bigguns Posted March 28, 2013 Report Share Posted March 28, 2013 Hi everyone! There is only 2 of us registrated in this forum. Regula and me. Where is everyone? I would love to get more input from other people with BB. And especially from atresia patients. /Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/ Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted March 29, 2013 HearPeers Heroes Report Share Posted March 29, 2013 Hi Frederik, Perhaps forum should be better advertised on their webmail - I have found it only after thorough research each link. Where did you get that information? Seems to me, still little bit too big number.... For instance you are the first in Scandinavia since last August, are there any others? What can your supplier/audiologist say about their satisfaction? Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-420 Share on other sites More sharing options...
Regula Posted March 29, 2013 Report Share Posted March 29, 2013 Hi Fredrik I do know of a few others who have received BB in Germany. They have a discussion site on Facebook, which has mostly Vibrant Soundbridge and some BB users. Do you read and write German? Most of the users in the Facebook group would probably not be very comfortable with the English language. Regula Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-422 Share on other sites More sharing options...
bigguns Posted March 30, 2013 Author Report Share Posted March 30, 2013 Nice work Regula! But no ,Germany is not my language. /Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-424 Share on other sites More sharing options...
Janine6 Posted March 31, 2013 Report Share Posted March 31, 2013 Do I count as the 3rd.... I'm having mine next Monday :-) Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-426 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted April 1, 2013 HearPeers Heroes Report Share Posted April 1, 2013 Hi Regula, I do speak&write in German - small country...heh.. Can you put a link here? Possibly it will help to others who came here.... Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-428 Share on other sites More sharing options...
bigguns Posted April 7, 2013 Author Report Share Posted April 7, 2013 Hi Frederik, Perhaps forum should be better advertised on their webmail - I have found it only after thorough research each link. Where did you get that information? Seems to me, still little bit too big number.... For instance you are the first in Scandinavia since last August, are there any others? What can your supplier/audiologist say about their satisfaction? The audiologists can not share info between eachother then to me, bacuse of confidentiality. Therefore its impossible for me to get in contact with other BB´s in Sweden, atleast through the audologists. /Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-467 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted April 8, 2013 HearPeers Heroes Report Share Posted April 8, 2013 Hi Frederik, Perhaps forum should be better advertised on their webmail - I have found it only after thorough research each link. Where did you get that information? Seems to me, still little bit too big number.... For instance you are the first in Scandinavia since last August, are there any others? What can your supplier/audiologist say about their satisfaction? The audiologists can not share info between eachother then to me, bacuse of confidentiality. Therefore its impossible for me to get in contact with other BB´s in Sweden, atleast through the audologists. /Fredrik Mmm.... I have to say this is little bit tricky - it is ok respecting somebody else confidential status but maybe people would like to share their experiences... In my country we connect people - of course, if they want but you can find it out by asking, wright? Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-474 Share on other sites More sharing options...
bigguns Posted September 16, 2013 Author Report Share Posted September 16, 2013 Hi again! I have now got information there is 19 persons that got the Bonbridge in Sweden. There is 4 with atresia. Would love to see one of them here. /Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2144 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 17, 2013 HearPeers Heroes Report Share Posted September 17, 2013 Of course Fredrik, perhaps to try to raise their attention over your audiologist or surgeon? How are you doing lately? Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2154 Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 18, 2013 HearPeers Heroes Report Share Posted September 18, 2013 My audi cannot share any infomration about any patients she has. What i have doen is offered my contact information. she will give it to them and let them decide if they want to contact me or not. maybe give your contac info top your audi and tell them they are free to share with any prespective patients Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2159 Share on other sites More sharing options...
bigguns Posted September 19, 2013 Author Report Share Posted September 19, 2013 Of course Fredrik, perhaps to try to raise their attention over your audiologist or surgeon? How are you doing lately? Ï´m doing fine. A lot of private stuff to handle right now. BB is working. Next Week on wednesday i´m going to a technology exhibition in Stockholm about miscellaneous hearing aids. All Swedish suppliers of hearing aid are there.I´m meeting the swedish tech guy from MedEL there and i have begged him to bring the sofwere with him so we can sort a couple of things out. My best /Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2174 Share on other sites More sharing options...
bigguns Posted September 19, 2013 Author Report Share Posted September 19, 2013 My audi cannot share any infomration about any patients she has. What i have doen is offered my contact information. she will give it to them and let them decide if they want to contact me or not. maybe give your contac info top your audi and tell them they are free to share with any prespective patients In Sweden the audies have 100% confidentiality. I've mentioned it before in one thread. My best/Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2175 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 19, 2013 HearPeers Heroes Report Share Posted September 19, 2013 Of course Fredrik, perhaps to try to raise their attention over your audiologist or surgeon? How are you doing lately? Ï´m doing fine. A lot of private stuff to handle right now. BB is working. Next Week on wednesday i´m going to a technology exhibition in Stockholm about miscellaneous hearing aids. All Swedish suppliers of hearing aid are there.I´m meeting the swedish tech guy from MedEL there and i have begged him to bring the sofwere with him so we can sort a couple of things out. My best /Fredrik Well, in my opinion he should provide to you best answers to your question regarding your expectations. I am also going next week to the HQ in Wien where I hope I will have opportunity to sort some issues with Med-El engineer. From my point of view there is lack of deep tones - when I make certain sound it is perfectly clear because for the first time I can hear clearly high tones but at the same time I can clearly say that I miss part of the sensation - deep tones, bass for instance. Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2178 Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 20, 2013 HearPeers Heroes Report Share Posted September 20, 2013 Ivana, what do you mean you "miss" the deep tones like BASS. You dont hear it at all or it sounds muted? Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2182 Share on other sites More sharing options...
