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Ivana Marinac

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  1. Like
    Ivana Marinac got a reaction from Cara Mia in Ready for the second round   
    One giant step for me, but a minor for humanity!  - to paraphrase the famous sentence...:) - I went through the first phase of the bilateral outer ear reconstruction. This is one of the most important reasons why I have waited with a second implant: unfortunately, there is a sequence what comes before and what after....
    Mary Beth and Adam followed me on that road by messaging me and supported me online.. Who could not wish such a thoughtful friends?
  2. Like
    Ivana Marinac got a reaction from Mary Beth in New to Heer Peers, Hello from Delaware!   
    Thank you, Megan - for your kind welcoming ticket to this interesting party.
    He-he... Interesting story and how the character of Batman was created but I use it mostly because of this particular detail of showing time.
    Can't believe it - what a tiny small world is this one... But, yes - Croatian people can be found everywhere: we are great wanderers. Just like that, I hope you'll have opportunity to visit Croatia. This part of Europe is quite interesting....
    Regarding my implant status - I feel as I am reborn, but not just as human being than as a person. How much more information you can process and understand other's attitude, as well as their behaviour when you can - hear them properly. Recently I had a short episode of returning to my history, to my HA. I remember that I have dream once before - whether I have just persuaded myself that my Bonebridge is so much better or this is the real thing....? Then I got a chance to test myself - trying to communicate with my HA. Ahhh.... what a difference this was - regarding sound but also regarding the vibrations which were so hard that I craved for shutting it down... Used it only for the most essential and shortest possible communication. Also, as I am an ENT doctor, BB gave me opportunity to meet so many interesting people on various conferences all over the world: met different people, different continents (not just countries), even the developer of Soundbridge and Bonebridge, Geoffrey Ball and others. I felt a huge honor to get the opportunity to understand the world of hearing on one side trying to describe the world of silence, on the other side. 
    My hearing loss is the consequence of a congenital syndrome which gave me bilateral atresia combined with microtia regarding hearing issues. As well as you, I do not have memory of how is it really to hear a certain sound, but I cherish music a lot, and this I would miss at most... I guess. My decision for implant was pure necessity so I could continue to work. With a digital hearing aid, I was only half functional - it tired me a lot because of constant hearing fatigue which arouse almost each afternoon. I have constant urge to shut it off - I knew this wasn't right. When I wore it, I imagined how it would be great just not have it at all....
    How did you decide for your implantation? How come it wasn't earlier?
    I came here in order to find someone whom I could talk about Bonebridge, but it actually continued in much more different way. I got interested for the world of CI when I started to read lines of my friends, their observations partly guided me on my way toward better hearing as I didn't have someone just like me; on the other hand, I have started to develop my professional interest for CIs which has now prolonged into part of my afterwork activities of helping in an association of CI's implantees. Like it a lot - so much ideas. This enriched my life - we all, secretly, ask for some elementary answers or understanding in our lives: hearing people, no matter how compassionate they could be - can not understand that but are those who participate in our treatments, research activities etc. It's time for hearing impaired people to stand for themselves...:)
    Ok... Rambled a lot - I guess I slept extremely well...
  3. Like
    Ivana Marinac reacted to Valentin in Adult rehab tips page 1   
    Here some MED-EL apps for Android.
    https://play.google.com/store/apps/details?id=com.medel.auditory.lite
  4. Like
    Ivana Marinac reacted to Valentin in Interesting read on extending battery life   
    Thank you Ivana. I bougth Rayovac (Implant Pro). I will comment my experience in a month.
  5. Like
    Ivana Marinac reacted to Kara of Canada in Ready for the second round   
    One step closer Ivana? 
  6. Like
    Ivana Marinac reacted to Megan L. in Yoga and Pilates after Surgery   
    No matter how random, please do continue to share! Some of the best conversations come from a random, wild, weird hobby or thought ??
  7. Like
    Ivana Marinac reacted to Megan L. in New to Heer Peers, Hello from Delaware!   
    Hi Ivana, 
    Great to formally meet you! I hear only the best things about Croatia. My roommate in college was from Croatia and she showed me pictures of your beautiful country. I would love to visit one day!!!
    Who doesn't love Batman?! A great hero ? I love when people jump into conversations, it makes it so much more interesting!
    Amazing! How are you liking the bone bridge implant? My mom thought that would work for me but my hearing loss was too severe. The implant is doing the trick ? I too grew up hard of hearing. When I was 2 and a half, I was really sick with chicken pox and shortly after I loss part of my hearing. Two fistula operations later I had a severe/profound loss. My left ear was my worse and has since been implanted. I have no regrets about anything- this is my normal ?  I'm looking forward to the new journey and new open doors the implant brings me! 
