knappster Posted January 7, 2019 Report Share Posted January 7, 2019 Hi. I became totally deaf very quickly as a result of Meniere's Disease about 5 years ago (age 57) and recieved my CI implant on one side about 6 months after. With the Meniere's, I also suffered and still do, terrible Tinnitus; however, the side that received the CI (Med-el) is not afflicted with that anymore. The non-implanted side is horrible, with various sounds ranging from a screaming Opera singer, loud humming refrigerator, static radio or jet. I would love to have the other side done but that is not possible due to cost as in Ontario, Canada, only one CI is funded by the province. My question: do any of you suffer from tinnitus? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 7, 2019 HearPeers Heroes Report Share Posted January 7, 2019 @knappster I have had tinnitus for decades. I was fortunate to not be too bothered by the sounds except when I was tired or ill. Then they were very annoying. My CIs mask the tinnitus a lot! I wish you could get your second side done. Some people in Canada are able to get a second CI by agreeing to participate in research. Have you discussed that possibility with your CI audiologist? Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 7, 2019 HearPeers Heroes Report Share Posted January 7, 2019 @knappster In the US, it varies depending on health insurance plans but most adults who qualify are able to get bilateral CIs. I will tag you in a topic about bilateral versus unilateral CIs to answer your other question. Wishing you the best. I hope you stick around HearPeers. We are a friendly group. Quote Link to comment Share on other sites More sharing options...
Hicksy Posted January 7, 2019 Report Share Posted January 7, 2019 I had tinnitus that seemed to disappear after single side implant. Sadly about two years post activation, the tinnitus has returned but to a much lesser degree than before, so much so that I don’t usually notice it unless it is really quiet. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Featherston Posted January 7, 2019 HearPeers Heroes Report Share Posted January 7, 2019 I have tinnitus, and have had for decades. When I have my processors (I'm bilateral) on the tinnitus is largely masked, but at night I do hear it. It's just ringing, though, nothing like what you describe, and I'm used to it. The first time I noticed that the ringing wasn't going away was 1973. Quote Link to comment Share on other sites More sharing options...
knappster Posted January 8, 2019 Author Report Share Posted January 8, 2019 MaryBeth, I did speak to my Audiologist regarding going into a Research group but that was not an option in London where I had mine one done. I also heard that Ottawa Hosp was doing them for tinnitus but when I asked them about it they said they only operate on residents. Quote Link to comment Share on other sites More sharing options...
HearPeers Heroes Mary Beth Posted January 8, 2019 HearPeers Heroes Report Share Posted January 8, 2019 @knappster I am sorry getting a second CI is not an option. I wish everyone could be bilateral if they want to be. Quote Link to comment Share on other sites More sharing options...
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