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Ivana Marinac

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Posts posted by Ivana Marinac

  1. And I am very, very, VERY late...

    Pardon me Gang for my delayed response - so much came suddenly...:(

    AkSal, from what you've written I understand that directionality is very important to you. Bonebridge can not help here, but a CI - can ;)

    First researches then real patients learnt scientific community that, thankfully to the neuroplasticity, human brain can tolerate artificial sound at the begining which translates into a normal one after some time. Practice makes a master - not to forget, just like Mary Beth said. ;)

    In social gatherings, a cocktail party effect is important - it depends on whether individual use both ears/cochleas or not. So this is another reason for a CI as the solution. 

  2. On the other side, I do not see a reason of SSD implanting with a CI.
    Long ago, here was active a person under alias of Royal "something" who posted a little bit so - she was implanted with one CI.

    Finally, we have our lovely moderators Leigh and Ben who are very supportive and will point you at the right direction - they work for Med-EL.

    Beside music, a SSD is the hottest subject now at all CI congresses.


    Sent from my iPhone using Tapatalk

  3. I support Adam's thoughts...
    Sometimes, I am jealous that I do not know more of sign language or even reading of somebody else's lips because, essentially, when there is noise or we shut down our gadgets - we are deaf. It's a fact and something what we do not need to be afraid of then standing tall against all odds.
    Esentially, people around us - will and wish help. Having opportunity to watch this in the reality when I was a no-believer...
    This changed my attitude toward humanity entirely - started to cherish the words of old masters of mind like Lui Clapier who said that: "...Patience is the art of living ... we shouldn't be absent of patience even when possibilities for the achievement is so tiny so we feel it - at our skin...".

    Bye Folks! [emoji2]


    Sent from my iPhone using Tapatalk

  4. Hello Sam,

    About rehabilitating single-sided-deafened ear professionals started to discuss 2 or 3 years ago.
    The longest worry was how shall the brain integrate different sounds from both sides: the one which hears normal and the other - deafened.
    Practice has shown us that science was cautious (maybe even too much) but now we're sure that, thankfully to the process of neuroplasticity, your brain will be able to understand these signals equally.
    Of course, normal hearing we have - only once, but bilateral hearing add not just quality of sound than funcionality of sound-directionality. These things are not something what we should just forget about. Not to mention the biggest problem fir you - tinnitus, which patophysiology was long-time (even now still is) riddle for hearing and neuro-scientists.


    Sent from my iPhone using Tapatalk

  5. Ivana,
     
    Dont you find the way Maestro is used by Med-El to be a little confusing because they also call the software Maestro 6.0?
     
    Kblgy,
    Med-El makes their new processors backwards compatible with older internal implants.  So we can use the newest processor (Sonnet) with older internal implants that came before the Synchrony implant.  In fact I am presently using two Sonnets: one with an internal Synchrony implant and the other with an internal Concert Implant.
     
    If you do a search on Med-El you can look back to see how long the term Triformance has been being used.  Med-El has a timeline on their website also under History of Med-El that shows when the various devices became available.
     
    I see you are in the US.  I wasn't aware that there were clinical trials in the US using the Concert implant.  Interesting.  
     
    When will you receive your implant?


    Possibly MB, but as kblgy does not know for a sure, I have to presume the other possibility.
    Who knows...

    Sent from my EVA-L09 using Tapatalk

  6. hi, what is the difference between the maestro and synchrony please?  do they both use triformance?
    thank you, kblgy


    Ok, most obvious difference is that these are 2 completely different generations of cochlear's system: Synchrony is the newest:
    http://www.medel.com/int/show4/index/id/1468/title/SYNCHRONY/
    with Synchrony as the implant and Sonnet as the speech processor.

    , and Maestro is older:
    http://www.medel.com/products-maestro-components/
    It is consisted of Concerto or Sonata internal inplant and Opus as the speech processor.

    Triformance combines three technologies as the prerquisites to get better results of the implantation: complete cochlear coverage, fine tuning and atraumatic electrodes which minimize not to deviate any aspect as the foundation for a thorough rehabilitation.
    [emoji6][emoji3]

    Sent from my EVA-L09 using Tapatalk

  7. Hello Jannine,

    I am feeling sorry because you experience unexpected pain - do you take any pain relief medication?

    Postoperative day 4 is still early on your healing way, as you have observed you have and will have oedematous temporal flap for at least a month.

    Perhaps, it was not well described to you but, essentialy the BB implantation is cortical mastoidectomy. I can not tell - "it is nothing...", although - everybody responds individually...

    For instance, I did not have any pain at all (but I am little bit awkward example). I am a unilateral BB implantee, 3,5 years up to now.

    My advice to you is to take a plenty of rest, try to exercise a bit (it did help to me), take a pain relief medication...

     

    If I may ask you, what is your "hearing loss history", how did you hear for and made your choice for BB?

  8. On 24/11/2016 at 11:36 PM, Megan L. said:

    Hi Ivana, 

    Great to formally meet you! I hear only the best things about Croatia. My roommate in college was from Croatia and she showed me pictures of your beautiful country. I would love to visit one day!!!

