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Everything posted by GraniPeggy

  1. I just recently received my Rondo2..tried it out in the audiologist office,along with clips for attaching it for safety.I plan to swap it around with the over the ear processor,until l become more used to it.To ME,there is a slight difference in the sound quality between the over the ear one,and the Rondo,so I'll need to get adjusted to it.Anyone else feel this?
  2. I could hear immediately,although for the first,hour or so,voices sounded like " Donald Duck"! LOL After that they gradually became more normal.
  3. Hi everyone,this is Peggy,or GraniPeggy,from Reidsville,NC. I had a unilateral,left ear CI done at the beginning of the year,in Chapel Hill,N.C.,by Dr.Pillsbury of UNCMed. I haven't posted in awhile,and l do apologize,there has been a lot going on non-CI related,and l got behind. Most of you may remember that l am totally dead in the rt.ear and was very nearly so in the left,but we chose to use that (L) one after scans and tests.Also,you might remember that at the visit to activate the CI,I was able to hear almost immediately AND,pretty clearly,after some " Donald Duck" sounding voices,initially.Lol. Since then,l have been released by Dr.Pillsbury,and began therapy with Audiology,l believe in March.Im now seeing audiology every 3 months.After the very first check,I admit that l was worried and dissapointed..Although generally l was hearing well,l mean when you go from reading lips,totally to hearing sound..that's GREAT!! But the first testing done to see how l was doing with sound " discrimination" when NOT being able to see the speakers face..didn't go well,at all.The audioligist,who l love,reassured me that it sometimes takes time,and adjustment. She also stressed PRACTICE,in daily conversation with family,as well, as using online programs available to CI recipients. I did these things religiously,and when l went back for my most recent checkup,last week,the results were amazing! Over 60%increase in understanding of recorded male,and female speakers from the first time! Then,as I'd gained so much improvement,she did some new testing that will be used in coming visits as a " baseline" for comparison.I want to stress that l have been COMPLETELY happy with my hearing,I had virtually NONE when the implant was done. And admittedly,at first,l didn't understand the importance of the audiology visits.TRUST me,they ARE important! I was so caught up in the awe of even being able to HEAR again,I wasn't understanding that it could,and would be even better,with time,practice and audiologist " tweaking" the CI program via computer.I was SO happy the day of activation that I cried all the way home,a 2 hr drive! LOL Now,I'm on cloud 9 being able to actually hear the radio ! I have had NO problems of any kind related to the implant surgery,or the implant itself,and my whole world has changed,for the better..I'm still having a lot of " firsts",too. I'm now able to use the Bluetooth feature,in situations such as a crowded restruant,etc.I have also received the Rondo2,with which you dont wear the processor over the ear.I'm working with getting used to that,and also talking/ hearing on the telephone,now,too. I pray everyone who already has,as well as those who will soon have a CI will have as positive and wonderful experience as I'm having! Hugs...
  4. You are right,Mary Beth,l did receive a back up processor! It was a relief,too,because I'd already wondered how I'd manage if the original one needed repair!
  5. Hi Mary Beth,you asked me recently about what online sites my audiologist told me about to work on my listening here at home? These are on the list she gave me,that are free,but there were others that l can buy if ll choose to. 1)Soundscape,2)Angel Sound3)The Listening Room 4)Audio Concentration/Matching game 5) Randall`s ESL Cyber Listening Lab. 1.www,medel.com/us/Soundscape 2 angelsound.tigerspeech.com 3thelisteningroom.com 4 www.manythings.org/ac/ 5 www.esl-lab.com Also,l have a question: in some of the brochures l recieved,I saw that some folks clean the battery compartment with a q-tip dipped in alcohol? That wasn't mentioned at my activation visit.Should l be doing this? Thanks!
  6. Mary Beth,The audiologist gave me a list,which l don't have at hand now,but one was a Med El one,and there was one l believe called Angel..hearing? I will post them here, tomorrow if you like,when l have the list in hand.
  7. JDashiel,I'm sorry so slow replying. My activation was Feb.6th and it went great! I was hearing immediately,with some distortion,voices at first sounded like Donald duck! Lol Within an hour,while discussing everything with the audioligist,the distortion cleared up and voices still sound normal about 98% of the time.In a crowd setting,in public places,there was still some,depending on the direction of the sound.I am unilateral CI..the other ear was not a candidate.BUT,later on I'm hoping the surgeon will be willing to attempt the other ear,or possibly a different type of procedure,I'm even game for clinical trials.
  8. Hi Monte,I definitely will keep in touch here and of course this group is great support for me and my zillion questions! I went out to a restaurant today,a flea market and a dept.store...those places reminded me that though I'm hearing very well considering l couldn't hear before,but I have work to do to reach my full potential.Im going to start some online programs tomorrow,and keep working for the best results l can achieve!
  9. This is the dryer that l have! Also she told me that I will be receiving a Rondo2 ( l believe it was 2) from Med El,in the near future,as part of a promo that's happening.I wasn't expecting that,but it's a great surprise!
  10. MaryFeatherston, it may be because he implanted on the side where l had a little residual hearing? Not much,but some,which was aided by a hearing aid.(The other ear is just completely stone deaf.) I went out to a restaurant today,and l did note that in a crowd situation,esp voices from behind me, there was some change,some of that Donald duck quality was back.lol I'm wondering if the fact that l can only hear from one side has something to do with that. I know l have a long way to go yet,and need to get more practice with different sounds,but l agree that I'm really blessed! I went into activation petrified it wasn't going to work for Me!
