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Ivana Marinac

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Everything posted by Ivana Marinac

  1. Hello Stream, As we have discussed this problem before the matter of saving residual hearing is not only the matter of an electrode length than the total process of implantation which is circled under one term - hearing preservation. Beside the main recommendations, there are still not presented unique recommendations rather what each surgeon plead as their own technique based on the experience of the implantation but also on the results of their patients.
  2. Interesting... Although announced for Sonnet, even Rondo 2 won't have a true wireless connectivity... I wonder why....
  3. Who knows...? They are definitely working on it...
  4. No, not in the close encounter. Not certain in which phase it, but if it was finished, we would see it. I remember of public presentation of the Sonnet - it was the real product in my hands, advertised as available...
  5. Actually, we still do not know now what is needed to understand (and hear it properly) a music. Here is a very nice link from the Nature journal: https://www.nature.com/articles/srep32026 Music is definitely more complex but if we would work on our ability of hearing (and understanding) music just as a fraction of the time we spend to learn to listen again (and speak) - results promise much better solution otherwise we have expected...
  6. Stream, Med-EL has shown Rondo 2 at the biggest ENT conference in Paris, I think. When it is actually produced it will be released everywhere where it is registered. But this is not so simple... For instance, even the product is registered in the EU, each country has to register a product for itself in order to be able to give patients in their country the newest product.
  7. Hello KBear, Pardon me for not getting involved before although Mary Beth tagged me, this post escaped me... As Mary Beth said, we cannot give you a valid medical advice but yes - we can clear you some question marks. If your daughter did not pass the OAE, she should be tested with the ABR. However, these tests do not measure same part of the hearing pathway so it could give an additional information. Tympanometry examined the pressure in her middle ear and the mobility of the eardrum especially if she had been implanted with tubes. But, that particular issue has been resolved and her potential hearing issue does not have anything with this separate issue. I can not explain the behavior of your surgeon, but you can ask for more co-operative ENT with whom you can establish a reliable relationship.
  8. Thanks - this is something that is in constant, although slow progress... Hope that Cara and I will celebrate our bilaterality - together!
  9. From the user's experience, would you find easier for using Rondo over Sonnet for children? Even later in their lives, parents find that BTE model of the outer unit makes more pressure on their children's earlobes than it would make Rondo model...?
  10. Well, perhaps the length of your electrode would be expected question... Hard to predict more except the anatomical issues of implantation although everything went perfectly well with your first implant...
  11. Will see - I am still in the grey area without an actual date of implantation. I did receive few promises as using Adhear and combining it with the BB would ask too many efforts. Of course, this is a good question - for him. Hope this will go much smoother....
  12. Huh... this isn't always easy to do... Being between two worlds - but, I will have your remark on my mind for further comments...
  13. Aaaahhh! - YES! - so happy for you... soon, I might join you on the bilateral path... stay tuned... P.S.: did they make any scans to see how things go with the other ear taking into account certain issues at you first implantation?
  14. Hi Girls, Legal notice of the manufacturers stated that the internal units will function for 20 or 25 years. It is something that they need to do, so any surgeon who promised you a lifetime implantation wasn’t quite truthful with you. Or at least, was not aware of that. Reimplantation do happen and it is not so rare event, but good news that you have sort of guarantee where you’re protected against any further costs, or the manufacturer (most likely) will replace your electrode if it is an internal cause of failure – for free. Right now, I have a patient (a girl) who is a college student and will have her 2nd REimplantation, or in total – her 3rd implantation. Sometimes – life sucks and these things do happen… L
  15. http://s3.medel.com/pdf/28867_30_ADHEAR_Factsheet-EN.pdf
  16. Hello Jennifer, I started to write this post a few days ago but had some technical difficulties with sending it. It is a good idea, but unfortunately, the hearing threshold of the other ear should be better than 30 dB. I do not have the information what are the hearing threshold curves of your husband but 40% of hearing is definitely worse. Adhear, at first place, is for the conductive hearing loss. I am sending you a short booklet about Adhear intended for professionals. Or the single sided deaf ear where the other ear is - within the range of normal hearing threshold - up to 30dB which is not a case for your husband. If his hearing is constantly getting worse - he is a candidate for a CI on the other ear also which is actually very good.
  17. Layman? Pardon me, but sometimes balancing between the professional expression and trying not to write oversimplified - lose me. What can I describe better? Huh... Extremely bad sinus infection and cough put me in a pretty grumpy feeling...:( I was not in the mood for anything....
  18. Hello Kamini, I had a hunch MB... and stopped by I have my BB for 3 years now – my hearing loss is due to the other kind of pathology, a congenital malformation of the middle and outer ear which caused bilateral conductive hearing loss. That being said, let's return to you: it is mixed hearing loss due to your chronic middle ear infection, right? People usually stop by in the World Wide Web when they actually have a problem or are possibly misinformed. Or are not informed at all… Those who do not have some of the aforementioned, most often do not have the urge to explain their experiences. It is simply a statistical result. I understand your fear, because just like Lovecraft wrote: “The oldest and strongest emotion of mankind is fear, and the oldest and strongest kind of fear is fear of the unknown”, but there is no need for fear at all. Make an appropriate list of legitimately collected questions which you should present to your surgeon. It is and should be an open discussion between two sides in the process. I can hardly be objective here, because I was one of the firstly implanted people with Bonebridge more isolated because, even today, number of implanted people online is negligible, but I will do my best. The internal unit of BB is a bit of chubby and protrudes a bit above the surface of the temporal bone if it is not implanted completely. Sometimes a thickness of the temporal bone is not thick enough. Moreover, the problem is postoperatively standing away auricle but this is only for a month, most for two because of soft tissue edema. When the swelling goes away, your auricle will return to its natural position. Postoperative pain is something that is reasonable for expect, but that is why the painkillers were invented. Pain is highly subjective emotion (like fear) and while waiting for a full recovery of artificially wounded tissue (because this is a definition of an operation), it is reasonable to take something for. And … at the end – food for your thoughts … The forth day after the surgery, I was on my bike riding nearly 30 kilometers around the city where I live… I cannot think now more details, but if there is anything else where I can help – please remind me Ivana
  19. Hi Mary Anne, at the end, I wish you a pleasant journey - follow your dream and do not ever be discouraged by making you your own limits. Instead of that - go beyond it as further you can. All experiences here are unique, so if you have any question or possibly obstacle - there is an answer. Practice, Be Patient and - persevere. :)
  20. Greeting the idea also.... It is important for a child to have someone or something to identify with.
  21. Hi Kimmay, I understand you - I have approximately 4 hours of driving up to a place where is my clinical engineer. Yeah - any of the aforementioned battery brand works well and confidently. Even Duracell 625 - I have tested them also although they are not an implant type of battery which only means that they should be more potent or the distribution of power should be more uniform during its use. I like Power-One both because of their reliability but also a possibility of buying it. I buy mine on E-Bay, for instance.
  22. Well, try to rest as much as you can... Pain will go away, the vestibular apparatus will calm down... Try not to irritate your jaw with too solid food - allow yourself plenty of rest. Of course, dizziness is a major cause of feeling nauseous.
  23. Huh! interesting.... I am regular user of Power One and Rayovac mentioned above and I have never experienced something like that.... I might experience that few batteries are not as strong as some other... but, then I change them and - everything is well then...
  24. Active stimulation range is longer with Flex28. Like I have described - a dynamic of the hearing loss advancement is also important. There are various approaches: some surgeons do understand the effect of preserving residual hearing although it is vanishing, some just override that period and trust to the electrical stimulation which eventually will replace all natural hearing.
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