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Ivana Marinac

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Posts posted by Ivana Marinac


  1. On 22/10/2017 at 0:29 PM, stream2525 said:

    I didn't understand. Do you hear without a processor ? :o

    No Stream - there is no wonder healing.

    The WOW moments which we describe happen as the consequence of the natural evolution of the neuroplasticity of our brains after it is properly stimulated. 

    Problem with hearing aids is that they stimulate dying hearing cells - with time the total amount of these cells are less and less. This means that neural hearing pathways are not stimulated as they should be - the final result is worsening of hearing abilities: brain fells into a sleep like sleeping beauty... Or less romantic - try to immobilize your arm/hand or leg for a week and see what will happen with your muscles and consequently with strength and the ability to move it properly. It will vanish little by little... 

    But - the best part is that as well as muscles, your brain remembers all these stimuli and the ability to understand sounds. With time and practice, the ability of our brains to improves itself is enormous so people start to discern subtle differences which they didn't even dream that they would ever be able to do. 

    So here comes the uninformed moto of our forum: 3P's - Practice, Patience, and Perseverance. Like muscle gets its strength to move or lift more weight, so brain evolves its abilities to understand, differ and improve each day more and more... 


  2. Hi Stream,

    It's definitely implantees who had an experience of hearing in their formative years. This means: proper transmission of sound through the implantee's brain happens in the appropriate time-frame although - sooner is better. If you had a good hearing threshold in this period (up to 4 years old), you do not worry regarding this particular issue because your brain had all potentials to evolve a fully functional neural hearing net between. 


  3. Mmmm... Very interesting discussion - even for professional circles.    

    To properly set this puzzle many questions have been raised as well as answers were given, but … There are some missing parts so let’s start from the elementary: first question which should be regarded as a dynamic of Stream’s losing his hearing; and second is were there any stable periods and how long did they last.

    If Stream’s hearing loss is even a bit stable, EAS system should be considered because preserving a natural sense of lower frequencies are still worthwhile because processing of the electrical stimulation and natural hearing does not go the same way as well as the acoustic amplification.

    The situation of fast deterioration of hearing is absolutely and without any doubt, the case for recommending a cochlear implant with a standard length of electrode no matter the situation of having useable lower frequencies. Having more than one operation in a short period of time is – not effective for anyone.

    If we consider the situation where hearing loss progresses in a far lighter version, EAS is recommendable because this type of system uses both ways of hearing stimulation.

     

    To answer Stream: with EAS only using Sonnet gives you the opportunity to amplify lower frequencies by natural way – acoustically, and that way goes through the ear mold. That’s why using Rondo is nor effective (because it can not set in motion the acoustic part in any way nor it is a logical solution. I do understand that you would like to get rid of hassling with an ear-hooked outer part but this goes contrary your gain.

    I hope you do understand that cochlear implant is not – a hearing aid and that rehabilitative part is nor easy nor 100% promising solution of getting a perfect result.

    Having in mind these keys for a serious discussion which will have serious repercussions on your life, any definitive answers you should seek with your ENT surgeon. If you need, talk with more than one, but keep always in mind a thought that part of the decision is in your surgeon’s hands – otherwise all professional discussions would not have any sense.

    I remember the EAS discussion on this world ENT Congress – it was a very dynamic talk between “giants” in our profession. Each one of them had part of uncertainty in this matter in a way that each patient should be discussed individually.


  4. Mary Beth is right - ask your ENT for further information about EAS system - basically, it is also a cochlear implant but for a partial insertion and keeping lower frequencies as far as it is possible. 

    Unfortunately (although it sounds a bit less invasive) - Soundbridge is not a solution for the threshold of your hearing loss. Soundbridge is a solution for stable threshold and up to 75 or perhaps 80 dB. Please, be aware that I have stretched a lot these numbers and are not according to the producer.


  5. Hi Stream,

    Can you describe a little bit better your hearing loss curve or even show us your audiometric findings.

    Why I am asking you that - a hearing loss which is deteriorating over years significantly profits better from the EAS system than the implantation of the Soundbridge.

    Yes, it was developed for a sensorineural hearing loss but the loss of the inventor was stable. The majority of people who are losing their hearing lose it steadily but continually in the higher frequency spectrum. Putting an implant which is not adequate is technically possible but ethically and professionally questionable. 


  6.  

