Jump to content

DncTchr2

Members
  • Content Count

    33
  • Joined

  • Last visited

  • Days Won

    4

Reputation Activity

  1. Like
    DncTchr2 got a reaction from Mary Beth in rehab resources   
    Thanks so very much for these great suggestions...I feel like something has changed over the past 2 weeks with my hearing...cannot pinpoint it...last appt with research dr he said my hearing seemed to have gotten worse & he questioned my mapping...with all that is going on, I think I just panicked a bit...thanks for the suggestions and for the reminders...I will keep at it and listen to music at my own pace...
    So so grateful for your time...take very good care! ❤️ 
  2. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2 Accessories   
    Thanks so much...I will try to take a look at it again tonight and if I cannot figure it out, I will reach out to you...<3 
     
  3. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2 Accessories   
    Hello Mary Beth and thank you!  Appointment went very well, thank you...crazy loud again, but I am excited to say some of the adjustments that were made made voices sound much better.  The audio and rep from Med El told me to keep working on my progress with word recognition...Angel Sound, TED talks, and books on tape...and to bring my equipment to my next visit to get the hang of everything. I have to the Roger Select...I think I have just been a bit overwhelmed with returning to work and trying to hear music (dance teacher), which have made me a bit unable to focus on the other stuff...rep told me there are lots of resources on the website and youtube...when I try again, if I have any questions, I will come back here for advice...thanks very much for your time. Hope you are well! 
  4. Like
    DncTchr2 got a reaction from Mary Beth in What was the last straw that pushed you to get a cochlear implant?   
    Thank you!  
  5. Like
    DncTchr2 got a reaction from Mary Beth in What was the last straw that pushed you to get a cochlear implant?   
    I was considered a candidate almost 3 years ago, but was scared to do it...worried about everything sounding robotic, losing my sense of taste, the surgery in general. I own a dance studio and teach 12 hours a week...music is so important to me both at work and outside of work...I have been unable to talk on the phone, etc. Over the past 6 months I could no longer hear my little dance students, and then eventually I could not hear adults either...social events on top of the business were too much...I finally decided my inability to hear people/words and music was more scary than the procedure and recovery...they were able to preserve my residual hearing in both ears...had a someone from Med El (from Austria) attend the surgery to demonstrate/oversee a new insertion technique...had a Med El rep at my activation appointment today too...was just activated an hour ago...bilateral...my typing sounds like bells, everything is so loud...the wind sounds like fire engine sirens (that I have not heard in years)...voices sound like I had read they would...tinny, high pitched, chipmunks, etc...I am loving every moment of it so far...feeling oh so grateful. 
  6. Like
    DncTchr2 reacted to Don V in Surgery on November 19 cochlear implant   
    I just went through the 4 appts at IU MED CTR (Riley Hospital) in Indy.  I qualify, but very nervous!!   I am a 76 year old male and have lost 80% of my hearing.  The audiologist tried to explain what the sounds that I will hear sound like.  She said robotic and that I will never hear NORMAL sounds like voices, etc and that I will have to "learn" what each sound means.  The CI would be in only one ear for now.  That sounds like A LOT OF WORK!  At my age I don't know if I can do it............VERY NERVOUS!!  Almost ready to cancel.  Is what I just described accurate??  Where can I get down to the nitty gritty of what to expect??
     
    Thanks,  Don
  7. Like
    DncTchr2 reacted to Mary Beth in Surgery on November 19 cochlear implant   
    Hi @Don V and welcome to HearPeers!
    It would be wonderful if there was some kind of crystal ball that could show us how our life will be with cochlear implants before we have the surgery.  Smile.  But unfortunately there isn’t.
    My life is so much better with cochlear implants.  Best hearing I have had in many decades.  Best decision ever.
    I will start with what things sound like now.  I was implanted 5 years ago.
    Music is amazing.  I enjoy the different instrumental sounds and the lyrics.  I sing along to old favorites and new songs.  I even enjoy singing along to the car radio with the windows down.  I enjoy going to live musical events in small venues, Broadway theaters and huge arenas.
    Speech is unbelievable.  Everyone has their own natural voice and I can even tell when they have a cold or an accent or are playing with their voice.  I understand young children, deep male voices and female voices.  I have become addicted to audiobooks and podcasts and listen to them everyday while I go about my day.
    Now where did I start?  Well at activation of my first side (which had not processed any sound for 24 years before being implanted) I heard beeps and static.  Then it started matching up with syllables and five hours later speech started to emerge.  At first the speech sounded a bit like R2D2.  Smile.  Every single day it improved.  Every morning I woke up eager to put on my processor and see what I would hear that day.  Smile.  It was so amazing.  Life changing.
    I did aural rehab activities everyday to help train my brain.  You can find lots of aural rehab suggestions in our topic called REHAB.
     