HearPeers Heroes Sandy Posted September 20, 2013 HearPeers Heroes Report Share Posted September 20, 2013 I'm the same as Ivana. I still don't hear many bass tones. More high pitch. With the new processor it sounds clearer and sharper but am still getting way too many ambient sounds that I don't want to hear. I can even hear the fridge kicking in now. This is new. I see the audiologist at the end of October and I'm starting to think that what I'm now hearing is all part of the evolution in this journey. One step forward and two back? All the annoying sounds were starting to go away and now they've returned plus the tinnitus is at the forefront today. Tomorrow will be a better day. Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2184 Share on other sites More sharing options...
simekj Posted September 21, 2013 Report Share Posted September 21, 2013 Sandy have you tried turning the volume up to see if that makes any difference? it is different to HA. I found I was hearing less bass but also less clarity so i just turned up the volume to see what that would do. I was concerned the two loud stray trebles would increase too but that did not seem to happen, but I did get more bass and a lovely stereo surround sound. Just worth a try. It may not work. you can always turn it down. Sometimes it was 'loud' or 'intense' but my brain adjusted over time. Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2190 Share on other sites More sharing options...
HearPeers Heroes Sandy Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 Thanks Karen, I will give it a try. Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2191 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 Ivana, what do you mean you "miss" the deep tones like BASS. You dont hear it at all or it sounds muted? Hard to explain - of course, I do hear them but not the way I used to hear them. For instance, crumpling the paper - it sound... too soft I would say... Possibly...muted, yes - I think this is the right term! And high tones are loud enough, possibly even too much - we have an elevator in the hospital: it squeals. A lot. I heard it before of course but now high pitch tones are so strong that my ears literally ache. On the other side, I have opportunity to hear some music on one BOSE speaker last week - I definitely hear bass and other deep tones but there is no such pleasure like I heard it before. For instance, the song of Guns n' Roses, November Rain has symphonic orchestra and when you hear it loud it has power, you feel strength... Now I do not feel that - I hear all middle and high tones, what Axl sings (this I couldn't understand before) but there is no pleasure of deep tones. Enough. This was the reason why I liked many rock songs - because of their strength and power. On the other side I have clearly got clearer classic art, "surround" music like Enya's or Loreena McKennit's which is wonderful, but ... I still miss good old rock stuff in whole spectrum. I do not think that I could loose it, although I know that BB, according to the measuring, is best from 1-3 or so kHz. I still can not differ whether this is the limitation of the device or 1st tuning. Thinking in progress.... Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2192 Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 Dont worry Ivana, a lot of hearing people cant understand Axel. I do like that song and had forgottten about it, maybe I'll add that to the list. Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2195 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 Dont worry Ivana, a lot of hearing people cant understand Axel. I do like that song and had forgottten about it, maybe I'll add that to the list. I adore that song However, Axl is not the problem - these supressed tones are. I do not compare it with my lat digital HA than my analog HA. Upf, that was the device! If I could pair that lower part of the spectrum with BB - that would be hell of the implant! Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2198 Share on other sites More sharing options...
HearPeers Heroes Adam Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 I read somebody today who described it sounding like a person was talking into a cup. might be totally different than what you are dealing with but found that description interesting Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2199 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 21, 2013 HearPeers Heroes Report Share Posted September 21, 2013 What? BB? Didn't understand you 100%... Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2202 Share on other sites More sharing options...
bigguns Posted September 23, 2013 Author Report Share Posted September 23, 2013 Ivana! I have wrote about this before, there is , as you say, built in limitation. There isn´t much goingh under 200 hz and there is A LOT bass information under 200 hz. To sort out any distrotion. Listen to this freqvens sveep with a good set of speakers. (not built in lap top speakers) My Amadé distorted from exactly 2800 hz and all the way upp to 8000hz where it cut´s off, as it should. Between 6 to 8 khz there was also unwanted feedback. like "oouuuuiiiiiiiiiiiiiiiiiii". This is is not sorted out by MedEl yet, why. But only way to solve the problem is to set the Amad´e for input level 4. (remember where you heard this the first time) Show this message to your tech guy and he will explain to you abot the 4 input levels. good luck / Fredrik Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2209 Share on other sites More sharing options...
HearPeers Heroes Ivana Marinac Posted September 23, 2013 HearPeers Heroes Report Share Posted September 23, 2013 Ok, Fredrik - but I still do not understand what is the connection between level 4 input level and the (in)ability of Amade to listen under 200 Hz? Quote Link to comment https://forum.hearpeers.com/topic/151-now-over-200-surged-with-bb-in-the-world/#findComment-2213 Share on other sites More sharing options...
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