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Ivana Marinac

HearPeers Heroes
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Posts posted by Ivana Marinac

  1. On 04/09/2017 at 3:08 PM, hetty avivi said:

    Hi 5 years passed since you put this post,I got my vibrant sound bridge in april2017 and the turned it on last June...

    Wonder how did you manage the first months and now after 5 years...

    Hello Hetty Avivi,

    I am not a Soundbridge, but a Bonebridge user... But have some experience by being a while here - what exactly interest you?

    What kind of hearing loss do you have? Sensorineural, conductive ....?

    Please, put here as much questions as you are interested in? We'll try to give you an appropriate answer.

    ;)

  2. Dear admins,

    I have reminded in few FB groups about the bone conduction hearing loss questions about this, the newest product in Med-EL's portfolio - can we have a small corner like Soundbridge and Bonebridge have....?

    Lots of people are interesting regarding this product - it's easier to make a decision and more convenient if you are unsure.... ;)

  3. Well, the one or the other way - the SF part of the research community is all in this topic. We shouldn't forget that some of greatest mind before 40 years said - No way! There isn't any chance that something like a cochlear implant will ever work.

    And, look at you Gang today? :P

    Like in that famous story where a wise voice tell us the wisdom of the story that if you can not find the door - try to find a window: research community always considered the blindness as bigger problem than deafness.... But Helen Keller taught us: if you loose your sight - you loose a contact with things, but if you loose a hearing - you loose a contact with people.....

    But, let's get back to the beginning....

    Actually, one study was published which actually restored hearing cells to mice up to 25 dB, but ... BUT - what is most significant here, story doesn't end with restoring just hearing cells with the stem one - behind them there is a complex neural network which also has to be restored up to the perfect level to - have a perfect hearing once or again. As we all know, our hearing neural pathways don't develop at all or weaken if they are not appropriately stimulated - just like any muscle in our body, nature has its laws which we can not just jump over. I believe A. EInstein said: As much as I learn more, I found out that less I know... Horizons get wider.... Life teach us to be patient, practice as much as we can, persevere .... From Greek mythology up to Albert Camus and Franz Kafka it was lively explained it in the story about Sisyphus...

    Cheers! :P

  4. On 2017-7-17 at 8:20 AM, salman said:

    dose it sound same as it used to ? 

    Hi Salman,

    Due to the process called neuroplasticity which literally means exercising your brain like your muscles, your hearing abilities improves each day. You have to work hard however, but - only strong succeeds. ;)

    Today there are so many succesful but also there will always be averaged stories - I would underline that this depends on the amount of invested effort. A healthy but less activated brain forgets words, occasions, people - even music etc. But wonderful part is that like it goes away - it returns also. You do have to work not however - this is an useful mantra.

  5. On 2017-7-17 at 3:01 AM, Kara of Canada said:

    Surgery is different for everyone. I also had profound loss in my implanted ear. I couldn't hear music or talk on the phone before. Now I can do both!! This implant is the greatest gift I ever received!! Best of luck and keep us posted!! 

    Well, Kara - there is a reason why in the scientific field a CI is capitalized as the most successful neuroprosthesis EVER! ;)

  6. Hi @Renachelw,

    your questions are perfectly justified - patient should choose to go for a surgery when a maximum of confidence has been reached with a surgeon: both objectively or subjectively. After surgery we feel broke and sometimes even a small amount of pain made us to focus on it. I have seen lots of situation when people needed just a little support to endure their procedures. Although, I am not as @Adam regarding the number of surgical interventions - I have had lots of and ... to be frankly, it's like cleaning your house: when everything has its shelf - everything will go better. 

    But, to be more specifical: list of side-effects of the op is an legal act - not just that a doctor protects against you than it works reversely. How? An informed patient can work with innerself. I am telling you as a patient but also from the surgeon's perspective.

    Meningitis - an opening into a cochlea will be done, no matter what is done to prevent that, there's a chance for that. 

    Facial nerve damage depends of patient's anatomy - sometimes it could be closer to a extremely tiny space to approach a cochlea: a direct hit today is unlikely, but a reversible impairment because of tissue damage (of temporal bone) also could happen - but it's highly unlikely. On top of that, today a facial nerve monitors are presented in each otosurgical OR and it's highly unlikely to damage it permanently. Same works for a "taste nerve", or as Hadron said - for chorda tympani. However, this nerve has greater anatomical variation and although more often it's reaction is as a consequence of surrounding tissue damage, sometimes it can be hit directly. 

    For a closing, don't think about these minor percentages - if you're scared, you will never flip a new page in your life. Leave that side of worry to your surgeon - he is surely competent to do an implantation: CI ops are not spot where you start your career than only high-skilled surgeons can qualify to do this task.

    Good luck!

  7. This is a moderate upto severe mixed hearing loss of the right ear - were you ever suggested a stapedotomy?

    This is usually a finding of far advanced otosclerosis. 

    Regarding your question, sure - why not: Bonebridge or even Soundbridge would be even a better choice because it brings more powerful, highly focused sound on the round window without middle ear reverberations. 

    Left ear also needs some attention - for a start, is this a permanent state of hearing threshold or it moves? Stapedotomy is first what should be considered.

  8. On 2017-8-9 at 5:58 PM, Mary Beth said:

    I knew you would remember the stethoscope @Ivana Marinac!  Smile

    Yes, yes, yes.... I have interacted in an conversation with a Polish student who returned a positive feedback on using The One stethoscope on my suggestion. I am not sure for a BT connection but wired version is recommended by the manufacturer and its reliability has been tested.

    I use it with Samba however, but all in all - it's same content, although different package.

    I recommend this company - they were willing to do with me as a client regarding all my questions and askings. 

    P.S.: However, an hearing implant - its outer unit has to be adapted in a way that specially programmed map is made for listening heart sounds or murmurs because, as we know, it's out of reach of usual frequency range for an average user.

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