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Adam

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  1. Like
    Adam got a reaction from Kylie in Seeking Implanted Musicians...   
    Tim,
    No worries, I will try again shortly. You are correct. Each person is a little different in their new hearing journey. For me, the phone and music took the longest to come back. At one point, I walked into one our venues where the band was playing. There were 7 people up on stage, 5 different instruments and all were singing. I knew the song due to the words on the screen. The only thing I could make out were the drums. The rest was just mush, if that makes any sense. I can remember thinking right then, " I will never be able to enjoy music again"
    Things slowly started to turn around. When I would turn on the radio in the car, it would take about 20 seconds of focused concentration. Once I recognized 2 or 3 words and then knew what song it was, it was like taking a blanket off of the speaker and I could hear it clear as day. Older songs were much easier to recognize. The new stuff I had a hard time with. That delay in recognition would get shorter and shorter until I could jump in the car, turn on the radio and know the song immediately. Eventually being able to pick out specific instruments. I have posted before that I had been listening to a particular song and had no idea until then that there was a Bass solo in the song.
    I don't remember exactly how long it took. It seemed like forever. Maybe a few months when things real.y started sounding enjoyable again. It has progressed ever since.
  2. Like
    Adam got a reaction from Jdashiell in 20 years of hearing in the U.S.   
  3. Like
    Adam got a reaction from Mary Beth in Spring/Summer surgeries and activations   
    I personally have not had any issues with the Roger pen or Roger 21. I use them often with no issues.
  4. Like
    Adam got a reaction from Mary Featherston in March 2018 implant surgeries   
    So far everything is going very well. After 19 years, I just made a job change into a field I am very passionate about. I might be the first deaf Security Officer in SC.
  5. Like
    Adam got a reaction from Megan L. in March 2018 implant surgeries   
    So far everything is going very well. After 19 years, I just made a job change into a field I am very passionate about. I might be the first deaf Security Officer in SC.
  6. Like
    Adam got a reaction from Jewel in Will cochlear implantee eligible for future gene therapy?   
    Alessandro
    this has been studied for years now. I know some deaf people that are not getting a CI and waiting for this therapy. This type of therapy is not even remotely close to becoming a reality yet. It is a very interesting concept but I don't know that I would be willing to wait as there is no guarantee that it will even work. 
    With my CIs I can function totally fine in the hearing world. The only issue is I can't hear when I go to bed. 
    Interesting nonetheless 
  7. Like
    Adam got a reaction from Jewel in Anniversaries   
    How about a calendar to track people's surgeries, activations and anniversaries?
    Adam
  8. Like
    Adam got a reaction from Jewel in Sonnet Colour   
    I am sure over time, they might add to the colors based on demand. I didn't go with a neutral color. White and blue. I am proud to have them. If somebody doesn't like them, then they don't have to look at them. 
  9. Like
    Adam got a reaction from Jewel in coil magnet strengths   
    Ivana is of course dead on the money. If there is too much pressure on the skin flap it can cut off blood supply (necrosis) to the skin flap ( part of skin covering implant). This obviously is not good and one of the reasons they suggest waiting a few weeks for swelling to go down to gauge proper magnet strength. 
  10. Like
    Adam got a reaction from Jewel in Battery life   
    I a.so order my batteries from Amazon. We save some money this way. I was nervous at first to do this as you never really know how long the batteries have been sitting around. Luckily I have had no issues. All seem to last the same amount of time
  11. Like
    Adam got a reaction from Jewel in Battery life   
    My processors tend to beep for quite a while before the batteries die. I like this as I have plenty of time to switch out, especially if I am in a situation where I really need to hear what is going on
  12. Like
    Adam got a reaction from Nikki in electrode failures (electrode migration, misplacement, etc.,)   
    Sounds like you are on the right track. I’m sure that is such a relief. Very glad to hear it
  13. Like
    Adam got a reaction from Mary Beth in electrode failures (electrode migration, misplacement, etc.,)   
    Sounds like you are on the right track. I’m sure that is such a relief. Very glad to hear it
  14. Like
    Adam got a reaction from Jewel in MED-EL 2.4 GHz digital wireless technology alternatives   
    Taken longer than I would have expected but I would rather have them take their time to make sure there aren’t any bugs they need to fix later
  15. Like
    Adam got a reaction from Cara Mia in MED-EL 2.4 GHz digital wireless technology alternatives   
    Taken longer than I would have expected but I would rather have them take their time to make sure there aren’t any bugs they need to fix later
  16. Like
    Adam got a reaction from Mary Beth in MED-EL 2.4 GHz digital wireless technology alternatives   
    Taken longer than I would have expected but I would rather have them take their time to make sure there aren’t any bugs they need to fix later
  17. Like
    Adam got a reaction from Jewel in My Journey   
    Donna I am so happy that things are working out so well for you. The scariest step is always the first one. A lot of people have that fear of the unknown. Of course if you ask everyone, pretty much all will say that they wish they had not waited.
