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Ivana Marinac

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Everything posted by Ivana Marinac

  1. So, let me jump as last in the pond? [emoji3] Hearing loss in general has its common parts but also specificities. We all learn one from each other. At first, let me excuse myself because of my spoken English - I am not English native, I do not even live in English speaking territories. I came here conducted purely by my professional interest - I am an ENT doc but my intention is not giving medical advices than learning from other people's experiences, possibly to give some scientific observations in exchange. Of course, not to forget - as a bilateral conductive hearing impaired person, I am implanted with one Bonebridge hoping for another. Or perhaps Soundbridge... This means that we have mutual understanding that everybody can help in some segment. For instance, your advices at workplace could also help me although we have different types of hearing losses - some things still unites us. [emoji6]
  2. On the other side, I do not see a reason of SSD implanting with a CI. Long ago, here was active a person under alias of Royal "something" who posted a little bit so - she was implanted with one CI. Finally, we have our lovely moderators Leigh and Ben who are very supportive and will point you at the right direction - they work for Med-EL. Beside music, a SSD is the hottest subject now at all CI congresses. Sent from my iPhone using Tapatalk
  3. There is also the FB group of hard of hearing musicians called The Association of Adult Musicians with Hearing Loss. Sent from my iPhone using Tapatalk
  4. I would rulled out that at first. [emoji6] Just to be sure... It's so lovely that your school acted so supportive. [emoji6] Sent from my iPhone using Tapatalk
  5. Great! So you see - sometimes the liberation of ourselves is hard decision but almost our duty. Henry Thoreau told: "Could a greater miracle take place than for us to look through each other's eyes for an instant". [emoji6] Sent from my iPhone using Tapatalk
  6. I support Adam's thoughts... Sometimes, I am jealous that I do not know more of sign language or even reading of somebody else's lips because, essentially, when there is noise or we shut down our gadgets - we are deaf. It's a fact and something what we do not need to be afraid of then standing tall against all odds. Esentially, people around us - will and wish help. Having opportunity to watch this in the reality when I was a no-believer... This changed my attitude toward humanity entirely - started to cherish the words of old masters of mind like Lui Clapier who said that: "...Patience is the art of living ... we shouldn't be absent of patience even when possibilities for the achievement is so tiny so we feel it - at our skin...". Bye Folks! [emoji2] Sent from my iPhone using Tapatalk
  7. So, balance issues has been ruled out? Sometimes, there is a clinical status called a postimplant CI vertigo. Has this been ruled out? Sent from my iPhone using Tapatalk
  8. Joining to my Band of Brothers - wishing you all best! Unfortunately, meningitis do that, so clinically - you need to act as fast as you can, within 6 months before a cochlea ossifies. After that, it is much tougher to insert the electrode without any damage. Like Hadron mentioned, a custom made electrodes make wonders. Sent from my iPhone using Tapatalk
  9. Adam - you're speaking in general about your son's operation, aren't you? Sent from my iPhone using Tapatalk
  10. Adam - I adore your selection of interesting stories where there are many angles to discuss. [emoji39][emoji2] Sent from my iPhone using Tapatalk
  11. I totally agree with Ana's thoughts and conclusion. As a child raised by my parents with bilateral hearing loss I find 100% correct their act. Although being a special kid who sometimes needs understanding or repeatings, he is still capable to do whatever he wants to. This move his boundaries. I remember when I was a kid, playing soccer, chasing with my brother through a wood, playing "catch me if you can"... After so many years, I have found 100% correct the decision of my parents - to play an instrument. These days, although hearing impaired I have one ghost: capturing music as best I can. I adore Beethoven's 7th symphony, second part or the Egmont's overture... So, up to the point that someone tells you that there is something what you can't do - you do not think about it. And I am not talking about bungee-jumping. We need pushing our boundaries to unlimit us - this act of mind develops our creativity of resolving problems, coping with our everyday life-time challenges - not just physical one than admitting to yourself: ok, this is something what I can't do... and I need someone's help - I need this to tell someone and need someone to understand. This is a lesson I have learnt while I was growing up. Take care people! [emoji6] Sent from my iPhone using Tapatalk
  12. Yes, Adam - both at the same time, but Alessandro already has one CI before and now it is time to activate the other one more? Or just train the newest implanted ear? Sent from my iPhone using Tapatalk
