourage others in my life to do it too, because I am a science geek and I love it)
    My hearing tests yesterday were outstanding. I have great accuracy detecting words against background noise. And my localisation ability was 12 degrees, which apparently is that of a normal hearing person. Audiologist said my progress was way ahead of expectations. 
    There are plenty of things that are still hard. But I just keep going - I commit to wear it all the time, do my rehab everyday (I really like the angel sounds program). And treat it like an essential part of my body.
    Couldn't be happier with how this is all going.
    I really hope for great outcomes for everyone in this thread who was also recently activated. Even at 3 months there is so much you will have gained!
  4. Like
    Kylie reacted to Jewel in Artone Neckloop   
    @Kylie
    Both my ears qualify for CIs.
    I think I was asked if I had tried out the Artone yet and most likely @Mary Bethwas the one who explained how to use it and to try it. So I did. I ended up using it to listen to webinars and music at work. 
  5. Like
    Kylie reacted to Mary Beth in Artone Neckloop   
    @Kylie
    I can see the Artone 3 MAX BT neckloop being helpful when you wish to train your CI side.  But for general streaming for enjoyment, wouldn’t you prefer the sound to go to both sides?  The CozyPhones would work.  Or around the ear headphones.  Or a split headphone jack with the DAI to the Sonnet and an earbud to the acoustic ear.
  6. Like
    Kylie reacted to Mary Beth in Artone Neckloop   
    @Kylie
    Since you have it I would encourage you to test it out for training only because it gives you true 100/0 mix by going on T and the red jack audio cable is a 90/10 mix.
  7. Like
    Kylie reacted to Sandy123 in May, June, July, August 2019 CI surgery and/or activation   
    Big congrats. Sounds like you are doing wonderfully.  I was at my one week post activation, I too have hearing very very well. It's not perfect but voices are sounding much better. The key thing for me was to be able to have conversations without lip reading 90 percent of the conversation.    Good times ahead...   😋
  8. Like
    Kylie reacted to Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    @Kylie
    Yay!  So wonderful for you!  And it keeps getting better!
  9. Like
    Kylie got a reaction from Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    3 month since activation! Wow how time flies! Time for an update.
    I wear my processor every waking minute and never like taking it off. I feel like half the world goes dead if I do.
    Every situation in my life is better with the processor than without. Including noisy rooms.
    My tinnitus is gone when my processor is on.
    I get to call myself a cyborg (and I encourage others in my life to do it too, because I am a science geek and I love it)
    My hearing tests yesterday were outstanding. I have great accuracy detecting words against background noise. And my localisation ability was 12 degrees, which apparently is that of a normal hearing person. Audiologist said my progress was way ahead of expectations. 
    There are plenty of things that are still hard. But I just keep going - I commit to wear it all the time, do my rehab everyday (I really like the angel sounds program). And treat it like an essential part of my body.
    Couldn't be happier with how this is all going.
    I really hope for great outcomes for everyone in this thread who was also recently activated. Even at 3 months there is so much you will have gained!
  10. Like
    Kylie reacted to Jewel in Artone Neckloop   
    @Kylie
    I started to use the Artone 1.5 months after activation. I love it. I'm unilaterally implanted. 
  11. Thanks
    Kylie reacted to Mary Beth in FDA approval in the US for Single Sided Deafness   
    So happy things are going so well for you @Kylie!
     
    yay Med-El !
  12. Like
    Kylie got a reaction from Mary Beth in FDA approval in the US for Single Sided Deafness   
    That is so exciting! I am in Australia with SSD and I recently got my implant, fully covered under government health care. It has improved my quality of life beyond measure. I wish for others to have the same opportunity!
  13. Like
    Kylie got a reaction from Colleen Powell in FDA approval in the US for Single Sided Deafness   
    That is so exciting! I am in Australia with SSD and I recently got my implant, fully covered under government health care. It has improved my quality of life beyond measure. I wish for others to have the same opportunity!
  14. Like
    Kylie reacted to Colleen Powell in FDA approval in the US for Single Sided Deafness   
    Hey all!  I just saw this news today and wanted to pass it along!  I've always thought it was so frustrating that CI's were not available (or at least not FDA approved in the US) to those with Single Sided Deafness.   Not anymore!  Med-el just became the first CI manufacturer to gain approval for patients 5 and up!  Pass this info along to any one you know who may have SSD and were hoping to get an implant.  Good news!
     
