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Ivana Marinac

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  1. Like
    Ivana Marinac reacted to Mary Beth in Getting help when traveling internationally   
    @leighf
    When we are traveling internationally and experience problems with our processors, how do we get assistance? 
     
    thank you
  2. Like
    Ivana Marinac reacted to Kay in activity after Implant surgeryy   
    Thanks Ivana. Since I have arranged for a sub to fill in I can do whatever I need to do, go, don't go, help or just sit. The meeting is at my sisters house so it's almost like home.  
  3. Like
    Ivana Marinac got a reaction from Cara Mia in Very confused need help :(   
    Hi Salman,
    Due to the process called neuroplasticity which literally means exercising your brain like your muscles, your hearing abilities improves each day. You have to work hard however, but - only strong succeeds.
    Today there are so many succesful but also there will always be averaged stories - I would underline that this depends on the amount of invested effort. A healthy but less activated brain forgets words, occasions, people - even music etc. But wonderful part is that like it goes away - it returns also. You do have to work not however - this is an useful mantra.
  4. Like
    Ivana Marinac got a reaction from Mary Beth in I am so scared please help.   
    Hi @Renachelw,
    your questions are perfectly justified - patient should choose to go for a surgery when a maximum of confidence has been reached with a surgeon: both objectively or subjectively. After surgery we feel broke and sometimes even a small amount of pain made us to focus on it. I have seen lots of situation when people needed just a little support to endure their procedures. Although, I am not as @Adam regarding the number of surgical interventions - I have had lots of and ... to be frankly, it's like cleaning your house: when everything has its shelf - everything will go better. 
    But, to be more specifical: list of side-effects of the op is an legal act - not just that a doctor protects against you than it works reversely. How? An informed patient can work with innerself. I am telling you as a patient but also from the surgeon's perspective.
    Meningitis - an opening into a cochlea will be done, no matter what is done to prevent that, there's a chance for that. 
    Facial nerve damage depends of patient's anatomy - sometimes it could be closer to a extremely tiny space to approach a cochlea: a direct hit today is unlikely, but a reversible impairment because of tissue damage (of temporal bone) also could happen - but it's highly unlikely. On top of that, today a facial nerve monitors are presented in each otosurgical OR and it's highly unlikely to damage it permanently. Same works for a "taste nerve", or as Hadron said - for chorda tympani. However, this nerve has greater anatomical variation and although more often it's reaction is as a consequence of surrounding tissue damage, sometimes it can be hit directly. 
    For a closing, don't think about these minor percentages - if you're scared, you will never flip a new page in your life. Leave that side of worry to your surgeon - he is surely competent to do an implantation: CI ops are not spot where you start your career than only high-skilled surgeons can qualify to do this task.
    Good luck!
  5. Like
    Ivana Marinac got a reaction from Cara Mia in I am so scared please help.   
    Hi @Renachelw,
    your questions are perfectly justified - patient should choose to go for a surgery when a maximum of confidence has been reached with a surgeon: both objectively or subjectively. After surgery we feel broke and sometimes even a small amount of pain made us to focus on it. I have seen lots of situation when people needed just a little support to endure their procedures. Although, I am not as @Adam regarding the number of surgical interventions - I have had lots of and ... to be frankly, it's like cleaning your house: when everything has its shelf - everything will go better. 
    But, to be more specifical: list of side-effects of the op is an legal act - not just that a doctor protects against you than it works reversely. How? An informed patient can work with innerself. I am telling you as a patient but also from the surgeon's perspective.