    Actually, as the route of sound transfer for a bone conduction hearing loss is different than in sensorineural (transfer over bones of the skull) the lower frequencies are impacted at first in order of speech intelligibility and sound quality. That's why I thought that I should work more with lower frequency band than with a high band. This was a mistake, higher frequencies were underestimated on the expense of lower and were overlapped by them. So, practically my overall speech intelligibility started to deteriorate and we couldn't reach the conclusion why is this happening.

    Taking into account of my own experience of what is the real hearing spectrum, I used to think and still have this feeling that it is more in the lower frequency band. But, more and more I think about all my fittings, I start to understand that my intelligibility is more of how I perceive higher band no matter what timbre and the overall roundness sound is given by lower spectrum band.

    So this is part of my own subjective acoustical experience where none road is exactly right - you have to choose each one, sometimes being boring but getting the best possible result taking into account of your own needs. Practically, this means that none of us has same daily scheme and surrounding acoustical challenges. Our working environments surrounded with different equipment or teaching in the classroom are fundamentally different. Not to mention if you are home-based or visiting restaurants which have a different level of background noise in different cultures. 

    To reach the conclusion :P - we have concluded that dust on the microphone distorted to sound more easily because the lower band overlapped the middle and higher band.


  7. On 10/23/2017 at 0:25 AM, Kara of Canada said:

    @Mary Beth and @Ivana Marinac  question for you both. I have an amazing Audi but she is on maternity leave. The replacement is telling me that I should have stabilized by now and I shouldn’t bother to come back for at least 18 months! I haven’t managed to go more than 7 months without a visit to change my mapping. What’s the best approach to this? I went in in August because I needed an adjustment. I’m scheduled for my two year appointment in December. Not sure of the best route here. 

    Hi Kara,

    I support Mary Beth's thoughts regarding this issue.

    As pretty substantial portion of tests done in the audiometrical testing are subjective - elementary taken, only we can say whether we should stop doing fittings or we still think there is something what we can change or we've made a mistake or even have to do "an average solution" which satisfy us more in functional than overall experience. To be more precisely, I can describe my recent activity when I returned to one of my old map from the March of 2016. after almost a year and half of wandering around because I could not differ whether my understanding issue is linked with different setup of hearing frequencies. At the end we have found that dust on the microphone made a speech intelligibility alteration in order I could not presume. So, I am thankful up to the heaven and back for a patience and support provided by my clinical engineer regarding the particular issue of my own feeling of "comfortable" hearing.

    Regarding the stability of hearing, it lasted longer for me with shorter perioda between mappings but when I reached the level of "enough" intensity I have found stable - this does not mean that small alterations were not required but with incremential effects on my everyday life.


  8. 16 hours ago, Mary Beth said:

    I love your WOW moments @Ivana Marinac!  Recognizing the musical instrument voices when they are playing together is a favorite WOW moment of mine too.  I can’t get enough of it.  And then later on it blows my mind whe I realize I am listening with only a limited number off ekectrodes versus an acoustical hearing ear.  The power of the brain!  I love neuroplasticity.

    Just - awesome! A word which comprises everything - your training actually gives me a direction what I could do more... It really inspires me... :wub:


  9. On 15/10/2017 at 10:04 PM, Mary Beth said:

    I have heard similar things quite a bit about how the Sonnet is more advanced than the Rondo due to dual mic settings.  (We really can not comment on the built in 2.4 wireless connectivity since it is still a FUTURE tech and hasn’t been released yet.)

    I have friends who are huge Rondo fans.  Even though the Sonnet has dual mics.

    This past month of using my Rondos only has been quite educational for me.  I do not miss the Sonnet dual mics except in very noisy places.  The Rondos are so much easier to use.  My batteries last a bit more than 3 days in the Rondos so I just change them after 3 days and never have to worry about dead batteries at inconvenient times.  The Artone 3 MAX works just as well with my Rondos as Sonnets and now I have CozyPhone headband headphones too for my Rondos.  Terrific stereo sound that way.

    I am going to spend one more month using my Rondos only and then return to my Sonnets.  Stay tuned.  Smile.

    For some people, the Sonnet dual mics have given them the ability to hear in situations that they could not hear in before.  I think that is terrific.

     

    @Ivana Marinac

    Definitely Mary Beth - for instance, having ability to hear in noisy places is a terrific advantage, although everybody points toward easier wearing of Rondo.

