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Tommy C

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  1. Like
    Tommy C got a reaction from tmscarlett10 in Wearing details   
    Well, here is my suggestion that may work for you, for what it is worth because I have not tried it.  Try putting the skull cap or hair net on first, then get a sport headband for Rondo 2, to wear over the skull cap, ordered from the Med El web store . Then your Chef hat may fit over all that. I don’t know how much hair you have and that may effect how well this will work.  Now this is what I have tried, I have a Med El sport head band for The Rondo 2. I placed the Rondo 2 in the headband and then placed a sock cap over that. I can not tell any difference in the sound quality compared to wearing the processor directly on my head. Note that I don’t have much hair and keep what I do have cut very close. It may require changing to a stronger magnet when you do this. My audiologists wants me to use as weak a magnet as possible so she gave me a stronger magnet to change out when I go fishing and use the headband and sock cap.
    Another possibility for the Sonnet 2 would be to cut a small slit in the hairnet for magnet and cable pass thru and attach to your head as normal and then wear the chef hat over that. 
  2. Like
    Tommy C got a reaction from Mary Beth in Wearing details   
    Well, here is my suggestion that may work for you, for what it is worth because I have not tried it.  Try putting the skull cap or hair net on first, then get a sport headband for Rondo 2, to wear over the skull cap, ordered from the Med El web store . Then your Chef hat may fit over all that. I don’t know how much hair you have and that may effect how well this will work.  Now this is what I have tried, I have a Med El sport head band for The Rondo 2. I placed the Rondo 2 in the headband and then placed a sock cap over that. I can not tell any difference in the sound quality compared to wearing the processor directly on my head. Note that I don’t have much hair and keep what I do have cut very close. It may require changing to a stronger magnet when you do this. My audiologists wants me to use as weak a magnet as possible so she gave me a stronger magnet to change out when I go fishing and use the headband and sock cap.
    Another possibility for the Sonnet 2 would be to cut a small slit in the hairnet for magnet and cable pass thru and attach to your head as normal and then wear the chef hat over that. 
  3. Like
    Tommy C got a reaction from Mary Beth in Very interesting read   
    Thank you @Mary Beth for posting this article. This research addresses the problem that carries over from what I viewed as the biggest in programming hearing aids. After the audiologist have made their best guess and the quality is not good, it is very difficult for a patient to explain what they are hearing in a way that the audiologist can understand the description and make correct adjustments. I am experiencing some of this with ci mapping as well. Overall my progress has been exceptionality good but television continues to be a struggle for me. The phone was very good on an early mapping but degraded on later mappings. Most people sound great, but some dont. I could understand my daughter almost perfect on an early mapping but can hardly carry on a conversation now. The problem now is I dont remember which was the good mapping, SHOULD HAVE KEPT NOTES. Maybe we will find it and the audiologist can setup a program for phone use. Maybe the audiologist can listen to my daughter on the phone and make adjustments from what she hears. I hope that this research at Vanderbilt will benefit all of us. 
  4. Like
    Tommy C got a reaction from Mary Beth in Looking for people who were implanted at age 80 or older   
    @Mary Beth
    i do not fit the age that you Ask for exactly, but close. I was implanted late August 2019 at age 79. As of May 2020 I am 80. I would be happy to answer any questions about my experiences and decision making process if it would be of benefit your friend.
  5. Like
    Tommy C got a reaction from Mary Beth in Activation!! Ta da!!   
    @Mary Beth. @Tracey_66
    If I am not mistaken, my audiologists did not activate the MT and T buttons until my third mapping, when she set my Roger Select.
  6. Like
    Tommy C got a reaction from Mary Beth in Which processor or processors do you use now?   
    I am presently using my Rondo2. I have a sonnet2 at the medical center that has not been mapped yet. I have an appointment for that July 1. I am happy with the Rondo2 so I expect the sonnet2 to be my secondary processor.
  7. Thanks
    Tommy C reacted to Mary Beth in Water wear tethering   
    @Percy
    I LOVE using waterwear with my Rondos.  I ride waves in the ocean, swim underwater, boat, jet ski etc.  
    This works for me.  Everything stays in place and sounds great.
     

  8. Like
    Tommy C got a reaction from Mary Beth in Any suggestions for Cell phone good with Roger Pen?   
    I don’t like to recommend phones to people because everyone has different standards. With that being said I have a Kyocera. They are built tough for people who work construction. I don’t work construction but I am tough on phones, I dropped it from my pocket into about two foot of water in which it rested for about five minute before I figured out how to retrieve it and it still worked fine. The reason that I recommend you checking out this phone is that it seems to have more volume than other phones that I have had in the past. I don’t use any assistive devices with the phone. I just hold it near the Rondo 2 processor and I have to turn the phone volume down to half volume. Stands to reason that they may have a little more volume being build for construction workers in a noisy environments. What ever phone that you are interested it get them to demo it at the store so that you can see first hand how the clarity works for you.
