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Advice Before and After Surgery for a 3 year Old


Peter JR
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Hello All,

Fresh to the forum, my 3 year old daughter is getting bilateral MED-EL Implants on Wednesday morning for use with the Sonnet Processor. She has progressive hearing loss due to Connexin 26 and her audiogram shows a decline over the last year leading to her now being severe in one ear and severe/profound in the other although we believe it got a bit worse recently. We are getting retested prior to surgery to ensure we have a baseline and we can know how much existing hearing has been retained post surgery.

We are a mixture of nervous and scared paired with excited and optimistic for her future hearing, can anyone offer any advice or tips for our family on the surgery and recovery.

Many thanks,

Pete

 

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  • HearPeers Heroes

Wishing your child the very best.  Button tops so nothing over her head.  Favorite toys while waiting.  Please let us know how everything goes.  When will she be activated?

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Hi Peter,

Welcome to the MED-EL family! We have this blog article that you may find helpful to think about some of the topics involving the surgery: http://www.medel.com/blog/42-questions-ask-hearing-implant-surgery/
If you have any questions don't hesitate to ask. Also if you haven't already checked out our blog I'd recommend having a look. On Fridays we post about rehabilitation topics with helpful tips on how to help your child. There are hundreds of articles now on the blog so it's definitely worth a look.

Have a great week and all the best to your daughter!

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Hi Mary Beth and Bhodgson,

Mary Beth, thanks for responding and we have the button top Pyjamas at the ready. We will have toys and a Tablet there before and after, all rules on screen time and treat food will be put on hold as we just want her to be as comfortable and happy as possible after surgery. She should be activated around the 14th of January, I will post after the surgery and let you know how it went.

Bhodgson, I will have a look at the blog now, it seems as surgery draws closer I am reading more and more to seek stories on the long term benefits, I suppose to comfort myself and help reassure it is the right step for our daughter. 

Pete

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  • HearPeers Heroes

Pete,

 

It was the best decision ever for me.  Feel free to ask any questions you may have.

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 Hi Mary Beth and Bhodgson,

My daughter came out of surgery yesterday very groggy but it was  successful with no problems. They managed to get 10/12 contacts on left ear and 12/12 on the right which I believe is quite good (reading up on this now). She took the pressure bandage off herself this morning which as very scary but we were happy to see no blood and everything was very neat. We will now try to keep her occupied and her little fingers away for the stitches but I feel now we are on the way up again. Next Wed is her check up and hopefully then she can wear her hearing aids till activation on the 10th of January.

Pete

 

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  • HearPeers Heroes

Great news!! Glad to hear all went well!! Best of luck on your journey. 

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