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Everything posted by Watersail

  1. The travel case... what's the best way to make use of it? What to put in it? How to organize things in it? I understand it's a matter of personal preference for the most part.
  2. FS4-p is definitely interesting. After a couple days, the voices are starting to morph into one but warble. Playing the piano is also extremely odd as instead of notes sound in scale, they are mixed in terms of sound and sensation with one being dominant over the other on different frequencies. I'll keep at it and keep my brain exercised. I'm sure my brain will figure it out.
  3. Good luck! We'll be cheering for your success!
  4. I have a loss of taste following my surgery as well. My surgeon and I discussed some side effects prior to the surgery with loss of taste being one of them. For the most part I've been assured it's mainly temporary though it may take time. Post surgery, I brought it up with my audiologist and surgeon and they're keeping an eye on it and asking me about it on my follow up appointments. I'm starting to taste fruits, some vegetables, dairy, and some sweet things again. Meat tastes like air. Soda and red wine taste downright awful right now. Chocolate covered almonds tastes like chocolate though, so that is a relief. On the plus side, I'm eating more fruits and vegetables.
  5. Went to the audiologist yesterday for my 1 week post activation appointment. I seem to be making good progress as the high frequency sounds are manifesting less as pressure and starting to manifest as sound. Still working on pulling apart the sounds to make sense of them. I can follow along speech most of the time if I lip-read. One of the things that came out of the appointment was new maps. One being FS4, which I spent the week of activation on, and the other being FS4-p (which I'm currently trying out). I feel like I'm going a little crazy with the FS4-p with hearing two simultaneous voices from the same person. 🙂 One is in chipmunk (high pitch) territory, and the other in electronic (lower pitch) voice territory. I'm still very new to it so my brain hasn't melded the two voices together yet. Still new, and I know it takes a bit of time to adapt. Which do you prefer?
  6. Glad to hear your surgery went well! The leak fix is a nice added bonus!
  7. It depends on your insurance and mail preferences. For me, my insurance has an online portal and my preferences were set to email. I got an email notification of a new message in the portal. I went in there, checked, and saw the letter of authorization. Took about 2 weeks. The hospital was a little longer as it had to be physically mailed, go through all their internal mail system, etc. before they would act... about another week. It was a little stressful with all the waiting. 🙂 But, it all worked out.
  8. I also got the Artone last week. It has proved handy at work as it enables me to listen to streaming talk radio (NPR, etc.) when my coworkers aren't really chatty or if they're too chatty. I'm still very new post-activation, so I'm not making a lot of sense of sounds yet. I do agree that the Artone is definitely more convenient for streaming than the Pen as there's fewer steps involved in starting the stream to the CI. Personally, I'm waiting for the AudioLink as I'm not realizing the full potential of the Artone yet due to not understanding sound at this time. When I'm at work, I'm usually at a computer, so I just keep the Artone plugged in the USB port, which seems to keep it charged up while listening. Currently, when listening to the radio, I'm reminded of part of Queen's Radio Ga Ga song lyrics
  9. You can also find a hospital/clinic near you that does Med-El implant here: https://www.medel.com/us/clinic-finder/ Both Med-El and AdvancedBionics current implant offerings works up to 3.0T MRI scans. The MRI technicians should be able to work with you to ensure a good experience for MRI scans post-implantations. For more information on Med-El's implant compatibility with MRI scans: https://www.medel.com/hearing-solutions/cochlear-implants/mri-and-cochlear-implants I also hemmed and hawed between Med-El and AdvancedBionics. Both have good, solid, innovative offerings. But, there are trade-offs. It would have been great if it was possible to mix and match. However, that's not possible for a variety of reasons. I ended up making a list of pros/cons and what I wanted in 5 years and 10 years to help me assess my priorities. My list showed me that Med-El is the one for me.
  10. Freshly activated, so I started with my expectation super low. All 12 electrodes are in good health and active. Currently, I hear everything super, super high pitched, like everything is beyond helium. I can detect syllables, but can't differentiate speech or distinguish different layered noises yet. Time to learn how to hear all over again
  11. I've been looking into the kit and figuring out what's all in the boxes. Turns out there's quite a few chargers and containers, such as: CI battery charger Roger pen charger Dry box What do you do to centralize everything and tidy things up at home? I live in a small space, so space is a little bit of a premium. Looking for ideas!
  12. Awesome! I'll wait and see how to acquire this then. 🙂
  13. Per the clinic study link: We won't really know what it'll have until it's released, which may be a while since the clinic study ends in June 2020.