    https://medcitynews.com/2019/07/med-el-gets-first-fda-approval-for-the-use-of-cochlear-implants-in-single-sided-deafness-patients/?fbclid=IwAR1JqI5K45htzeLKlITpCDNyOJULkpCnson-eUkmeWxe1If8p4mPuZdo5-s
  15. Like
    Kylie reacted to Mary Beth in Music for unilateral CI users   
    Be sure to set your phone to MONO for music if you are a unilateral CI user.  This way when songs have separate left and right instrumentals, you will get a merged signal and not miss anything.
     
    On iPhones it is under accessibility for hearing.
  16. Like
    Kylie got a reaction from Mary Featherston in May, June, July, August 2019 CI surgery and/or activation   
    I am now 8 weeks since activation.
    I am surprised to find that I already have a very clear preference for wearing my processor vs not. Even though its sound is still a bit strange and distorted (though getting better every week), it is FAR better than nothing. The combination of my normal ear with the implanted ear is pretty good in terms of stereo effect, overall volume, and feeling that the right side of my world actually exists. Every time I take it off for some brief reason I really feel that I'm missing something important and it's uncomfortable.
    This is reassuring to me, and I am more committed than ever to making this work. I wonder if this resonates with others early in their progress too? 
  17. Like
    Kylie reacted to Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    @Kylie
    It’s terrific that you feel your processor has become a part of you and prefer to have it on.
    @Nicole uses ADHEAR to gain access to sounds on her deaf side.  How do you feel when your ADHEAR is off Nicole?
  18. Like
    Kylie reacted to Nicole in May, June, July, August 2019 CI surgery and/or activation   
    I have forgotten to attach it a few mornings at school and I feel lost without it.  I try to wear it all waking hours.  It only comes off right before I go to bed and it is back on after my shower in the morning.  It just brings awareness to how much you miss if you are not wearing it.
  19. Like
    Kylie reacted to Watersail in May, June, July, August 2019 CI surgery and/or activation   
    Freshly activated, so I started with my expectation super low. All 12 electrodes are in good health and active. Currently, I hear everything super, super high pitched, like everything is beyond helium. I can detect syllables, but can't differentiate speech or distinguish different layered noises yet. Time to learn how to hear all over again
  20. Thanks
    Kylie reacted to Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    Good luck at the choral concert.  Let us know how it goes.
  21. Like
    Kylie got a reaction from Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    Pretty good. Had my initial 4 sessions, now I'm on my own for 2 months to experience the world! Apparently I'm progressing as expected so that's good. I have a big choral concert tomorrow night so that will be a big test.
  22. Like
    Kylie got a reaction from Mary Beth in May, June, July, August 2019 CI surgery and/or activation   
    Things on that side sound generally loud, monotonous, electronic. But my good ear balances it out ok so my overall sound is like a louder version of life and as if through a microphone. These new settings have just added more nuance so that's nice.
    I have no idea! Those terms have not come up. I will ask...
  23. Like
    Kylie reacted to Mary Featherston in Travel with CI’s   
    I took a charger with me and had no problems with either it or the dry box.  I have a voltage converter that has three electrical plug-ins and four USB ports and it worked great for everything.
    Also had no issues at all at airports (OK, that's not true, but my issues with CDG are not CI related, heh)
  24. Like
    Kylie reacted to Jdashiell in Travel with CI’s   
    @Mary Beth
    I like disposable batteries too. I just don’t like them ending up in mass in land fills. Even though I put them in Recycling. Which is why I use rechargeable batteries mostly. 
  25. Like
    Kylie reacted to Jdashiell in Travel with CI’s   
    I travel domestically most in USA and never had issues with security. Walked through without issue except wearing a neck loop like a streamer or Artone Max 3. TSA  will ask you to remove that first. 
    All my equipment and I do mean all, travels with me in overhead or underseat. Spare processors, batteries, chargers, and an 8 port power strip to power all the chargers. They can lose my clothes but not my hearing stuff. That is paramount to me. 
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