HearPeers Heroes Jewel Posted November 11, 2017 Author HearPeers Heroes Report Share Posted November 11, 2017 Thanks @Mary Beth Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes hadron Posted November 11, 2017 HearPeers Heroes Report Share Posted November 11, 2017 @Jdashiell can you recommendcan audiologist at U Miami CI center for @Jewel. Also which surgeon(s) have you used? Thanks. Jewel 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 11, 2017 Author HearPeers Heroes Report Share Posted November 11, 2017 @hadronThanks! I am leaning towards Dr Eshragi for the operation. I would appreciate @Jdashiellrecommending an audiologist. I plan to request the appointments on Monday. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes hadron Posted November 11, 2017 HearPeers Heroes Report Share Posted November 11, 2017 @Jewel Eshraghi is a great choice. I have heard good things about audiologist Diane Martinez. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 11, 2017 Author HearPeers Heroes Report Share Posted November 11, 2017 Just looked up Dr Martinez. I will request an appointment with her. Thanks @hadron Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 11, 2017 HearPeers Heroes Report Share Posted November 11, 2017 On 11/10/2017 at 3:39 PM, Mary Beth said: @Jewel I think @Jdashiell , @hadron and @KittKatz may know names of well respected CI surgeons in Florida. UMiami is very good. Well respected group of excellent CI surgeons and AUDs. I see Dr Adrien Eshraghi md and Dr Alicia Restrepo AuD Dr. Restrepo is young but very knowledgeable. Although she was assigned to me, I am impressed with her capabilities. Dr. Eshraghi has done extensive research on my case and has had communication with MedEl to develop special implant electrode array for me I feel very lucky to have him in my corner! I hope to get a new surgery date soon, waiting to hear Dec 1 Mary Beth, KittKatz, hadron and 1 other 4 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 11, 2017 Author HearPeers Heroes Report Share Posted November 11, 2017 Very nice @Jdashiell. So how long did it take you to do all the tests and have meetings with docs at UMiami to reach this point? Quote Link to comment Share on other sites More sharing options...
KittKatz Posted November 11, 2017 Report Share Posted November 11, 2017 I had University of Miami doctors both of my surgeries ttrough the VA. I had Dr. Eschragi my first ear and Dr. Dinh from my second ear. They have a great program and a great mentoring system there. I don’t think you can go wrong with any of their doctors. If you happen to be in Tampa Tampa hearing and balance center supposed to be one of the best Mary Beth, hadron and Jewel 3 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 12, 2017 Author HearPeers Heroes Report Share Posted November 12, 2017 Unfortunately going to Tampa would mean two planes! @KittKatz Thanks. I am feeling comfortable with my decision to do it at UMiami. Quote Link to comment Share on other sites More sharing options...
KittKatz Posted November 12, 2017 Report Share Posted November 12, 2017 Miami was closer for me too. It would’ve been a 5 hour drive each way. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes hadron Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 Tampa Bay Hearing and Balace is very good. Drs. Bartels and Danner. UnIversity of Florida at Gainesville has the distinguished surgeon Dr. Antonelli. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 3 hours ago, Jewel said: Very nice @Jdashiell. So how long did it take you to do all the tests and have meetings with docs at UMiami to reach this point? I have been three times so far - each visit 2 hrs or less. I may have to do more before my next restoration surgery last visit to AuD remapped with huge improvement- I return next week for follow up Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 @Jdashiell The huge improvement you noticed from your last MAPping, do you know what changes your audiologist made to your MAPs that helped you so much? Was this the first time that audiologist created a MAP for you? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 12, 2017 Author HearPeers Heroes Report Share Posted November 12, 2017 So you're getting a second CI? @Jdashiell Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 First surgery 2016 was on right side Working great especially with new maps that increased loudness/volume 1 year later second surgey on left ear failed to get more than 6 of 12 electrodes in the cochlea so a another surgey was attempted to repair it this time only 5 of 12 were implanted so I switched Drs and am now at UMiami to correct this Dr. Eshraghi has done more reconstruction surgeries and I am confident he will resolve this for me. MedEl is developing a special electrode array implant for this case. We believe there is some form of obstruction that needs to be passed . I will know more soon. December 1 I will call to see if the new implant is ready and a surgery date can be set . Mary Beth, hadron, Jewel and 1 other 4 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 12, 2017 Author HearPeers Heroes Report Share Posted November 12, 2017 @JdashiellSorry to hear about the issues experienced with installing the second implant. I hope you're successful the third time around. Med-El appears to be very customer friendly. Glad that the first CI is working well! I hope I will be as fortunate. Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 Is this your first CI? If so, I highly recommend getting an MRI done. My new CI surgeon said if I had come there first he would have had an mri done and I would not have this problem be aware though that some people cannot have and mri due to previous surgeries that implanted metal devices food for thought best of luck to you Jewel 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes hadron Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 @Jdashiell very interesting. Did Dr. Eshragi say what he could you seen on the MRI ? Possibly an obstruction? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 I agree with @Jdashiell. The pre-operative MRI images alerted my surgeons to the condition of my cochleas and they went into my surgeries aware of some difficulties my cochleas may present. I thought everyone had pre-operative scans. Some doctors use CT scans and others use MRI images. @Ivana Marinac- What are the different things that would show up with each type of image? Is one more readily used for pre-operative images during CI evals? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 12, 2017 Author HearPeers Heroes Report Share Posted November 12, 2017 2 hours ago, Jdashiell said: Is this your first CI? If so, I highly recommend getting an MRI done. My new CI surgeon said if I had come there first he would have had an mri done and I would not have this problem be aware though that some people cannot have and mri due to previous surgeries that implanted metal devices food for thought best of luck to you Yes this is my first CI @Jdashiell. I hope the hospital can give me an estimate of the cost of the tests so I can be sure I can afford it. It's like I'm taking a leap of faith to restore my hearing. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 @Jewel It is a leap of faith for all of us but it is so much more complicated for you since you need to leave your country and your insurance will not cover the costs. I wish it was easier for you. Jewel 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jewel Posted November 12, 2017 Author HearPeers Heroes Report Share Posted November 12, 2017 Thanks @Mary Beth Mary Beth 1 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 2 hours ago, hadron said: @Jdashiell very interesting. Did Dr. Eshragi say what he could you seen on the MRI ? Possibly an obstruction? No I only had CT scans prior to all my surgeries. Then I moved to UMiami and am now seein Dr. Eshraghi. He said if I had come there first I would have had an MRI done prior to surgery and would halve alleviated this problem in the first place Mary Beth and Jewel 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Jdashiell Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 50 minutes ago, Jewel said: Yes this is my first CI @Jdashiell. I hope the hospital can give me an estimate of the cost of the tests so I can be sure I can afford it. It's like I'm taking a leap of faith to restore my hearing. I believe any CI surgery is taking a leap of faith but in my case restoring my hearing is paramount. Mary Beth and Jewel 2 Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted November 12, 2017 HearPeers Heroes Report Share Posted November 12, 2017 @Jdashiell Since you experienced great results with your first CI, you were aware that something was amiss quickly when things did go well with your second CI. It’s good that you have a reference point. Quote Link to comment Share on other sites More sharing options...
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