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Ivana Marinac

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  1. Thanks
    Ivana Marinac got a reaction from Rabindra sahoo in Hat tip - how to protect your device   
    Nice tip
     

  2. Like
    Ivana Marinac got a reaction from Kylie in Seeking Implanted Musicians...   
    Mary Beth,
     
    Ci surgeons are mostly mechanics. That's why I have quoted Dr. Limb who is otosurgeon, musician and researcher in the same time. Most of people are satisfied with present state of any advancement - this doesn't mean that is not beyond that - they are just lack of creativity and imagination.
    Music Cochlea Festival is started at the initiative of other great otosurgeon, dr. Henryk Skarzynski. 
     
    On the other side, I would like to write you - don't take them so offensive, they are just seeking better results for everyone. I wouldn(t sleep well if we would say that their job is done. Try to think in that direction.
  3. Haha
    Ivana Marinac reacted to VeroNika in Newbie from the US   
    Oh, and now I just saw, that after rewriting the post I added it to another topic than intended, sorry...? This post of mine was meant for the Australian new post...but maybe it'll help here as well?however I will ty to get it to the other post as well...?
  4. Thanks
    Ivana Marinac reacted to VeroNika in Newbie from the US   
    Oh no. I just wrote a nice reply and now it's a gone! Hm. Will start again....
    So: Welcome @Little_chooky to Hear Pears!! I'm sorry to hear about your sudden hearing loss!! As @Mary Beth mentioned I am single sided deaf (SSD) on my left ear as well. I was born with regular hearing, turned deaf around age 3,5 (unknown virus) and was not fitted with hearing aids for the next 18 years as it was believed that my hearing nerve is damaged.long story short: my nerve is fine and thus I got my cochlea implant aged 21 and am a very happy CI user since 2011! ? So I know both sides pretty well - living with SSD  with no assistance as well as using a CI. So what are you most interested in at the moment - getting to know more about coping strategies I use(d) or how and to what extent the CI is helping me in my daily life? Just let me know and I'll do my best to assist!  ? However I am Austrian - as Ausreians we often get confused with Australia so there is a habit of t-shirts saying "no cangaros in Austria" ? - so please bear with my english... ?
    Cheers & all the best, Veronika
  5. Like
    Ivana Marinac got a reaction from Jewel in Newbie from the US   
    @Debbie from US
    hello again, 
    pardon me for not involving myself before for a response.....
    Mary Beth was on the path I wanted to explain, you are a classic (up to now) patient for a single CI which would really revive your hearing on the affected side.
    I stand behind this although Prof.Tucci is on the other side - she’s really a giant in this world of implant technology. 
    But, I have seen people fron the U.S. getting unilateral CI - I don’t quite understand your conditions but I have taught that everything is not possible only - if it is not tried.
    Regarding me, I am “the expert” because I wear them now more than 5 years. My professional skills (I am an ENT in Europe) allow me to understand the problem from the scientific and health side, but financial part is pretty cloudy for me.
    My indication for the implantation was a classic conductive hearing loss. Regarding you, there is no doubt you will have certain benefits, although I am known for “chasing the stars” so I always prefer the best possible, not the best accessible solution for a patient.
    Good luck - please let us now a out your experiences! 
    If there is anyhow I can help..... please, just ask!
  6. Like
    Ivana Marinac got a reaction from Kara of Canada in Newbie from the US   
    @Debbie from US
    hello again, 
    pardon me for not involving myself before for a response.....
    Mary Beth was on the path I wanted to explain, you are a classic (up to now) patient for a single CI which would really revive your hearing on the affected side.
    I stand behind this although Prof.Tucci is on the other side - she’s really a giant in this world of implant technology. 
    But, I have seen people fron the U.S. getting unilateral CI - I don’t quite understand your conditions but I have taught that everything is not possible only - if it is not tried.
