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Dan W

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Dan W last won the day on April 9

Dan W had the most liked content!

About Dan W

  • Rank
    Newbie

Profile Info

  • Search Profile
    User of a hearing implant
  • Implanted
    Yes
  • Implant Period
    Under 1 year
  • Implant Type
    Cochlear Implant
  • Hearing Loss Type
    Sensorineural
  • Cause of Hearing Loss
    Not applicable
  • Pre/post lingual Hearing Loss
    Post lingual Hearing Loss
  • Sudden/Progressive Hearing Loss
    Sudden Hearing Loss
  • Uni/bilateral Implant
    Unilateral implant
  • Country
    United States

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  1. A lot off board topic... I did some deep looking into this kind of screening for my work and the cameras are really pretty standard stuff... . They are just tuned to a different light frequency. I have and use thermal cameras all the time and have had no issues. I would be flat stunned if any Flir licensed camera would have any EMI beyond any other consumer electronics or that it would/could impact a CI. Of note though... you may ask about the protection, storage and use of the images, as Flir cameras are tuned to the infra red spectrum and can at times be a little embarrassing with some lightweight or summer fabrics. Think along the lines of just less than the full body airport scanners.
  2. My masks are around the head elastic bands high and low not the behind the ear style. The top band will at times tangle up with the sonnet wire when the mask is being doffed. Luckily if I plan ahead I can wear the rondo instead. Otherwise it is a careful, learned removal procedure to not make the mask use less effective and at the same time not zing the sonnet to the floor.
  3. @Ford did you get your feedback resolved. I have what sounds to be a similar experience and was wondering if you and or your Audiologist found a solution? Dan
  4. @Vasilii I was ssd for 8+ and got a synchrony2 implant and use a sonnet2 and rondo2. I "feel" that having one good ish ear is a huge advantage in the rehab process... I went through the clicks and whistles, robotic sounds and now am starting to adjust. At times it is very natural, others it seems a little off. At this point if I go out of my way to isolate the good ish ear and depend solely on the implant there is clearly a degraded quality, but put them together and I am way better off. For me the implant was a great choice. To say it another way... To me, hearing is additive in nature so anything I get out of the implanted side enhances my awareness and understanding. When I looked, the available studies are difficult for me to place myself within the data as the field of contributing possibilities is too great... A lot of things could impact implant "success"... the reasons people have hearing loss, time of that loss to the time they are implanted, the type of implantation, tech of the implant (The tech is only a few decades old and rapidly changing) , how far in the cochlea the device is inserted, number of implanted device contacts, speed of the processors, stimulation strategies, patient persistence with using the device, residual hearing in other ear or a bilateral implant, age when hearing loss occurred (were they lingual appeared to be an important milestone), the quality and ability of surgeon and audiologist, health history…. They went on and on. Most of the studies were only including 7 to 20 participants with ranging medical histories. The published ones were in my opinion old, 2002 to 2010. Surgical techniques and devices have significantly changed in 15 years. I found that there are things that are commonly indicated by (trustworthy to me) sources as being characteristic of "successful" patients: realistic expectations and persistence in using the device. Surprisingly enough I did find indication that age of the patient may have little impact on "success." If you do find a study that you feel you fit within the data pool and well defines success then share it with me as I'm still interested in knowing if I'm an outlier or in the middle of the bell curve. I was for some reason not hesitant at all. It was a running leap from the high dive platform... I was however nervous and overwhelmed at times. My personal thought process was... Is my bad ear 100% full frequency range non functional? Could there still be some nerve activity??? Is the reason I am deaf in one ear a good candidate for successful implanting? What happens if I get very little or nothing out of the implant process? (My answer was I'll just wear fridge magnets as a party trick...) Is there a high risk to me having the implant done? Is the implant process likely to be an undue burden to me or my loved ones? Do I have their support? Am I willing to persist with using the device as they indicate it will be months or longer for the full benefits to be realized? You could make your own list, let it sit for a while and answer them as honestly as you can. Then ask your Dr. opinion on the relevant questions... I was told the same things... I believe my Dr. wanted me to make informed decisions with as much clinical information as they could provide, not just to freak me out. It was easy to become overwhelmed with information. Looking back at the process so far, I agree with everyone else... Your results will be unique to you, and you have to be your own advocate when making medical decisions. Continue your own research until you are satisfied you beat it with a stick. Dan