    I'm incredibly thankful for this forum as I spent my entire life by myself as a hard of hearing person. It's so nice to be able to talk openly about things/struggles and people understand. Amazing support!
    sleep tight Ivana and we'll talk soon ?
  8. Like
    Ivana Marinac reacted to Megan L. in New to Heer Peers, Hello from Delaware!   
    Valentin I think your English is great for it being your second language! Your vocabulary will expend just from talking to all of us ? I went to school with international students and it was so exciting to watch how they progressed through the English language over the course of a year. Keep up the good work!
    For the IPad issue - is there anyone you know that might lend you theirs for a short amount of time? I borrowed my mom's IPad. If you can, it will definitely be worth it. 
    I'm happy your journey is going well too Valentin ? Exciting times right now!!!
  9. Like
    Ivana Marinac reacted to hadron in New to Heer Peers, Hello from Delaware!   
    Hi Valentin and Megan,
    I am glad to see you are moving forward after activation. Around a month or two post activation you are usually given a booth listening test with simple sentences in a quiet environment by your audiologist.
    To prep for this Hearing in Quiet Test a good recommended approach is to do aural rehabilitation with ABClix, as Mary Beth suggested. It helps you develop an ability to hear the difference in words by understanding vowels and consonants. There are 35 levels of hierarchy which  include practice with hearing in noise which you should postpone to later.
    After you have the booth test the results are discussed with you. An audiogram may be created for you. It shows your hearing loss in dB over the frequencies. Your initial results give you a baseline you can compare with future tests. 
    Hearing in noise and to music are the biggest challenges for CI users. It is easy to get discouraged by the struggles you have on a daily basis in these environments and dwelling on what you can't hear.
    Every CI user has faced this situation. While I was facing it I met an emininent CI researcher and I thought surely he can help me. I discussed my inability to hear in noise with him and he sympathized with me. He wished he could borrow my ears so he could hear exactly what I hear, which would focus his research but alas he can't. He told me to try not to dwell on my inability to understand and instead appreciate what I do understand and work hard to improve my understanding by doing aural rehab and using the coding strategies he and other researchers are developing. I try to follow his advice but it can be daunting.
  10. Like
    Ivana Marinac got a reaction from Kara of Canada in New to Heer Peers, Hello from Delaware!   
    Hello Megan,
    Writing you from the other part of the Globe - Europe is my playground and Croatia is my homeland where I live and work
    I usually jump into the pool while you're sleeping or going in the bed so my posts appear just like Batman wrote them 
    I am not a CI than a bone conduction implantee - Bonebridge which is also one of the Med-ELs product from the portfolio. I am moderately bilaterally hearing impaired since birth grew up and made my whole education with one HA which has distinguished place in my heart for giving me opportunity to function almost as the normal person. On the other side, my Bonebridge gave me a completely new dimension of understanding and enjoying my everyday life as well as enjoying to work. I got chance to meet incredible people in real as well as people here at the forum who became my friends by supporting me in my lonely days. To quote Kara: we smiled, laughed and supported each other - we learn by reading our experiences and talking about them... We understand our utmost feelings and fears on that feeling....:)
    Time for bed!   mine... 
  11. Like
    Ivana Marinac got a reaction from Cara Mia in Yoga and Pilates after Surgery   
    Arghhh... I have potentials in some of wildest and weirdest hobbies - (re)thinking (and philosophizing) is one of them although today sadly forgotten or not used as well as these arts should be.
  12. Like
    Ivana Marinac got a reaction from Cara Mia in Yoga and Pilates after Surgery   
    Well girls - pardon me for jumping into the pool, perhaps you can make a guide for (re)starting yoga exercises after the implantation... I am pretty sure this could be helpful to a bunch of people...;)
  13. Like
    Ivana Marinac got a reaction from Cara Mia in Giving thanks   
    Dear U.S. crew - I wish you a pleasant Thanksgiving Day!
    I grew up watching the American movies about this important holiday for you - for my people, it will be the Christmas.
    Also, radio-guy shocked us that at one high-way near L.A. passed 49 millions vehicles to get their homes! 
    Everyone of us can be proud on our decision but also for participating here to help those who are coming behind us. In a world where we live, people usually forget the importance of little things in their lives. In Denmark this is called - hygge rituals. 
    However - have a great dinner today!
  14. Like
    Ivana Marinac got a reaction from Cara Mia in Ready for the second round   
    Hello Cara,
    Glad to see that you're ok now.
    I haven't been here for awhile... I went for a surgery also - as a predecessor of my possible bilateral implantation. So, it was very interesting to read few lines about your bilateral hearing experience. 
