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Ivana Marinac

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Posts posted by Ivana Marinac

  1. Hello @Vera,

    Unfortunately, I do not speak Portuguese so I will try to answer you best as I can - in English. 

    Technically speaking, you are now single sided deaf person due to the acoustic neuroma tumor removal. The second ear for a human is important in order to enable them a sound location but also giving them a richness of sound in order to better understand speech, especially in noise. In practice, this operation gives you the ability to pick up a sound from your deaf side and direct it into your functional ear in order to give you the latterly described ability. Unfortunately, for having directionality, you have to have two functional cochleas so this feature is not possible to restore. More detail, an internal unit is implanted in the temporal bone, on top of it comes outer unit which picks up a sound.

    If you have more questions, please ask further....

  2. Interesting observations Mary Beth - up to some extent 2 mics are the advantage... 

    I have one family now who consider buying of Rondo or choosing Sonnet as their regular exchange processor from the insurance company. Based on theory, I voted for a Sonnet although the girl is unilateral implantee. And being in over-crowded public places require more comprehensive support.

  3. Hello Jude,

    before trying to find the best possible ynswer for your case, I need few more data. At first, in what condition is your ossicular chain?

    Do you have a conductive or a mixed hearing loss due to the involved cochlear component?

    What is the reason of your unsuccesful stapedectomies?

    Breakthrough of Soundbridge implant is in its versatility. It is suitable for all kind of HLes because it can be implanted on the ossicular chain (incus, various parts) or straight on the round window which is called the process of vibroplasty.

    The difference between these implants is in the ease of implantation as well as more sound intensity thankfully to the placement of the FMT part.

    The Bonebridge is declared up to 45dB, but it can achieve almost effortlessly the intensity up to 65-70dB. On the other side, the active part of a BB implant is placed in the bone behind the ear; a significant difference with Soundbridge acquired drill near the chorda tympani. If a temporal bone is thick enough, active part of BB is well enclosed within it so there is no problem of sleeping on the implanted side.

    ok, this is just a fraction of possible direction of my answer. Looking forward to read more details...

  4. 17 hours ago, Mary Beth said:

    I love it when @Ivana Marinac shares research links!

    Thank you, Mary Beth...:wub:

    I believe that sharing knowledge give patient a reasonable chance to find at least confirmation if not an information to help themselves. I was given that chance so I fully understand how this approach can help others. Last year when I was given a chance to opt for one of my earliest wish I ever remember I have asked aloud. This is how I understand that I can and should help. :)

    Hope Juliette will finally find her solution and that she will not give up before a good fight... 

  5. Interesting discussion....

    However, from the point of technology, I would go for the Sonnet. Rondo is now a bit of an old model - Rondo 2 is already on the door but still doesn't have all technological improvements like the Sonnet which was introduced in 2014.

  6. Hi, Mitchell,

    Pretty good damn little thing :D 

     

    Joking a bit, but not when we're talking about the impact it made personally in my life. I use mine since it came out and I reminded almost immediately the improvement regarding its technical abilities. 

    I was even more astonished when I heard for the first time the music streamed over miniTek streamer.... 

    What kind of hearing loss do you have? 

  7. Hi, Hetty,

    I guess that your mother has a normal hearing threshold on the left side then but having some "glue ear" episodes if her hearing gets worse having a cold?

    I am really not familiar with the existence of the different model of Amade otherwise than the regular one which is swapped in Europe for Samba model. 

    This explanation with a battery sound really interesting because I am not sure how it is possible - did they test the position of the implanted part (the FMT part)? 

    On the other side, Samba has more power, so the higher value of intensity is possible to achieve. 

    Having a mixed hearing loss is a problem a bit because it's partially the loss of the inner ear too. It depends on how it is affected - to what extent. 

    Did you get only one program or there are also different programs? When I had Amade, I had 3 different programs and one was for the situations when I am in a situation of a loud background noise - then that program actually lowered it and I could function pretty normal because voices actually came up on the surface burying the unwanted noises in a cellar, figuratively spoken. 