    Meningitis - an opening into a cochlea will be done, no matter what is done to prevent that, there's a chance for that. 
    Facial nerve damage depends of patient's anatomy - sometimes it could be closer to a extremely tiny space to approach a cochlea: a direct hit today is unlikely, but a reversible impairment because of tissue damage (of temporal bone) also could happen - but it's highly unlikely. On top of that, today a facial nerve monitors are presented in each otosurgical OR and it's highly unlikely to damage it permanently. Same works for a "taste nerve", or as Hadron said - for chorda tympani. However, this nerve has greater anatomical variation and although more often it's reaction is as a consequence of surrounding tissue damage, sometimes it can be hit directly. 
    For a closing, don't think about these minor percentages - if you're scared, you will never flip a new page in your life. Leave that side of worry to your surgeon - he is surely competent to do an implantation: CI ops are not spot where you start your career than only high-skilled surgeons can qualify to do this task.
    Good luck!
  6. Like
    Ivana Marinac got a reaction from hadron in I am so scared please help.   
    Hi @Renachelw,
    your questions are perfectly justified - patient should choose to go for a surgery when a maximum of confidence has been reached with a surgeon: both objectively or subjectively. After surgery we feel broke and sometimes even a small amount of pain made us to focus on it. I have seen lots of situation when people needed just a little support to endure their procedures. Although, I am not as @Adam regarding the number of surgical interventions - I have had lots of and ... to be frankly, it's like cleaning your house: when everything has its shelf - everything will go better. 
    But, to be more specifical: list of side-effects of the op is an legal act - not just that a doctor protects against you than it works reversely. How? An informed patient can work with innerself. I am telling you as a patient but also from the surgeon's perspective.
    Meningitis - an opening into a cochlea will be done, no matter what is done to prevent that, there's a chance for that. 
    Facial nerve damage depends of patient's anatomy - sometimes it could be closer to a extremely tiny space to approach a cochlea: a direct hit today is unlikely, but a reversible impairment because of tissue damage (of temporal bone) also could happen - but it's highly unlikely. On top of that, today a facial nerve monitors are presented in each otosurgical OR and it's highly unlikely to damage it permanently. Same works for a "taste nerve", or as Hadron said - for chorda tympani. However, this nerve has greater anatomical variation and although more often it's reaction is as a consequence of surrounding tissue damage, sometimes it can be hit directly. 
    For a closing, don't think about these minor percentages - if you're scared, you will never flip a new page in your life. Leave that side of worry to your surgeon - he is surely competent to do an implantation: CI ops are not spot where you start your career than only high-skilled surgeons can qualify to do this task.
    Good luck!
  7. Like
    Ivana Marinac reacted to Mary Beth in activity after Implant surgeryy   
    Hi Kay and I am excited that your second CI surgery is approaching.  My recommendation is to swap hosting months with another member.  Why have that concern hanging over you when you should just be focused on recovering?  That's my two cents.  If you are up to it, you can attend it.  If not, no problem.
  8. Like
    Ivana Marinac got a reaction from Sandy in I am so scared please help.   
    Hi @Mitchell - from, now a bit an ancient Bonbridge user: 4 years has passed and I had an anniversary yesterday - the day when the other part of my life has begun.
  9. Like
    Ivana Marinac reacted to Mary Beth in Dr J   
    I knew you would remember the stethoscope @Ivana Marinac!  Smile
  10. Like
    Ivana Marinac reacted to Mary Beth in Dr J   
    Welcome and wishing you the best.  We have had topics on here about stethoscopes with CIs.  Let me tag @Ivana Marinac because I bet she recalls the stethoscope that was recommended.
     