    Regarding me, I am “the expert” because I wear them now more than 5 years. My professional skills (I am an ENT in Europe) allow me to understand the problem from the scientific and health side, but financial part is pretty cloudy for me.
    My indication for the implantation was a classic conductive hearing loss. Regarding you, there is no doubt you will have certain benefits, although I am known for “chasing the stars” so I always prefer the best possible, not the best accessible solution for a patient.
    Good luck - please let us now a out your experiences! 
    If there is anyhow I can help..... please, just ask!
  7. Like
    Ivana Marinac got a reaction from Mary Beth in Will the implant give more volume on the side it's on?   
    Hello Funky!
    can you be more specific about the type of your hearing loss? Sensorineural, conductive or mixed? Also, if you know any value of your hearing loss threshold - it would help enormously to tailor the best answer for you.
    in short, don’t worry - it is even louder than it is in a technical details of the device. There said up to 45dB, I have used it for a five full years with a bilateral conductive hearing loss of 65dB average.
    you don’t worry it will be louder since fittings are superb, also after a period of getting use - your brain will adapt both on the quality of sound as well as on the intensity.
    if you have a healthy other ear and without significant damage of the ear which is intended for an implantation - yes, you will be able to tegain directionality. 
    If the other ear is damaged, or this is has a dignose of single-sided deafness - than no: one side-hearing is not enough. 
  8. Like
    Ivana Marinac got a reaction from Mary Beth in First ever Med-El Meetup in Innsbruck, Austria   
    Yes! London Reunion! ??
  9. Like
    Ivana Marinac got a reaction from Mary Beth in Newbie from the US   
    @Debbie from US
    hello again, 
    pardon me for not involving myself before for a response.....
    Mary Beth was on the path I wanted to explain, you are a classic (up to now) patient for a single CI which would really revive your hearing on the affected side.
    I stand behind this although Prof.Tucci is on the other side - she’s really a giant in this world of implant technology. 
    But, I have seen people fron the U.S. getting unilateral CI - I don’t quite understand your conditions but I have taught that everything is not possible only - if it is not tried.
    Regarding me, I am “the expert” because I wear them now more than 5 years. My professional skills (I am an ENT in Europe) allow me to understand the problem from the scientific and health side, but financial part is pretty cloudy for me.
    My indication for the implantation was a classic conductive hearing loss. Regarding you, there is no doubt you will have certain benefits, although I am known for “chasing the stars” so I always prefer the best possible, not the best accessible solution for a patient.
    Good luck - please let us now a out your experiences! 
    If there is anyhow I can help..... please, just ask!
  10. Like
    Ivana Marinac reacted to Mary Beth in First ever Med-El Meetup in Innsbruck, Austria   
    @Ivana Marinac
    My privilege and honor to meet you, my dear friend, as well.  Looking forward to a reunion!
  11. Like
    Ivana Marinac got a reaction from Mary Beth in First ever Med-El Meetup in Innsbruck, Austria   
    It was incredible - like you dream something and than puf! It happens!
    To meet a person in live with whom you’ve exchanged so many HP and PM messages and - you’ve never seen each other... - Just imagine....
    it was my privilege and honour to meet you, Mary Beth!
  12. Like
    Ivana Marinac got a reaction from Mary Beth in Newbie from the US   
    Huh, well... Hello Debbie,
    there are few problems before making any conclusion.
    1. How low is your hearing threshold at the affected ear?
    2. Are your symptoms yet visible (and hearable) at just one ear?
    To make an explanation behind my questions:
    1. A hearing threshold is goong up and down, and we still don’t know how much it will go down in certain presentation.
    2. Meniere could be uni-lateral, but also there are very often bilateral cases of presentation and, to be honest - these presentations frequently are not synchronous. This mean, at first is affected one ear and then it reveals on the other.
    I am writing this at first to underline the importance of careful evaluation of proper implant in a - measure of time.
