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Hi all, I am from melbourne in Australia. I’m new here - I lost my hearing on my left side 2 months ago (profound loss) after an ear infection. I now have tinnitus as well. Ive been told it’s most likely permanent but have to wait a couple more months before I could look at implants. Would be keen to hear any tips on coping with single sided deafness / if you are considering CI or if you already have one and found it has helped. Cheers Caroline
Recap: Meniere's wiped out last good ear in March, Repeated steroids failed to recover permanent hearing and the Cochlear implant was the only option to re-enter the hearing world.. Implanted on July 17th, activated on August 1st with the Rondo and the Sonnet. It's been nearly 4 months of chasing the proverbial carrot on a stick. I still cannot watch TV other than CC and that is stressful on scripted shows and damn near impossible on live shows of any type. Music is nothing but thumping for the most part with no detection of words or melodies. I've had the processors replaced on both the Rondo and the Sonnet and the Quattro because of suspected malfunctions. I've had a second surgery to repair a hole in the eardrum after the initial implant, cause uncertain. My audi has tried tweaking the program at least 6 times so far and it will sound better in her office at the time but usually deteriorates by the time I get home. Usually I have at least one other program setting to try Present: I'm only somewhat "hearing functional" in a quiet, one-on-one setting. At least my wife and I can communicate without the portable white boards we used during the total deaf stage. Multiples of people, or any recreational or shopping environment pretty much puts me on the sidelines of life. Communicating with doctor's offices, commercial businesses, servers, cashiers or clerks is way too challenging way too often. Sometimes I just nod and hope I get what I wanted. The sounds that I hear in any setting vary on a hour to hour basis, to being muddled, echoed (sometimes booming), raspy, tinny, and sometimes almost usable. I never know which unsavory characteristic(s) is/are going to rear it's ugly head on rising or after lunch or after supper or just reading or working/playing on the computers. Extended exposure to family or friends gatherings wears me down physically and mentally and dramatically deteriorates the clarity of the sounds associated with the event. The audi has "suggested" that maybe the Meniere's is at the root of the problem but no suggestions as to what to do about it. Her advice from our last visit was to keep doing the exercises from the paper handouts she provided which seem way to easy and unproductive for my current challenges. Another challenge is kitchen noises. When my wife is doing anything in the kitchen, it sounds like she's doing a total demolition with crowbars and jackhammers. It is so painful at times that I remove my processor until the destruction is complete. This may be what they call "recruitment" or "hyperacusis". I experienced some of this prior to the Meniere's and subsequent implant but nowhere near the decibel level that it is now. And finally, just to complement the frustrations of the hearing problems, I hear this "ghost" sound with or without the processors like someone singing or chanting. I describe it as Tennessee Ernie Ford attempting to sing opera. Conclusion: I don't think some of the issues I'm having are usual and customary and I'm not seeing any real progress on addressing them and I'm losing my patience, perseverance, and urge to practice. Anyone out there have any similar complaints or suggestions???