KBear Posted November 17, 2017 Report Share Posted November 17, 2017 I hope this is the right place. I've been looking for info all day. Sorry this will be long. There are questions and a list of screen results at the bottom. My daughter (DD) will be three in March. She has sleep issues, extreme tantrums, hyperactivity, speech and social delays. She gets frustrated a lot, and doesn't like using her words. Her receptive communication is delayed. She omits the same letters from several words. I'm not sure if she hears certain words. She had two sets of tubes for high fluid, and her adenoids were taken out last month. She has failed the OAE in her L ear since May. She failed OAE in her R ear and both ears on the tympanometry (TY), when she needed tubes. Her follow up for the 2nd set of tubes was yesterday. She failed OAE in L ear. Passed TY on both ears. ENT said ears were clear of wax. She has not had any other mucus draining, or illness since recovering from surgery. He wants to retest in two months. He believes wax is causing it. He would not refer to audiology. Early intervention (EI) and Ped disagreed on waiting. The Ped sent a referral to audiology. ENT did not do a follow up screen after her first set of tubes. ENT is uncooperative with me and EI. He will not discuss screen results, or send them to EI. Only tells us pass or fail. EI's OAE does not go past two failed frequencies. So we only know that DD fails the first two. Ped only has TY. The screen at birth was ABR. I was not present. She had it within hours of the csection. The nurse said she screamed the whole time. From what I've read, the screen may not detect high frequency hearing loss. I read screening too soon after csection birth, or while DD was screaming could give a false result. EI is trying to get those results. All I have is a paper with ABR marked pass, and OAE is crossed out. List of screen results: March 2015 - hospital - ABR pass 2016 - EI and ENT - Numerous failed TY. Could not do OAE. Sept 2016 - First tubes May 2017 - EI - OAE: L failed. TY: both passed. June 2017 - EI - OAE: L failed. TY: both borderline. July 2017 - ENT - OAE: R passed. Could not do L. TY: R borderline. L failed. Aug 2017 - Ped - TY: Both failed. 9/1/17 - EI - OAE: L failed. TY: Both failed 9/20/17 - Ped - TY: Both failed 9/22/17 - ENT - OAE: L failed. TY: Both failed. 11/15/17 - ENT - OAE: L failed. TY: Both passed. Questions. Why does he think it's wax if he can't see any? If it is wax, why did she pass the TY? Why is she only failing in the L ear OAE? Can ABR miss high frequency hearing loss? Especially considering she didn't have an OAE. Would the other factors affect the ABR result? Thank you for reading my novel. I'm worried and frustrated. Any advice is welcome. Quote Link to comment Share on other sites More sharing options...
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.