    Second, and lighter part of the story:
    depending of how low your hearing threshold is now, you can expect the summation of hearing effects. People who has a really bad hearing loss reported that has certain improvement, especially in loud settings of bars and restaurants.
    If ear is not deaf 100% you can have the ability of direction also.
    From the aspect of difference between BAHA and Bonebridge - although I was not given a choice, I would choose Bonebridge again simply because I have never had any side-effect common much frequently (since with BB it is 0%) with BAHA: in situ infection, sticking out of head, urge to be careful with sport activities, no water-activities with BAHA (there’s no water-resistant cover on the market). 
    If there are further questions - please, just ask! ??
  13. Like
    Ivana Marinac got a reaction from Mary Featherston in First ever Med-El Meetup in Innsbruck, Austria   
    It was incredible - like you dream something and than puf! It happens!
    To meet a person in live with whom you’ve exchanged so many HP and PM messages and - you’ve never seen each other... - Just imagine....
    it was my privilege and honour to meet you, Mary Beth!
  14. Like
    Ivana Marinac got a reaction from Kara of Canada in First ever Med-El Meetup in Innsbruck, Austria   
    It was incredible - like you dream something and than puf! It happens!
    To meet a person in live with whom you’ve exchanged so many HP and PM messages and - you’ve never seen each other... - Just imagine....
    it was my privilege and honour to meet you, Mary Beth!
  15. Thanks
    Ivana Marinac reacted to Mary Beth in Parent of a child with single side deafness - Introduction   
    Hello @Loresh and welcome to HearPeers!
     
    @Ivana Marinac has bonebridge do I am tagging her for you.
    Wishing Daniel the very best on his hearing journey.
  16. Like
    Ivana Marinac reacted to Mary Beth in Parent of a child with single side deafness - Introduction   
    No need for apologies at all.  We are a friendly group.  Welcome.
  17. Thanks
    Ivana Marinac got a reaction from Nikki in Seeking Implanted Musicians...   
    This is specially for - Tim:  
    Accurate Guitar Tuning by Cochlear Implant Musicianshttp://journals.plos.org/plosone/article?id=10.1371/journal.pone.0092454
  18. Like
    Ivana Marinac got a reaction from Mary Beth in Samba   
    Yes, and yes!
    Nothing without the audiologist and - a special wire for it.
    There is no looped theatres in Croatia and I do not really need it so I’ve never asked for it.
    However, I could imagine that sound in my head: cristal clear without any interference...
  19. Like
    Ivana Marinac got a reaction from Mary Beth in Samba   
    Hello folks,
    to finally drop in as I have promised to Mary who signaled me to pm to revive me from the Sleeping Beauty mode.
    Let’s work - not making excuses...
    At first, @Hils27 Before Samba, the actual processor was Amade: you must thought on that when you mentioned VS, because the VS is the whole system: outer and inner part, but Samba and amade are - the outer.
    Secondly, using of remote control when you have two implants is that you put it in the median line, right beneath the chin. Doing like this you can navigate with both Sambas at the same time.
    Regarding echoing, it’s almost always the matter of the proper fitting. Did you test your Sambas in the free field speech audiometry.
  20. Like
    Ivana Marinac reacted to Mary Beth in Adhear questions and answers   
    @Mary Featherston
    Is Bryan in the USA?  I am not sure that BoneBridge is available in the US, even though it has been available in other countries for quite some time.  Some people in the US have gone to Canada I believe to receive one.  Med-El has a self pay center in Toronto I believe.  I think it is called Hear Life.  They have a few at different places around the world.
  21. Like
    Ivana Marinac reacted to Mary Featherston in Adhear questions and answers   
    @Ivana Marinac - I wasn't aware that your hearing loss is conductive.  Thanks for all the input!  I was trying to figure out, for Bryan, what the difference between Bonebridge and a BAHA is.  Can  you help me with that?
