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JohnL

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    60
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About JohnL

  • Rank
    Ninja Contributor

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Unknown / Prefer not to say
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

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  1. Peter thanks for asking about me. I am now into my fourth month after activation and seem to be making slow progress. I can hear “noises” like birds and beeps from microwave and coffee maker although they are still a bit metallic. Music is still just horrible noise. I’m doing better understanding speech - and of course this is the most important thing for me. Lou’s environments present a challenge but I think that’s true for everyone. Next week I go to the audiologist to try EAS. They said I was borderline in terms of it helping but I had them make an ear mold and we are going to try that out. I’m glad to hear you are progressing well. Funny story about rehab. I use angel sounds a lot. The other day it said a word that I thought sounded like “sod”. Well, there were six choices for me to pick from - one choose was “sod” another “sawed”. I picked sod and it said I was wrong - it was sawed!! I gave myself credit for a correct answer
  2. During my first week after activation I went for a walk with my wife and asked her what the noises were. She said they are birds. Later that day we turned on the microwave and when it was done I asked her if there were birds in the house. She said “it’s the microwave - when you’re outside it’s birds and when your inside it’s the microwave!!”
  3. Thanks for the advice. I was reading audio books on my iPad early on but gave that up. I may go back to that. I know I’ve got a lot of work yet to do.
  4. Unfortunately all I remember in this forum and others are the comments that CI recipients say it has changed their life because now they understand conversations almost immediately. I remember Monte saying a week or so after activation he was singing “ American Pie” while driving!! Given that I was at 4% a week after activation, 20% at a month and now 40%, it’s getting better - just not fast enough for this impatient patient. I’m terms of “real life” - I can hear most sounds - can’t always distinguish exactly what it is but that’s getting better e.g. birds chirping and the microwave beeping sound the same. Conversations go okay in small groups or when I’m looking at someone. But large groups are difficult and if I’m not at least close to someone it’s more difficult. I also can hear familiar voices better - so I know when my wife is telling me to take out the trash
  5. I had normal hearing until about 10 years ago (I’m 69) when I started to notice I was losing hearing. I use an iPad for the aural rehab but don’t connect directly, I just use the iPad speaker so the sound does go thru the mic. This test and all my previous ones were done at 65db (Mass Eye and Ear). Today she said they were switching over and using “softer” sounds - it was 48 dB. My score with 48 dB and just the CI was 28%. When I did it with my hearing aid in other ear it rose to 40% - same as 65 dB with just CI. I wish people would respond “40% at 3 months, that’s great, I was only at 30%” or “ I didn’t hit 40% for 6 months.” I guess I just have to keep focusing on making this work - because what choice do I have!! Thanks for your help.
  6. I have not asked the surgeon about position and don’t see him again until October. The audi says they are all working. I am working with angel sounds and able. I took your advice and went back to level one on able and kept my eyes closed I was able to do very well up through about level six and then it’s got more difficult. Angel Don is a little more difficult but specially at minimal contrast but I can usually score 60 to 70% on most word lists. Which is part of the reason today was so disappointing. And when I mentioned to the audiologist that music sounded absolutely horrible He didn’t offer much encouragement for Improvement. We are testing EAS because I’m on the borderline for using that and shewants to see if it’s any better. She said word recognition probably wouldn’t improve but the sound quality might.
  7. Just back from another audiologist appointment. Three months since activation and word recognition at only 40%. Not a happy day.
  8. @Mary Beth thanks. I’ll try that. How do you feel about angelsounds? They don’t have different levels per se so it’s harder to see a progression. Should I just stick with one app instead of switching off?
  9. @Mary Beth I had forgotten how “easy” level 1 was. Well, I guess it wasn’t easy when I started! i can come a lot closer with identifying the words at that level with my eyes closed.
  10. Ok. I had completed level 8 and was working on 9. But I can go back to 1 and see what happens. Thanks.
  11. @Mary Beth a question about aural rehab. I have been using Clix and Angelsounds and I can do very well when I see the words in front of me - scoring from 85-100%. However, I have started to close my eyes before the word is spoken and my results plummet to 20-30%. I often can come close so I know my phonemic score would be somewhat higher. The question is this - should I continue to work with my eyes closed or is it best to see the words to better understand?
  12. @Mary Featherston sorry for the delay but we just returned from France. Yes, we did Omaha beach and the American cemetery. Breathtaking! i couldn’t understand a word the guide was saying but just seeing what our brave troops faced was mind boggling.
  13. @Mary Beth we are sailing on the Seine with Amawaterways. The highlight is a day at Normandy beach. I have been doing aural rehab by reading an audio book and with Clix and Angel sounds every day. And I will continue to do so on our trip.
  14. @Mary Beth you didn't misunderstand. I am concerned about my lack of progress in understanding speech (I don't even want to talk about how horrible music sounds). And it's both English and French because most of our tours and onboard staff speak English. We are in Paris for three days before boarding the ship and understanding French would be a challenge even if I could hear well . So your suggestion is helpful. Thanks.
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