  9. Like
    Tommy C got a reaction from Jewel in Study finds typical patient related factors are NOT indicative of CI success   
    I think that some audiologist want you to have low expectations going in. I know that in my case their pestomistic expectations at the first surgery center that I went to caused me to back out. My daughter wanted me to try a different surgery center and got me an appointment. That audiologist was just as negative as the first. I was about to cancel out there too but the Doctor was more positive. I had 0% speech understanding on the test, the Doctor told me that he thought he could get me 65 % . I also met with a ci recipient that was very positive and had great results, just so happened to used the same Doctor. I went through with it and was assigned a different audiologist . At 3 months after activation my speech understanding was above 80% and is probably better now. I think they are doing a great disservice to their patients by giving low expectations. Just my opinion.
  10. Like
    Tommy C got a reaction from Mary Beth in Study finds typical patient related factors are NOT indicative of CI success   
    I think that some audiologist want you to have low expectations going in. I know that in my case their pestomistic expectations at the first surgery center that I went to caused me to back out. My daughter wanted me to try a different surgery center and got me an appointment. That audiologist was just as negative as the first. I was about to cancel out there too but the Doctor was more positive. I had 0% speech understanding on the test, the Doctor told me that he thought he could get me 65 % . I also met with a ci recipient that was very positive and had great results, just so happened to used the same Doctor. I went through with it and was assigned a different audiologist . At 3 months after activation my speech understanding was above 80% and is probably better now. I think they are doing a great disservice to their patients by giving low expectations. Just my opinion.
  11. Like
    Tommy C got a reaction from Mary Beth in 4 weeks and counting   
    This is not an every day problem, only happens occasionally. The tip of rotating the processor from 10 o'clock to 2:00 o'clock and back to 12:00 o'clock seems to fix the problem when it occurs. Thank you @Mary Beth for this tip. I personally prefer a stronger magnet but my audiologist disagrees with me and I trust her to know more than I do.
  12. Like
    Tommy C got a reaction from Mary Beth in 4 weeks and counting   
    Thanks @Mary Beth, I will go over this with my audiologist when I get to see her again. My last appointment was cancelled due to the virus restrictions we are under. The next appointment is scheduled for early June. They also have my sonnet2 that I cannot get until then. I am completely ok with that because at my age of 79 I must take every precaution to avoid exposure to this virus. I just hope that we will be able to keep that appointment and not have to reschedule it again.
  13. Like
    Tommy C got a reaction from Mary Featherston in Stay safe everyone   
    Thank you @Mary Beth my wife and I are on self imposed lock down in our house. We are not sick but at almost eighty years of age we do not  want to take a chance.  Everyone please be careful out there.
  14. Like
    Tommy C got a reaction from Mary Beth in Stay safe everyone   
    I am suppose to get my Sonnet 2 very soon. My audiologists will just have to hold it for me a while. My Rondo 2 is working fine so I can wait.
  15. Like
    Tommy C got a reaction from Mary Beth in Stay safe everyone   
    Thank you @Mary Beth my wife and I are on self imposed lock down in our house. We are not sick but at almost eighty years of age we do not  want to take a chance.  Everyone please be careful out there.
  16. Like
    Tommy C got a reaction from Mary Beth in Rondo 2 Charging   
    @MED-EL Moderator Thanks for your quick response. I wasjust trying to think  ahead. I can see leaving home without the charging pad, planning to return that day and changing plans.  So I guess maybe I should purchase a spare MED EL charger to simply leave in my car.
    Tommy C
  17. Like
    Tommy C got a reaction from Mary Beth in Surgery on November 19 cochlear implant   
    @Mary Beth Thank you so much for that training. I have just about exhausted my old brain trying to figure that out.
  18. Like
    Tommy C got a reaction from DncTchr2 in Surgery on November 19 cochlear implant   
    Don V, I don’t know how to tag you for this response so I hope that you see this. Your story is almost identical to mine. I am male 79 years old. I had lost 88 percent of my hearing and on the speech understanding test, I got a big fat 0 percent. I was using hearing aids that was doing very little for me but I could get by with them in quite conversation. I could hear TV with the use of head phones. I had to use an FM receiver with ear buds to hear Church Services. I could not participate in conversation at family gatherings or other groups. I had been this way for about seven years and not much better for 10 years before that. I finally decided that I had no choice but to start looking into a implant so I started the process of finding a facility and doctor. 
    The first place I went to for consultation gave me the same information and expectations that you experienced but did tell me that it would be better than what I had. They started the process by sending me to a psychologist and then a speech therapist which gave me about the same expectation as the audiologists had. I have a pacemaker so I had to get a release from my cardiologist to clear me for the surgery. I was experiencing a lot of frustration trying to get the required paperwork between the two Doctors. Like you, It was flustrating for me and I was about ready to cancel the whole thing. My Daughter suggested that we go to another facility and Doctor for a second opinion. The audiologists gave me the same pessimistic expectation that I heard at the other place but the Doctor told me that I had 12 % of my hearing and he thought he could give me 65, maybe 70%. I was still very undecided about going through with it.