  22. Like
    Ivana Marinac got a reaction from Mary Featherston in favorite WOW moments   
    Hello Gang,
    Although I was never completely deaf my situation is different - even when I had my hearing aid, everything sounded melt into one big bowl of porridge.
    First WOW sound is definitely when I have heard (right after the activation) a difference when my Doc started clicking on a keyboard right beside a sound speaker - Rolling Stones were on.... 
    Second WOW was the next day - after a night call, off-duty team passes a status to the next - on-duty team. A high ceiling room with a catastrophic acoustic where I could never differ 2 voices - suddenly I could understand 2 or even 3 discussions between. This was and will be such an exquisite moment for my lifetime...
    Third WOW was definitely hearing a rain outside with closed windows.
    Fourth I have such urge to describe as I am an extreme music lover - hearing a symphonic orchestra and having the ability to differ a separate instrument. Hearing an organ or harp in this big mess... Unforgettable... 
  23. Like
    Ivana Marinac got a reaction from Mary Featherston in Adhear questions and answers   
    Hi @Mary Featherston,
    I use regularly on a daily basis Bonebridge since I was a bit reluctant toward the quality of BAHA BP100 when I have tried it several years before the BB.
    As an active person who does a lot of sport, I was reluctant toward the idea of having the abutment system.
    In the meantime, I have received a Bonebridge and could not be happier and satisfied both with the quality of sound but also not having any kind of usual issue with BAHA system. However, BAHA was and still is a valuable principle because it has learned the scientific community the value of the osseointegration process as well as new pathways of spreading bone conduction sound.
    I have tried Adhear, and as you told - it is a valuable alternative to bone conduction systems since they need to be implanted under general or local anesthesia with postop issues, at least in your mind. Having said that, I have to underline that the sound quality is different - not worse but more like the powered version of hearing aid. Much more powered. 
    Yet, it catches practically everything and it requires a user to behave a lot more active during differing the sound signal. With my BB, I do not need to do that - as my local bank says: We offers, you just live!
    Of course, I haven`t worn it for a longer period of time, perhaps I would adjust, perhaps not after having the BB experience. But it is really valuable alternative toward the necessity of having a surgery as well the fact that children might not be suitable or they become suitable to have an implantation after becoming 5 years old. Hearing pathways are more prone to develop since the day 1 up to two years old. At least, developing a binaural hearing processing. 
  24. Like
    Ivana Marinac reacted to Mary Beth in Adhear questions and answers   
    Great to see you here @Ivana Marinac!
  25. Like
    Ivana Marinac got a reaction from Mary Beth in Adhear questions and answers   
    Hi @Mary Featherston,
    I use regularly on a daily basis Bonebridge since I was a bit reluctant toward the quality of BAHA BP100 when I have tried it several years before the BB.
    As an active person who does a lot of sport, I was reluctant toward the idea of having the abutment system.
    In the meantime, I have received a Bonebridge and could not be happier and satisfied both with the quality of sound but also not having any kind of usual issue with BAHA system. However, BAHA was and still is a valuable principle because it has learned the scientific community the value of the osseointegration process as well as new pathways of spreading bone conduction sound.
    I have tried Adhear, and as you told - it is a valuable alternative to bone conduction systems since they need to be implanted under general or local anesthesia with postop issues, at least in your mind. Having said that, I have to underline that the sound quality is different - not worse but more like the powered version of hearing aid. Much more powered. 
    Yet, it catches practically everything and it requires a user to behave a lot more active during differing the sound signal. With my BB, I do not need to do that - as my local bank says: We offers, you just live!
    Of course, I haven`t worn it for a longer period of time, perhaps I would adjust, perhaps not after having the BB experience. But it is really valuable alternative toward the necessity of having a surgery as well the fact that children might not be suitable or they become suitable to have an implantation after becoming 5 years old. Hearing pathways are more prone to develop since the day 1 up to two years old. At least, developing a binaural hearing processing. 
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