    Thank you so much for sharing as it will be a big encouragement for somebody trying to make the decision.
    Adam
  18. Like
    Adam got a reaction from Jewel in Interesting article about progress in technology of Cochlear Implants   
    I haven't heard of this before. I know a large part of preserving residual hearing is due to the skill of the surgeon and technique used in inserting the electrodes. Also the type of electrode array used. MEDEL is known for the design of their electrodes to be atraumatic to the cochlea , which means there is an excellent chance of preserving residual hearing.
    i didn't really have any residual hearing left anyway so this didn't really matter to me from that standpoint. It did however factor in to my choosing MEDEL as they were really doing their homework in looking at every aspect of the implant and how to make it better for the patient. I'm not saying the other companies don't do that but MEDEL was the first to come out with this type of electrode.
  19. Like
    Adam got a reaction from Nikki in Surgery tomorrow   
    Good luck to aliu83 as surgery is scheduled for tomorrow. As soon as you are up to it Ali, please let us know how you are doing. 
     
    Adam
  20. Like
    Adam got a reaction from Mary Beth in How long have you been using your CI?   
    Bilateral 6 years
  21. Like
    Adam got a reaction from hetty avivi in Anyone had the soundbrige implant   
    Alex, you are taking the right approach in trying to learn as much as you can. I am surprised at how many people don't do to much research for themselves. I will add a link from the medel website that might help you out below
    http://www.medel.com/us/vibrant-soundbridge
  22. Like
    Adam got a reaction from Cara Mia in I am so scared please help.   
    @Renachelw congratulations on your upcoming surgery. I understand the feeling of being anxious before a surgery. It is important to be well informed and the surgeons do have to advise of any side effects, no matter how little the chance. Each person is a little different.
    i have had 45 surgeries in my lifetime, 23 of which were brain surgeries. I had 3 just 3 months ago. I have been away for a little while, it is very nice to meet you. Each surgery, they still have to advise you some risks. It sounds like your surgeon is very experienced. I'm sure he will take every precaution to make sure things go as smoothly as possible. Try to focus on this being the start of an amazing journey that you are getting ready to take. Feel free to ask any questions you have about my hearing journey. Keep us updated.
    your bionic buddy,
    Adam
  23. Like
    Adam got a reaction from hetty avivi in Implant & switch-on   
    Travel
     When I first got activated, everybody's sounded like cartoon characters. Other things sounded totally different than I remembered. It did take some time for things to settle down. Eventually things started to sound more normal but again I had to work hard at it and be patient.  My second implant was completely different that activation. Everybody sounded like a robots and everything sounded synthesized. It was totally different from the first activation. Things seem to progress and much quicker the second time than the first. I hope you guys can get things figured out soon and start seeing some progression. I think a eventually you'll really enjoy it and be thankful that you made the right decision. 
  24. Like
    Adam got a reaction from hetty avivi in Implant & switch-on   
    Richard, I am really hoping you can get things worked out. I know you must be frustrated.
     I had something similar happened to me. It was with the higher pitch electrode 12. The sounds of even taking silverware and dishes out of the dishwasher it was to the point that it hurt. We ended up turning off electro at 12 for a little while until my ear Could get used to the new sounds and that I was hearing. Eventually we turned it back on and slowly started to turn it up to where it should be. Everything now is fine but I did take a little time. Try to have patience.
  25. Like
    Adam got a reaction from Julesrdh in Touching base   
    Hey everybody
    i hope all is well. I wanted to quickly update. Some of you know that I haven't been on hearpeers since the 3 brain surgeries in late April early may. 
    It has been a challenge bouncing back due to the trauma to my brain from the surgeries. Here recently, I have been in extreme pain. Had a CT Scan yesterday and found out that one of the ventricles in my brain has collapsed.
    they have changed the setting of my shunt as high as it can go to try and fill the ventricle as quickly as possible as this is extremely painful. Then once filled, back to original setting 
    I'm just rambling so will end it here. Hopefully in the next few weeks, I will be back. 
    Adam
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