    If I can ask you a favor, is there a possibility to compare using of unilaterally Sonnet and Rondo? Unfortunately, this is a situation in my country and I would love if I could have the possibility to advise people in these situations. 

    Thank you, Mary Beth, for all - you are such a valuable member of the community, a true discoverer, and experimenter. 


  10. Hello Gang,

    Although I was never completely deaf my situation is different - even when I had my hearing aid, everything sounded melt into one big bowl of porridge.

    First WOW sound is definitely when I have heard (right after the activation) a difference when my Doc started clicking on a keyboard right beside a sound speaker - Rolling Stones were on.... 

    Second WOW was the next day - after a night call, off-duty team passes a status to the next - on-duty team. A high ceiling room with a catastrophic acoustic where I could never differ 2 voices - suddenly I could understand 2 or even 3 discussions between. This was and will be such an exquisite moment for my lifetime...

    Third WOW was definitely hearing a rain outside with closed windows.

    Fourth I have such urge to describe as I am an extreme music lover - hearing a symphonic orchestra and having the ability to differ a separate instrument. Hearing an organ or harp in this big mess... Unforgettable... 


  11. Hello @Vera,

    Unfortunately, I do not speak Portuguese so I will try to answer you best as I can - in English. 

    Technically speaking, you are now single sided deaf person due to the acoustic neuroma tumor removal. The second ear for a human is important in order to enable them a sound location but also giving them a richness of sound in order to better understand speech, especially in noise. In practice, this operation gives you the ability to pick up a sound from your deaf side and direct it into your functional ear in order to give you the latterly described ability. Unfortunately, for having directionality, you have to have two functional cochleas so this feature is not possible to restore. More detail, an internal unit is implanted in the temporal bone, on top of it comes outer unit which picks up a sound.

    If you have more questions, please ask further....


  12. Interesting observations Mary Beth - up to some extent 2 mics are the advantage... 

    I have one family now who consider buying of Rondo or choosing Sonnet as their regular exchange processor from the insurance company. Based on theory, I voted for a Sonnet although the girl is unilateral implantee. And being in over-crowded public places require more comprehensive support.


  13. Hello Jude,

    before trying to find the best possible ynswer for your case, I need few more data. At first, in what condition is your ossicular chain?

    Do you have a conductive or a mixed hearing loss due to the involved cochlear component?

    What is the reason of your unsuccesful stapedectomies?

    Breakthrough of Soundbridge implant is in its versatility. It is suitable for all kind of HLes because it can be implanted on the ossicular chain (incus, various parts) or straight on the round window which is called the process of vibroplasty.

    The difference between these implants is in the ease of implantation as well as more sound intensity thankfully to the placement of the FMT part.

    The Bonebridge is declared up to 45dB, but it can achieve almost effortlessly the intensity up to 65-70dB. On the other side, the active part of a BB implant is placed in the bone behind the ear; a significant difference with Soundbridge acquired drill near the chorda tympani. If a temporal bone is thick enough, active part of BB is well enclosed within it so there is no problem of sleeping on the implanted side.

    ok, this is just a fraction of possible direction of my answer. Looking forward to read more details...


  14. 17 hours ago, Mary Beth said:

    I love it when @Ivana Marinac shares research links!

    Thank you, Mary Beth...:wub:

    I believe that sharing knowledge give patient a reasonable chance to find at least confirmation if not an information to help themselves. I was given that chance so I fully understand how this approach can help others. Last year when I was given a chance to opt for one of my earliest wish I ever remember I have asked aloud. This is how I understand that I can and should help. :)

    Hope Juliette will finally find her solution and that she will not give up before a good fight... 


  15. Hello Juliette

    I am enclosing within this post a link to a study where it was successfully reconstructed a sigmoid sinus wall. It is possible to be done. I would encourage you to find a surgeon who is confident enough to revise your case. 

    http://journals.plos.org/plosone/article?id=10.1371/journal.pone.0164728

    https://www.ncbi.nlm.nih.gov/pubmed/25991486

    Pulsatile tinnitus can be a real pain ...


  16. Hi, Mitchell,

    Pretty good damn little thing :D 

     

    Joking a bit, but not when we're talking about the impact it made personally in my life. I use mine since it came out and I reminded almost immediately the improvement regarding its technical abilities. 

    I was even more astonished when I heard for the first time the music streamed over miniTek streamer.... 

    What kind of hearing loss do you have? 

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