  13. Hello Sam, About rehabilitating single-sided-deafened ear professionals started to discuss 2 or 3 years ago. The longest worry was how shall the brain integrate different sounds from both sides: the one which hears normal and the other - deafened. Practice has shown us that science was cautious (maybe even too much) but now we're sure that, thankfully to the process of neuroplasticity, your brain will be able to understand these signals equally. Of course, normal hearing we have - only once, but bilateral hearing add not just quality of sound than funcionality of sound-directionality. These things are not something what we should just forget about. Not to mention the biggest problem fir you - tinnitus, which patophysiology was long-time (even now still is) riddle for hearing and neuro-scientists. Sent from my iPhone using Tapatalk
  14. Sweet thoughts you have, girls...[emoji3] Sent from my EVA-L09 using Tapatalk
  15. Sent from my EVA-L09 using Tapatalk
  16. Great quote, like the other: scars remind us where we were, not where we're going out Sent from my EVA-L09 using Tapatalk
  17. Possibly MB, but as kblgy does not know for a sure, I have to presume the other possibility. Who knows... Sent from my EVA-L09 using Tapatalk
  18. They did, but we'll see how their website will develop. Up to now, it points into the direction of this one, English spoken forum. Sent from my EVA-L09 using Tapatalk
  19. Interesting... Present thoughts of professionals are to implant the ear which has deafened latest, and then try the other way around. Before this era, it was different but scientists understood that the atrophy of the cochlear nerve is crucial for the success of the rehabilitation so it us better to start with better ear inspite of other reasons. Sent from my EVA-L09 using Tapatalk
  20. Great Alessandro! Just a quick question, why do you find it's dangerous to activate both IC? Except possibly, that you have to train more niw the other ear. Sent from my EVA-L09 using Tapatalk
  21. Great Alessandro! Just a quick question, why do you find it's dangerous to activate both IC? Except possibly, that you have to train more niw the other ear. Sent from my EVA-L09 using Tapatalk
  22. Haidee, What a wonderful photos of your son -- such a great character he is. [emoji4][emoji3][emoji3] I live in Croatia, a small European country, and I was in his domicile hospital in Lübeck. Great person and magnificient wizard...[emoji4] Regarding my implantation of the Bonebridge, luckily, I haven't had slightest issue: I didn't have pain at all. Actually, on forth postsurgical day I went' riding my bike for 30km and I felt great! You, however, had a bad luck - if your ENT expects blood in your middle ear cavity, it seems to me that you have an open communication with the mastoid cavity. From what you have explained to me, it seems that the severity of your middle and outer ear is grade 1. I have more severe grade both: left without and right with narroe ear canal. Ear canal is present but - not too useful. In my case, it is the other way around: it happens that I am not a candidate for the BB, but might be for the Soundbridge. But before everything else, I have to finish my outer ear reconstruction which is why I plan to see Dr. Frenzel again very soon. He is the one of very few ENT surgeons who started to implant Soundbridge with atresia group of patients. Great man! Did you have an opportunity to contact him regarding your postoperative accident? Putting a grommet is a reasonable option if blood in the cavity has organized. Sent from my EVA-L09 using Tapatalk
  23. Hello Haidee, Dr. Frenzel is also my Doc [emoji3] I was born with bilateral microtia and atresia of hearing canals. Few months ago I have started the process of reconstructing my outer ears. Three years before that, I was implanted with Bonebridge - absolutely amazing device. If I can ask you, what was the reason that your son got the Soundbridge, and you - the Bonebridge? If I have understood you well, you both have - unilateral microtia/atresia.. ? Regarding the BB, you're gonna love it - you'll see it! [emoji6] If there is anything I can help - just shoot! Sent from my EVA-L09 using Tapatalk
  24. Ok, most obvious difference is that these are 2 completely different generations of cochlear's system: Synchrony is the newest: http://www.medel.com/int/show4/index/id/1468/title/SYNCHRONY/ with Synchrony as the implant and Sonnet as the speech processor. , and Maestro is older: http://www.medel.com/products-maestro-components/ It is consisted of Concerto or Sonata internal inplant and Opus as the speech processor. Triformance combines three technologies as the prerquisites to get better results of the implantation: complete cochlear coverage, fine tuning and atraumatic electrodes which minimize not to deviate any aspect as the foundation for a thorough rehabilitation. [emoji6][emoji3] Sent from my EVA-L09 using Tapatalk
  25. Julesrdh, you asked whether you should implant the affectd ear which has deafened years ago or newly deafened ear? Or you are considering bilateral implantation? Sent from my EVA-L09 using Tapatalk
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