    Who doesn't love Batman?! A great hero ? I love when people jump into conversations, it makes it so much more interesting!

    Amazing! How are you liking the bone bridge implant? My mom thought that would work for me but my hearing loss was too severe. The implant is doing the trick ? I too grew up hard of hearing. When I was 2 and a half, I was really sick with chicken pox and shortly after I loss part of my hearing. Two fistula operations later I had a severe/profound loss. My left ear was my worse and has since been implanted. I have no regrets about anything- this is my normal ?  I'm looking forward to the new journey and new open doors the implant brings me! 

    I'm incredibly thankful for this forum as I spent my entire life by myself as a hard of hearing person. It's so nice to be able to talk openly about things/struggles and people understand. Amazing support!

    sleep tight Ivana and we'll talk soon ?

    Thank you, Megan - for your kind welcoming ticket to this interesting party. :D

    He-he... Interesting story and how the character of Batman was created but I use it mostly because of this particular detail of showing time. ;)

    Can't believe it - what a tiny small world is this one... But, yes - Croatian people can be found everywhere: we are great wanderers. Just like that, I hope you'll have opportunity to visit Croatia. This part of Europe is quite interesting....

    Regarding my implant status - I feel as I am reborn, but not just as human being than as a person. How much more information you can process and understand other's attitude, as well as their behaviour when you can - hear them properly. Recently I had a short episode of returning to my history, to my HA. I remember that I have dream once before - whether I have just persuaded myself that my Bonebridge is so much better or this is the real thing....? Then I got a chance to test myself - trying to communicate with my HA. Ahhh.... what a difference this was - regarding sound but also regarding the vibrations which were so hard that I craved for shutting it down... Used it only for the most essential and shortest possible communication. Also, as I am an ENT doctor, BB gave me opportunity to meet so many interesting people on various conferences all over the world: met different people, different continents (not just countries), even the developer of Soundbridge and Bonebridge, Geoffrey Ball and others. I felt a huge honor to get the opportunity to understand the world of hearing on one side trying to describe the world of silence, on the other side. 

    My hearing loss is the consequence of a congenital syndrome which gave me bilateral atresia combined with microtia regarding hearing issues. As well as you, I do not have memory of how is it really to hear a certain sound, but I cherish music a lot, and this I would miss at most... I guess. My decision for implant was pure necessity so I could continue to work. With a digital hearing aid, I was only half functional - it tired me a lot because of constant hearing fatigue which arouse almost each afternoon. I have constant urge to shut it off - I knew this wasn't right. When I wore it, I imagined how it would be great just not have it at all....

    How did you decide for your implantation? How come it wasn't earlier?

    I came here in order to find someone whom I could talk about Bonebridge, but it actually continued in much more different way. I got interested for the world of CI when I started to read lines of my friends, their observations partly guided me on my way toward better hearing as I didn't have someone just like me; on the other hand, I have started to develop my professional interest for CIs which has now prolonged into part of my afterwork activities of helping in an association of CI's implantees. Like it a lot - so much ideas. This enriched my life - we all, secretly, ask for some elementary answers or understanding in our lives: hearing people, no matter how compassionate they could be - can not understand that but are those who participate in our treatments, research activities etc. It's time for hearing impaired people to stand for themselves...:)

    Ok... Rambled a lot - I guess I slept extremely well... :D:P

  9. Hello Megan,

    Writing you from the other part of the Globe - Europe is my playground and Croatia is my homeland where I live and work ;)

    I usually jump into the pool while you're sleeping or going in the bed so my posts appear just like Batman wrote them :ph34r:

    I am not a CI than a bone conduction implantee - Bonebridge which is also one of the Med-ELs product from the portfolio. I am moderately bilaterally hearing impaired since birth grew up and made my whole education with one HA which has distinguished place in my heart for giving me opportunity to function almost as the normal person. On the other side, my Bonebridge gave me a completely new dimension of understanding and enjoying my everyday life as well as enjoying to work. I got chance to meet incredible people in real as well as people here at the forum who became my friends by supporting me in my lonely days. To quote Kara: we smiled, laughed and supported each other - we learn by reading our experiences and talking about them... We understand our utmost feelings and fears on that feeling....:)

    Time for bed! ;)  mine... :ph34r::P

  10. On 09/11/2016 at 1:32 AM, Kara of Canada said:

    Yes Megan! I'm enjoying life with sound!! I absolutely love my implant. I can hear music again. I can talk on the phone again. Even regular conversations I don't have to ask everyone to repeat themselves every time. I go for my one year mapping in december. I will likely hear then weither they are going to do the second implant surgery or not. So I'm excited about that. This is the best group of people I have ever met. We (as crazy as it sounds!) have laughed and cried together. We have learned so much from each other. I feel like a kid in school again as we have learned so much together. So believe me when I say this you're in the right place!!! ❤️

    ;) literally Kara... Best actions cause - best feelings...

     

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