Peter JR Posted January 12, 2017 Report Share Posted January 12, 2017 Hi All, After recovering from surgery our daughter had her implant activation on Tuesday this week (10th). She has since woken up and night each night and refused to get back in bed, does anyone have any experience in children's behaviour post implants? It would be good to get opinions and find out whether this is simply the actions of a 3 year old and unrelated.. Many thanks, Pete Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/ Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 12, 2017 HearPeers Heroes Report Share Posted January 12, 2017 After activation when I removed the processor at night, I heard strange and bizarre tinnitus. That happened after new MAPs too until my auditory system settled down. If that is happening to your daughter, it may make her feel uneasy. It was a temporary experience for me. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13735 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted January 13, 2017 HearPeers Heroes Report Share Posted January 13, 2017 Hard to say - does she say anything about it? Can you ask her directly - children usually know to describe in their own words the episode which is happening to them... Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13762 Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 15, 2017 HearPeers Heroes Report Share Posted January 15, 2017 Peter it could be tinnitus, she could also still be sore on the incision site that said, I would touch base with her doctor and let them know what she is doing. They know her health history best and should help you figure things out. Please let us know how she is doing. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13870 Share on other sites More sharing options...
HearPeers Heroes Valentin Posted January 15, 2017 HearPeers Heroes Report Share Posted January 15, 2017 Sometimes when I support the head toward the side where is located the implant, I suffer dizziness. I cannot get up. I can only look up or lean to the other side for a few minutes until the dizziness passes. Perhaps something similar is happening your daughter and she don't know how explain it. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13890 Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 15, 2017 HearPeers Heroes Report Share Posted January 15, 2017 Valentin that is not a typical reaction. I would touch base with your audiologist and surgical team to let them know what problems you are experiencing. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13892 Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 15, 2017 HearPeers Heroes Report Share Posted January 15, 2017 Valentin, I agree with Adam. I would contact my surgical team. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13893 Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted January 16, 2017 HearPeers Heroes Report Share Posted January 16, 2017 I have had my implant for one year. I still cannot sleep on that side. If I do pressure builds up and it feels like an infection. Luckily last time I did fall asleep on that side it wee r away almost immediately after I turned over. I have mentioned it to my audiologist she didn't say much other than some people never sleep on an implanted side again. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13916 Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 16, 2017 HearPeers Heroes Report Share Posted January 16, 2017 I haven't heard of that problem so far out from surgery. If you prefer sleeping on that side, you can buy a ring pillow. It is a foam material which is round with a hole in the middle. Looks like a donut. when you lay your head on it, position the implant in the center of the ring so it isn't touching anything. I used one right after my surgery and it worked great. Julesrdh 1 Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13932 Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted January 17, 2017 HearPeers Heroes Report Share Posted January 17, 2017 Thanks Adam. Mary Beth has mentioned it before. I just sleep on the other side and my back. Works ok for me. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13942 Share on other sites More sharing options...
HearPeers Heroes Kara of Canada Posted January 17, 2017 HearPeers Heroes Report Share Posted January 17, 2017 Thanks Adam. Mary Beth has mentioned it before. I just sleep on the other side and my back. Works ok for me. Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13943 Share on other sites More sharing options...
HearPeers Heroes Adam Posted January 17, 2017 HearPeers Heroes Report Share Posted January 17, 2017 sounds good Kara. Couldn't remember if it was mentioned or not Quote Link to comment https://forum.hearpeers.com/topic/1441-sleeping-after-activation/#findComment-13951 Share on other sites More sharing options...
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