  11. Thank you,Jewel,that's how it's feeling so far! I've sure been blessed,especially that my surgeon was Dr.Pillsbury,at UNC,Chapel Hill,N.C. He came highly recommended by my ent.
  12. Thank you,Mary Beth,I appreciate it..and the support of all of you.
  13. Mary Beth,l apologize for not posting sooner..it's been kind of hectic! Lol The activation went fine and l was hearing as soon as it was turned on! Voices sounded like cartoon voices at first,but within the hour that smoothed out to more normal sounds.Im getting used to wearing the sonnet mic and coil, and working on things the audiologist talked to me about to help myself,such as online programs ...I'm so happy,this is a dream come true for me!
  14. Hi Jewel,I apologize for being slow to update you guys! As you can imagine,since activation 2 days ago I've been in a whirl ! The activation went without a hitch..and l was hearing voices immediately! Hallellujah!! At first voices sounded cartoonish,but within the hour that smoothed out and voices were pretty much normal.Im on cloud 9,l never dreamed that I'd hear again,and certainly not this well! I even can hear music,and separate the voice from the instruments..although I'm not 100% understanding the lyrics.But l know it all takes time,and patience,I'm only 2 days past activation! I will be dropping in more,this forum is great support !
  15. My implant date was Jan25th..my activation date was Feb6th!! I was hearing immediately on activation! I was SO thrilled! At first voices sounded a little like Donald duck,but during the visit voices became more normal.Im only 2 days out,and there are things to smooth out and to learn about my Sonnet.But I have to say,I'm on cloud 9 !!
  16. Hi Mary Beth,Mary&Jewel,Thanks for your replies! I did see Dr.Pillsbury yesterday( Monday) and my post-op exam was great. He wanted to get me activated right THEN, which is what l was hoping for!! However,audioligy was booked solid,so I have an appointment for Feb.8th activation...Can you guess that I'm beyond excited?! Lol Dr.Pillsbury DID ok my going back to reg.use of my cpap starting last night.I was SO exhausted and sleep deprived that l went to bed last night at 7pm!! Slept well,woke up feeling great. I didn't have any problems that l could tell,other than the area behind the ear was still tender,when I first put on the head-piece,so I padded beneath the cpap head-piece with gauze.I REALLY need mine as l have mixed apnea,but hopefully if there's any future problem,Dr.Pillsbury and I can get it resolved.
  17. Mary Beth,l don't actually know at this point,but I sure am HOPING they'll do it this Monday! That's abt 2 weeks post implant,is that too soon?! I've done SO well ,and I'm just SO excited!!LOL
  18. I have just had my unilateral CI done on Jan.15th.and have my post-op check this coming Monday. I have pretty severe sleep apnea and was advised by Dr.Pillsbury NOT to use the cpap until I see him again. That's been NO problem except for the extreme tiredness and daytime sleepiness.However,I've had no luck finding any information online about IF and HOW the pressure from my cpap might affect my CI,once I'm given the ok to use it again. Naturally I'm curious, does anyone have experience using a cpap machine with a CI ? Of course,l will ask my Dr.too,I'm just curious about first hand experience. Thanks!
  19. Hi Monte and Dave,I'm a recent implantee,unilateral,left side. Jan15th. l chose med el..l envy you folks who were candidates for bi lateral CI ! Im still hoping that in the future something will allow me to try CI in my rt,ear! Good luck to you both.My processor hasn't been turned on yet,but l see Dr.Pillsbury at UNC in Chapel Hill,N.C. this coming Monday for my post-op check.
  20. Hi to both Mary& Mary Beth,sorry l haven't responded sooner the tummy pain problem was pretty persistant ! I have now finished both the prednisone and the cleocin.,thankfully! I hit upon never taking the two at the same time;and also taking each one with very cold cottage cheese with soft canned fruit,such as pears or peaches,making sure my stomach was relatively full.That helped a LOT. Plus,l ate freq,small snacks so that my stomach never got empty enough to get very acidic.Im one of those people who meds can easily aggravate the stomach,so to avoid stomach pain,l took them at diff.times,hours apart.Thanks for your consideration,I got a little anxious at first,l admit.LOL ABSOLUTELY NO PAIN,from the implantation,NO nausea,no vertigo...so it was easier to handle this problem. Thanks again.
  21. Thanks everyone,I'm really looking forward to activation!
  22. Hi all,I'm Granipeggy from NC( Peggy) I joined a few weeks back.I had my CI done Tuesday past and came home yesterday! It s all been really easy until today..l think it's a combo of prednisone and the antibiotic ,but I'm having to fight to stop stomach hurting.Any suggestions ? Prednisone is up in 2 days..antibiotic at least 4 more. Thanks
  23. Hi all,I'm Granipeggy from NC( Peggy) I joined a few weeks back.I had my CI done Tuesday past and came home yesterday! It s all been really easy until today..l think it's a combo of prednisone and the antibiotic ,but I'm having to fight to stop stomach hurting.Any suggestions ? Prednisone is up in 2 days..antibiotic at least 4 more. Thanks
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