    I do have friends with Med El who have had 3.0 MRIs.  Fortunately I have not needed an MRI since being implanted.  I have an internal Concert implant on one side and an internal Synchrony implant on one side so I am limited to 1.5 MRI due to the Concert.
  11. Like
    Ivana Marinac reacted to dsmerritt in bonebridge for left sided deafness   
    Thank you for clarifying Ivana!
  12. Like
    Ivana Marinac reacted to Adam in Almost missed my anniversary   
    Hello all,
    dealing with all of this brain surgery stuff, I almost let an important anniversary slip by. 
    6 years ago yesterday, I recieved my first implant. It has been a wild ride and I would not change a thing.
    Thank you Medel for completely changing my life.
  13. Like
    Ivana Marinac got a reaction from Barbara in CI Surgery under Local Anaesthetic   
    Hello Janet,

    yes - it is possible, it was developed for markets where anasthesiologist is very expensive or there are lack of them. Yes - this can happen...

    All in all, personally - you have to be very stable person. Psychologically, at first place.
    No, you really do not feel anything if local anastetic is given in appropriate dosage and at exact spot.
    You really,, really, reeeally have to be fearless to go through this process...

    Sent from my EVA-L09 using Tapatalk


  14. Like
    Ivana Marinac got a reaction from Julesrdh in Very Very Very Regret I Had This CI Surgery   
    Yes, indeed...
  15. Like
    Ivana Marinac got a reaction from Julesrdh in Nervous !   
    Awesome - how little things can make big changes...

    Also, Julesrdh - [emoji1360]


    Sent from my iPhone using Tapatalk
  16. Like
    Ivana Marinac reacted to Kara of Canada in scott's intro   
    Of course we are all bionic Ivana!! ?
  17. Like
    Ivana Marinac got a reaction from Megan L. in scott's intro   
    So, let me jump as last in the pond? [emoji3]

    Hearing loss in general has its common parts but also specificities. We all learn one from each other. At first, let me excuse myself because of my spoken English - I am not English native, I do not even live in English speaking territories.
    I came here conducted purely by my professional interest - I am an ENT doc but my intention is not giving medical advices than learning from other people's experiences, possibly to give some scientific observations in exchange.

    Of course, not to forget - as a bilateral conductive hearing impaired person, I am implanted with one Bonebridge hoping for another. Or perhaps Soundbridge...
    This means that we have mutual understanding that everybody can help in some segment. For instance, your advices at workplace could also help me although we have different types of hearing losses - some things still unites us. [emoji6]
  18. Like
    Ivana Marinac reacted to Mary Beth in Hi there! Musician who probably needs CI   
    Search for clinical trials like this one using Med-El in SSD adults.  I have seen several studies for adults.
     
    https://clinicaltrials.gov/ct2/show/NCT02532972
  19. Like
    Ivana Marinac reacted to Mary Beth in Hi there! Musician who probably needs CI   
    Sam,
     
    If you do not get approval through your insurance, you may want to check out clinical trials with Med-El and SSD.  That may be an alternative route to getting a CI.
  20. Like
    Ivana Marinac reacted to Mary Beth in Nervous !   
    Contact Med-El.  They have books geared for young children called Mellie Gets Her Ears or something like that.  It has great info. It is also available to download on Med-El's website.  They have books for older kids too but they don't explain the implant process.
  21. Like
    Ivana Marinac got a reaction from Mary Beth in Hi there! Musician who probably needs CI   
    Hello Sam,

    About rehabilitating single-sided-deafened ear professionals started to discuss 2 or 3 years ago.
    The longest worry was how shall the brain integrate different sounds from both sides: the one which hears normal and the other - deafened.
    Practice has shown us that science was cautious (maybe even too much) but now we're sure that, thankfully to the process of neuroplasticity, your brain will be able to understand these signals equally.
    Of course, normal hearing we have - only once, but bilateral hearing add not just quality of sound than funcionality of sound-directionality. These things are not something what we should just forget about. Not to mention the biggest problem fir you - tinnitus, which patophysiology was long-time (even now still is) riddle for hearing and neuro-scientists.


    Sent from my iPhone using Tapatalk
  22. Like
    Ivana Marinac got a reaction from Sherri in It's official   
    Well, welcome the U.S. to a crowd of countries already eligible for the implantation....
    You have been waiting 2nd mic, but got another type of CI... Interesting institution - that FDA....
  23. Like
    Ivana Marinac got a reaction from Mary Beth in Gotta love the FDA   
    Sweet thoughts you have, girls...[emoji3]

    Sent from my EVA-L09 using Tapatalk


  24. Like
    Ivana Marinac reacted to Kara of Canada in Gotta love the FDA   
    Lol! Which took careful planning I'm sure!! 
  25. Like
    Ivana Marinac reacted to Cara Mia in Gotta love the FDA   
    Won't be surprise if that changes were something like "Don't insert your fingers into electric outlets"
     
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