    Unfortunately, I am not aware of anyone who would know a Dutch here, on the forum. But hey, I am from Croatia - so just being here I practice a bit of my knowledge of English language. For the rest - there is Google translate ;) 

  8. Hello, Dangkhoa!

    A Bonebridge implantee here also ;)

    What do you mean by - "waiting for your magnet"?

    If you meant that you wait for your outer unit or processor - it depends on when your team thinks you're ready taking into account the postoperative swelling.

    Otherwise, the whole set of magnets should be put in one implant box, by that I understand a different strength of magnets.

  9. Hello,

    Sorry your mother feels worse, but did she ever went for refitting her device?

    Which sound processor she use - Amade or Samba?

    And last but not last - what kind of hearing loss and up to which hearing threshold is your mother's loss?

    Problem of digital HAs and same with implant technologies that usually people are not explained how important re-fittings are in our hearing lives. I had so many fittings that I can't even remember, simply because my hearing situation has changed a lot and often.

  10. Hello Hetty,

    well - yes: Samba is better from the acoustically point of view. Much better.

    The secret is that you have to work with your audiometrist or who tune your Amade. If you can not get satisfactory hearing (without echos), try to contact your local Med-El representative. They help a lot with tuning because it's all they do. My audiometrist, at one point, couldn't make a significant progress (the processor started to howl) - then an engineer by Med-El resolved it in a minute.

    Regarding your hearing loss - I am still not certain that I have understood you well: forgive me, I am not a native English speaker.

    You have a mixed hearing loss on both ears?

    what do you mean when you say that you have a complete loss at one side - you're deaf completly?

  11. Hi Juliette,

    I have recently been thinking what was going on further with you.

    If I may ask, if they do not know whether removing the internal unit would make it go the pulsatile tinnitus than something else could be a reason.

    I still think that your device shouldn't be removed totally just relocated which is possible. 

  12. On 04/09/2017 at 3:08 PM, hetty avivi said:

    Hi 5 years passed since you put this post,I got my vibrant sound bridge in april2017 and the turned it on last June...

    Wonder how did you manage the first months and now after 5 years...

    Hello Hetty Avivi,

    I am not a Soundbridge, but a Bonebridge user... But have some experience by being a while here - what exactly interest you?

    What kind of hearing loss do you have? Sensorineural, conductive ....?

    Please, put here as much questions as you are interested in? We'll try to give you an appropriate answer.

    ;)

  13. Hi @Renachelw,

    your questions are perfectly justified - patient should choose to go for a surgery when a maximum of confidence has been reached with a surgeon: both objectively or subjectively. After surgery we feel broke and sometimes even a small amount of pain made us to focus on it. I have seen lots of situation when people needed just a little support to endure their procedures. Although, I am not as @Adam regarding the number of surgical interventions - I have had lots of and ... to be frankly, it's like cleaning your house: when everything has its shelf - everything will go better. 

    But, to be more specifical: list of side-effects of the op is an legal act - not just that a doctor protects against you than it works reversely. How? An informed patient can work with innerself. I am telling you as a patient but also from the surgeon's perspective.

    Meningitis - an opening into a cochlea will be done, no matter what is done to prevent that, there's a chance for that. 

    Facial nerve damage depends of patient's anatomy - sometimes it could be closer to a extremely tiny space to approach a cochlea: a direct hit today is unlikely, but a reversible impairment because of tissue damage (of temporal bone) also could happen - but it's highly unlikely. On top of that, today a facial nerve monitors are presented in each otosurgical OR and it's highly unlikely to damage it permanently. Same works for a "taste nerve", or as Hadron said - for chorda tympani. However, this nerve has greater anatomical variation and although more often it's reaction is as a consequence of surrounding tissue damage, sometimes it can be hit directly. 

    For a closing, don't think about these minor percentages - if you're scared, you will never flip a new page in your life. Leave that side of worry to your surgeon - he is surely competent to do an implantation: CI ops are not spot where you start your career than only high-skilled surgeons can qualify to do this task.

    Good luck!

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