  14. Seems like the Bose QuietComfort 35 / QC35 will be replaced by the Bose Noise Cancelling Headphones 700 soon. https://9to5mac.com/2019/05/29/bose-noise-cancelling-headphones-700/
  15. Fingers crossed that this will work with the existing Sonnet and not have to wait for and upgrade to the Sonnet 2. 🤞
  16. I was wondering about the mic too since it was not really specified on where it goes in the patent. It could be exposed in front of the ear (like AB's T-mic), ear drum, or elsewhere under the skin. As for replacing the battery, it depends! I have so many questions. How involved is the surgery and recovery process is to replace the battery? Will they also update/upgrade the speech processor? Will insurance cover the costs of the maintenance surgeries? What happens to the skin/scars if multiple incisions are made to the same location over the years? What happens if the battery is defective or damaged? Will it catch fire in the head? What do you do when the unit feels unusually warm? With the Rondo or Sonnet, you can just take the processor off the head. The idea is nifty and would be great to see to come to fruition. I'm still way new to the whole CI (not yet activated), so I prefer to get my toes wet before jumping in the deep end of the pool.
  17. What an interesting concept! I could see how the Rondo 2 could evolve into this as it already has wireless charging. There's a few cool benefits out of this form factor: Extremely discreet since the battery button is the only external component and doesn't need to be on to run it, just to recharge it No more retention straps/clips WaterWear is not needed (assuming the recharging battery button module is not used while swimming and microphone is waterproof)
  18. To name some of the unique factors that drove me to choose Med-El: Electrode array options and the impact the longer electrode has on reducing the time to return to natural hearing Atraumatic electrode for the best chances at preserving residual hearing in case my residual hearing post-surgery is good enough for using EAS (electrical-acoustical simulation) for more wholesome sound. Backward compatibility for newer processors with older implants and warranty support for future processor upgrades Consistently innovating in speech processing/coding technologies IDR/Automatic gain control for minimal fiddling with the various settings for day-to-day life 250 virtual channels for higher fidelity (better music appreciation) In short, I prioritized setting myself up for the best current and future success from the implant and speech processing technology standpoint.
  19. Wind over hearing aid microphones have been a problem for me for years. When I turn my head into the wind, I hear nothing but wind noise until I block the wind. One set of hearing aids I had tried to minimize it by changing to directional and reducing amplification. However, standing face into the wind, I still got wind noise and little of other noises. The best I could do to block the wind noise was to turn my head to not have the wind blow across the mics or have something block the wind from the mics (like my hand). I haven't been activated yet, but I do expect it to be a similar experience for CI microphones. I can see how the waterwear cover would be effective as it shields the exposed mics.
  20. It's a tough choice picking the brands for sure. Getting a CI is unfortunately not like test driving a car before buying, so you won't know what to feel and expect until you commit to one. You'll find happy users with all the brands, but keep in mind that their experiences are most likely limited to just one brand as most people can't test drive all the brands before getting one. I've admittedly been hemming and hawing for a good long time between Med-El and another brand before committing to Med-El. I made a list of what my current and future (5 years, 10+ years) priorities are and tried to map out the different brands' current capabilities relative to my priority list. Making the list made me realize that there are trade-offs between the different brands. Some trade-offs were minor, other trade-offs were a larger issue. However, making my list ultimately helped me choose Med-El.
  21. Like with any insurance company, it depends on the policies you have with them. With United Healthcare, you should be able to find out from UHC's user portal: https://myuhc.com Your policy's coverage and benefits documents should be available there. CI's are typically listed under durable medical equipment. Some CI centers will help you confirm/obtain insurance pre-approval with the insurance company before the surgery.
  22. @lizjlong This is exciting to read. I get activated end of next week, so reading about your activation experience definitely helps me understand what to expect and how to go about improving my hearing. I look forward to reading more about your post-activation experiences and all the hints/tips that you have.
  23. Yup, it'll fly by real quick! I'm looking forward to activation day and see what I hear. The ibuprofen and tylenol are definitely doing its job as I have minimal pain/discomfort today. I do have a minor side effect, but it should resolve itself once the swelling goes down (if I recall correctly per pre-operative consult). I've sent a note to my doctor regarding the side effect to confirm my understanding that it's just temporary and nothing to worry about for now.
  24. Surgery went without issues. I'm at home now and resting up comfortably. 👍 Hitting up the ibuprofen and tylenol (per discharge instructions) and trying to avoid the prescribed strong stuff.
  25. I feel like a Mogwai (Gizmo from the Gremlins movie) with not being able to eat or drink after midnight.
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