    As for the "reaction" - I am not sure it was allergic reaction because, at first, you didn't react on the antihistamine; secondly, reaction was way to late after the surgery...
    I suspect that it was definitely kind of a reaction, most likely something you touched because you reacted to the prednisone....
    Anyway, glad you had such a great switching on the second system  
    Hope for reading more of your observations about bilateral experience....:P
  15. Like
    Ivana Marinac got a reaction from Cara Mia in New to Heer Peers, Hello from Delaware!   
    Hello Megan,
    Writing you from the other part of the Globe - Europe is my playground and Croatia is my homeland where I live and work
    I usually jump into the pool while you're sleeping or going in the bed so my posts appear just like Batman wrote them 
    I am not a CI than a bone conduction implantee - Bonebridge which is also one of the Med-ELs product from the portfolio. I am moderately bilaterally hearing impaired since birth grew up and made my whole education with one HA which has distinguished place in my heart for giving me opportunity to function almost as the normal person. On the other side, my Bonebridge gave me a completely new dimension of understanding and enjoying my everyday life as well as enjoying to work. I got chance to meet incredible people in real as well as people here at the forum who became my friends by supporting me in my lonely days. To quote Kara: we smiled, laughed and supported each other - we learn by reading our experiences and talking about them... We understand our utmost feelings and fears on that feeling....:)
    Time for bed!   mine... 
  16. Like
    Ivana Marinac got a reaction from Mary Beth in Yoga and Pilates after Surgery   
    Arghhh... I have potentials in some of wildest and weirdest hobbies - (re)thinking (and philosophizing) is one of them although today sadly forgotten or not used as well as these arts should be.
  17. Like
    Ivana Marinac got a reaction from Megan L. in Yoga and Pilates after Surgery   
    Arghhh... I have potentials in some of wildest and weirdest hobbies - (re)thinking (and philosophizing) is one of them although today sadly forgotten or not used as well as these arts should be.
  18. Like
    Ivana Marinac got a reaction from Megan L. in New to Heer Peers, Hello from Delaware!   
    Hello Megan,
    Writing you from the other part of the Globe - Europe is my playground and Croatia is my homeland where I live and work
    I usually jump into the pool while you're sleeping or going in the bed so my posts appear just like Batman wrote them 
    I am not a CI than a bone conduction implantee - Bonebridge which is also one of the Med-ELs product from the portfolio. I am moderately bilaterally hearing impaired since birth grew up and made my whole education with one HA which has distinguished place in my heart for giving me opportunity to function almost as the normal person. On the other side, my Bonebridge gave me a completely new dimension of understanding and enjoying my everyday life as well as enjoying to work. I got chance to meet incredible people in real as well as people here at the forum who became my friends by supporting me in my lonely days. To quote Kara: we smiled, laughed and supported each other - we learn by reading our experiences and talking about them... We understand our utmost feelings and fears on that feeling....:)
    Time for bed!   mine... 
  19. Like
    Ivana Marinac reacted to Mary Beth in Battery Life   
    And skin flap thickness.  It is best to test batteries for yourself and find out how long they last.  There are many different opinions and experiences when it comes to batteries.
  20. Like
    Ivana Marinac reacted to Megan L. in Yoga and Pilates after Surgery   
    Yesssss all so interesting Ivana! Thank you for explaining and sharing ? It's always fun to learn something new!
  21. Like
    Ivana Marinac reacted to Mary Beth in Giving thanks   
    Thank you Ivana
  22. Like
    Ivana Marinac reacted to Mary Beth in rehab for 2 months, but .....   
    I never would've realized how different things sound either until I experienced it.  I've learned a lot from my CI experience.
  23. Like
    Ivana Marinac got a reaction from Megan L. in New to Heer Peers, Hello from Delaware!   
    literally Kara... Best actions cause - best feelings...
     
  24. Like
    Ivana Marinac reacted to Kara of Canada in New to Heer Peers, Hello from Delaware!   
    Yes Megan! I'm enjoying life with sound!! I absolutely love my implant. I can hear music again. I can talk on the phone again. Even regular conversations I don't have to ask everyone to repeat themselves every time. I go for my one year mapping in december. I will likely hear then weither they are going to do the second implant surgery or not. So I'm excited about that. This is the best group of people I have ever met. We (as crazy as it sounds!) have laughed and cried together. We have learned so much from each other. I feel like a kid in school again as we have learned so much together. So believe me when I say this you're in the right place!!! ❤️
  25. Like
    Ivana Marinac reacted to Mary Beth in New to Heer Peers, Hello from Delaware!   
    At the end of a countdown and ready for the beginning of a wild, crazy, life-changing ride.  Enjoy your journey 
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