Jump to content


  • Content Count

  • Joined

  • Last visited

About lizjlong

  • Rank
  • Birthday 06/19/1968

Profile Information

  • Gender

Profile Info

  • Search Profile
    Candidate for a hearing implant
  • Implanted
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
  • Cause of Hearing Loss
    Unknown / Prefer not to say
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Progressive Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

Recent Profile Visitors

68 profile views
  1. MaryBeth, I signed up for the free trial of RazKids.. I do not know how to go directly to an audio book to start for myself. It's set up like a teacher/student program. I am a bit lost. Any tips you can give me to go straight to an audio book to start?
  2. Thank you MaryBeth and Lita. I will try and see what works!!
  3. MaryBeth that’s a tough question to answer. Speech is still very unclear and foggy. I am having the hardest time finding audio books WITH text apps for my iPad. It seems I find one and the “developer has taken this app off for technical issues” . There has to be at least ONE audio book with text app for my iPad. You would think. Very frustrating ...
  4. Alrighty, thank you for letting me know. I hope it is temporary!! Thanks again
  5. Mary Beth, I have a brand new iPad version 12.3.1. I have searched for the AB Clix app to no avail. When I put in Advanced Bionics Rebah Apps (app store), I get: rehAB catalogue App, which when I open has the following: SoundSuccess, The Listening Room, AB, and Able Clix. I clicked on Able Clix (where it says freely available in the apple store) and it took me to the apple store page where it says "This app is currently not available in your country or region"??? Really? I see from the forum that a lot of people are using it. I know this is an international platform, but has anybody from the United States been able to find this app on their Ipad? Or more specifically in Florida?? Bummed...
  6. Thank you for sharing your experiences MaryBeth and Jewel. It is so nice to chat with people who understand these questions and being hearing impaired in general. I was not diagnosed with hearing loss until i was 8 years old and my audiogram back then showed mild loss in both ears. I did not want to wear the bte hearing aids, i was too self conscious. I went through ALL of school without wearing hearing aids at all. It was social suicide, i was bullied and picked on. But as I got older I met the right people and the friends that I still have today. Like Dr. Seuss says... Those who matter,don't mind, and those that mind, don't matter.. When I was 19 and met my ex husband, he insisted that I see an ENT and get evaluated. From 19 yrs old till present i wore CIC hearing aids. In the beginning they helped. But my hearing loss was progresive and not wearing any stimulation during my school years accelerated my loss..Of course I knew this after the fact... Nobody in my family has hearing loss, I never had a friend or co-worker with hearing loss, My son, who is now 21, has no hearing loss. So i basically grew up around "hearing people" and it was rough. My loved ones could understand and support me butwas never something that I could fully explain to them, how isolating and depressing it was. I have known for years now that my CIC aids were not enough and I have known about CI's also. It took me until I was 50 to say enough. I wanted better, I wanted to hear the best I could possibly hear. @Jewel, I am humbled by your experience. I could never afford to self-pay. I am so grateful that my insurance covered mine . This really puts things in perspective...
  7. Thank you Jewel. I have done most of what you advised above. And yes, it's day 3 and i'm doing a little better. I am following my audiologist's instructions. She has given me 4 maps on both processors (Sonnet and Rondo 2). I am to change the map every 48 hours. i'm on map 2 right now. The purpose is to see where i'm most comfortable at in regards to volume. Clarity is still elusive but again it's day 3!! I do have a question for you, since you have bilateral loss as well. I did have the "worse" ear (right) done first, so as you can imagine i'm missing that left hearing aid to hear clearer. Is it your intention to eventually have your other ear implanted? It was (maybe still is) mine. But as far as a timetable, I don't know. My concern is that i'm not stimulating my left "better" ear right now. I assume my audiologist will eventually tell me i can wear the processor and the hearing aid. She must have a reason for now not to wear the hearing aid, like you said, the brain needs to figure out how to "hear" with just the processor. So very nice to talk with other CI recipients that "get" it!!
  8. Hi Watersail, You're welcome. I will do my best to keep up to date on here. It's a whirlwind for sure. Thank you for reaching out and let us know about YOUR activation as well!!
  9. Thank you Mary Beth and Mary! I go to an audiologist here in Orlando. Not a CI center. I know that everyone's initial activation is different. Mine was underwhelming to be honest. But I knew i wasn't going to walk out of there on the first day and be able to hear clearly out of my implanted ear. And having the left hearing aid out made it that much more underwhelming.. My brain needs time to "re-learn" how to hear again with just the implant. But I'm very hopeful!!
  10. Hello! Not sure if anybody can be of assistance but I have bilateral sensioneural hearing loss. I had my surgery (right ear, worse ear) on April 12. Today my implant was activated. I was told by my audiologist to NOT wear my left hearing aid for as much as possible so that my brain get start getting "used" to hearing with the implant. That being said, i'm hearing very little. The implanted ear (i'm wearing the Rondo 2) has been programmed with 4 maps. I was told to "change" the maps every 48 hrs and see which is most comfortable. Right now, I'm underwhelmed but I kind of expected that. I desperately want to hear everything "in stereo" again. Right now it is very low volume, tinny, and dull. I am "anxious" to start any rehab activities that will help me. Also, has anybody felt that the Rondo 2 will fly off very easily? I know that there is a clip and my magnet is a 3 right now because my incision scar is relatively new. I tried to sit on the couch and put my head back to rest and I feel like it's going to fall off Also, when pressed against a pillow , it squeals a bit... Back to work tomorrow, and I will be trying not to put the left hearing aid in, which is going to be a challenge. But i'm determined to make this work!! If anybody (new or old activations) has any pointers/advice for rehab, getting comfortable with wearing the processor and the challenge of having one hearing aid and one implant. I would be very grateful. Thank you! Liz Long
  11. I will check out the rehab topic. I have been told how very important it is. I'm not sure what you mean by CI center? I'm receiving a Med-el Rondo 2 in my right ear via outpatient surgery at a hospital here in Central FL. I have been told that it takes roughly 4 weeks post surgery for activation and this will be done by my Audiologist. I will then continue to see her as adjustments need to be made. Is there a rehab center outside of our Audiologist that we should make use of?
  12. Hello everyone! I am new to this forum. Just set up my profile. I am scheduled for my first CI surgery (right ear) on April 12th. I'm a bundle of different emotions right now. Excited, anxious and terrified. I am trying to stay focused and positive. I have read a lot of the comments here in the forum. I have also done my research on Cochlear implantation and have spoken with a few recipients. It's been overwhelming for the most part. Everybody has a slightly different story. I am receiving my first CI in my worse ear and I'm getting the Rondo 2. I live a very active lifestyle and It's been quite a concern for me how having the Rondo will work out. I'm very hopeful it will be great. Part of the reason I wanted to join this forum is for support from people who know what it means to be hearing impaired. I am surrounded completley by hearing people. My family, my son, my boyfriend, friends and co-workers. While they have been great, it's really not something a hearing person can understand. It's been somewhat isolating because of that. I'm hoping in the coming weeks to talk with anyone that has any advice for first time recipients here. I would greatly appreciate it. Liz😊
  • Create New...