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JohnL

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    70
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About JohnL

  • Rank
    Ninja Contributor

Profile Info

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    Candidate for a hearing implant
  • Implanted
    No
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Unknown / Prefer not to say
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

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  1. Marcy congratulations on your activation. I was implanted last March and activated in April also at Mass Eye and Ear. I found the audiologists to be terrific but I must admit I didn’t know the whole process of testing so it was a bit daunting. I’d be happy to answer any questions you have about what you will be going through (or at least what I went through). I have both the Sonnet and the Rondo 2 and I usually alternate processors each day. Fortunately I haven’t had a problem with the Rondo2 falling off but I actually use the hair clip just in case. good luck.
  2. Roxane i was implanted last March and activated in April. While I didn’t experience any balance or taste issues I did have swelling - or what I thought was swelling - over the implant site. I called my surgeon and, after checking with him, his nurse called back and said it was just the magnet/implant not being flush with my head. While I thought the implant would be flush and I’d have no “bulge” apparently I was wrong. The surgeon confirmed that at my one month follow up. However, my bump wasn’t squishy - so I would recommend you talk to your husband’s surgeon just to be sure.
  3. Jan welcome. I started using AB clix on my iPad and found that, in the early going, it was helpful. However, after a while it wasn’t much of a challenge so I switched to angel sounds on my computer (the computer has many more option than just an iPad). Someone once pointed out that anything you listen to during the day is “rehab” because you are making your brain work to hear sounds/speech. I think it’s good to keep that in mind. I’ve been “activated” for about six months and it is a marathon, not a sprint. I admit that sitting in front of a computer doing aural rehab can be boring but if you think about all the positive aspects of being able to hear and understand you will realize it is worth it. I’m not where I want to be yet but even small improvements are a positive sign.
  4. @Mary Beth what”limitations” are you referring to? I thought Audiolink was wireless/BT streaming.
  5. I wish I had thought about the tracking of phonemes- or at least vowels and consonants - before. I can understand how that would be so helpful to an audiologist in an attempt to improve speech understanding. My audiologists are great but they give me a “booth” test with a list of words and score on both words and phonemes but they seem to reprogram/map based on tones that they play thru the CI. The idea of testing consonants/vowels during our own rehab and reporting that to audiologists is one we should let everyone know about. BTW angel sounds has a whole module on vowels and consonants.
  6. Peter Thanks for checking in. I’m trying to focus on getting speech understanding at a good level. Although I do try to listen to my iPod in the car with music I recognize to try to understand it better. Now I can pick up the words but not really the melody. Of course, it’s not Pavarotti!
  7. Not me, I’m south of Boston.
  8. Marlene welcome. You will find a lot of interesting and useful information as you scroll through the various topics on the forum. I was activated about 3 months before you. The best advice I can give you is to dedicate yourself to aural rehab. It can be boring and frustrating but, in my view, is very important. I’m not where I want to be after 6 months but I am better than I else’s at 3 months - so keep your chin up!
  9. Don Congratulations on your implant. I was activated about six months ago and had similar experiences to you when I was first activated. I’d walk outside and hear a chirping noise that my wife said was birds and I could hear the microwave beep when it was done (I never knew it beeped!). But my speech recognition was minimal (and that’s being generous). Now, six months later, after working on rehab (I find Angel sounds to be excellent and have also used Clix) I’ve tested at about 55% word recognition with 75% score on phonemes. Not where I want to be but I share it so you know there will be improvement. Good luck
  10. Rick welcome. I was implanted this past March and activated in April. I chose med el after a lot of research and discussion with my surgeon. He said something that helped me decide. He said the flex 28 implant was the “floppiest” out there and that would help with retaining residual hearing. My research also indicated that the med el implant was superior. I have both the Sonnet and Rondo 2 and each has its pros and cons. The sonnet has better sound quality for me (so far) but the lack of Bluetooth is a con. The Rondo 2 rechargeable battery lasts all day which is a big bonus over the kanso. But as I said, to date the sound quality isn’t as good as the Sonnet. Admittedly I am still in the beginning stages (although if you’ve seen some of my previous posts you’ll realize I’m frustrated by this 😀) so my views are basically those of a newbie. Good luck with your decision.
  11. Peter thanks for asking about me. I am now into my fourth month after activation and seem to be making slow progress. I can hear “noises” like birds and beeps from microwave and coffee maker although they are still a bit metallic. Music is still just horrible noise. I’m doing better understanding speech - and of course this is the most important thing for me. Lou’s environments present a challenge but I think that’s true for everyone. Next week I go to the audiologist to try EAS. They said I was borderline in terms of it helping but I had them make an ear mold and we are going to try that out. I’m glad to hear you are progressing well. Funny story about rehab. I use angel sounds a lot. The other day it said a word that I thought sounded like “sod”. Well, there were six choices for me to pick from - one choose was “sod” another “sawed”. I picked sod and it said I was wrong - it was sawed!! I gave myself credit for a correct answer
  12. During my first week after activation I went for a walk with my wife and asked her what the noises were. She said they are birds. Later that day we turned on the microwave and when it was done I asked her if there were birds in the house. She said “it’s the microwave - when you’re outside it’s birds and when your inside it’s the microwave!!”
  13. Thanks for the advice. I was reading audio books on my iPad early on but gave that up. I may go back to that. I know I’ve got a lot of work yet to do.
  14. Unfortunately all I remember in this forum and others are the comments that CI recipients say it has changed their life because now they understand conversations almost immediately. I remember Monte saying a week or so after activation he was singing “ American Pie” while driving!! Given that I was at 4% a week after activation, 20% at a month and now 40%, it’s getting better - just not fast enough for this impatient patient. I’m terms of “real life” - I can hear most sounds - can’t always distinguish exactly what it is but that’s getting better e.g. birds chirping and the microwave beeping sound the same. Conversations go okay in small groups or when I’m looking at someone. But large groups are difficult and if I’m not at least close to someone it’s more difficult. I also can hear familiar voices better - so I know when my wife is telling me to take out the trash
  15. I had normal hearing until about 10 years ago (I’m 69) when I started to notice I was losing hearing. I use an iPad for the aural rehab but don’t connect directly, I just use the iPad speaker so the sound does go thru the mic. This test and all my previous ones were done at 65db (Mass Eye and Ear). Today she said they were switching over and using “softer” sounds - it was 48 dB. My score with 48 dB and just the CI was 28%. When I did it with my hearing aid in other ear it rose to 40% - same as 65 dB with just CI. I wish people would respond “40% at 3 months, that’s great, I was only at 30%” or “ I didn’t hit 40% for 6 months.” I guess I just have to keep focusing on making this work - because what choice do I have!! Thanks for your help.
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