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Julie72

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  • Content Count

    10
  • Joined

  • Last visited

About Julie72

  • Rank
    Newbie

Profile Info

  • Search Profile
    Parent of a hearing implant user
  • Implanted
    Yes
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Enlarged Vestibular
  • Pre/post lingual Hearing Loss
    Unknown / Prefer not to say
  • Sudden/Progressive Hearing Loss
    Unknown / Prefer not to say
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

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  1. Thank you! Good to know about the wind - wasn't sure if that was completely normal.
  2. My 5-year old was implanted in November. I cannot speak about different processors as ours has the Medel Sonnet. We are unsure if she was deaf soon after birth or progressive loss. Our experience after activation was she heard "beeps" for 5 weeks. Then in AVT one day she was repeating what the therapist was saying in a different room through her Roger Select to implant ear only. She is hearing now but does get lost with story comprehension with "just" her implant ear isolated. She does just fine with her good ear / implant ear mixed. I asked her how the sound was compared to her hearing ear and she said it sounds exactly the same! I asked her if it ever sounds like a robot and she said no. However, on our windy days in Texas, she will say the wind irritates her because it sounds like "tappety tap tap". Also, she went from biweekly AVT from activation now down to once a month. She wears her Roger to school. Good luck!
  3. We just purchased this "leash" for my 5-year old. It is definitely very thin and I won't allow her to wear the Rondo 2 to school for this reason. She wears her BTE Sonnet to school with ear mold. She has already stretched the leash part so that I thought it would break, so I have a feeling it will next time when it gets tangled in her hair. The other thing I do not like about it is that the hair clip is metal. She has thick hair but the magnet actually draws the hairclip toward it and then attaches to it over time! Hopefully they will improve this product soon for the cost.
  4. My 5-year old daughter was implanted in November. She starts swim lessons in two weeks. I used to put a vinegar solution in her ears after swimming to help prevent infection/swimmer's ear. Are there any contraindication to doing this with her implant? I realize it is in the inner ear and the drop is in the outer ear, but just curious! She has implant for single-sided deafness.
  5. My 5-year old daughter was implanted in November. She starts swim lessons in two weeks. I used to put a vinegar solution in her ears after swimming to help prevent infection/swimmer's ear. Is there any contraindication to doing this with her implant? I realize it is in the inner ear and the drop is in the outer ear, but just curious! She has implant for single-sided deafness. Thank you!
  6. We have been streaming ABC Mouse music videos that she is familiar with, such as Itsy Bitsy Spider, etc. The problem is there are only so many and she is bored. ha! Thank you @Gemma
  7. @Mary Beth thank you for your tips! I am looking at this story site now!
  8. Thank you for your response! She has the sonnet w/ flex31 electrode array. We were told to do our AVT with the Roger, as our therapist does, but it may be because she is not really hearing yet with just processor alone. It's also hard to isolate her bad ear because she hears so well with her left - even with a plug! She has received 9 maps total since 12/4 and we will remain on one until early March. She has come a long way and we are hopeful! The Roger has just been very frustrating, but think we just need to be patient. I think it will help a lot when she is hearing from her processor, etc.
  9. Hello everyone - We have just joined this group and thanks for having us. My 5-year old is a new implanted little girl with SSD. We are unsure when she went deaf in one ear. She was activated on 12/4. We are just beginning our AVT journey and long story short, we found out on this past Tuesday that she is hearing through her Roger Select and only loud noises through processor. She started out hearing beeps from activation (only through Roger) and continued over the month. I am a little frustrated with our Roger Select. She heard everything from her therapist from songs, words, sounds in a different room and one ear plugged. For our therapy at home, she only hears half of what I say through the Roger (which is great), but wondering why. Seems like a great device, but it is frustrating that I cannot see if it is working or hooked up to her okay unless she hears something. I only go in the next room about 10 feet away. It would be nice if the indicator stayed green while talking but everything goes off and Phonak said it is normal. She gets a little frustrated at home with AVT. I think part of it is I'm continuously asking her, "Do you hear anything?" because I fear it isn't working properly. While on this topic, does anyone have any great apps for a 5-year old that cannot read yet except for sight words? We have been streaming ABC Mouse music videos, etc. but this is getting old to her. Now that she is hearing, I'd like her to have something to interact better with, although she can interact with ABC, but we need something else. Thank you for your tips and advice! She is doing very well with wearing her processor, etc.
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