    I then reached out on our Nextdoor neighbor forum to ask ask if there was anyone I could talk to that had a cochlear implant. A lady responded   That knew of a lady that may be willing to talk to me. I met her at a Starbucks and she put my mind at complete ease. You could not tell that she was deaf. She had two implants and being a lady with long hair I could not see the processors. She answered all of our questions very positive and her Doctor was the second Doctor that I went to. So with this I got excited and it became a go for me.
    I was implanted on August 29, 2019 and activated on Sept 11, 2019. When the audiologists turned on the processor, (Rondo 2) I could hear sounds, tones and buzzing but nothing I could understand. The session lasted about 1.5 hours and by the time it was over I could understand the audiologists, sound funny but I could understand. In two days I could carry on a conversation with my wife, she did not sound normal but understandable, 10 days and she sounded normal, some other people had a robotic sound but a few days later they were sounding normal. I went to Church about a week later and could understand the sermon with the processor and my hearing aid on the other side, no more FM receiver and ear buds. I have had three mappings since activation and I am to the point that I seldom use the hearing aid in my other ear. As the volume has gone up on the processor I feel that the hearing is not helping. Everything sounds normal with just the processor. The only things that could be better is TV off the Speakers is understandable but does not sound good and events like football games crowd noise over comes everything else.
    i am very glad that I did not cancel it. Everyone’s journey is different but my experience is very similar to the Lady’s that,I met at Starbucks.  Oh I forgot to mention that at my last appointment with the audiologists my speech understanding test was 80%,  I believe it is better now. 
     Sorry for the long story but I hope it helps you in your decision making process.
    Good Luck
     
  19. Like
    Tommy C got a reaction from Mary Beth in Anyone using a Roger System with a CI processor on one side and a hearing aid on the other?   
    I have Rondo 2 on my left and hearing aid on my right. I sometimes use the Roger Select for the TV. 
  20. Thanks
    Tommy C got a reaction from MaryGP in itchy cochlea   
    I did not have itchy ear, but I was instructed by my Doctor to avoid anything that would cause pressure on the inter ear. I was told not to blow my nose for like two weeks and if I had to sneeze, do so with a open mouth. I was told that pressure possibly could move the electrodes. With this in mind I would not try to scratch the ear. If it continues I would contact the Doctor. I am glad that you are doing well and hope the itchy ear problem go away shortly.
  21. Like
    Tommy C got a reaction from Mary Beth in I am thankful to Med-El for....   
    I am very thankful to Med-El for engineering quality devices and the high level of support that was very important in my decision making process. I am equally thankful for the Doctor that performed the surgery. The Med-El product, support, and the surgeon's knowledge and skills have resulted in success at a level that I never  hoped for or expected. 
  22. Like
    Tommy C got a reaction from Jewel in First post since activation   
    Congratulations Rick, I was activated on September 11, 2019. Your story sounds almost identical to mine. I had prepared myself for three to six months of very little understanding of speech, but I was understanding the audiologists before the activation session was over. I have had two new mapping sessions since activation and it just gets better each time. I did have trouble with the TV but that is all ok now. I too have the Rondo 2 and awaiting the new Sonnet 2. My implant is on my left side also with my old hearing aid on the right side. The Implant sounds so good that some days I never put the hearing aid on. I can tell that you are excited and I understand that because I am too. It is truly amazing, I feel so blessed and to think that I almost backed out of having it done. Please keep posting, I love hearing these success stories.  Oh, by the way, I am a 79 year old male.
  23. Like
    Tommy C got a reaction from Mary Beth in New to the forum   
    I also ware a cap when the occasion allows it. That keeps me from accidently knocking the Rondo 2 off.
  24. Like
    Tommy C got a reaction from Mary Beth in New to the forum   
    Thank you Mary Beth. Yes, I am off to a flying start. I feel blessed beyond anything I could have hoped for. 
    I am using the clip that attaches to my shirt collar.
  25. Like
    Tommy C got a reaction from Mary Beth in New to the forum   
    Hi, I am Tommy C. I am a little late joining the forum so will give a summary of implant and progress since activation. I had the implant surgery on August 29, 2019 and was activated on September 11, 2019 with a Rondo2. My hearing before the implant was only about 10 or 12 percent, I could not hear anything without hearing aids and could not understand much with them. At the activation, as soon as the audiologists turned it on I could hear her talking but could not understand the words. She continued to make adjustments and I started to understand what she was saying. By the time the session was over she sounded funny, but I could understand her. My next appointment was 2.5 weeks later. By the end of the first week I could carry on conversation with my family with ease. By the end of the second week everyone’s voices sound normal, the electronic sound was gone. I listened to audio books with no problem. I was communicating with everyone by using the implant only, no hearing aid in the other ear. I can hear Church services without the use of my old FM receiver. The music at first sound like static but by the end of the second week sound normal. I just returned to the audiologists for my third set of adjustments. The only problem that I am having is TV sounds like people have laryngitis, but it is gradually getting better.
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