    Wishing you the best.
     
  8. Like
    DncTchr2 reacted to Mary Beth in Surgery on November 19 cochlear implant   
    Here is my story if you are interested @Don V
     
  9. Like
    DncTchr2 reacted to Tommy C in Surgery on November 19 cochlear implant   
    Don V, I don’t know how to tag you for this response so I hope that you see this. Your story is almost identical to mine. I am male 79 years old. I had lost 88 percent of my hearing and on the speech understanding test, I got a big fat 0 percent. I was using hearing aids that was doing very little for me but I could get by with them in quite conversation. I could hear TV with the use of head phones. I had to use an FM receiver with ear buds to hear Church Services. I could not participate in conversation at family gatherings or other groups. I had been this way for about seven years and not much better for 10 years before that. I finally decided that I had no choice but to start looking into a implant so I started the process of finding a facility and doctor. 
    The first place I went to for consultation gave me the same information and expectations that you experienced but did tell me that it would be better than what I had. They started the process by sending me to a psychologist and then a speech therapist which gave me about the same expectation as the audiologists had. I have a pacemaker so I had to get a release from my cardiologist to clear me for the surgery. I was experiencing a lot of frustration trying to get the required paperwork between the two Doctors. Like you, It was flustrating for me and I was about ready to cancel the whole thing. My Daughter suggested that we go to another facility and Doctor for a second opinion. The audiologists gave me the same pessimistic expectation that I heard at the other place but the Doctor told me that I had 12 % of my hearing and he thought he could give me 65, maybe 70%. I was still very undecided about going through with it.
    I then reached out on our Nextdoor neighbor forum to ask ask if there was anyone I could talk to that had a cochlear implant. A lady responded   That knew of a lady that may be willing to talk to me. I met her at a Starbucks and she put my mind at complete ease. You could not tell that she was deaf. She had two implants and being a lady with long hair I could not see the processors. She answered all of our questions very positive and her Doctor was the second Doctor that I went to. So with this I got excited and it became a go for me.
    I was implanted on August 29, 2019 and activated on Sept 11, 2019. When the audiologists turned on the processor, (Rondo 2) I could hear sounds, tones and buzzing but nothing I could understand. The session lasted about 1.5 hours and by the time it was over I could understand the audiologists, sound funny but I could understand. In two days I could carry on a conversation with my wife, she did not sound normal but understandable, 10 days and she sounded normal, some other people had a robotic sound but a few days later they were sounding normal. I went to Church about a week later and could understand the sermon with the processor and my hearing aid on the other side, no more FM receiver and ear buds. I have had three mappings since activation and I am to the point that I seldom use the hearing aid in my other ear. As the volume has gone up on the processor I feel that the hearing is not helping. Everything sounds normal with just the processor. The only things that could be better is TV off the Speakers is understandable but does not sound good and events like football games crowd noise over comes everything else.
    i am very glad that I did not cancel it. Everyone’s journey is different but my experience is very similar to the Lady’s that,I met at Starbucks.  Oh I forgot to mention that at my last appointment with the audiologists my speech understanding test was 80%,  I believe it is better now. 
     Sorry for the long story but I hope it helps you in your decision making process.
    Good Luck
     
