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JosephG

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About JosephG

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    User of a hearing implant
  • Implant Type
    Cochlear Implant
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    United States

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  1. Instead of reposting my response from an older thread on a similar topic of inquiry (given my post was admittedly a bit long), I’m just going to link to it here for those interested in this discussion: https://bit.ly/32kyXHd So with that context in mind, I’m a bilateral CI user and I can say definitively that my right dominant ear (for my entire life) is still vastly superior as a CI-aided ear to my long deaf left ear (which was actually implanted a year earlier than my right). With my right CI I could immediately understand speech from the moment of activation and was talking on the phon
  2. @Julie72 First, I would like to say that you’re doing a fantastic job for your daughter! I wish that when I was at that age that my parents would have put in the same level of effort and care with my SSD. So with that said, here’s a little background on myself as I was in a very similar situation as your daughter. I was single-sided deaf (left ear) with normal hearing in my right ear (though even at that age, at the highest 6-8k Hz frequencies I was still at a mild loss in that right ‘normal’ ear; 100% speech discrimination though). That was about 40yrs ago, so given how poor my left ear
  3. @Mary Beth I’ve had a similar experience with my left CI, but as pertains to podcasts instead of audiobooks. Keep in mind, I really hadn’t heard anything out of my left ear for my entire life (but my right ear used to be completely normal) and when I got my CI 10mos ago I couldn’t understand a thing. Now I can listen to podcasts and though the comprehension still isn’t entirely there, but I can now certainly recognize the voices and the accents and know who is speaking, even I don’t understand every word of it all yet. Neil deGrasse Tyson (StarTalk) is very close to the same Neil I hear with m
  4. I’ve certainly had trouble understanding anyone completely through a face mask using my left CI aided ear only (with a hearing aid on my right ear I can understand most with relative ease). But I wasn’t sure if that difficulty was a unique experience on my end since I only got my left CI activated 10mos ago and I hadn’t heard anything out of that ear for my entire life prior to that (give or take 4 decades). That said, some people with normal hearing have trouble understanding through cloth masks and the like, so I don’t think it’s entirely unique to our community, but it certainly makes
  5. @Jewel @Mary Beth Was reading this thread and I pretty much meet the conditions in my left ear for what you were discussing ("...born with normal hearing, then hearing loss in teens or early adulthood, then profoundly deaf for 40 years, then CI") . So I figure I'll share my experience... The only thing I'm uncertain about is whether I was born deaf in my left ear or whether it progressed rapidly during early childhood (my parents have said there was no mention of hearing problems at my birth). However, I do know with certainty that I was already profoundly deaf in that ear by early
  6. @Mary Beth There's certainly a different routine. At the NYEE audiologist center they are checking everyone's temperature before they walk into the waiting area (where no one is waiting), they are asking the usual symptomatic questions, followed by a Purell squirt and then they are giving anyone who comes in a new surgical mask to wear (they don't want you wearing anything from outside). I have to admit, the masks have made it quite difficult to communicate for someone with a disability like mine. Some nurses/doctors are being a bit more accomodating (risk taking) and will actually remov
  7. @Mary Beth Small world indeed! Surgeon is Dr. George Wanna (he already did my left CI in July 2019) Audiologist is Lisa Goldin (Mt Sinai, 380 Second Ave location)
  8. @Mary Beth Yes, I met with my audiologist last week and did all the requisite testing and I DO qualify as a CI candidate on the right side. I’m also meeting with my surgeon (NYEE Mt Sinai) on Tues morning to discuss possibilities. When I implanted my left ear, a hearing aid wasn’t even a question, I was basically deaf in that ear my entire life. My right ear though has always been my dominant (only) ear and I’ve been quite a high achiever on that ear alone. So the degradation impacts me greatly because while I can hear out of my left ear now, my speech comprehension is nowhere even
  9. Thank you @Jewel! The high powered HA that I was tested with is not even my own, I’d still have to purchase that one (+3k) which is why I’m debating whether it’s even worth it given how my pure tone audiometry has been degrading over time. And as you mentioned, whether that incremental cost would be better applied towards a CI. I do think I will eventually need a CI in that right ear (maybe <5yrs) regardless. My only hesitation is that my current speech comprehension is still about 70-85% (with that new, need-to-purchase HA), though my word comprehension is more like 50-60% aided (and
  10. Thanks @Dave in Pittsburgh! Glad to hear you had such a fantastic outcome. If you don’t mind me asking, how was your hearing/speech recognition just prior to going bilateral? Was it in anyway similar to mine (above)? I think my pure tone in the right ear is getting quite low, but my word recognition w/a high powered HA (that I’d have to purchase) is around 50-60%, with sentence comprehension a bit higher 75-85% (at 50dBH). The latter is probably more neuro related rather than just sound/hearing (i.e. brain strings it together).
  11. Thanks @karenRS and @Mary Beth So as background, I hadn't heard anything out of my left ear for practically my entire life (or as long as I can remember, so easily over 30yrs at least), so when I implanted that ear (Aug 2019) I didn't have anything to lose. Now with the CI I can hear 'noise' very well out of that ear and with context (visuals, lipreading, etc) I can function with that ear alone (though these N95 masks have been a real detriment). That said, my speech discrimination is still very poor on that left side, close to 0% word recognition ... I can hear the words but I can't unde
  12. Thank you @Mary Beth ! I'm certainly willing to get another CI, I'm just trying to make sure I'm not making a rash decision when potentially giving up the hearing that is still there on my right (however slight). My right ear has been my dominant ear for my entire life, so not necessarily knowing how it will perform with a CI (relative to an HA) is my only concern. But as you can see from my audiometric chart, I'm not giving up a tremendous amount at this point to make the jump, but still relative to where my left ear was at the time, there's a bit more on the right side. So I guess
  13. General question for anyone here who has gone CI bilateral. I already have a CI on my left ear, but now my right (dominant) ear has degraded to the point where it still benefits somewhat from a high powered hearing aid (see attached audiometric test over time), but I can't really hear much of anything if it's unaided anymore and I AM a candidate for a CI. So what I'm wondering is for folks who have gone bilateral, when did you make your decision relative to your pure tone audiometry etc.? In other words, I'm trying to figure out whether getting another CI is the better choice for me with
  14. Just to add my 2 cents, I've been single-sided deaf (left ear) for as long as I can remember, so easily +35yrs (I may have been able to hear in that ear when I was younger, but I'm not entirely certain and the problem was first diagnosed in early elementary school). I recently had CI surgery in August 2019 and was activated Sept 1st, so I've now been using a CI in my left ear for about 6 months. In the beginning things were very difficult to understand. I heard "sound", but conversation was largely like 'morse code' to me and I couldn't much distinguish a constant noise like running water from
  15. @Hicksy Thanks for sharing your initial experience! It's good to be able to connect with people who come from somewhat similar starting points, though of course, everyone's path will be a little different. Regarding "wearing an earplug in your 'good' ear", that actually is something my audiologist strongly recommended and as such I have been trying to rely almost exclusively on my left (CI) ear, plugging my right ear to the extent I can and/or wearing noise-canceling headphones on my right ear alone. But to be frank, doing so has been extremely difficult because everything sounds like morse co
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