Peter JR Posted December 9, 2016 Report Share Posted December 9, 2016 Hello All, Fresh to the forum, my 3 year old daughter is getting bilateral MED-EL Implants on Wednesday morning for use with the Sonnet Processor. She has progressive hearing loss due to Connexin 26 and her audiogram shows a decline over the last year leading to her now being severe in one ear and severe/profound in the other although we believe it got a bit worse recently. We are getting retested prior to surgery to ensure we have a baseline and we can know how much existing hearing has been retained post surgery. We are a mixture of nervous and scared paired with excited and optimistic for her future hearing, can anyone offer any advice or tips for our family on the surgery and recovery. Many thanks, Pete Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/ Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted December 9, 2016 HearPeers Heroes Report Share Posted December 9, 2016 Wishing your child the very best. Button tops so nothing over her head. Favorite toys while waiting. Please let us know how everything goes. When will she be activated? Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13577 Share on other sites More sharing options...
Guest Posted December 12, 2016 Report Share Posted December 12, 2016 Hi Peter, Welcome to the MED-EL family! We have this blog article that you may find helpful to think about some of the topics involving the surgery: http://www.medel.com/blog/42-questions-ask-hearing-implant-surgery/ If you have any questions don't hesitate to ask. Also if you haven't already checked out our blog I'd recommend having a look. On Fridays we post about rehabilitation topics with helpful tips on how to help your child. There are hundreds of articles now on the blog so it's definitely worth a look. Have a great week and all the best to your daughter! Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13584 Share on other sites More sharing options...
Peter JR Posted December 12, 2016 Author Report Share Posted December 12, 2016 Hi Mary Beth and Bhodgson, Mary Beth, thanks for responding and we have the button top Pyjamas at the ready. We will have toys and a Tablet there before and after, all rules on screen time and treat food will be put on hold as we just want her to be as comfortable and happy as possible after surgery. She should be activated around the 14th of January, I will post after the surgery and let you know how it went. Bhodgson, I will have a look at the blog now, it seems as surgery draws closer I am reading more and more to seek stories on the long term benefits, I suppose to comfort myself and help reassure it is the right step for our daughter. Pete Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13585 Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted December 12, 2016 HearPeers Heroes Report Share Posted December 12, 2016 Pete, It was the best decision ever for me. Feel free to ask any questions you may have. Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13589 Share on other sites More sharing options...
Peter JR Posted December 15, 2016 Author Report Share Posted December 15, 2016 Hi Mary Beth and Bhodgson, My daughter came out of surgery yesterday very groggy but it was successful with no problems. They managed to get 10/12 contacts on left ear and 12/12 on the right which I believe is quite good (reading up on this now). She took the pressure bandage off herself this morning which as very scary but we were happy to see no blood and everything was very neat. We will now try to keep her occupied and her little fingers away for the stitches but I feel now we are on the way up again. Next Wed is her check up and hopefully then she can wear her hearing aids till activation on the 10th of January. Pete Cara Mia 1 Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13604 Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted December 15, 2016 HearPeers Heroes Report Share Posted December 15, 2016 Great news Pete! Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13605 Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted December 16, 2016 HearPeers Heroes Report Share Posted December 16, 2016 Great news!! Glad to hear all went well!! Best of luck on your journey. Quote Link to comment https://forum.hearpeers.com/topic/1425-advice-before-and-after-surgery-for-a-3-year-old/#findComment-13615 Share on other sites More sharing options...
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