  10. Like
    DncTchr2 reacted to Mary Featherston in A day in my life with CIs   
    Just this morning I was sitting in my manager's office - we were talking about a project we're working on that involves some of the people who sit in cubes outside his office.  Bob started speaking very quietly so that the others couldn't overhear and I was able to hear him well AND lower my own voice appropriately.
    Amazing.
  11. Like
    DncTchr2 got a reaction from Mary Beth in A day in my life with CIs   
    Two more weeks until activation, but this made me smile...happy for you!  
  12. Like
    DncTchr2 got a reaction from Mary Beth in Tinnitus that started after implantation/activation   
    Thanks...I will. I was doing pretty good until today actually. I'll get it back...thanks again!
  13. Like
    DncTchr2 got a reaction from Mary Beth in Tinnitus that started after implantation/activation   
    I do not...I will look into it after my nap...thanks very much for the suggestion...two weeks until activation. My husband and I have been texting...funny, first time he texted me I started to text him back forgetting he can hear what I am saying...a much needed laugh yesterday!  
  14. Like
    DncTchr2 got a reaction from Mary Beth in Tinnitus that started after implantation/activation   
    Good to know...I know everyone has different experiences, but it is something to hold on to for now...I am a bit emotional/tired today too, which is not helping. I had mostly adjusted to it pre CI, but the past 2 days have been off the charts loud and my head hurts a bit today...I think I might need a nap! Thanks for being so supportive...
  15. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Hello...I was at UCLA.  and I cannot wait...Beauty and the Beast is my favorite...a goal! 
     
  16. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Hello...I wanted to give you an update!  I am home and the surgery went well. They had two techs (one from Austria) who specialize in preserving residual hearing...they did an experimental procedure with the implants specific to preserving hearing and it seems to have worked! There was also a group from Japan visiting the hospital who sat in on the procedure. It was quite a party. I did not lose my sense of taste...have been sick just once, and pain has been managed with extra strength Tylenol. I think most of the pain is coming from the dressing, but I have to leave it on for 3 more days.
    Anyway, you have been so kind and I wanted to let you know so far I am feeling great.
    Hope you are well and that you enjoyed the show last night. Funny, I first realized just how bad my hearing had gotten watching Jersey Boys...I could hear the music, but none of the dialogue. I cried...that was 4+ years ago.
    Much gratitude,
    Kerrie 
  17. Like
    DncTchr2 got a reaction from Mary Beth in AudioKey now available in Apple App Store (US)   
    Thank you...the final post I read at 2 am was a music post...after 1.5 years, 5 years, etc, music still sounds terrible...   My sign to shut it down...I will update tonight or tomorrow...grateful for your time Mary Beth... ❤️ 
  18. Like
    DncTchr2 got a reaction from Mary Beth in AudioKey now available in Apple App Store (US)   
    Thank you so very much Mary Beth...really need to go to bed...but well, yeah, you probably know already...  
  19. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Me too!  I vacillate between eating healthy all weekend and eating all of my favorite foods in case I lose my sense of taste...that is a concern. No other ear surgeries to compare it to, but I have had 2 c sections...have a terrific weekend Mary Beth. 
  20. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Yup! Pillows ready for that...I go to sleep on my side every night appreciating that it is going to change very soon...yogurt, soup, tylenol, travel pillows, button up tops, movie list...!  
    Thanks again Mary Beth.
  21. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Thanks so very much...I will. Each day makes me a bit more anxious...it does all seem overwhelming. I have been reading a lot, but I think some stuff needs to be experienced/seen to truly understand what it is and how it works...looking forward to it.  
  22. Like
    DncTchr2 got a reaction from Mary Beth in Sonnet 2   
    Thanks ladies! I am going for surgery on Wednesday, so the timing is perfect for me...I had planned to do the swap too. I am still trying to understand all of the lingo/features, but I guess that will be part of the journey...thank you for the information. Have a beautiful weekend!
  23. Like
    DncTchr2 got a reaction from Mary Beth in DncTchr2   
    Thank you Mary...mine has been loud and constant for years...not exactly sure when it started, but cannot remember not having it...cautiously optimistic. Thanks for the good thoughts!
    I would love that Mary Beth...I will reach out to you soon. I appreciate your time and experience...Happy Saturday ladies! 
     
  24. Like
    DncTchr2 reacted to Mary Featherston in DncTchr2   
    @DncTchr2 good luck!  I have had tinnitus since I was 15.  It's still there - right after surgery it was a bit louder but that receded and now it's at a lower volume.  I don't hear it at all when I have other sounds through my processors but at night it's still there.  I'm used to it, it doesn't bother me.
    You're at the beginning of an amazing journey -best of luck!
  25. Like
    DncTchr2 got a reaction from Mary Beth in DncTchr2   
    Thank you again...I actually cannot imagine my life without the tinnitus...it is crazy loud 24/7...keeping very good thoughts I will have a similar experience...I will update as the process continues...thank you again Mary Beth...
×
×
  • Create New...