  5. Thank you @Terry Bush and @Mary Beth Very reassuring to know. It was unnerving when it happened. I will be extra cautious clearing the bats out of the cave from here on.
  6. Ok, well don't blow your nose hard... even if there is no discomfort. Audi had me to gently rub the area where the magnet is... after a few minutes the ci is working again. Well see if there is any long term issues from it.
  7. This just happened to me... @Terry Bush what was your result? Plan of action?
  8. I'm with you... The hardware is most likely already there as data is being shared via a paired connection with a phone using IEEE 802.11 standards. Thoughts? , it is possibly a patent issue that has not or can not been worked out??? Me doing a real patent search is unlikely as it is exhausting and up to personal interpretation. That is why there are lawyers, courts and judges for clarity on who done what. I also have no inside information. Could be as simple as a feature that they planned for, but couldn't get the bugs out before release deadlines. A BLE device will not use THAT much current compared to a microprocessor that is boasted to be part of it... Radio connection... just as with the AudioLink??? So I am skeptical of a battery issue. It would take a spectrum analyzer and some concerted effort to make a more educated guess. Doing so and publicizing it would likely be a bad choice for everyone. I am not a patent or contract lawyer, part of med-el or an expert at nearly anything so take that as what it is, just A GUESS.
  9. I knew going in what options were available for direct streaming. However with the ability to connect via Bluetooth to adjust settings, but not stream audio, there will likely be a steady flow of confusion. The hardware seems to be there but not enabled... I futzed around with various methods to direct connect w/o satisfactory success. I also will fall back and regroup before continuing to throw time and resources at it. Unfortunately the Med-El KC meetup was rightfully cancelled, it would have been a good opportunity to address this.
  10. Fortunately it is quick to ease off, it is just the first 10 seconds and then the 15 seconds of vacuum when it comes off. I will take time and adjust it down as part of the take off routine. Easy answer to both issues. I just got the artone 3 max in the mail today and will pair it up with the phone to put some sound directly in. Thank you for the input and wisdom Hicksy and Mary Beth.
  11. I have been activated for a little over a week and feel very lucky to be understanding most speech and am now getting accustomed to hearing again in an ear that has been profoundly deaf for 6+ years. I have fairly good hearing in the other... With that it is a little tough isolating the hearing from implant and "good" ear. So some of the immediate progress is surely related to the additive nature of hearing from two sides. I am truly grateful and as a whole I feel am much better off with it. So with that there are a few things that I put forth to see what your impressions are and how you handle these things, both positive and negative. Some observations mixed with questions. Rustling plastic bags is horrific. Really, I think I could hear the guy clanging dishes while cleaning them in the back corner of the restaurant...Will that go away or become a more normal of an input? Car blinkers are now annoying. Who gave them the super power of banging off the back of my skull? There will be no more driving around the world endlessly to the right... It is awesome the tech that goes into this device. Nice to be able to turn it up to hear conversations from the other end of the table. When I first put it on in the morning or after a few minutes with it off, it is very jarring to have that much input all at once. Kinda like being launched from a sling shot. I find myself wincing as the magnet goes on. The Rondo 2 seems worse at this. Doing construction is tough with in on. Saws, air nailers, hammering inside a shell of a house. Hated to take it off for a few hours with it this new but just had to. Surgery was rough for a day or two and got reminded what the spins are for the first week. Truly had me worried for a while. I would easily do it again based on my own unique experience. Again I feel very fortunate.... The Dr said he got "full insertion" in the cochlea and he was quite pleased with himself on that. Is that uncommon? When a loud noise is presented to the Sonnet 2 I get the noise and then a loud pitched whine that fades away. Is there a setting for that? The T's and S's are distorted. While I play guitar the higher octaves are distorted in a similar way. They seem to start good then go bad. How best to describe that to the Audiologist? As I move up in volume in pre set programs will I get better quality when they become less intense? What is the goal and reasoning of the Audiologist asking that I do so? I have noticed in the short time I am able to tolerate program 3 where it wasn't possible the first 2 days... There is a distinct order to taking them off. Magnet first, then it is safe to touch the sound processor... The Rondo2 just has to be snatched off. Thanks,
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